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advice please
I was referred for a fibroscan after a blood test. It took approx 11 months for scan which happened a few weeks before Christmas. The scan revealed I had nafld with a score of 36. This was all conducted by a specialist nurse, as yet I have not seen a consultant and had no further tests or scans. I had
I was referred for a fibroscan after a blood test. It took approx 11 months for scan which happened a few weeks before Christmas. The scan revealed I had nafld with a score of 36. This was all conducted by a specialist nurse, as yet I have not seen a consultant and had no further tests or scans. I had
gavinlwright
in
British Liver Trust
1 year ago
THE “C” WORD
Before I get kicked off this forum, “C” stands for Cirrhosis. And yes on my ultrasound report it mentions the dreaded “C” word. But there really is no difference between Cirrhosis and fybrosis except the degree of fybrosis at some arbitrary stage is classed as Cirrhosis. Immediately we hear or see
Before I get kicked off this forum, “C” stands for Cirrhosis. And yes on my ultrasound report it mentions the dreaded “C” word. But there really is no difference between Cirrhosis and fybrosis except the degree of fybrosis at some arbitrary stage is classed as Cirrhosis. Immediately we hear or see
Oztrax
in
British Liver Trust
1 year ago
Questions
As I stated in my first post here, they told me my MRE results were "mild scarring."I thought it was gonna be a lot worse although I know scarring is to be taken seriously. I am awaiting to see stomach doctor and will no doubt learn more about what I'm dealing with. I have read early fibrosis doesn't
As I stated in my first post here, they told me my MRE results were "mild scarring."I thought it was gonna be a lot worse although I know scarring is to be taken seriously. I am awaiting to see stomach doctor and will no doubt learn more about what I'm dealing with. I have read early fibrosis doesn't
Rbbooks
in
British Liver Trust
1 year ago
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Due to have 2 days of tests Starting Monday for TP suitability. Very nervous ! First time I've posted.
So I'm just 60 and diagnosed decompensated ARLD.in September 22. A month later they have found Varices and then a lesion on liver. Have been sober 9 months, on strict diet and keep to it most of the time. Theve banded 2 Varices and put me on beta blockers. You know before I got unwell presenting with
So I'm just 60 and diagnosed decompensated ARLD.in September 22. A month later they have found Varices and then a lesion on liver. Have been sober 9 months, on strict diet and keep to it most of the time. Theve banded 2 Varices and put me on beta blockers. You know before I got unwell presenting with
Gus63
in
British Liver Trust
1 year ago
Hepatic encephalopathy
I've been been diagnosed with fatty liver after CT and 2 ultrasounds and normal bloods but I itch all the time and get confused and really scared I get muscle cramps and stomach cramps chest pain my stomach looks like a football and I've put on 8lb with in 2 weeks I also have spider veins on my chest
I've been been diagnosed with fatty liver after CT and 2 ultrasounds and normal bloods but I itch all the time and get confused and really scared I get muscle cramps and stomach cramps chest pain my stomach looks like a football and I've put on 8lb with in 2 weeks I also have spider veins on my chest
Hidden
in
British Liver Trust
1 year ago
NAFLD
was interested if anyone with NAFLD/NASH diagnosis and F2 fibrosis have a had consistent low or normal AST/ALT ? Basically any blood test I have had is right in the normal range, this includes antibodies, platelets etc. How can I be so fatigued if there are no signs in blood work, ever ? My fibroscan
was interested if anyone with NAFLD/NASH diagnosis and F2 fibrosis have a had consistent low or normal AST/ALT ? Basically any blood test I have had is right in the normal range, this includes antibodies, platelets etc. How can I be so fatigued if there are no signs in blood work, ever ? My fibroscan
Oztrax
in
British Liver Trust
1 year ago
Mild Scarring
Hello, everyone, I've been lurking here since last year. I want to thank you for your inspiring stories and wealth of positive information you exchange and for being brave enough to share your struggles and losses. I am 43 from usa, just diagnosed with mild scarring of my liver through mre. I am not
Hello, everyone, I've been lurking here since last year. I want to thank you for your inspiring stories and wealth of positive information you exchange and for being brave enough to share your struggles and losses. I am 43 from usa, just diagnosed with mild scarring of my liver through mre. I am not
Rbbooks
in
British Liver Trust
1 year ago
Does anyone have experience of Lenvatinib as a treatment for liver cancer?
I was diagnosed with liver cancer at the end of September last year, 2022. After a scan I was told that I had one large tumour and several smaller ones, that the large tumour was near the main artery and was of a size that ruled out conventional treatment, liver transplant, radiotherapy, embolisation
I was diagnosed with liver cancer at the end of September last year, 2022. After a scan I was told that I had one large tumour and several smaller ones, that the large tumour was near the main artery and was of a size that ruled out conventional treatment, liver transplant, radiotherapy, embolisation
majorda
in
British Liver Trust
1 year ago
Fatty Liver
Hello. I have recently been diagnosed with fatty liver. I have been a heavy drinker for at least 25 years. My question is: How long will it take for my liver to recover if I abstain from alcohol completely? I understand that there is no set figure but any advice is appreciated. Thanks for your help
Hello. I have recently been diagnosed with fatty liver. I have been a heavy drinker for at least 25 years. My question is: How long will it take for my liver to recover if I abstain from alcohol completely? I understand that there is no set figure but any advice is appreciated. Thanks for your help
Betsy5
in
British Liver Trust
1 year ago
Liver fibrosis
i did my fibroscan yesterday and the result came back alarming. My CAP value is at 400 and Fibrosis score 10.9. I’m arranging for a MRE to confirm diagnosis. Doctor says that this is still reversible. I’m so scared tha I’m having living cirrhosis. I’m only 39 yo with 2 young kids. Would appreciate
i did my fibroscan yesterday and the result came back alarming. My CAP value is at 400 and Fibrosis score 10.9. I’m arranging for a MRE to confirm diagnosis. Doctor says that this is still reversible. I’m so scared tha I’m having living cirrhosis. I’m only 39 yo with 2 young kids. Would appreciate
Reneling
in
British Liver Trust
1 year ago
Latest ultrasound and blood results
My second ultrasound and blood can back this morning the bloods were satisfactory and ultrasound says fatty liver should I know stop worrying about thinking my liver is cirrhosis and get on with life
My second ultrasound and blood can back this morning the bloods were satisfactory and ultrasound says fatty liver should I know stop worrying about thinking my liver is cirrhosis and get on with life
Hidden
in
British Liver Trust
1 year ago
Stoma reversal
I have just had a liver transplant and went back for my first check up, everything is going so well so far. While I was waiting for my liver transplant I had an emergency Stoma surgery and had a bag fitted, the surgeon that gave me my first check up for my liver said in about six months or so they will
I have just had a liver transplant and went back for my first check up, everything is going so well so far. While I was waiting for my liver transplant I had an emergency Stoma surgery and had a bag fitted, the surgeon that gave me my first check up for my liver said in about six months or so they will
Dogbot
in
Living with a Stoma
1 year ago
liver dialysis
hello Has anyone heard of this new treatment “Liver Dialysis’ apparently cleans your liver out of toxins, improves your bloods? I’m seeing my transplant team for the first time on 9th Aug and apparently I think I’m boarderline if I need a transplant, so was wondering if this treatment would be better
hello Has anyone heard of this new treatment “Liver Dialysis’ apparently cleans your liver out of toxins, improves your bloods? I’m seeing my transplant team for the first time on 9th Aug and apparently I think I’m boarderline if I need a transplant, so was wondering if this treatment would be better
Harriet-sarah
in
British Liver Trust
1 year ago
Good news
Whilst I am still struggling with getting help for my son, I had a bright spot of news this week. Had a consultation with my liver nurse, first time face to face since lockdown. My bloods have been great for several years, ultrasounds all good too. I had a Fibroscan as I hadn’t had one for around 4
Whilst I am still struggling with getting help for my son, I had a bright spot of news this week. Had a consultation with my liver nurse, first time face to face since lockdown. My bloods have been great for several years, ultrasounds all good too. I had a Fibroscan as I hadn’t had one for around 4
scampi2122
in
British Liver Trust
1 year ago
teeth whitening
good morning everyone I don’t know if anyone on here has had any experience with tooth whitening products, only I’ve seen an advert for a tooth whitening powder which I’m very tempted to try, especially as it’s dentist approved and is peroxide-free. I’m just wondering about the Alendronic Acid I’m
good morning everyone I don’t know if anyone on here has had any experience with tooth whitening products, only I’ve seen an advert for a tooth whitening powder which I’m very tempted to try, especially as it’s dentist approved and is peroxide-free. I’m just wondering about the Alendronic Acid I’m
Doraflora
in
PMRGCAuk
1 year ago
Has anyone experienced this...
So partner needs transplant, had assessment app last week but got cancelled due to being an in patient in hospital with sepsis. Infection cleared but today doc said kidneys not doing so well today. He has bleeding from lips and nose due to low platelets but they have said they are not giving him platelets
So partner needs transplant, had assessment app last week but got cancelled due to being an in patient in hospital with sepsis. Infection cleared but today doc said kidneys not doing so well today. He has bleeding from lips and nose due to low platelets but they have said they are not giving him platelets
Fauncey
in
British Liver Trust
1 year ago
Dr Google
Is it the only was to test accurately for liver disease is having a liver biopsy, according to Google ultrasound is only 30 odd % CT scan 60 odd % should I just ignore Dr Google
Is it the only was to test accurately for liver disease is having a liver biopsy, according to Google ultrasound is only 30 odd % CT scan 60 odd % should I just ignore Dr Google
Hidden
in
British Liver Trust
1 year ago
Confused and stressed
I have decompensated liver not alcohol related ten years on methatrixate and fatty liver diagnosed at Easter and hospitalised six weeks ago with ascetics now on reduced fluid spirolactOne 50mgs lactulose 10 mils four times a day carvedilol 6.25mgs a day l have varices macrogol 2sachets a day and frusamideI
I have decompensated liver not alcohol related ten years on methatrixate and fatty liver diagnosed at Easter and hospitalised six weeks ago with ascetics now on reduced fluid spirolactOne 50mgs lactulose 10 mils four times a day carvedilol 6.25mgs a day l have varices macrogol 2sachets a day and frusamideI
Missmanor2
in
British Liver Trust
1 year ago
Tear in oesophagus
Hi Folks , Mum has cirrhosis of the liver , portal hypertension and oesophageal varcies , just out the hospital after getting two pins put in from a tear in oesophagus , blood transfusion , antibiotics etc should we be aware for another bleed , does this normally happen ? Any advice appreciated .
Hi Folks , Mum has cirrhosis of the liver , portal hypertension and oesophageal varcies , just out the hospital after getting two pins put in from a tear in oesophagus , blood transfusion , antibiotics etc should we be aware for another bleed , does this normally happen ? Any advice appreciated .
Sharonmcfarlane
in
British Liver Trust
1 year ago
Overwhelming Fatigue
I ama 62 year old female. I have been on hemodialysis then peritoneal dialysis and back to hemodialysis over the past five years. I felt great for the two years on peritoneal. Was able to work and go about my daily routine. The peritoneal stopped working and I have been back on hemodialysis for about
I ama 62 year old female. I have been on hemodialysis then peritoneal dialysis and back to hemodialysis over the past five years. I felt great for the two years on peritoneal. Was able to work and go about my daily routine. The peritoneal stopped working and I have been back on hemodialysis for about
Frankie24
in
Kidney Dialysis
1 year ago
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