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NCGS/Celiac disease
Hello, I am looking for anyone who has developed NCGS or Celiac disease since having kidney transplant. I am three years post-transplant and have been suffering GI side effects since 6 months post-surgery. The immunosuppressants I have been taking are Tacrolimus and Myfortic. The transplant center
Hello, I am looking for anyone who has developed NCGS or Celiac disease since having kidney transplant. I am three years post-transplant and have been suffering GI side effects since 6 months post-surgery. The immunosuppressants I have been taking are Tacrolimus and Myfortic. The transplant center
6821green
in
Kidney Transplant
28 days ago
Weight gain - how to control it.
I'm now 13 months post kidney transplant. Since the transplant I have put on at least 15 pounds but it keeps going up - I was only 4-5 pounds and then it went up to about 10 pounds and then 15 pounds. Even though I try to exercise and I do watch what I eat too (my wife's a nurse so I rarely get by
I'm now 13 months post kidney transplant. Since the transplant I have put on at least 15 pounds but it keeps going up - I was only 4-5 pounds and then it went up to about 10 pounds and then 15 pounds. Even though I try to exercise and I do watch what I eat too (my wife's a nurse so I rarely get by
Tankjsl
in
Kidney Transplant
1 month ago
Vasculitis in the pancreas?
Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened
Has anyone with GPA or MPA been diagnosed with pancreatic issues due to vasculitis? Hubby had has GPA for 15 years, kidney transplant and sinus involvement and most often in remission until now. He has lost 40 pounds( not trying) and must take enzymes to digest food with a very bland diet. All this happened
Sandalsforever
in
Vasculitis UK
1 month ago
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A sad passing....
The gentleman with the first pig kidney transplant has passed away. https://www.theguardian.com/science/article/2024/may/12/pig-kidney-xenotransplant-patient-dies-two-months-later In better news there has been a second pig kidney transplant! https://www.theguardian.com/us-news/2024/apr/24/new-jersey-woman-pig-kidney-transplant
The gentleman with the first pig kidney transplant has passed away. https://www.theguardian.com/science/article/2024/may/12/pig-kidney-xenotransplant-patient-dies-two-months-later In better news there has been a second pig kidney transplant! https://www.theguardian.com/us-news/2024/apr/24/new-jersey-woman-pig-kidney-transplant
Earther
in
Kidney Transplant
1 month ago
Cynthia Delgado and Neil Powe Named to TIME100 Health List For Fighting Kidney Transplant Bias
TIME named the National Kidney Foundation/American Society of Nephrology Task Force on Reassessing the Inclusion of Race in Diagnosing Kidney Diseases, and its chair persons Cynthia Delgado, MD, FASN and Neil Powe, MD, MPH, MBA to the list of 100 individuals who most influenced global health this year
TIME named the National Kidney Foundation/American Society of Nephrology Task Force on Reassessing the Inclusion of Race in Diagnosing Kidney Diseases, and its chair persons Cynthia Delgado, MD, FASN and Neil Powe, MD, MPH, MBA to the list of 100 individuals who most influenced global health this year
JackieJ_NKF
Partner
in
Kidney Transplant
2 months ago
Reflections on a 10 day vipassana silent meditation residential
Silence…. Note: This is a prelude to Part 2 ‘Reflections on an 8-day silent zazen meditation retreat’. I found myself reflecting on this in relationship to a first residential silent meditation experience, 10 years ago. Offering you space and fodder to consider both and what may call you to the deeper
Silence…. Note: This is a prelude to Part 2 ‘Reflections on an 8-day silent zazen meditation retreat’. I found myself reflecting on this in relationship to a first residential silent meditation experience, 10 years ago. Offering you space and fodder to consider both and what may call you to the deeper
WhollyAligned
Administrator
in
Nutrition and Yoga for Health
2 months ago
ICD insertion and went for Heart Transplant
Hi friends, I have insertion of ICD on 5th April, 2024 from City Hospital, Nottingham but I am enlisted in waiting list of heart transplant from Royal popwarth Hospital, Cambridge. Suddenly I received a call from my Hospital Co-ordinator at 2.00Am midnight on 24/04/2024 that are you ready to go
Hi friends, I have insertion of ICD on 5th April, 2024 from City Hospital, Nottingham but I am enlisted in waiting list of heart transplant from Royal popwarth Hospital, Cambridge. Suddenly I received a call from my Hospital Co-ordinator at 2.00Am midnight on 24/04/2024 that are you ready to go
MIS_G
in
British Heart Foundation
2 months ago
3rd Rheumy says I no longer have PMR but Rheumatoid Arthritis from X-rays and blood tests and prescribed Leflunomide
The side effects for liver damage potential looks scary to me, someone that once was misdiagnosed with
liver
cancer and sent to Cleveland for
transplant
. Yes, fatty
liver
at age 59. Don’t drink or smoke. Pre diabetic/diabetic Also, does PMR segway into rheumatoid arthritis?
The side effects for liver damage potential looks scary to me, someone that once was misdiagnosed with
liver
cancer and sent to Cleveland for
transplant
. Yes, fatty
liver
at age 59. Don’t drink or smoke. Pre diabetic/diabetic Also, does PMR segway into rheumatoid arthritis?
EngineerMatthew
in
PMRGCAuk
7 months ago
Aspergillus post lung transplant.
Hi all, Haven’t been in touch for a while now but mercifully still here. Lungaversary last month which I can only describe as a stormy recovery. Trichosporon infection In clamshell wound delayed discharge by 4 weeks. 1 month in ICU with terrifying hallucinations which still haunt me today. Sternum
Hi all, Haven’t been in touch for a while now but mercifully still here. Lungaversary last month which I can only describe as a stormy recovery. Trichosporon infection In clamshell wound delayed discharge by 4 weeks. 1 month in ICU with terrifying hallucinations which still haunt me today. Sternum
Mrbojangles
in
Lung Conditions Community Forum
2 months ago
Sturnum pain
Hi I'm new to this site my name is James was wondering if any one can help with a question ,I had a really traumatic time 2 years ago when I underwent Ablasion surgery followed by bivad surgery and then heart transplant, For the last 2 years my sternum has been so painful and continues to be so, I have
Hi I'm new to this site my name is James was wondering if any one can help with a question ,I had a really traumatic time 2 years ago when I underwent Ablasion surgery followed by bivad surgery and then heart transplant, For the last 2 years my sternum has been so painful and continues to be so, I have
REDWINE123
in
British Heart Foundation
2 months ago
Going back to work
I’m 6 weeks post kidney transplant. I’ve been given 8 weeks to return to work from my doctor. I was surprised at the limited time I had. I never really talked about going back till 12 weeks through my FMLA, but he thinks 8 weeks is enough. I work in a clinic with over 30 people and I’m concerned with
I’m 6 weeks post kidney transplant. I’ve been given 8 weeks to return to work from my doctor. I was surprised at the limited time I had. I never really talked about going back till 12 weeks through my FMLA, but he thinks 8 weeks is enough. I work in a clinic with over 30 people and I’m concerned with
Wondr1
in
Kidney Transplant
3 months ago
Persistent gout in renal transplant.
Hi, As I understand it many of us will have had gout, I have for 30 years since my transplant. The last 3 years it has been relentless and the past few months: constant. I have been given colchicine and allupurinol but it's not seeming to help any longer. The situation is quite serious as I'm unable
Hi, As I understand it many of us will have had gout, I have for 30 years since my transplant. The last 3 years it has been relentless and the past few months: constant. I have been given colchicine and allupurinol but it's not seeming to help any longer. The situation is quite serious as I'm unable
lkni
in
Kidney Transplant
3 months ago
going to be evaluated at another transplant center
My dialysis center sent a referral to VCU Richmond for a kidney transplant evaluation. I been on the waitlist at Sentara Norfolk for 3 years . Question how many of you were on more than one transplant list ? Could they use test they did at other center. Any of you had transplant at Vcu how was your
My dialysis center sent a referral to VCU Richmond for a kidney transplant evaluation. I been on the waitlist at Sentara Norfolk for 3 years . Question how many of you were on more than one transplant list ? Could they use test they did at other center. Any of you had transplant at Vcu how was your
Beachgirl32
in
Kidney Transplant
3 months ago
Recent HF diagnosis
Hi, I was diagnosed with heart failure a couple of months ago when I woke up one morning struggling for breath with fluid in my lungs, having had virtually no previous symptoms. Looking back, maybe I was a bit short of breath over the last few months but did a sprint-distance triathlon 6 months ago so
Hi, I was diagnosed with heart failure a couple of months ago when I woke up one morning struggling for breath with fluid in my lungs, having had virtually no previous symptoms. Looking back, maybe I was a bit short of breath over the last few months but did a sprint-distance triathlon 6 months ago so
izzibear
in
British Heart Foundation
3 months ago
liver transplant , I have cirrhosis and liver cancer but when I spoke to the specialist he said I would not be eligible for a transplant, I
I was told by a Harley street Consultant, my best way of a cure was a
liver
transplant
, I have been diagnosed with HCC cancer along with portal vein and cirrhosis , I feel very fit and well and when seeing the specialists they thought I was a lot younger than my 73 years But it seems my age is an
I was told by a Harley street Consultant, my best way of a cure was a
liver
transplant
, I have been diagnosed with HCC cancer along with portal vein and cirrhosis , I feel very fit and well and when seeing the specialists they thought I was a lot younger than my 73 years But it seems my age is an
Willow1950
in
British Liver Trust
1 year ago
lung transplant discussion
last week i went to south manchester hospital to discuss what i consider to be a (need) for a lung transplant I informed the doctor that id been thinking about it for a long time & done a lot of research about it in full detail & it seemed that he was impressed At the moment it was an indepth discussion
last week i went to south manchester hospital to discuss what i consider to be a (need) for a lung transplant I informed the doctor that id been thinking about it for a long time & done a lot of research about it in full detail & it seemed that he was impressed At the moment it was an indepth discussion
horseygirl_0103
in
Lung Conditions Community Forum
3 months ago
New medication for boosting immunity against covid19
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Gardner-NY
in
Kidney Transplant
3 months ago
Pork, Autoimmune Disease, and Parkinson's?
So... I have posted on my belief that PD is an autoimmune disease before: Is Parkinson's Disease an Autoimmune Disorder? https://healthunlocked.com/cure-parkinsons/posts/147142599/is-parkinson-s-disease-an-autoimmune-disorder And... (surprisingly) I have not posted on the fact that the only meat I
So... I have posted on my belief that PD is an autoimmune disease before: Is Parkinson's Disease an Autoimmune Disorder? https://healthunlocked.com/cure-parkinsons/posts/147142599/is-parkinson-s-disease-an-autoimmune-disorder And... (surprisingly) I have not posted on the fact that the only meat I
Bolt_Upright
in
Cure Parkinson's
3 months ago
B LARGE CELL DIFFUSE LYMPHOMA AFTER 5 YEAR OF POST KIDNEY TRANSPLANT
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
bal_123
in
Kidney Transplant Patient Support
3 months ago
Lung Transplantation
Hello, I just wanted to ask the community whether they had been through the process of being assessed for a lung transplant or not? What was your experience with the assessment? Did you get accepted as a transplant candidate? What condition did you have that led you to get assessed? Where their any
Hello, I just wanted to ask the community whether they had been through the process of being assessed for a lung transplant or not? What was your experience with the assessment? Did you get accepted as a transplant candidate? What condition did you have that led you to get assessed? Where their any
mrblue12
in
Lung Conditions Community Forum
3 months ago
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