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Experiences with
Liver transplant
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Possible Kidney Failure
Hello: My husband had a
liver
transplant
many years ago and has done very well, for which we are very grateful. Since October of 2023, his creatinine started rising and his egfr started falling. He had blood work done several times since then.
Hello: My husband had a
liver
transplant
many years ago and has done very well, for which we are very grateful. Since October of 2023, his creatinine started rising and his egfr started falling. He had blood work done several times since then.
PennyLovas
in
Kidney Disease
3 months ago
Chronic Liver Disease Post Transplant
Hi, I had a
liver
transplant
in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease.
Hi, I had a
liver
transplant
in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease.
Dawnejoy
in
British Liver Trust
2 days ago
previous question
About 25% of those who have a
liver
transplant
have the PBC reoccur. It isn't the old
liver
that had the PBC- it's something within our bodies that attack those bile duct cells. My PBC returned (very mildly) about 3 - 4 years ago. I have been blessed with 18+ years of life!
About 25% of those who have a
liver
transplant
have the PBC reoccur. It isn't the old
liver
that had the PBC- it's something within our bodies that attack those bile duct cells. My PBC returned (very mildly) about 3 - 4 years ago. I have been blessed with 18+ years of life!
DonnaBoll
Administrator
in
PBC Foundation
3 months ago
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Itching due to medication??
Hello, I had a
liver
transplant
3 years ago and take tacrolimus, mycophenolate and prednisone for anti rejection. I have recently had a very itchy localised rash on my neck which I have been treating with hydrocortisone cream. This is having no effect.
Hello, I had a
liver
transplant
3 years ago and take tacrolimus, mycophenolate and prednisone for anti rejection. I have recently had a very itchy localised rash on my neck which I have been treating with hydrocortisone cream. This is having no effect.
Chasdog
in
British Liver Trust
7 months ago
liver transplant : build up
I got a call from my doctors on Friday and they told me they are booking me in for vaccines , I enquired why and they said for
liver
transplant
and should have been told this at my appointment. I have now two other appoints one is the fitness test and one is a ct scan of pelvic area etc.
I got a call from my doctors on Friday and they told me they are booking me in for vaccines , I enquired why and they said for
liver
transplant
and should have been told this at my appointment. I have now two other appoints one is the fitness test and one is a ct scan of pelvic area etc.
Meanies
in
British Liver Trust
5 months ago
Upcoming TTALC Workshop - May 18, 2024
Register for the event here: https://crowdcast.io/c/truth-
liver
-cancer-
liver
-
transplant
Register for the event here: https://crowdcast.io/c/truth-
liver
-cancer-
liver
-
transplant
AllysonBlueFaery
Community Ambassador
in
Blue Faery Liver Cancer
4 days ago
PSA in lower range, yet PSMA PET SCAN shows diffuse bone Metastasis
He is already a post
liver
transplant
patient and compromised on the immunity front as he is on Cyclosporine, though its a minimal dose as he is into 22nd years since liver Tx. I request for your help please.. thanks !!!
He is already a post
liver
transplant
patient and compromised on the immunity front as he is on Cyclosporine, though its a minimal dose as he is into 22nd years since liver Tx. I request for your help please.. thanks !!!
Ij2023
in
Advanced Prostate Cancer
5 months ago
new onset neuropathy
hi Hi since a
liver
transplant
3.5 months ago I have been getting burning feet esp at night. It has gradually worsened and now I get it during the day with pain and swelling and my hands have kicked off now. It is so bad at times I just can’t walk with the discomfort and pain.
hi Hi since a
liver
transplant
3.5 months ago I have been getting burning feet esp at night. It has gradually worsened and now I get it during the day with pain and swelling and my hands have kicked off now. It is so bad at times I just can’t walk with the discomfort and pain.
Zechariah123
in
British Liver Trust
8 months ago
Christmas
2) we’ve been told she isn’t a candidate for
liver
transplant
as her general health isn’t strong enough, and as such we are now waiting for the end. Does anyone have any insight from experience or whatever of how long that might mean?
2) we’ve been told she isn’t a candidate for
liver
transplant
as her general health isn’t strong enough, and as such we are now waiting for the end. Does anyone have any insight from experience or whatever of how long that might mean?
PerpetuallySad
in
British Liver Trust
4 months ago
Biopsy and Fibroscan
He also suggested that I get in contact with Mayo (Missouri) Clinic to get to know the
liver
transplant
team...I'm not sure if I do this? or does a doctor refer me? I live in Springfield il. I'm not even sure about a timeline on everything. I am to repeat the scan in 3 months. Thanks
He also suggested that I get in contact with Mayo (Missouri) Clinic to get to know the
liver
transplant
team...I'm not sure if I do this? or does a doctor refer me? I live in Springfield il. I'm not even sure about a timeline on everything. I am to repeat the scan in 3 months. Thanks
suz56
in
PBCers Organization
7 months ago
PBC - liver transplant donors and blood group questions
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a
liver
transplant
is needed, that being a specific blood group type can limit the number of potential donors you may have?
Hi - I either read on this website or the PBC Facebook site in the last couple of weeks - referring to if potentially one day a
liver
transplant
is needed, that being a specific blood group type can limit the number of potential donors you may have?
Cascade35
in
PBC Foundation
6 months ago
We understand....
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving
liver
transplant
almost 19 years ago. In about 25% of those with
liver
transplants the PBC returns.
In my initial bio, I related to you that I had PBC for some 20 years before receiving a life saving
liver
transplant
almost 19 years ago. In about 25% of those with
liver
transplants the PBC returns.
DonnaBoll
Administrator
in
PBC Foundation
1 month ago
Does anyone get these symptoms and have answers of cause ??
Hi, I had a
liver
transplant
back in March 2022. I had a condition called ‘PSC’ since my op my recovery was and is a slow one involving a few complications, but the one I’m struggling with at the minute is a sort of heat rash all over my body - hot itchy and very uncomfortable.
Hi, I had a
liver
transplant
back in March 2022. I had a condition called ‘PSC’ since my op my recovery was and is a slow one involving a few complications, but the one I’m struggling with at the minute is a sort of heat rash all over my body - hot itchy and very uncomfortable.
NicharrisonMarch2022
in
British Liver Trust
7 months ago
Liver Transplant - Lest we forget
All the imagery people who complete the various
liver
scans. Right up to the
Liver
transplant
team, and of course not forgetting those special people who stand by us during these difficult times. Our Wives, Husbands, partners etc. I had my
liver
transplant
back in 2016.
All the imagery people who complete the various
liver
scans. Right up to the
Liver
transplant
team, and of course not forgetting those special people who stand by us during these difficult times. Our Wives, Husbands, partners etc. I had my
liver
transplant
back in 2016.
Richard-Allen
in
British Liver Trust
8 months ago
portal vein pressure test
But if not, his only chance is
liver
transplant
but as an ex drinker Im assuming they wont offer him that . Im not sure what to make of all this now. He thinks his life is over . can any of you advise please
But if not, his only chance is
liver
transplant
but as an ex drinker Im assuming they wont offer him that . Im not sure what to make of all this now. He thinks his life is over . can any of you advise please
pussycat66
in
British Liver Trust
4 months ago
A Celebration of Life
I've mentioned in some other posts that almost 19 years ago I had a
liver
transplant
. I have done well and feel these 19 years added to my life are such a gift. Shortly after I retired from nursing I began volunteering my time at MidAmerica Transplant. This is a local (St.
I've mentioned in some other posts that almost 19 years ago I had a
liver
transplant
. I have done well and feel these 19 years added to my life are such a gift. Shortly after I retired from nursing I began volunteering my time at MidAmerica Transplant. This is a local (St.
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Desperately trying to save my partner.
Hello all,I am desperately trying to get the surgeons to overturn their decision to not give my partner a
liver
transplant
. He has Autoimmune Hepatitis with the complication of Hepatopulmonary Syndrome and the only way to cure Hps is with transplantation but they refuse.
Hello all,I am desperately trying to get the surgeons to overturn their decision to not give my partner a
liver
transplant
. He has Autoimmune Hepatitis with the complication of Hepatopulmonary Syndrome and the only way to cure Hps is with transplantation but they refuse.
Ffof6
in
British Liver Trust
5 months ago
Defenestration or detouring of cysts in PLD
Recently went to King’s London for possible
liver
transplant
tests due to a large polycystic
liver
and they feel it is the wrong time. That enough good parts of my liver remain. However it is very large and they are considering draining the cysts. Anyone out there had similar experience ? Jo
Recently went to King’s London for possible
liver
transplant
tests due to a large polycystic
liver
and they feel it is the wrong time. That enough good parts of my liver remain. However it is very large and they are considering draining the cysts. Anyone out there had similar experience ? Jo
PostivelyJo
in
British Liver Trust
10 months ago
Intense pruritus following liver transplant - diagnosed with hepatic cholestatic. Any help please?
Hi, I received a
liver
transplant
back in December 2022 and recovery was well for the first four months however around end of April I started suffering with pruritus amongst other symptoms i.e. acid reflux, fatigue etc. and following x rays and scans, the Consultants advised it was due to strictures
Hi, I received a
liver
transplant
back in December 2022 and recovery was well for the first four months however around end of April I started suffering with pruritus amongst other symptoms i.e. acid reflux, fatigue etc. and following x rays and scans, the Consultants advised it was due to strictures
KateG94
in
British Liver Trust
7 months ago
Manganese levels
the neurologist said that it is extremely rare that I have such high levels in my bloods and unfortunately the only option would be a
liver
transplant
. he said if not, the levels will keep building in your body and because your Liver can’t for some reason, fill it out eventually and he doesn’t know
the neurologist said that it is extremely rare that I have such high levels in my bloods and unfortunately the only option would be a
liver
transplant
. he said if not, the levels will keep building in your body and because your Liver can’t for some reason, fill it out eventually and he doesn’t know
Lifehappened123
in
British Liver Trust
4 months ago
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