Sickle Cell Society
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Losing my friends!

Lost another friend to sickle cell two days ago. I have lost over 10 friends now and I am angry, fed up and upset. It's a feeling of helplessness. I don't know who will go next and it's just too painful. I don't know if I did the right thing having kids because I dont want them to lose me. I don't want to lose another friend but I know it will take a miracle for that to happen. Sickle cell anaemia is a torturous life and sometimes it feels so unfair! I am so scared of the future and what is going to happen next.

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I am so very sorry for your loss, you have my condolences. Sickle-cell anaemia is a very serious disease, I think because so many of us manage it so well that sometimes others and even ourselves forget that the disease can be fatal. But I don't think living in fear of the future is healthy or advisable. Everyday should be treated as a blessing, I'm not saying it's easy or that everyday is pain-free but it's another day that you've won and conquered your fear. I know what it means to lose someone to sickle-cell and it hurts like nothing else. So honour their memory, don't live in fear.

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Hi @Anzy thanks for your reply. I do understand that worrying is heathly. Its just so painful seeing your other sickle cell fighters going. It just hurts so much. I try my best to be positive. I have to fight this fight for everyone around me and myself. Keeping well is my number one priority everyday. I am grateful for how far I have come. I am thankful for everyone around me who give me the strength to look forward to tomorrow.

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Hey Keep Your Head Up. I Also have lost Many Friends to Sickle Cell and Yes Very Up Setting n Depressing.. Each Day You Wake is a Blessing. I Remember Back in the Early 80s When Doctors Used to Say 'People with Sickle cell disease Don't Live Past 30yrs n That Used to Have Me Living in Fear n Wanting to Do & Be So Many Things Growing Up But Hey I'm 43 This Yr n Give Thanks Every Day.

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I was once told i wont live to 25. am over 54 now!

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People die everyday.EVERY SINGLE SECOND.SICKLE CELL OR NO SICKLE CELL PEOPLE DIE! Don't let death put you down.PRAY AND EAT WELL AND AVOID UNNECESSARY STRESS AND TAKE GOOD CARE OF YOUR SELF.POSITIVE VIBES ONLY NEVER FORGET THAT.

PS:REALLY SORRY FOR THE LOSS OF YOUR FRIENDS.

THEY ARE ALL IN A BETTER PLACE TRUST ME.

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