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Defenestration or detouring of cysts in PLD
Recently went to King’s London for possible
liver
transplant
tests due to a large polycystic
liver
and they feel it is the wrong time. That enough good parts of my liver remain. However it is very large and they are considering draining the cysts. Anyone out there had similar experience ? Jo
Recently went to King’s London for possible
liver
transplant
tests due to a large polycystic
liver
and they feel it is the wrong time. That enough good parts of my liver remain. However it is very large and they are considering draining the cysts. Anyone out there had similar experience ? Jo
PostivelyJo
in
British Liver Trust
11 months ago
Likelihood of liver transplantation
At the time of admission, the medical team made clear that if he continued to drink, he would likely be dead within 6 months and the best case scenario discussed was approx 2 years without a
liver
transplant
.
At the time of admission, the medical team made clear that if he continued to drink, he would likely be dead within 6 months and the best case scenario discussed was approx 2 years without a
liver
transplant
.
GranolaLover87
in
British Liver Trust
7 months ago
Reintroduce myself for new members
I too had PBC for some 20 years before receiving a life saving
liver
transplant
18+ years ago - and am doing well. I know first hand the many challenges someone with this disease encounters on an almost daily basis. For 43 years, before my retirement 9 years ago, I practiced as a registered nurse .
I too had PBC for some 20 years before receiving a life saving
liver
transplant
18+ years ago - and am doing well. I know first hand the many challenges someone with this disease encounters on an almost daily basis. For 43 years, before my retirement 9 years ago, I practiced as a registered nurse .
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
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Transplant Assessment - Day Three
Hubby was admitted onto the
liver
transplant
/ kidney ward yesterday evening and later on after i'd come back to the caravan they inserted his nasal gastric feeding tube - it was a bit of an ordeal for him as they allowed a student nurse to attempt the procedure and it caused him a lot of pain and some
Hubby was admitted onto the
liver
transplant
/ kidney ward yesterday evening and later on after i'd come back to the caravan they inserted his nasal gastric feeding tube - it was a bit of an ordeal for him as they allowed a student nurse to attempt the procedure and it caused him a lot of pain and some
AyrshireK
in
British Liver Trust
4 months ago
an introduction...
I too had PBC for some 20 years before receiving a life saving
liver
transplant
18+ years ago - and am doing well. I know first hand the many challenges someone with this disease encounters on an almost daily basis. For 43 years, before my retirement 9 years ago, I practiced as a registered nurse .
I too had PBC for some 20 years before receiving a life saving
liver
transplant
18+ years ago - and am doing well. I know first hand the many challenges someone with this disease encounters on an almost daily basis. For 43 years, before my retirement 9 years ago, I practiced as a registered nurse .
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Liver Transplant Kings College
Hi This is my first post here so I’m a bit nervous…I was just wondering if anyone had encountered any problems with the transplant assessment process at Kings College Hospital in London or problems with the care they received while there. I have had huge issues and oversights with them and I was
Hi This is my first post here so I’m a bit nervous…I was just wondering if anyone had encountered any problems with the transplant assessment process at Kings College Hospital in London or problems with the care they received while there. I have had huge issues and oversights with them and I was
Missrogerson1
in
British Liver Trust
11 months ago
taking Urso
I had PBC for 20 years while experiencing itching, extreme fatigue, ascites, edema, 9
liver
biopsies, numerous scopes, jaundice, and ultimately a
liver
transplant
some 19 years ago. But during those 20 years I lived my life as best I could.
I had PBC for 20 years while experiencing itching, extreme fatigue, ascites, edema, 9
liver
biopsies, numerous scopes, jaundice, and ultimately a
liver
transplant
some 19 years ago. But during those 20 years I lived my life as best I could.
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
Bisoprolol problems
I'm waiting for the heart issues to be sorted to be listed for
liver
transplant
. But all the issues is setting it back now the very low resting rate of 30's is causing problems I sure its Bisoprolol. Edit.
I'm waiting for the heart issues to be sorted to be listed for
liver
transplant
. But all the issues is setting it back now the very low resting rate of 30's is causing problems I sure its Bisoprolol. Edit.
Corrie12
in
AF Association
9 months ago
Liver Transplant Assessment
I attended a two day
liver
transplant
assessment on 22nd May which was hard work but I gave it everything to keep going and do my best. They promised a result on the Friday after by phone.
I attended a two day
liver
transplant
assessment on 22nd May which was hard work but I gave it everything to keep going and do my best. They promised a result on the Friday after by phone.
Mitmab
in
British Liver Trust
11 months ago
Life after transplant
My hubby is now 10 months post
transplant
due to alcohol
liver
disease. My question is how much damage did the drinking really do i thought after
liver
transplant
everything would be great i know this is what i focused on to get me where i am and get through it so god knows what my hubby thought .
My hubby is now 10 months post
transplant
due to alcohol
liver
disease. My question is how much damage did the drinking really do i thought after
liver
transplant
everything would be great i know this is what i focused on to get me where i am and get through it so god knows what my hubby thought .
Lippy42
in
British Liver Trust
8 months ago
Anniversary of varices bleed
Informed that
liver
would not improve and would require a
transplant
. Following this I decided to stay positive and accept that would be the outcome needed to extend and improve my quality of life.
Informed that
liver
would not improve and would require a
transplant
. Following this I decided to stay positive and accept that would be the outcome needed to extend and improve my quality of life.
foofighter1
in
British Liver Trust
5 months ago
elevate ALT post transplant
Hi I had my
liver
transplant
6 months ago and have felt fantastic ever since. No issues after
transplant
and blood tests at 5 months showed my
liver
function and kidney function were excellent. Consultant just rung today with blood results at 6 months and my ALT levels are elevated.
Hi I had my
liver
transplant
6 months ago and have felt fantastic ever since. No issues after
transplant
and blood tests at 5 months showed my
liver
function and kidney function were excellent. Consultant just rung today with blood results at 6 months and my ALT levels are elevated.
Bantam2
in
British Liver Trust
10 months ago
Liver transplant advice - missing IVC vein.
However, they informed us that the options available were either a
liver
transplant
or inserting a stent into the veins to improve blood flow, both of which carried a high risk and they were not prepared to go ahead since she is physically well and is able to go about her day to day without any issues
However, they informed us that the options available were either a
liver
transplant
or inserting a stent into the veins to improve blood flow, both of which carried a high risk and they were not prepared to go ahead since she is physically well and is able to go about her day to day without any issues
RAAN88
in
British Liver Trust
11 months ago
one month post op
I am one month out from my
liver
transplant
, and am still in horrible pain, have lost 40 pounds, of which I did not have to loose, still taking OxyContin regularly, can’t sleep, and can’t eat solid foods. Any suggestions? Feeling absolutely miserable, and NO energy.
I am one month out from my
liver
transplant
, and am still in horrible pain, have lost 40 pounds, of which I did not have to loose, still taking OxyContin regularly, can’t sleep, and can’t eat solid foods. Any suggestions? Feeling absolutely miserable, and NO energy.
Rubyrebe
in
British Liver Trust
1 year ago
Looking for advice please
walking around 4 miles a day to lose some weight ( as im overweight) im seriously worried im going to have to get a
liver
transplant
maybe within the next couple years? and if im still over weight on unfit i might not be eligible for one.
walking around 4 miles a day to lose some weight ( as im overweight) im seriously worried im going to have to get a
liver
transplant
maybe within the next couple years? and if im still over weight on unfit i might not be eligible for one.
StokieB
in
British Liver Trust
8 days ago
liver transplant
I got my own last Thursday, waited two and half years and had one faulty call got to the hospital and it wasn’t as we wanted . But it’s been in since Thursday and all good so far 👍🤞. Keeping fingers crossed that it keeps going well, I would like to thank everyone that sent me best wishes. Stay safe
I got my own last Thursday, waited two and half years and had one faulty call got to the hospital and it wasn’t as we wanted . But it’s been in since Thursday and all good so far 👍🤞. Keeping fingers crossed that it keeps going well, I would like to thank everyone that sent me best wishes. Stay safe
Dogbot
in
British Liver Trust
1 year ago
liver transplant
I just thought I’d let you all know I have just been called for my
liver
transplant
, this is the second time I’ve been called so fingers crossed this time 🤞. Stay safe all Dogbot 🐶🌈
I just thought I’d let you all know I have just been called for my
liver
transplant
, this is the second time I’ve been called so fingers crossed this time 🤞. Stay safe all Dogbot 🐶🌈
Dogbot
in
British Liver Trust
1 year ago
information about liver transplants/liver cancer
https://l.facebook.com/l.php?u=AT1q4nZnRGFEk9DREjCfOr32vqyD8L1g6K0RcC_EDbD4oCwtB3eulAZZduYdqnytaPjLXB9ZdFhw53LtO0m0MZWIG09DGKjSAU58KK3Gx6FqL1ztOVQvumdzQlbjfVPHGO8tFD2m0oK5VyAVEzzJoUzd2pJDkD8m4nCGQIsZDX8eZvxWwFuOeOlBzlzmIDXByapbNibWWnHsiBDPCpdlit3QCvc3HXSgyaugkx8LKnX9JUKbsPscdDYOai6FkVHhe7jUsezWDdM0phZl2Gas6b6w_e9YfCqvk9s_pVzncIu2r7Dt7s1gfemxBPiIXaHYEiuPp0OwY
https://l.facebook.com/l.php?u=AT1q4nZnRGFEk9DREjCfOr32vqyD8L1g6K0RcC_EDbD4oCwtB3eulAZZduYdqnytaPjLXB9ZdFhw53LtO0m0MZWIG09DGKjSAU58KK3Gx6FqL1ztOVQvumdzQlbjfVPHGO8tFD2m0oK5VyAVEzzJoUzd2pJDkD8m4nCGQIsZDX8eZvxWwFuOeOlBzlzmIDXByapbNibWWnHsiBDPCpdlit3QCvc3HXSgyaugkx8LKnX9JUKbsPscdDYOai6FkVHhe7jUsezWDdM0phZl2Gas6b6w_e9YfCqvk9s_pVzncIu2r7Dt7s1gfemxBPiIXaHYEiuPp0OwY
DonnaBoll
Administrator
in
PBC Foundation
12 days ago
Questions about Liver Transplantation
Hello everyone, The Blue Faery team is currently planning our next workshop, where we will discuss liver transplantation. Please feel free to submit your questions in the comments, and we will be sure to include them in our workshop! We will be posting more details about the upcoming workshop next
Hello everyone, The Blue Faery team is currently planning our next workshop, where we will discuss liver transplantation. Please feel free to submit your questions in the comments, and we will be sure to include them in our workshop! We will be posting more details about the upcoming workshop next
AllysonBlueFaery
Community Ambassador
in
Blue Faery Liver Cancer
28 days ago
Need a rant
Last week I had some devastating news I have a rare liver condition and now because of the AF and bradycardia I have been told that I have no other options but to have a
liver
transplant
because the AF complicates things I'm really upset and scared I really don't know what to do.
Last week I had some devastating news I have a rare liver condition and now because of the AF and bradycardia I have been told that I have no other options but to have a
liver
transplant
because the AF complicates things I'm really upset and scared I really don't know what to do.
Corrie12
in
AF Association
1 year ago
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