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Constant daily Migraines
Hi, Please can someone help me? I have APS, Sjogrens & Hashimotos. Has anyone experienced continuous rolling migraines for a week? I don’t usually suffer from migraines, other than the odd visual aura if my INR drops below 2. For the last week I have had frequent daily auras and headaches. The
Hi, Please can someone help me? I have APS, Sjogrens & Hashimotos. Has anyone experienced continuous rolling migraines for a week? I don’t usually suffer from migraines, other than the odd visual aura if my INR drops below 2. For the last week I have had frequent daily auras and headaches. The
Janeh1960
in
Hughes Syndrome APS Forum
9 months ago
Breathlessness and Hypothyroidism?
I’m hoping someone might be able to shine a light on my health situation. I am a 74 yr old female and have been ill for years. I have been following posts on this site with great interest and amazement at the knowledge shown here and the suggested guidance offered. I’m not even sure whether mine is a
I’m hoping someone might be able to shine a light on my health situation. I am a 74 yr old female and have been ill for years. I have been following posts on this site with great interest and amazement at the knowledge shown here and the suggested guidance offered. I’m not even sure whether mine is a
Jax49
in
Thyroid UK
11 months ago
Venting about a poor night, again and no relief in sight
This is more of a desperate rant than anything else -- I wish I was outside today, in the sun and enjoying life. Instead I'm in bed feeling wiped. Last night I tried codeine, again. Only this time i tried a much higher dose. All previous times I've used codeine it's either worked alright or not very
This is more of a desperate rant than anything else -- I wish I was outside today, in the sun and enjoying life. Instead I'm in bed feeling wiped. Last night I tried codeine, again. Only this time i tried a much higher dose. All previous times I've used codeine it's either worked alright or not very
HappyGreenBean
in
Restless Legs Syndrome
9 months ago
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Tylenol 3 with Codeine…I need a substitute…Help
I’m stage 3b and maintaining. I just had foot surgery this morning. My orthopedic surgeon consulted with my nephrologist and decided Tylenol 3 with Codeine would be best to start . If that didn’t work I could take low dose Hydrocodone/Acetaminophen 10-325mg. The Tylenol 3 is making me vomit, but
I’m stage 3b and maintaining. I just had foot surgery this morning. My orthopedic surgeon consulted with my nephrologist and decided Tylenol 3 with Codeine would be best to start . If that didn’t work I could take low dose Hydrocodone/Acetaminophen 10-325mg. The Tylenol 3 is making me vomit, but
MinnadeParis
in
Kidney Disease
9 months ago
concerns about pain meds causing chronic fluid retention
Hi, I have been taking pregabalin for just over a year now, my weight has rocketed from 14.5 stone to around 17 stone, I don't eat very much, I have no appetite, my Gp has done loads of tests but can't find the reason for it. I was in hospital a few weeks ago, I had to keep asking for pregabalin, the
Hi, I have been taking pregabalin for just over a year now, my weight has rocketed from 14.5 stone to around 17 stone, I don't eat very much, I have no appetite, my Gp has done loads of tests but can't find the reason for it. I was in hospital a few weeks ago, I had to keep asking for pregabalin, the
salamander160
in
Pain Concern
9 months ago
Chronic Pain Pharmacist Appointment. Meds advice please.
Finally, have my appointment next week. I’m currently just taking Citalopram 20mg and Ibuprofen and Codeine and co-codamol as needed. I find the Co-codamol gives me terrible rebound headaches but Ibuprofen and Codeine (Neurofen Plus) weirdly does not. Codeine also affects my sleep badly. It sometimes
Finally, have my appointment next week. I’m currently just taking Citalopram 20mg and Ibuprofen and Codeine and co-codamol as needed. I find the Co-codamol gives me terrible rebound headaches but Ibuprofen and Codeine (Neurofen Plus) weirdly does not. Codeine also affects my sleep badly. It sometimes
Brigga
in
Fibromyalgia Action UK
10 months ago
Augmentation and Pramipexole
I am trying to come off pramipexole and I am down to 2 a day 88mcq tablets. Is the last part the hardest to do because I feel I need this to end as soon as possible. How long do I stay on 2 a day and then 1 a day? My replacement medicine is 20mg tabs Oxycondone twice a day. At present, I feel absolutely
I am trying to come off pramipexole and I am down to 2 a day 88mcq tablets. Is the last part the hardest to do because I feel I need this to end as soon as possible. How long do I stay on 2 a day and then 1 a day? My replacement medicine is 20mg tabs Oxycondone twice a day. At present, I feel absolutely
JoeR
in
Restless Legs Syndrome
10 months ago
Clonazepam, Oxy, Perampanel...oh my!
I've been to see Prof Walker who has prescribed me Clonazepam, if that doesn't work he wants me to try Targinact (Oxy) or Perampanel. I'd love to hear back from y'all with your experiences with these medications (positive or negative). [u]
Perampanel:
[/u] Think this is taken just before bed
I've been to see Prof Walker who has prescribed me Clonazepam, if that doesn't work he wants me to try Targinact (Oxy) or Perampanel. I'd love to hear back from y'all with your experiences with these medications (positive or negative). [u]
Perampanel:
[/u] Think this is taken just before bed
HappyGreenBean
in
Restless Legs Syndrome
10 months ago
Am I euthyroid?
07/11/2023 TSH 2.38 range: (.465-4.68) FT3 3.9 (2.8-5.3) Ft4 .9 ( .79-2.18) Vit D 70.4
07/11/2023 TSH 2.38 range: (.465-4.68) FT3 3.9 (2.8-5.3) Ft4 .9 ( .79-2.18) Vit D 70.4
kvmj
in
Thyroid UK
9 months ago
Request for help with results please - endo appt pending! Apologies for long post
Hi All. (Just FYI, diagnosed Graves & hyper Jan 21. RAI June 21. Diagnosed hypo Aug 21).It may seem silly to say that until I joined this group, I thought that accepting that "feeling better" is not the same as "feeling well", and I had wrongfully been accepting of the fact that since starting my thyroid
Hi All. (Just FYI, diagnosed Graves & hyper Jan 21. RAI June 21. Diagnosed hypo Aug 21).It may seem silly to say that until I joined this group, I thought that accepting that "feeling better" is not the same as "feeling well", and I had wrongfully been accepting of the fact that since starting my thyroid
BlueSkiesAbove
in
Thyroid UK
9 months ago
Pain relief
Hi I've been diagnosed for cirrhosis of the liver and gall stones which the pain is currainting. My doctor has me on codeine and buscopan and tramadol when I get handle the pain which again doesn't touch the side. Can anybody suggest the best pain relief that I can suggest to my doctor. Thanks xx
Hi I've been diagnosed for cirrhosis of the liver and gall stones which the pain is currainting. My doctor has me on codeine and buscopan and tramadol when I get handle the pain which again doesn't touch the side. Can anybody suggest the best pain relief that I can suggest to my doctor. Thanks xx
Saphire-honey4
in
British Liver Trust
10 months ago
struggling with nerve pain after amputation and burn
Hi, I am new to this community and hope I can unload a little bit because I am struggling with nerve pain. I burnt my foot by spilling boiling water over it over 3 years ago, the burn was healing very slowly, I kept getting infections, cellulitis, and swelling. It got to the point that they had to amputate
Hi, I am new to this community and hope I can unload a little bit because I am struggling with nerve pain. I burnt my foot by spilling boiling water over it over 3 years ago, the burn was healing very slowly, I kept getting infections, cellulitis, and swelling. It got to the point that they had to amputate
salamander160
in
Neuropathy Support
10 months ago
I really need some help please...
Hi, My partner has encouraged me to join this group as I'm in a big mess with my RA. I'll try and keep it as brief as I can. I was diagnosed with RA (Sero Positive/CCP Positive) in 2021 and given Sulfasalazine. (My partner was trying to get pregnant, so no Methotrexate). My symptoms were joint pain
Hi, My partner has encouraged me to join this group as I'm in a big mess with my RA. I'll try and keep it as brief as I can. I was diagnosed with RA (Sero Positive/CCP Positive) in 2021 and given Sulfasalazine. (My partner was trying to get pregnant, so no Methotrexate). My symptoms were joint pain
MrJinks512
in
NRAS
10 months ago
lidocaine infusion?
Good afternoon everyone. I have Occipital/Trigeminal Neuralgia and have had a variety of treatments for the past 7 years. Most recently a nerve block which went wrong and left me in worse pain. My last option is a lidocaine infusion which I am waiting for. I take Pregablin/codeine/migraine meds etc
Good afternoon everyone. I have Occipital/Trigeminal Neuralgia and have had a variety of treatments for the past 7 years. Most recently a nerve block which went wrong and left me in worse pain. My last option is a lidocaine infusion which I am waiting for. I take Pregablin/codeine/migraine meds etc
armao
in
Pain Concern
10 months ago
Thyroid and the Menstrual Cycle?
When I was first diagnosed with Graves diseases my periods had practically stopped. I had no period for almost a year thinking the menopause was to blame. I started Carbimazole and reacted badly to it and had Rai. Soon after I started Levo. My periods have often been on the heavy side, but after having
When I was first diagnosed with Graves diseases my periods had practically stopped. I had no period for almost a year thinking the menopause was to blame. I started Carbimazole and reacted badly to it and had Rai. Soon after I started Levo. My periods have often been on the heavy side, but after having
JUUJOO
in
Thyroid UK
10 months ago
Traditional chemo
has anyone been offered traditional chemo for treatment? My husband will be starting treatment soon. He’s been going to an oncologist in Tennessee. When we lived in NY Dr Rai was his doctor and we trusted him. We picked the oncologist here because he agreed to keep in touch with Dr Rai and discuss his
has anyone been offered traditional chemo for treatment? My husband will be starting treatment soon. He’s been going to an oncologist in Tennessee. When we lived in NY Dr Rai was his doctor and we trusted him. We picked the oncologist here because he agreed to keep in touch with Dr Rai and discuss his
Jill70
in
CLL Support
10 months ago
Morphine & Oramorph.
Hi all, My dad is now bedridden with CBD. He appears to be in constant pain. Although he can't verbalise. Codeine is no longer keeping him comfortable. Today the GP has prescribed morphine twice daily and Oramorph in between. Has this proven to be an affective pain relief for others please. He already
Hi all, My dad is now bedridden with CBD. He appears to be in constant pain. Although he can't verbalise. Codeine is no longer keeping him comfortable. Today the GP has prescribed morphine twice daily and Oramorph in between. Has this proven to be an affective pain relief for others please. He already
RW22
in
PSP Association
10 months ago
Dihydrocodeine (sp)
Hi since coming off pramipexole i have been struggling to get any sleep at night. One doctor prescribed codeine it’s not strong enough. Doctor i spoke with this morning is going to prescribe dihydrocodeine sorry if that’s not the right spelling i am pretty brain dead from sleep deprivation. Anyone
Hi since coming off pramipexole i have been struggling to get any sleep at night. One doctor prescribed codeine it’s not strong enough. Doctor i spoke with this morning is going to prescribe dihydrocodeine sorry if that’s not the right spelling i am pretty brain dead from sleep deprivation. Anyone
Hidden
in
Restless Legs Syndrome
10 months ago
Thyroid Test Result
Hi Everyone Just to give you a brief history, I was diagnosed with Graces Disease in 2007, I had RAI treatment in 2008. Since then I have had a yearly blood test which have always been within the normal range. I don’t take thyroxine, I’m 67years of age. The symptoms I’ve got now is tiredness, constipation
Hi Everyone Just to give you a brief history, I was diagnosed with Graces Disease in 2007, I had RAI treatment in 2008. Since then I have had a yearly blood test which have always been within the normal range. I don’t take thyroxine, I’m 67years of age. The symptoms I’ve got now is tiredness, constipation
55lindylou
in
Thyroid UK
10 months ago
Rai question
I'm just wondering about RAI (not relevant now but I'm doing research for future) when you have toxic nodules. Is it true that the radioactive solution just kills the nodules or is the whole thyroid destroyed? Does hypothyroidism always happen? If you had no TED before is it safe in terms of eye issues
I'm just wondering about RAI (not relevant now but I'm doing research for future) when you have toxic nodules. Is it true that the radioactive solution just kills the nodules or is the whole thyroid destroyed? Does hypothyroidism always happen? If you had no TED before is it safe in terms of eye issues
Fluffypip
in
Thyroid UK
10 months ago
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