Experiences with

Lung transplant

Hi I’m currently going through the process of assessment for liver transplant , I feel like I have done all the appointments. My bilirubin was 180 in 2022 November yes scary it’s now 52 I’m wondering will I not be accepted for a transplant or what happens. I know we can ask our consultants etc but I

Hello, I had my liver transplant just over 6 years ago now and apart from an issue right at the beginning, I have been well. I’ve not even had covid! Recently though I’ve begun to feel very tired again, almost as if I’d never had the transplant at all. My question is, has anyone else experienced chronic

Someone recently asked me about taking Urso after my transplant and the return of the disease for me. I can't find the post but I wanted to answer. I have taken Urso since I was 35 years old. I am now 73. I have had no real problems with it all these years luckily. About 25% of those who have a liver

Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation.

Hi, I was diagnosed in May 2021 with lung cancer, adenocarcinoma, EFGR, I was very breathless, couldn’t eat and fatigued at the beginning. When I had results of lung biopsy, I was told I was suitable to be treated with Tagrisso, a target treatment, daily tablet, this was July 2021. I had few side

I'm just over 9 months kidney transplant from a living donor. I've felt great but I do worry, since it is cold and flu season, about getting sick. Probably my biggest worry at this point. I try to wear masks when I am out and take all precautions. I just wondered though if I should get sick what are

[u]DAY THREE[/u] Well, here is my nightly rambling report from Edinburgh. Hubby was admitted onto the liver transplant / kidney ward yesterday evening and later on after i'd come back to the caravan they inserted his nasal gastric feeding tube - it was a bit of an ordeal for him as they allowed

Hello, everyone! My mom has been at her new dialysis center for about three months, and the doctor and NP assigned to her are pretty terrible. We noticed that a former patient had their own nephrologist who came to the center to go over lab results and handle any dialysis-related issues. That patient

Hi all. I haven't been here for quite a long time so I hope that you are all coping and getting all the help and support you need. This forum helped me so much. Unfortunately, I now have multiple problems because of the lung misdiagnosis and because of negligence by our hospital. Another long story

Hello, Happy New Year! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, January 9th, at 5pm

Well guys, I've had my appointment today at the head and neck cancer clinic.I do not have head & neck cancer on my lungs I have lung cancer of various types in miniscule sizes that are causing me no problems at the moment. I will have 3 monthly ct scan 2 see if they grow if not have anything done, if

Hello: My husband had a liver transplant many years ago and has done very well, for which we are very grateful. Since October of 2023, his creatinine started rising and his egfr started falling. He had blood work done several times since then. He latest egfr is 45, his creatinine is 1.6 and his BUN

Hi all I just want to say what a brilliant site this is and seeing all the different posts with information and experiences people have had is really helpful. I had sort of given up hope of my vision returning in my left eye due to cornea damage after many procedures due to Glaucoma and Uveitis and

First and foremost, I'm still on the lung transplant list and have yet to get another call since being re-added back in April. Frustrating, especially with the baby on the way, but ultimately nothing that I can do about it.

Learn how Houston Methodist is breaking barriers in kidney transplants with education, living kidney donations, and preemptive transplants. Let's spread awareness by reading and sharing this article. https://www.kidney.org/newsletter/turning-hurdles-hope-how-one-hospital-overcomes-kidney-transplant-obstacles

Learn how Houston Methodist is breaking barriers in kidney transplants with education, living kidney donations, and preemptive transplants. Let's spread awareness by reading and sharing this article. https://www.kidney.org/newsletter/turning-hurdles-hope-how-one-hospital-overcomes-kidney-transplant-obstacles

I have a kidney transplant since 2009. I have had 4 ablations on my heart for afib since 2019. It has affected my creatinine adversely at times. I just changed from Flecanide to Propafenone for afib, & we are hoping this will lower my creatinine, which has slowly been increasing since starting the Flecanide

I’m 9 months out from my kidney transplant and all is going well except this month my bloods show my creatinine level went up from 121 to 135 and I was getting a few dizzy spells and weak bouts seems that has gone now but this is the first time my level rose sinse transplant

Hi I am new here. 49 and Just had the results of my ct scan and it’s looking like lung cancer not much more info. I have no symptoms apart from a sore shoulder blade, I was referred for a chest xray in Dec after having a bad cough from what I think was covid. I have a biopsy on the 3rd and should have

Since January 2012, CMS has implemented a ESRD Treatment Choices Model in 30% of the US. The goal was to increase home dialysis, increase kidney transplants. Home dialysis and kidney transplants in the US are FAR FAR below other developed nations. Only 12% use home dialysis and only 2.85 have transplants