Sturnum pain

[REDWINE123]

Hi I'm new to this site my name is James was wondering if any one can help with a question ,I had a really traumatic time 2 years ago when I underwent Ablasion surgery followed by bivad surgery and then heart transplant, For the last 2 years my sternum has been so painful and continues to be so, I have exhausted pain relief is there any one that has experienced the same ,Many thanks in advance James.

[BeKind28-]

Hello

Nice to meet you James even though not somewhere we want to join but when we do find ourselves here it is somewhere that is very supportive

Congratulations on your heart transplant how amazing

The pain you speak about I am over 2 years post triple Bypass and sometimes I get a little pain still but nothing I need painkillers for

Others might come along that have or are going through what you are and I do feel for you especially after all you have been through

I would though speak with my Consultant when I could or Doctor and even if they try and fobb you of stay firm and tell them the painkillers you have gone through and are still in pain you need an explanation why it is so bad and what they can give you as painkillers are just not helping and you need answers

Let us know how you get on x

[REDWINE123 in reply to BeKind28-]

Hi BeKind28 Many thanks for your reply the pain is constant am taking 10 mg morphine patches and paracetamol, Thank you for your kindness

[BeKind28- in reply to REDWINE123]

Hello

Goodness that is an awful lot of pain relief have you questioned them over this I would be

Please let us know how you get on x

[REDWINE123 in reply to BeKind28-]

Got an appointment 29th April x

[BeKind28- in reply to REDWINE123]

Hello

I am really pleased to hear that not long to wait and will look forward to your update and hope it is a positive one x

[REDWINE123 in reply to BeKind28-]

I have so much going on with medication side effects ,Nerve damage to my left leg and physcological problems just seems never ending its the dizziness when walking that frustrates me most though 🤔

[BeKind28- in reply to REDWINE123]

Hello

I have nothing to deal with compared to you but having three heart attacks and then a triple Bypass and a cocktail of meds I can certainly relate to the awful side effects I believe the meds give me and struggle to cope and it gets me down so I can only imagine how it makes you feel

Sorry about the nerve damage have they shed any light on why you are going dizzy when walking that would be something else that needs answering

There are so many of us on here that have had anxiety and Mental health issues due to our conditions and I am one of those that is still very much struggling

Have you had any therapy or anything like that I hope you have but if not something else to push for and if you have already had some then maybe it would be a good idea to ask for some more

There are others that have had heart transplants on here I do hope they see your post one lady who had really been through it Thanksnhs I hope sees your post as I think she will be able to give you good advice

You can look on her profile and read some of her posts she has done from the start till now you could find some helpful things in them x

[REDWINE123 in reply to BeKind28-]

Thank you so much your very kind and it's nice to hear from others that have had such an awful time my heads all over the place I am waiting for an appointment with my phsycologist but such a waiting list she does ring me though to make sure I'm coping ,you have my upmost respect heart failure is very difficult to cope with for everyone .

[BeKind28- in reply to REDWINE123]

Hello

Well mine is all over the place so not shocked after what you are dealing with yours is to

Yes these waiting lists to see a phycologist are so long even though it is good she phones to see if you are coping

I have seen a phycologist several times and if you get one you connect with it is a big help

I have seen the same one I think 4 times now I get 12 sessions as it is NHS then you have to go back on the waiting list again but it is better than nothing because we connect so well I did ask her if she did private but she doesn't and now she has told me after my 12 sessions she is retiring but when yours phones as you are not coping I hope you do say that you are not as for this to work at all we have to say exactly how we feel and not what we think they may want to here or as we British seem to be polite and even though we are dropping to bits we will still say I am struggling a bit instead of I am going round the bend I cannot take anymore !

I know things seem bleak at the moment but look how far you have come , look what you have been through a miracle I see heart transplant patients as and I am sure you will get through this to even if t may take time to sort it all out you will do it x

[REDWINE123 in reply to BeKind28-]

Thank you so much for your kind words it's much appreciated you sound like you have been through a lot as well so I hope you get the help you deserve I'm at the stage now where I think this is as good as it gets which means my social life is none existent I am lucky to have an amazing wife ,I was in critical care for 55 days it's been a tough journey so far ,sorry for ranting your the first person I've shared anything to do with my transplant in 2 years apart from phsycologist.

[BeKind28- in reply to REDWINE123]

Hello

I know what you mean when you feel you are at a stage as this is where it is as good as it gets but we have to believe no is isn't for some whatever reason it is taking a little more time but we will get there and I am sure things will improve for you even though it is taking more time keep believing and try not to lose hope as believing and staying as positive as we can even though I know that can be hard to do but you notice those that manage to keep thinking this way do get there

To be honest I am agoraphobic and have been for over 20 years except when they kept dragging me nearly literally into the Hospital and over that time my Social life has become non existent different reasons why but it has and that can make us feel low in the way we start to think

Sometimes we may not get back the life we once had but we can make a new life just as good to adapt to what we can do now finding new hobbies new interests there is still a world out there for you to explore that fits in with your health now

55 days that is quite some time yet here you are and your lovely wife is there with you sometimes your partner is the only friend you need and sounds like you have a good one like my Husband the things he has to put up with but here he is still putting up with it so we got lucky there something to focus on what others are not as lucky to have

You are not rating one bit you are talking about what you have been through what you are going through now the struggles you are encounting and the way you feel and this alone is therapy opening up and not sitting alone in silence so good for you sharing how you feel and keep doing so you are not alone x

[REDWINE123]

Hi I find it incredibly difficult to speak about but pleased I have taken this step which is a milestone for me .