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Newly Diagnosed
Hello every one, I've had a terrible 3 or 4 months. My sister was diagnosed with lung cancer in August and unfortunately died in September aged 61.I was heartbroken and was suffering with a very hoarse voice. My doctor sent me for an xray which showed a shadow on my lung. I have since had a pet scan
Hello every one, I've had a terrible 3 or 4 months. My sister was diagnosed with lung cancer in August and unfortunately died in September aged 61.I was heartbroken and was suffering with a very hoarse voice. My doctor sent me for an xray which showed a shadow on my lung. I have since had a pet scan
Mindini1964
in
The Roy Castle Lung Cancer Foundation
9 months ago
portal vein pressure test
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
Hi everyone. I havent posted for a few weeks . my partner Nick has now had all his tests, scans and a biopsy on his hhc tumor to confirm that it is actually HCC. He has been told that he cannot have ablation, which is what he wanted to have, because of the position of the tumor. He may possibly be
pussycat66
in
British Liver Trust
8 months ago
lung cancer
Recently diagnosed and now awaiting surgery to remove lower lung. I feel very anxious and would love to hear from anyone who has gone through this.
Recently diagnosed and now awaiting surgery to remove lower lung. I feel very anxious and would love to hear from anyone who has gone through this.
Sally789
in
The Roy Castle Lung Cancer Foundation
9 months ago
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PSA in lower range, yet PSMA PET SCAN shows diffuse bone Metastasis
Dear all , my father latest Total PSA level shows 6.24 which is down after touching 10.45. He was given one infusion of Docetaxel, however, he has been weaned off due to adverse reactions he has had, as his overall condition worsened and he had lot of prolonged mouth sores, with WBCs touching .08 and
Dear all , my father latest Total PSA level shows 6.24 which is down after touching 10.45. He was given one infusion of Docetaxel, however, he has been weaned off due to adverse reactions he has had, as his overall condition worsened and he had lot of prolonged mouth sores, with WBCs touching .08 and
Ij2023
in
Advanced Prostate Cancer
9 months ago
Autologous Cell Transplants - Promising Clinical Trial Getting Underway
August 7,2024 article from Scitechdaily.com Breakthrough Parkinson’s Treatment Enters Human Trials After Primate Success TOPICS:BrainNeuroscienceParkinson's DiseaseUniversity Of Wisconsin-Madison By UNIVERSITY OF WISCONSIN-MADISON AUGUST 7, 2024 A clinical trial has begun to offer a new treatment
August 7,2024 article from Scitechdaily.com Breakthrough Parkinson’s Treatment Enters Human Trials After Primate Success TOPICS:BrainNeuroscienceParkinson's DiseaseUniversity Of Wisconsin-Madison By UNIVERSITY OF WISCONSIN-MADISON AUGUST 7, 2024 A clinical trial has begun to offer a new treatment
Shorebirdsotherhalf
in
Cure Parkinson's
15 days ago
Itch and spots post liver transplant
hi this may be mote if a kidney group question than the than liver, but i am post-liver transplant 22 months but unfortunately sustained some kidney damage, i am left with a symptom of skin itching all over. i wonder how common this is, what causes it and if there is anything effective to stop it. the
hi this may be mote if a kidney group question than the than liver, but i am post-liver transplant 22 months but unfortunately sustained some kidney damage, i am left with a symptom of skin itching all over. i wonder how common this is, what causes it and if there is anything effective to stop it. the
Vargula
in
British Liver Trust
9 months ago
What does having a NEW KIDNEY feel like?
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Hi All, I have been in the transplant list for a year now and still waiting to get called. I can’t just help to wonder what having a kidney transplant will feel like. Apart from the fact that it will be a gift of life and freedom from being tied down to dialysis. What does it feel like? Will you
Imaanforever
in
Kidney Dialysis
9 months ago
Protein in my urine
Hi there! I am 6 months post kidney transplant. First I'd like to say that I was very blessed, I was approved and put on the list May 3, 2023 and I received my new kidney from a perfect match deceased donor June 13, 2023. My transplant team said that is very rare and very lucky. I have had some challenges
Hi there! I am 6 months post kidney transplant. First I'd like to say that I was very blessed, I was approved and put on the list May 3, 2023 and I received my new kidney from a perfect match deceased donor June 13, 2023. My transplant team said that is very rare and very lucky. I have had some challenges
SweetTexas75
in
Kidney Transplant
9 months ago
Please Join us tomorrow, November 16th for our Coming Together Globally to Combat Stigma Living Room
Hello, As we all know it is Lung Cancer Awareness Month (LCAM) so we at GO2 wanted to have a Living Room program that we could reach globally. In order to bring in speakers and a topic in our Living Room from all over the world we had to change the date, time and day. We are excited to bring together
Hello, As we all know it is Lung Cancer Awareness Month (LCAM) so we at GO2 wanted to have a Living Room program that we could reach globally. In order to bring in speakers and a topic in our Living Room from all over the world we had to change the date, time and day. We are excited to bring together
Michelezeh
Partner
in
Lung Cancer Support
9 months ago
Transplant Question
I’ve been wondering for awhile if kidney transplants are given once a person is past a certain age? I’m in the U.S. and I have a cousin who had severe liver disease. She was 75 & the state she lived in didn’t perform liver transplants on anyone over 68. I checked with my state, & liver transplants
I’ve been wondering for awhile if kidney transplants are given once a person is past a certain age? I’m in the U.S. and I have a cousin who had severe liver disease. She was 75 & the state she lived in didn’t perform liver transplants on anyone over 68. I checked with my state, & liver transplants
Halebopp
in
Kidney Disease
9 months ago
Desperately trying to save my partner.
Hello all,I am desperately trying to get the surgeons to overturn their decision to not give my partner a liver transplant. He has Autoimmune Hepatitis with the complication of Hepatopulmonary Syndrome and the only way to cure Hps is with transplantation but they refuse. He had an assessment at the
Hello all,I am desperately trying to get the surgeons to overturn their decision to not give my partner a liver transplant. He has Autoimmune Hepatitis with the complication of Hepatopulmonary Syndrome and the only way to cure Hps is with transplantation but they refuse. He had an assessment at the
Ffof6
in
British Liver Trust
9 months ago
Mum has lung cancer stage 4 BRAF Tumour
Hello Everyone My 84 year old Mum has just had a diagnosis of Lung Cancer Stage 4. It’s a BRAF tumour which is quite unusual. She has until now been fit and healthy walking and swimming regularly and has had only problems with her Thyroid. She has been told her prognosis is 3-6 months with treatment
Hello Everyone My 84 year old Mum has just had a diagnosis of Lung Cancer Stage 4. It’s a BRAF tumour which is quite unusual. She has until now been fit and healthy walking and swimming regularly and has had only problems with her Thyroid. She has been told her prognosis is 3-6 months with treatment
Beetro84
in
The Roy Castle Lung Cancer Foundation
10 months ago
International Lung Cancer Livingroom 1400 GMT. 16th November.
Save the date- the Roy Castle Foundation and Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Copy and pasted) -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov
Save the date- the Roy Castle Foundation and Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Copy and pasted) -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov
Denzie
in
The Roy Castle Lung Cancer Foundation
10 months ago
Special time for an International Lung Cancer Livingroom. Accessible to many countries. November 16 at 12:00 eastern.
Save the date- Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Coped and pasted from email). -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov. 16* during Lung
Save the date- Go2 will be posting more but I'm hoping to give you an early heads up so you don't have other plans. It's going to be amazing. (Coped and pasted from email). -------------------------- "Coming Together Globally to Combat Stigma" Join our community on Thursday, Nov. 16* during Lung
Denzie
Volunteer
in
Lung Cancer Support
10 months ago
immunotherapy damaging kidneys
hi My mother has been having successful treatment for stage 3 lung cancer, but the immunotherapy has negatively affected her kidneys, so she is having steroids and they have said they cannot continue to offer the immunotherapy. We are awaiting a scan appointment & they may then discuss radiotherapy,
hi My mother has been having successful treatment for stage 3 lung cancer, but the immunotherapy has negatively affected her kidneys, so she is having steroids and they have said they cannot continue to offer the immunotherapy. We are awaiting a scan appointment & they may then discuss radiotherapy,
SharonTan
in
The Roy Castle Lung Cancer Foundation
10 months ago
Fairly new to all this...
In need of Kidneys and Liver transplant, I reside in El Paso, TX. and need to travel to Dallas, TX. for treatment at Dallas Methodist Hospital. It's been rough these past two years, I thought I could do this alone. But I am wrong, lost all my friends, family is trying but it's not easy and cheap. I can
In need of Kidneys and Liver transplant, I reside in El Paso, TX. and need to travel to Dallas, TX. for treatment at Dallas Methodist Hospital. It's been rough these past two years, I thought I could do this alone. But I am wrong, lost all my friends, family is trying but it's not easy and cheap. I can
MajorBC81
in
Kidney Transplant
9 months ago
Please Join Us! Tuesday November 14th, Gathering HOPE Community Social
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, November 14th, at 5pm PT/8pm ET.
Hello! For those of you who know me and to those of you I may not have spoken with or met yet, I am Michele Zeh, Manager of the Lung Cancer Living Room Series and I am excited to invite you to our monthly Gathering HOPE Social hosted on our ZOOM link. This Tuesday, November 14th, at 5pm PT/8pm ET.
Michelezeh
Partner
in
Lung Cancer Support
10 months ago
Kidney transplant stage 4 20 percent kidney function but don't have symptoms.
Hi everyone I hope everyone is doing well . Well it's been 22 years years with my kidney transplant and unfortunately I'm already at stage 4 20 percent kidney function. I have was hoping that this second time going to the dr my percent will be a little higher but no 😔. I'm so worried and scare I don't
Hi everyone I hope everyone is doing well . Well it's been 22 years years with my kidney transplant and unfortunately I'm already at stage 4 20 percent kidney function. I have was hoping that this second time going to the dr my percent will be a little higher but no 😔. I'm so worried and scare I don't
jennifer24
in
Kidney Transplant
9 months ago
OK - got another question -
Again, I'm 7 months post kidney transplant. My GFR is all over the place. Just. checked today and it is the lowest it has been since 2 months ago. During this first year of transplant, is that normal. Has anyone else experienced this? If you have, what did you do to raise it. I try to eat healthy
Again, I'm 7 months post kidney transplant. My GFR is all over the place. Just. checked today and it is the lowest it has been since 2 months ago. During this first year of transplant, is that normal. Has anyone else experienced this? If you have, what did you do to raise it. I try to eat healthy
Tankjsl
in
Kidney Transplant
9 months ago
Bad news
Hi all, as some of you know I had a successful heart transplant in July 2020 and so far all has been good, more trouble from the rest of the old body but on Friday I received the devastating news that I have bowel cancer. It was picked up through the routine testing another thing I have to thank the
Hi all, as some of you know I had a successful heart transplant in July 2020 and so far all has been good, more trouble from the rest of the old body but on Friday I received the devastating news that I have bowel cancer. It was picked up through the routine testing another thing I have to thank the
Thanksnhs
in
British Heart Foundation
9 months ago
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