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A little worried
Hi Everyone and Happy new year. I haven't posted on here for a long time, just been plodding on as you do. I have been on Benepali now for 2yrs and coping OK. My slight worry is I have had pins and needles in both hands now for quite a while, with everything going on atm regarding covid I haven't been
Hi Everyone and Happy new year. I haven't posted on here for a long time, just been plodding on as you do. I have been on Benepali now for 2yrs and coping OK. My slight worry is I have had pins and needles in both hands now for quite a while, with everything going on atm regarding covid I haven't been
Kazwilks
in
NRAS
3 years ago
I started almost a year ago with this diagnosis, unfortunately. I had biopsies in February to confirm cirrhosis.
Since then I dropped 40 pounds, changed to low carb, walk a lot, drink coffee, take asparagus extract, milk thistle, vitamin e. Collagen, and Actos. Was hoping for lower number, but progress is progress! Down to NASH 3 and 33% of my liver. Not sure what the numbers on the right mean?? I weigh 125
Since then I dropped 40 pounds, changed to low carb, walk a lot, drink coffee, take asparagus extract, milk thistle, vitamin e. Collagen, and Actos. Was hoping for lower number, but progress is progress! Down to NASH 3 and 33% of my liver. Not sure what the numbers on the right mean?? I weigh 125
Newdeck
in
Living with Fatty Liver and NASH
3 years ago
Shortness of breath/breathing issues PV
Hi everyone. I am waiting on more tests to confirm Polycythemia Vera. I see from all my research a symptom is breathing issues. Over 20 years ago I was diagnosed with asthma and use preventative and Ventolin. I have always felt this is not asthma, peak flow is perfect and know what asthma looks like
Hi everyone. I am waiting on more tests to confirm Polycythemia Vera. I see from all my research a symptom is breathing issues. Over 20 years ago I was diagnosed with asthma and use preventative and Ventolin. I have always felt this is not asthma, peak flow is perfect and know what asthma looks like
LittleLuna
in
MPN Voice
2 years ago
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This is the third cough/ virus/ infection since November and they have knocked me for 6. Any advice?
Hi there. I am new to the site and consider myself to be healthy, but unlucky when it comes to illness. I was asthmatic as a child, spending time in hospital when I was very young, which was horrid. Anyway, over time asthma seemed to disappear and I went without use or need of an inhaler from my 20s
Hi there. I am new to the site and consider myself to be healthy, but unlucky when it comes to illness. I was asthmatic as a child, spending time in hospital when I was very young, which was horrid. Anyway, over time asthma seemed to disappear and I went without use or need of an inhaler from my 20s
Ivostas66
in
Asthma Community Forum
2 years ago
Treating autoimmune hemolytic anemia (AIHA)
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
SantaZia
in
CLL Support
3 years ago
Medication mixes
My 9 yr old son has been on the highest dose of Desmopressin for a year, and movicol and docusate sodium. We recently changed to both Pico sulfate, and Laxido, and he is now wetting almost every night. Does anyone know if it will be the new medication conflicting with the Desmo melts? Many thanks.
My 9 yr old son has been on the highest dose of Desmopressin for a year, and movicol and docusate sodium. We recently changed to both Pico sulfate, and Laxido, and he is now wetting almost every night. Does anyone know if it will be the new medication conflicting with the Desmo melts? Many thanks.
Hopeful1234567
in
ERIC
3 years ago
Sudden drop eGFR
Last lab eGFR 49 Nov16, 58 on 28 Oct, 51 Jul 51, 56 Apr 21 Blood creatinine high Urine creatinine 1.8 on 28 Oct, 2.2 on 26 Jul, 1.9 on 31 Mar, 3.5 26 Feb, 10.0 20 Jun 2017 Creatinine in urine is getting lower while blood creatinine is rising. Changed to low protein diet 3 months ago, 50-70 mg / daily
Last lab eGFR 49 Nov16, 58 on 28 Oct, 51 Jul 51, 56 Apr 21 Blood creatinine high Urine creatinine 1.8 on 28 Oct, 2.2 on 26 Jul, 1.9 on 31 Mar, 3.5 26 Feb, 10.0 20 Jun 2017 Creatinine in urine is getting lower while blood creatinine is rising. Changed to low protein diet 3 months ago, 50-70 mg / daily
lakeheadguy
in
Kidney Disease
3 years ago
Best Liquid Food for Hypoglycaemia
Just wondering if anyone can recommend a liquid food full of all vital goodies as finding it difficult to eat solids with nausea. Can it be hypoglycaemia due to Thyroid issue? Many thanks.
Just wondering if anyone can recommend a liquid food full of all vital goodies as finding it difficult to eat solids with nausea. Can it be hypoglycaemia due to Thyroid issue? Many thanks.
celticlady
in
Diabetes Research & Wellness Foundation
2 years ago
High TSH, normal/high FT4 and high TT3? What is going on?
Hi, I am 47 years old and have been feeling quite sluggish for a very long time. The past years, I have noticed the following symptoms: tinnitus (constant high frequency tone), swollen/sore fingers on waking, hair fall, hairstrands have become VERY thin/fine, sometimes sore from teeth clenching on waking
Hi, I am 47 years old and have been feeling quite sluggish for a very long time. The past years, I have noticed the following symptoms: tinnitus (constant high frequency tone), swollen/sore fingers on waking, hair fall, hairstrands have become VERY thin/fine, sometimes sore from teeth clenching on waking
Tomchr
in
Thyroid UK
2 years ago
Implications of butyrate and its derivatives for gut health and animal production 2018
Implications of butyrate and its derivatives for gut health and animal production https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC6104520/ Looks like I won't be dropping butyrate anytime soon. 2. Butyrate in the human colon The importance of butyrate for human colon health has been demonstrated in
Implications of butyrate and its derivatives for gut health and animal production https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC6104520/ Looks like I won't be dropping butyrate anytime soon. 2. Butyrate in the human colon The importance of butyrate for human colon health has been demonstrated in
Bolt_Upright
in
Cure Parkinson's
3 years ago
Blood work results.
Good morning. I finally got all the results the endo asked me to bring with me on Thursday. My cholesterol is high but I won't bother you reading it. I'll put the reference values in brackets. My sodium is 131 (135-146) Vit D-OH total: 29 (30-100) Vit D-OH D3 : 29 Vit D. 25 OH, D2 : <4 Testosterone
Good morning. I finally got all the results the endo asked me to bring with me on Thursday. My cholesterol is high but I won't bother you reading it. I'll put the reference values in brackets. My sodium is 131 (135-146) Vit D-OH total: 29 (30-100) Vit D-OH D3 : 29 Vit D. 25 OH, D2 : <4 Testosterone
Hidden
in
Thyroid UK
3 years ago
My partner's story
Hello to everyone, I've been a silent member of this group for a few weeks and I have found your posts really helpful. I have decided that now is the time to share with you the story so far with my partner and his diagnosis of alcohol related liver disease. He's 43 years old and he's been a daily drinker
Hello to everyone, I've been a silent member of this group for a few weeks and I have found your posts really helpful. I have decided that now is the time to share with you the story so far with my partner and his diagnosis of alcohol related liver disease. He's 43 years old and he's been a daily drinker
Bibbs
in
British Liver Trust
3 years ago
Looking for some help, advice or anything please x
Hi please strap in for this novel i will try and be as brief as possible. Diagnosed Type 2 Dec 2020 HB1AC 74mmol - i also have PCOS Diagnosed 2006, NAFLD and Fibromyalgia Been on Glucophage SR 4 x 500mg per day from 2007 for PCOS after after diagnosis 16.12.20 gp added Gliclazide 80mg HB1AC got higher
Hi please strap in for this novel i will try and be as brief as possible. Diagnosed Type 2 Dec 2020 HB1AC 74mmol - i also have PCOS Diagnosed 2006, NAFLD and Fibromyalgia Been on Glucophage SR 4 x 500mg per day from 2007 for PCOS after after diagnosis 16.12.20 gp added Gliclazide 80mg HB1AC got higher
MrsCH83
in
Diabetes Research & Wellness Foundation
3 years ago
Fixing the Microbiome - Fighting Pathogens?
I do a lot of things to help my brain and clean up a-synuclein in the gut (and hopefully the brain), but it seems to me that no protocol is complete unless it addresses normalizing the microbiome, and assuming that if there is some pathogen in the microbiome that started this cascade, addressing that
I do a lot of things to help my brain and clean up a-synuclein in the gut (and hopefully the brain), but it seems to me that no protocol is complete unless it addresses normalizing the microbiome, and assuming that if there is some pathogen in the microbiome that started this cascade, addressing that
Bolt_Upright
in
Cure Parkinson's
3 years ago
Hashimoto’s
Hello, I have Hashimotos and continue to take 125mcg Levo and my blood results continue to fluctuate although my symptoms continue with additional issues evident. Last year TSH was rising reaching 3 and T4 was simultaneously lowering although last three months Nov, Dec , Jan.. TSH 0.32,/0.69 and
Hello, I have Hashimotos and continue to take 125mcg Levo and my blood results continue to fluctuate although my symptoms continue with additional issues evident. Last year TSH was rising reaching 3 and T4 was simultaneously lowering although last three months Nov, Dec , Jan.. TSH 0.32,/0.69 and
Lassithi
in
Thyroid UK
3 years ago
Michael Moseley's Fast 800 Low Carb Book - for 99 pence! Just for today ...
Jonimoroni has just pointed out that "The brilliant M Mosely/ C Bailey ‘Fast 800’ Low Carb book you recommended 🙏and which has been a huge benefit to me is on Amazon Kindle for 99 p today!" It will only be for today - so don't hang around, get it asap if you have a Kindle!
Jonimoroni has just pointed out that "The brilliant M Mosely/ C Bailey ‘Fast 800’ Low Carb book you recommended 🙏and which has been a huge benefit to me is on Amazon Kindle for 99 p today!" It will only be for today - so don't hang around, get it asap if you have a Kindle!
PMRpro
Ambassador
in
PMRGCAuk
3 years ago
“Fast 800-Easy” 99p on AmazonKindle today! Michael Mosely low carb eating /recipe book- it’s really good-has helped me lose 2st painlessly!
Probably today only - Monday 15/11/21
Probably today only - Monday 15/11/21
Jonimoroni
in
PMRGCAuk
3 years ago
Not happy with results
Hello, I asked about tinnitus earlier this week because me sleep was so disrupted I was having trouble focussing. I had already done my medicheck blood test was convinced that it would be invalidated because I was so clumsy that morning I dropped the sample. I also forgot to stick in the identiciation
Hello, I asked about tinnitus earlier this week because me sleep was so disrupted I was having trouble focussing. I had already done my medicheck blood test was convinced that it would be invalidated because I was so clumsy that morning I dropped the sample. I also forgot to stick in the identiciation
66olives
in
Thyroid UK
3 years ago
Vitamin advice
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
CornishChick
in
Thyroid UK
3 years ago
Actinium/Keytruda/Xtandi trial update after 24 weeks.
At the 24 week mark of my trial at Weill Cornell, I had updated NM whole body bone scan and CTs of chest/abdomen/pelvis. Also had updated blood work. Was expecting my next 6 week infusion of Keytruda the next day. While waiting in the treatment area, there was some kind of a delay. Nurse came over
At the 24 week mark of my trial at Weill Cornell, I had updated NM whole body bone scan and CTs of chest/abdomen/pelvis. Also had updated blood work. Was expecting my next 6 week infusion of Keytruda the next day. While waiting in the treatment area, there was some kind of a delay. Nurse came over
HopingForTheBest1
in
Advanced Prostate Cancer
2 years ago
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