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PD induced COPD
does anyone here have parkinsons induced COPD? Im in PD induced chronic respiratory failure Gold Stage 3........GOLD-3: One of the stages of chronic obstructive lung disease (COPD), according to the Global Initiative for Chronic Obstructive Lung Disease (GOLD). GOLD-3 is stage III in the GOLD classification
does anyone here have parkinsons induced COPD? Im in PD induced chronic respiratory failure Gold Stage 3........GOLD-3: One of the stages of chronic obstructive lung disease (COPD), according to the Global Initiative for Chronic Obstructive Lung Disease (GOLD). GOLD-3 is stage III in the GOLD classification
beehive23
in
Cure Parkinson's
2 years ago
Relationship with alcohol
I was reading through some posts and answers and got thinking. Is the saying ‘once an alcoholic always an alcoholic’, really true. I certainly had a problem with alcohol. I drunk far too much of it and it became far too big a part of my life. To a point where I got very unwell. I was terrified during
I was reading through some posts and answers and got thinking. Is the saying ‘once an alcoholic always an alcoholic’, really true. I certainly had a problem with alcohol. I drunk far too much of it and it became far too big a part of my life. To a point where I got very unwell. I was terrified during
Aotea2012
in
British Liver Trust
2 years ago
Transplant waiting list imminent/Nintedanib feedback
Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good
Hi all, Been a while again since my last update. I was hoping to bring you definitive news on the transplant situation but we're not quite there yet as I've still to meet the team to discuss when to go on the transplant list and find out how long my window of opportunity might be. However, the good
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
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I found another
If you read “my story” my last post you already know the story but I found another. This woman’s mother was on urso for 5 years and her insurance did not pay so once a month they made a run to Mexico to buy her drugs. She stayed on liver diet and took drugs as directed and when md… liver specialist here
If you read “my story” my last post you already know the story but I found another. This woman’s mother was on urso for 5 years and her insurance did not pay so once a month they made a run to Mexico to buy her drugs. She stayed on liver diet and took drugs as directed and when md… liver specialist here
Pamela4475
in
PBC Foundation
2 years ago
Kidney transplant podcast: Benji's Story
Hi everyone, I've been working with the National Kidney Foundation on some episodes of Kidney Transplant Conversations, it's a podcast that is available on all the leading platforms. The most recent episode features Benji, he had his promising basketball career cut short by kidney failure, and he would
Hi everyone, I've been working with the National Kidney Foundation on some episodes of Kidney Transplant Conversations, it's a podcast that is available on all the leading platforms. The most recent episode features Benji, he had his promising basketball career cut short by kidney failure, and he would
bethedifference
in
Kidney Transplant
2 years ago
Nintedanib offers new hope as transplant recommendation approaches
Hi all, It's been a fair while since I last updated - longer than I'd have liked - but in a way its a good thing as I actually have a fair bit to update on as a result... The additional heart tests involving tracers, a CT scan and an hour long MRI which really tested my lung capacity with one or two
Hi all, It's been a fair while since I last updated - longer than I'd have liked - but in a way its a good thing as I actually have a fair bit to update on as a result... The additional heart tests involving tracers, a CT scan and an hour long MRI which really tested my lung capacity with one or two
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Some advice please
Hi I have joined as my brother has end stage cirrhosis of the liver along with ascites & other complications due to very heavy drinking over many years. He is now at the stage where he can’t walk & refuses to let me contact his gp or any other health professional. Any offers of advice would be extremely
Hi I have joined as my brother has end stage cirrhosis of the liver along with ascites & other complications due to very heavy drinking over many years. He is now at the stage where he can’t walk & refuses to let me contact his gp or any other health professional. Any offers of advice would be extremely
JimmyMartin
in
British Liver Trust
2 years ago
Only 288 hours until my second opinion assessment at the Royal Papworth for my lung transplant.
Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx
Who says i’m nervous and counting the days or hours??😜 Looking forward to spending the morning in Cambridge, a place i have never visited. Stay safe everyone…xx
Mrbojangles
in
Lung Conditions Community Forum
2 years ago
Muscle tension
Hi, Have been suffering from severe anxiety for a little while. My main symptom is chronic and painful muscle tension throughout my whole body and dizziness. It never leaves me and makes it hard to relax or do anything normal. Any tips gratefully received.
Hi, Have been suffering from severe anxiety for a little while. My main symptom is chronic and painful muscle tension throughout my whole body and dizziness. It never leaves me and makes it hard to relax or do anything normal. Any tips gratefully received.
WBC61
in
Anxiety Support
2 years ago
Can drinking 10 liters of water a day reverse cirrhosis?
If water is flushing out toxins, a toxin-free state can give the liver time to repair itself. I could not find any studies belonging to cirrhosis. Only those who drank a lot of water showed less fatty liver disease. Do you know a scientist who has tried this?
If water is flushing out toxins, a toxin-free state can give the liver time to repair itself. I could not find any studies belonging to cirrhosis. Only those who drank a lot of water showed less fatty liver disease. Do you know a scientist who has tried this?
tryhealourliver
in
British Liver Trust
2 years ago
Have diagnosis now
Got a letter from consultant now and it is confirmed that I have alcohol related cirrhosis. Consultant said "The key here though is not so much how much scarring there is in the liver, but how the liver is functioning, and on your liver blood tests your liver is functioning pretty well at present.
Got a letter from consultant now and it is confirmed that I have alcohol related cirrhosis. Consultant said "The key here though is not so much how much scarring there is in the liver, but how the liver is functioning, and on your liver blood tests your liver is functioning pretty well at present.
eileenet49
in
British Liver Trust
2 years ago
Any suggestions for reducing creatinine/ urea
My daughter is 6 years old and 3 years post renal transplant. It has been very challenging with numerous bouts of UTI's and BK thrown into the mix. She currently takes tacrolimus (3.2 mg BD), sytron, bicarbonate, cefalexin and prednisolone (2.5mg every other day), alphacalcitol and darbepoetin. Her
My daughter is 6 years old and 3 years post renal transplant. It has been very challenging with numerous bouts of UTI's and BK thrown into the mix. She currently takes tacrolimus (3.2 mg BD), sytron, bicarbonate, cefalexin and prednisolone (2.5mg every other day), alphacalcitol and darbepoetin. Her
BlueistheColour1
in
Kidney Transplant
2 years ago
HV88 Virus
Post
liver
transplant
3 years. Recently diagnosed with HV88 virus which I carried pre transplant but didn't know.
Post
liver
transplant
3 years. Recently diagnosed with HV88 virus which I carried pre transplant but didn't know.
Geordiemac
in
British Liver Trust
3 years ago
Once a month and really, once a month
Hello I have been diagnosed with Fibrosis Stage 3 but they are treaing me as though I have early Cirrohsis. I've been told to abstain alcohol forever. Now if I truly have the willpower to treat myself on one day a month to a few drinks and it is only one day a month, would it really do any harm ? I guess
Hello I have been diagnosed with Fibrosis Stage 3 but they are treaing me as though I have early Cirrohsis. I've been told to abstain alcohol forever. Now if I truly have the willpower to treat myself on one day a month to a few drinks and it is only one day a month, would it really do any harm ? I guess
LACLAC1972
in
British Liver Trust
2 years ago
MIN-102 update: summer 2022
Hi everyone, I am persisting with the min-102 trial and yesterday had my 10th visit. Nothing particularly different about the visit: the usual 6 minute walking and balance trials, the annual MRI scan and echocardiogram and the questionnaires and meeting with a specialist. What I did learn is that Minoryx
Hi everyone, I am persisting with the min-102 trial and yesterday had my 10th visit. Nothing particularly different about the visit: the usual 6 minute walking and balance trials, the annual MRI scan and echocardiogram and the questionnaires and meeting with a specialist. What I did learn is that Minoryx
wilburlois15
in
AMN EASIER
2 years ago
Functional Recovery from Human Induced Pluripotent Stem Cell-Derived Dopamine Neuron Grafts is Dependent on Neurite Outgrowth
Summary Transplantation of human pluripotent stem cell-derived dopaminergic (DA) neurons is an emerging therapeutic strategy for Parkinson’s disease (PD). In this study, we demonstrate, for the first time, that that functional recovery after DA neuron transplant is critically dependent on graft-host
Summary Transplantation of human pluripotent stem cell-derived dopaminergic (DA) neurons is an emerging therapeutic strategy for Parkinson’s disease (PD). In this study, we demonstrate, for the first time, that that functional recovery after DA neuron transplant is critically dependent on graft-host
Farooqji
in
Cure Parkinson's
2 years ago
Thank You
I’ve been a ‘lurker’ here on the forum, writing very few posts but very much learning about liver disease, it’s complications and it’s effects on the patient, but also on those who care. I wanted to thank both the British Liver Trust for a fantastic resource of information on the liver and it’s complications
I’ve been a ‘lurker’ here on the forum, writing very few posts but very much learning about liver disease, it’s complications and it’s effects on the patient, but also on those who care. I wanted to thank both the British Liver Trust for a fantastic resource of information on the liver and it’s complications
Murfee
in
British Liver Trust
2 years ago
Newby here seeking advice please.
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”. This was in
Just been delisted for lung transplant (IPF) by the Harefield as my heart maybe too weak to withstand operation. Looking through medical notes i have, for the first time seen a radiologist report stating “volume mediastinal lymph nodes measuring 10mm short axis in the subcarinal location”. This was in
Mrbojangles
in
Lung Cancer Support
2 years ago
Fatty liver anxiety
Hi, newcomers here, ive been diagnosed with fatty liver (early stage), blood test shows high ALT (144), and AST(54) but GGT and alkali phospate still in normal range, will i be okay? Can i live longer? And how to dea with fatty liver? This anxiety is killing me :( Thanks
Hi, newcomers here, ive been diagnosed with fatty liver (early stage), blood test shows high ALT (144), and AST(54) but GGT and alkali phospate still in normal range, will i be okay? Can i live longer? And how to dea with fatty liver? This anxiety is killing me :( Thanks
Javier89
in
British Liver Trust
2 years ago
Fibrolamellor disease
Hello, I had a tumor rupture in Oct 2021 and then was diagnosed with HCC. Scans first clear, then in Jan 2022 found liver reoccurrence and mets to stomach lining. Started immunotherapy, at 3 month scan and was told liver and upper stomach stable and lower tumors had increased. At this scan it was
Hello, I had a tumor rupture in Oct 2021 and then was diagnosed with HCC. Scans first clear, then in Jan 2022 found liver reoccurrence and mets to stomach lining. Started immunotherapy, at 3 month scan and was told liver and upper stomach stable and lower tumors had increased. At this scan it was
liverlover0
in
Blue Faery Liver Cancer
2 years ago
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