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new onset neuropathy
hi Hi since a liver transplant 3.5 months ago I have been getting burning feet esp at night. It has gradually worsened and now I get it during the day with pain and swelling and my hands have kicked off now. It is so bad at times I just can’t walk with the discomfort and pain. I’ve heard it’s due
hi Hi since a liver transplant 3.5 months ago I have been getting burning feet esp at night. It has gradually worsened and now I get it during the day with pain and swelling and my hands have kicked off now. It is so bad at times I just can’t walk with the discomfort and pain. I’ve heard it’s due
Zechariah123
in
British Liver Trust
10 months ago
Join us in your community!
Hi there! My name is Bridget and I'm with the events team here at GO2 for Lung Cancer. We are excited to offer you four, in-person walk/runs we will be hosting this fall around the country for the lung cancer community. Participation is free for anyone who has received a lung cancer diagnosis as well
Hi there! My name is Bridget and I'm with the events team here at GO2 for Lung Cancer. We are excited to offer you four, in-person walk/runs we will be hosting this fall around the country for the lung cancer community. Participation is free for anyone who has received a lung cancer diagnosis as well
bpurchGO2
in
Lung Cancer Support
11 months ago
Keeping track of how you are feeling
When living with cancer, knowing what impact the disease is having on a your life is essential if you are to receive the best care. Your Health Companion is a free specialist app specifically designed for people who have been diagnosed with Lung Cancer. It is much like a private digital diary, that
When living with cancer, knowing what impact the disease is having on a your life is essential if you are to receive the best care. Your Health Companion is a free specialist app specifically designed for people who have been diagnosed with Lung Cancer. It is much like a private digital diary, that
YourHealthCompanion
in
The Roy Castle Lung Cancer Foundation
11 months ago
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Second kidney transplant
Hi, My nephrologist is putting in the application for me to go back onto the transplant list. I am very lucky as I have had my first transplant for over 28 years. My GFR is running at 12. Something I wondered about is do they remove my previous transplant and put the new one in the same place? I
Hi, My nephrologist is putting in the application for me to go back onto the transplant list. I am very lucky as I have had my first transplant for over 28 years. My GFR is running at 12. Something I wondered about is do they remove my previous transplant and put the new one in the same place? I
DoylerOz
in
Kidney Transplant
10 months ago
Severn Bridge 10k - long post warning ⚠️
Everyone else has written brilliant posts on the Race Support Forum but here is version 4 and I’ve put it on the Bridge Forum to give those on the journey to 10k an inkling of the excitement of a 10k race! I have been wanting to do the Severn Bridge 10k for years, having read many race reports by
Everyone else has written brilliant posts on the Race Support Forum but here is version 4 and I’ve put it on the Bridge Forum to give those on the journey to 10k an inkling of the excitement of a 10k race! I have been wanting to do the Severn Bridge 10k for years, having read many race reports by
Dexy5
Graduate10
in
Bridge to 10K
10 months ago
Please join us Tuesday, August 15th, for our Living Room Discussion on “The New Age of Small Cell Lung Cancer: Advancements Bring New Hope”
Hello, Please join us in our San Carlos office Tuesday August 15th in person or if you don’t live in the area, you can also always join us virtually on GO2's YouTube Live channel. Our program topic will be The New Age of Small Cell Lung Cancer: Advancements Bring New Hope. Our guest speaker is Jacob
Hello, Please join us in our San Carlos office Tuesday August 15th in person or if you don’t live in the area, you can also always join us virtually on GO2's YouTube Live channel. Our program topic will be The New Age of Small Cell Lung Cancer: Advancements Bring New Hope. Our guest speaker is Jacob
Michelezeh
Partner
in
Lung Cancer Support
11 months ago
Stage 5 Chronic Kidney Disease (CKD)
Dialysis and kidney transplant are the only two treatments for people with kidney failure. It is also important for patients to continue managing any other health conditions they may have, including high blood pressure and/or diabetes. Learn more at: https://www.kidney.org/atoz/content/stage-5-chronic-kidney-disease-ckd
Dialysis and kidney transplant are the only two treatments for people with kidney failure. It is also important for patients to continue managing any other health conditions they may have, including high blood pressure and/or diabetes. Learn more at: https://www.kidney.org/atoz/content/stage-5-chronic-kidney-disease-ckd
JackieJ_NKF
Partner
in
Kidney Dialysis
10 months ago
*****SUPPORT GROUPS!*****
The next round of Roy Castle online support groups with start at the beginning of September. The groups take place online over Zoom and each last for one hour and are hosted by a trained facilitator. The groups are a great way to get support from your peers, share and recieve information and make connections
The next round of Roy Castle online support groups with start at the beginning of September. The groups take place online over Zoom and each last for one hour and are hosted by a trained facilitator. The groups are a great way to get support from your peers, share and recieve information and make connections
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
11 months ago
Transplant.vs dialysis
Hi. I am going through the process for a kidney transplant. I had my first appointment with the transplant deans was supposed by what he was saying. I felt like he was trying to talk me ougetting a transplant. He told me there was no guarantee a transplant would improve my life more than dialysis.
Hi. I am going through the process for a kidney transplant. I had my first appointment with the transplant deans was supposed by what he was saying. I felt like he was trying to talk me ougetting a transplant. He told me there was no guarantee a transplant would improve my life more than dialysis.
Jade1982
in
Kidney Transplant Patient Support
11 months ago
latest news on liver transplants fo4 young people
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
Harriet-sarah
in
British Liver Trust
11 months ago
Please Join Us! Tuesday August 8th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tuesday, August 8th, at 5pm PT/8pm ET. At this
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. Tuesday, August 8th, at 5pm PT/8pm ET. At this
Michelezeh
Partner
in
Lung Cancer Support
11 months ago
Kidney disease and inheritance.
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
nlee
in
Kidney Transplant
11 months ago
Kidney transplant and children
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
nlee
in
Kidney Transplant Patient Support
11 months ago
Lightheadedness and Knee heaviness/dull pain after kidney transplant
Hi everyone, My client developed lightheadedness after kidney transplant, he's 3 months post transplant now. Actually, he had dizziness and imbalance pre-transplant and it worsen after the transplant. Moreover, he complains of knee heaviness, sometimes with dull pain. His BP is quite stable, not taking
Hi everyone, My client developed lightheadedness after kidney transplant, he's 3 months post transplant now. Actually, he had dizziness and imbalance pre-transplant and it worsen after the transplant. Moreover, he complains of knee heaviness, sometimes with dull pain. His BP is quite stable, not taking
Jeeeemv
in
Kidney Transplant
11 months ago
SUPPORT GROUPS!
We are starting our next round of online support groups this week! If any of the groups sound like they would suit you then please get in touch. All the groups are held over Zoom, last for one hour and are hosted by a trained facilitator. The groups are a great way to give and recieve support whilst
We are starting our next round of online support groups this week! If any of the groups sound like they would suit you then please get in touch. All the groups are held over Zoom, last for one hour and are hosted by a trained facilitator. The groups are a great way to give and recieve support whilst
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
11 months ago
3 months post kidney transplant question
My husband is 3 months post kidney transplant. He is experiencing severe gut issues. Can he take probiotics, Vitamins like fish oil, Turmeric and add more fiber into diet? Regular doctors are not offering ANY assistance. H. pylori and BK came back negative. He is nauseous, gassy and has lost over
My husband is 3 months post kidney transplant. He is experiencing severe gut issues. Can he take probiotics, Vitamins like fish oil, Turmeric and add more fiber into diet? Regular doctors are not offering ANY assistance. H. pylori and BK came back negative. He is nauseous, gassy and has lost over
Loveoflife
in
Kidney Transplant
11 months ago
Dating and kissing for young adults with kidney transplant
Please answer only if you have gone through the same situation. How do you do to avoid rejection when meeting a potential romantic partner? I wear a mask in closed public places. All women I met when they know that I have a kidney transplant start to keep distance and do not give me a chance to
Please answer only if you have gone through the same situation. How do you do to avoid rejection when meeting a potential romantic partner? I wear a mask in closed public places. All women I met when they know that I have a kidney transplant start to keep distance and do not give me a chance to
vision22
in
Kidney Transplant
11 months ago
Heart Transplant
Good morning all, just wanted to know if any has or known some who has had a heart transplant. I have had a serious heart condition for 50 years and became seriously I’ll last year. I am now on the waiting list for a transplant since Jan 23. I suppose the question I’m asking is what it was like ? as
Good morning all, just wanted to know if any has or known some who has had a heart transplant. I have had a serious heart condition for 50 years and became seriously I’ll last year. I am now on the waiting list for a transplant since Jan 23. I suppose the question I’m asking is what it was like ? as
DW4019
in
British Heart Foundation
11 months ago
Have kidney transplant and dr found a intraduct mass on my breast is really small but im so worried
I going through a difficult time here I have a kidney transplant for 22 years just when to get a ultrasound and they found an intraductal mass which is really mass . I did a biopsy and I'm terrified that it could be cancerous. I don't want to know waiting for results is torture for me. I read and did
I going through a difficult time here I have a kidney transplant for 22 years just when to get a ultrasound and they found an intraductal mass which is really mass . I did a biopsy and I'm terrified that it could be cancerous. I don't want to know waiting for results is torture for me. I read and did
jennifer24
in
Kidney Transplant
11 months ago
Tagrisso vs Erlotinib
Hi All, Dad had results of liquid biopsy and EGFR positive, Oncologist has recommended Erlotinib ( NHS treatment). We understand that his diagnosis T4 N2 M0 is non curative but trying to balance quality of life and length; chemo and a standard biopsy were deemed not tolerable for my 89 yr old dad. Silly
Hi All, Dad had results of liquid biopsy and EGFR positive, Oncologist has recommended Erlotinib ( NHS treatment). We understand that his diagnosis T4 N2 M0 is non curative but trying to balance quality of life and length; chemo and a standard biopsy were deemed not tolerable for my 89 yr old dad. Silly
Adaughter
in
The Roy Castle Lung Cancer Foundation
1 year ago
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