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Kidney Transplant & Primary Immune Deficiency
I'm looking to connect with some who have a Primary Immune deficiency and on immunoglobulin replacement. I have both and am having some issues specific to them.
I'm looking to connect with some who have a Primary Immune deficiency and on immunoglobulin replacement. I have both and am having some issues specific to them.
viviselphie
in
Kidney Disease
3 months ago
Terrified - just dropped to stage 4 CKD
I’ve had my kidney transplant - living, from my mom, for 32 years. I know that’s amazing and I’ve been so incredibly fortunate thus far. But I think it’s starting to fail, my GFR just dropped to 29 which puts me in stage 4 ckd after being in 3a w/ a creatine hovering 1.5 for oh probably over 15 years
I’ve had my kidney transplant - living, from my mom, for 32 years. I know that’s amazing and I’ve been so incredibly fortunate thus far. But I think it’s starting to fail, my GFR just dropped to 29 which puts me in stage 4 ckd after being in 3a w/ a creatine hovering 1.5 for oh probably over 15 years
SOct91
in
Kidney Transplant
3 months ago
liver transplant , I have cirrhosis and liver cancer but when I spoke to the specialist he said I would not be eligible for a transplant, I
I was told by a Harley street Consultant, my best way of a cure was a
liver
transplant
, I have been diagnosed with HCC cancer along with portal vein and cirrhosis , I feel very fit and well and when seeing the specialists they thought I was a lot younger than my 73 years But it seems my age is an
I was told by a Harley street Consultant, my best way of a cure was a
liver
transplant
, I have been diagnosed with HCC cancer along with portal vein and cirrhosis , I feel very fit and well and when seeing the specialists they thought I was a lot younger than my 73 years But it seems my age is an
Willow1950
in
British Liver Trust
1 year ago
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DAO Supplement + Lung Transplant.
Hello, I realise this is going to be a very strange post, but this is stress that this is a genuine question / request, I may need a lung transplant in the near future. Nothing is set in stone yet, but it's a possibility. I haven't been in contact with a transplant team yet or anything. One possible
Hello, I realise this is going to be a very strange post, but this is stress that this is a genuine question / request, I may need a lung transplant in the near future. Nothing is set in stone yet, but it's a possibility. I haven't been in contact with a transplant team yet or anything. One possible
mrblue12
in
Lung Conditions Community Forum
4 months ago
Lung Transplant + Fermented Foods
Hello, I have a question for lung transplant recipients: are you allowed to eat anything fermented? I may need a transplant in the near future, but I have a histamine problem which is controlled with antihistamines and DAO tablets. The problem is that the DAO tablets are essentially fermented peas
Hello, I have a question for lung transplant recipients: are you allowed to eat anything fermented? I may need a transplant in the near future, but I have a histamine problem which is controlled with antihistamines and DAO tablets. The problem is that the DAO tablets are essentially fermented peas
mrblue12
in
Lung Conditions Community Forum
4 months ago
Any experience with pregnancy after kidney transplant?
hi everyone, I had my kidney transplant in April 2022 and have been given the green light by my nephrologist and transplant team that I am able to go ahead with a pregnancy. Having been through a lot medically including a bilateral nephrectomy prior to transplant, I am overwhelmed at the possibility
hi everyone, I had my kidney transplant in April 2022 and have been given the green light by my nephrologist and transplant team that I am able to go ahead with a pregnancy. Having been through a lot medically including a bilateral nephrectomy prior to transplant, I am overwhelmed at the possibility
Hazzbaz
in
Kidney Transplant
4 months ago
Failing kidney transplant
Has anyone over 70 had the experience of a long term transplant failing. What treatment were you offered and is it feasible to expect some form of dialysis?
Has anyone over 70 had the experience of a long term transplant failing. What treatment were you offered and is it feasible to expect some form of dialysis?
Nanatotwo
in
Kidney Transplant
4 months ago
Liver cirrhosis & liver transplant
Would like to chat with anyone, who could give us an advice for
liver
transplant
. thank you
Would like to chat with anyone, who could give us an advice for
liver
transplant
. thank you
JLhervey
in
Liver4Life
1 year ago
Zicam post kidney transplant
I am a post kidney transplant patient. Does anyone know if Zicam homeopathic is safe to use? I was told a while back that zinc in a multivitamin was fine. But, most of the Zicam products now I’ve come across are homeopathic ingredients, not just zinc. Looking into for cold.
I am a post kidney transplant patient. Does anyone know if Zicam homeopathic is safe to use? I was told a while back that zinc in a multivitamin was fine. But, most of the Zicam products now I’ve come across are homeopathic ingredients, not just zinc. Looking into for cold.
Rocknlily
in
Kidney Transplant
4 months ago
Three Times Kidney Transplant Recipient: "Third time's the charm."
In 1995, Lisa Myers noticed a mysterious swelling in her feet and ankles. Little did she know that this symptom would mark the beginning of a challenging journey–one that led to a kidney disease diagnosis, ten years on dialysis, and two failed kidney transplants. This is her story as a three-time kidney
In 1995, Lisa Myers noticed a mysterious swelling in her feet and ankles. Little did she know that this symptom would mark the beginning of a challenging journey–one that led to a kidney disease diagnosis, ten years on dialysis, and two failed kidney transplants. This is her story as a three-time kidney
JackieJ_NKF
Partner
in
Kidney Transplant
4 months ago
Prednisone for treatment of AIG
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
I've just been started on Prednisone or Prednisolone, immunosuppressant steroids, for treatment of Autoimmune Gastritis/autoimmune PA. This has recently, within the last few years been shown to possibly heal AIG, although not entirely cure. It is also used to prevention immune system rejection of organ
Rexz
in
Pernicious Anaemia Society
4 months ago
No symptoms 5+4
Hello After 8 years in hell with a lot of treatment with donor egg and 3 losses im pregnant again and terrafied to loose again im 5+4 today and getting blood taken to check hcg for 3. Time Monday due to my history This time they give me dailiport something you give people Who had a kidney transplant
Hello After 8 years in hell with a lot of treatment with donor egg and 3 losses im pregnant again and terrafied to loose again im 5+4 today and getting blood taken to check hcg for 3. Time Monday due to my history This time they give me dailiport something you give people Who had a kidney transplant
Sheldonmycat
in
Fertility Network UK
4 months ago
worried about the future
at what stage of
liver
cirrhosis, might you need a
transplant
? does anyone have any experience of an iron infusion? how serious is cirrhosis of the liver and is it a terminal illness; am I going to die? sorry for the questions but I can’t sleep and my brain is whirling around .
at what stage of
liver
cirrhosis, might you need a
transplant
? does anyone have any experience of an iron infusion? how serious is cirrhosis of the liver and is it a terminal illness; am I going to die? sorry for the questions but I can’t sleep and my brain is whirling around .
Hopeful85
in
British Liver Trust
9 months ago
How to improve your blood pressure
I have recently fallen in love. With capillaries. In his brilliant book, ‘The Secret Language of Cells’, Dr John Leif, physician and neuroscientist, dedicates a whole chapter to them, calling these tiny vessels, ‘brain centres’ of tissue development. With a yogic lens, this speaks to the body intelligence
I have recently fallen in love. With capillaries. In his brilliant book, ‘The Secret Language of Cells’, Dr John Leif, physician and neuroscientist, dedicates a whole chapter to them, calling these tiny vessels, ‘brain centres’ of tissue development. With a yogic lens, this speaks to the body intelligence
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
4 months ago
Kidney Transplant
Hi, My boyfriend has been waiting on the Kidney transplant list for over 4 years. He has been doing Dialysis three days a week for years, well about a month ago he got the call! And he got a new kidney! He is doing great kind of...... My biggest concern is his levels are all great but he is having
Hi, My boyfriend has been waiting on the Kidney transplant list for over 4 years. He has been doing Dialysis three days a week for years, well about a month ago he got the call! And he got a new kidney! He is doing great kind of...... My biggest concern is his levels are all great but he is having
LisaGrehn
in
Kidney Transplant
4 months ago
Kidney transplant
I had a kidney transplant nearly 3 years ago. I would like to treat my hair to a wash-in dye, the type that washes after about 6 weeks but I'm not sure this will be OK due to the anti rejection drugs I'm taking. Any advise would be welcome
I had a kidney transplant nearly 3 years ago. I would like to treat my hair to a wash-in dye, the type that washes after about 6 weeks but I'm not sure this will be OK due to the anti rejection drugs I'm taking. Any advise would be welcome
Runquik123
in
Kidney Disease
4 months ago
Post Kidney transplant
My husband had kidney transplant about 3 months ago. Wanted to reach out to you if you had an excessive urination , frequency , urgency and incontinence up to this time. It seems like he urinates most at night I would say what he had drunk during the day ..
My husband had kidney transplant about 3 months ago. Wanted to reach out to you if you had an excessive urination , frequency , urgency and incontinence up to this time. It seems like he urinates most at night I would say what he had drunk during the day ..
Sinigang
in
Kidney Transplant
4 months ago
itching
l got decompensated
liver
waiting on
transplant
, does any one a rash on them its so itchy on my stomach legs arms my legs swelled up and cant stop itching them what cream should i try if any one has the same thing
l got decompensated
liver
waiting on
transplant
, does any one a rash on them its so itchy on my stomach legs arms my legs swelled up and cant stop itching them what cream should i try if any one has the same thing
lonmallin50
in
British Liver Trust
1 year ago
hematology oncology appointment tomorrow-stressed
Good evening, Tomorrow is my 15 month kidney transplant anniversary (transplant Nov 16. 2022). My battle with CMV appears to be resolved. My CMV data consistently tests “not detected” now and has for the past 3 months. This has been a major battle. I was CMV- pre transplant but the donor kidney was
Good evening, Tomorrow is my 15 month kidney transplant anniversary (transplant Nov 16. 2022). My battle with CMV appears to be resolved. My CMV data consistently tests “not detected” now and has for the past 3 months. This has been a major battle. I was CMV- pre transplant but the donor kidney was
Jayhawker
in
Kidney Transplant
4 months ago
THE “C” WORD
Immediately we hear or see Cirrhosis from a Doctor or imaging report, all we can think about as a liver disease newbie is “how many years do i have left to live” and “how long is the waiting list for a
liver
transplant
“ Mention it to an acquaintance and they always say “yeah you drank too much alcohol
Immediately we hear or see Cirrhosis from a Doctor or imaging report, all we can think about as a liver disease newbie is “how many years do i have left to live” and “how long is the waiting list for a
liver
transplant
“ Mention it to an acquaintance and they always say “yeah you drank too much alcohol
Oztrax
in
British Liver Trust
1 year ago
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