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Mantle cell lymphoma (MCL)
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Sickle Cell Trait
Hi Im 21 years old and have been diagnosed with Sickle Cell Trait when i was seven, I have been experiencing some dizziness a couple days now which is very uncomfortable. It feels as if i am very intoxicated, moving my head and neck in certain directions is extremely discomforting as it feels like if
Hi Im 21 years old and have been diagnosed with Sickle Cell Trait when i was seven, I have been experiencing some dizziness a couple days now which is very uncomfortable. It feels as if i am very intoxicated, moving my head and neck in certain directions is extremely discomforting as it feels like if
Miguelf
in
Sickle Cell Society
7 years ago
18 year old Son Diagnosed with ALD
My son was just recently diagnosed with ALD and will be getting a Bone Marrow transplant soon. We are all very scared and lost right now and if you have any advice we would love to hear it.
My son was just recently diagnosed with ALD and will be getting a Bone Marrow transplant soon. We are all very scared and lost right now and if you have any advice we would love to hear it.
ballml
in
Leukodystrophy Support
7 years ago
Friends and Fans from around the World
I Thank all those for the messages of support at times they can make a huge difference. I am back home now just been watching the highlights of the Final day of the Tour I was there but you can't see everything hey. I had a great time and meet some lovely people, our group had no punctures like all the
I Thank all those for the messages of support at times they can make a huge difference. I am back home now just been watching the highlights of the Final day of the Tour I was there but you can't see everything hey. I had a great time and meet some lovely people, our group had no punctures like all the
TheFlyer
in
CLL Support
7 years ago
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Feeling hopeless
We had moved to another state for my health and he was diagnosed with stage for
mantle
cell
lymphoma
about six months after we moved. I couldn't afford the house and they repossessed our car so I moved into housing for disabled/seniors.
We had moved to another state for my health and he was diagnosed with stage for
mantle
cell
lymphoma
about six months after we moved. I couldn't afford the house and they repossessed our car so I moved into housing for disabled/seniors.
Wolfslove
in
Mental Health Support
7 years ago
Chromophobe renal cell carcinoma treatment
Hi all, My uncle is diagnosed with chromophobe renal cell carcinoma and it has metastasized. He did not have any other health problems earlier. Please suggest the best treatment option, doctor and hospital Thanks,
Hi all, My uncle is diagnosed with chromophobe renal cell carcinoma and it has metastasized. He did not have any other health problems earlier. Please suggest the best treatment option, doctor and hospital Thanks,
nandakishore
in
Cancer Patients Aid Association India
7 years ago
Treatment for Renal Cell Carcinoma
My uncle has recently been diagnosed with Chromophobe Renal Cell Carcinoma. Initially in the biopsy it came as Angiosarcome and then by re-biopsy and IHC it's been confirmed as Chromophobe Renal Cell Carcinoma. Hence it has metasized any effective treatment available? Doctor suggested sutent drug.
My uncle has recently been diagnosed with Chromophobe Renal Cell Carcinoma. Initially in the biopsy it came as Angiosarcome and then by re-biopsy and IHC it's been confirmed as Chromophobe Renal Cell Carcinoma. Hence it has metasized any effective treatment available? Doctor suggested sutent drug.
nandakishore
in
Cancer Patients Aid Association India
7 years ago
Just the facts / In Summer Heat Stay Hydrated - Please
FACT about sickle cell trait "The defect in urine concentrating ability in persons with sickle cell trait is thought to result from intracellular polymerization of Hb S in erythrocytes, leading to microvascular occlusion, in the vasa recta of the renal medulla. Reasoning that the severity of the concentration
FACT about sickle cell trait "The defect in urine concentrating ability in persons with sickle cell trait is thought to result from intracellular polymerization of Hb S in erythrocytes, leading to microvascular occlusion, in the vasa recta of the renal medulla. Reasoning that the severity of the concentration
RadiantSue
in
Sickle Cell Society
7 years ago
Hi I'm new to this group low vitamin B9 folate
Hi I'm new to this group I have slightly low vitamin B9 folate I'm told I was looking it up and this group came up. Can anyone tell me what this means as I have long term health problems too many to mention, I suffer with lots of muscle joint pain and fatigue recently suffered a bout of moderate gastritis
Hi I'm new to this group I have slightly low vitamin B9 folate I'm told I was looking it up and this group came up. Can anyone tell me what this means as I have long term health problems too many to mention, I suffer with lots of muscle joint pain and fatigue recently suffered a bout of moderate gastritis
GillyGangGong
in
Pernicious Anaemia Society
7 years ago
Stem Cell Transplant Research
Trying to find a way to eliminate the need for bone marrow donors ... http://tinyurl.com/y8rm9p6u
Trying to find a way to eliminate the need for bone marrow donors ... http://tinyurl.com/y8rm9p6u
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
Donor identified
It's been a while since my last update but I'm pleased to say that I have a donor lined up for a stem cell transplant. A young man from Germany. I am to stay on Ibruitinin for 6 more months and then good to go.
It's been a while since my last update but I'm pleased to say that I have a donor lined up for a stem cell transplant. A young man from Germany. I am to stay on Ibruitinin for 6 more months and then good to go.
KAS8
in
CLL Support
7 years ago
For those diagnosed with Giant Cell Arteritis - this was tweeted just a few minutes ago
A breakthrough in the treatment of GCA @RheumatologyUK @PMRGCAuk @vascuk Please follow this link https://www.ncbi.nlm.nih.gov/pubmed/28745999
A breakthrough in the treatment of GCA @RheumatologyUK @PMRGCAuk @vascuk Please follow this link https://www.ncbi.nlm.nih.gov/pubmed/28745999
Suzym2u
Vasculitis UK
in
Vasculitis UK
7 years ago
Looking for advice.
Hi. I've just joined this site for two reasons. My daughter has Graves disease. I have primary hyperparathyroidism with possible 4 gland hyperplasia. I had a parathyroidectomy 5 weeks ago with half my thyroid removed during the operation. My daughters blood results are good at the moment but she is only
Hi. I've just joined this site for two reasons. My daughter has Graves disease. I have primary hyperparathyroidism with possible 4 gland hyperplasia. I had a parathyroidectomy 5 weeks ago with half my thyroid removed during the operation. My daughters blood results are good at the moment but she is only
hollyhobbi
in
Thyroid UK
7 years ago
Being a sickle cell
I never knew I was had the SCT trait until I was 15years. I always had pain and fell sick easily with malaria and a times typhoid. And even d sickle cell crisis . It's not easy to be a carrier of this trait but with good diet, medication and love from families and friends, I bliv all is well.
I never knew I was had the SCT trait until I was 15years. I always had pain and fell sick easily with malaria and a times typhoid. And even d sickle cell crisis . It's not easy to be a carrier of this trait but with good diet, medication and love from families and friends, I bliv all is well.
dinah9927
in
Sickle Cell Society
7 years ago
Phenomenal News
Some of you may have seen my recent post inquiring about full remission. The reason is that I have been in full remission since June 2nd without any of my prior symptoms. I have not had one moment of cog fog, muscle spasm, fatigue, numbness, or loss of balance. I have not: changed my diet, changed my
Some of you may have seen my recent post inquiring about full remission. The reason is that I have been in full remission since June 2nd without any of my prior symptoms. I have not had one moment of cog fog, muscle spasm, fatigue, numbness, or loss of balance. I have not: changed my diet, changed my
Karen-x
in
My MSAA Community
7 years ago
Test results
I got my test results back from the CAT scans. I have an enlarged liver, spleen, and borderline heart. Multiple lymph nodes lumps. My white blood cell count is around 19,000, he's sending me to a hematologist. So I still don't know if I have non Hodgkin's lymphoma. What do y'all think? Thank you, so
I got my test results back from the CAT scans. I have an enlarged liver, spleen, and borderline heart. Multiple lymph nodes lumps. My white blood cell count is around 19,000, he's sending me to a hematologist. So I still don't know if I have non Hodgkin's lymphoma. What do y'all think? Thank you, so
Gailbarnes
in
Non Hodgkin's Lymphoma Friends
7 years ago
It's a Nice Day for a White Wedding
Hi Folks , , just a social post to prove that despite my current issues battling my inner GVHD 'friend', there is life after undergoing a Stem cell transplant. My beautiful wife and I attended a Nieces wedding this weekend. It was a casual event as weddings go and very enjoyable. I was keeping everything
Hi Folks , , just a social post to prove that despite my current issues battling my inner GVHD 'friend', there is life after undergoing a Stem cell transplant. My beautiful wife and I attended a Nieces wedding this weekend. It was a casual event as weddings go and very enjoyable. I was keeping everything
JediReject
in
MPN Voice
7 years ago
Checking These Areas for Lumps Can Help Catch Lymphoma Early
https://lymphomanewstoday.com/2017/06/29/checking-neck-armpits-groin-lumps-spot-lymphoma-early/ This video from uses a Barbie doll to demonstrate how lymphoma patients often discover their lumps. During Barbie’s usual beauty routine of shaving, moisturizing and applying fake tan she notices a lump
https://lymphomanewstoday.com/2017/06/29/checking-neck-armpits-groin-lumps-spot-lymphoma-early/ This video from uses a Barbie doll to demonstrate how lymphoma patients often discover their lumps. During Barbie’s usual beauty routine of shaving, moisturizing and applying fake tan she notices a lump
wmay13241
in
Non Hodgkin's Lymphoma Friends
7 years ago
Neutropenia problems - Non-Hodgkins Lymphoma
My sister was diagnosed agressive malignant Non-Hodgkins lymphoma. She had chemotherapy using rituximab viusimilar and bendamusten drugs, after 3 weeks her leucocytes count is 200, the highest she ever had was 600 a couple of days ago, she was told the normal count is between 4000 and 10 000. The hospital
My sister was diagnosed agressive malignant Non-Hodgkins lymphoma. She had chemotherapy using rituximab viusimilar and bendamusten drugs, after 3 weeks her leucocytes count is 200, the highest she ever had was 600 a couple of days ago, she was told the normal count is between 4000 and 10 000. The hospital
gaby1953
in
CLL Support
7 years ago
Iron supplement advice
Hi all, I have low ferritin which I have supplemented using a sachet of spatone a day and brought up from 13 to 26 with the range of 23-300. It is the only vitamin/mineral that's crucial for thyroid function that I'm low in and as I'm still having issues I'd like to try to raise it higher. However, I
Hi all, I have low ferritin which I have supplemented using a sachet of spatone a day and brought up from 13 to 26 with the range of 23-300. It is the only vitamin/mineral that's crucial for thyroid function that I'm low in and as I'm still having issues I'd like to try to raise it higher. However, I
foxrabbit
in
Thyroid UK
7 years ago
62 and feeling alone
Hi I have been treated for the last year for large cell type B lymphoma I have had six chemo treatments and 23 radiation treatments to clear up a couple of small spots on my spine, I am really scared I know nothing about my disease as I have been scare to do any research on my own, I just sit around
Hi I have been treated for the last year for large cell type B lymphoma I have had six chemo treatments and 23 radiation treatments to clear up a couple of small spots on my spine, I am really scared I know nothing about my disease as I have been scare to do any research on my own, I just sit around
Connie621955
in
Lymphoma Canada
7 years ago
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