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update
Hello all. I haven't been here for long time as I am trying to avoid media for now. Little update (if anyone read it) my liver nurse says that I am doing very well, I managed to do some houseworks, workouts and eat well. We proceed my check ups from every 3 weeks to every 8 weeks as my blood tests
Hello all. I haven't been here for long time as I am trying to avoid media for now. Little update (if anyone read it) my liver nurse says that I am doing very well, I managed to do some houseworks, workouts and eat well. We proceed my check ups from every 3 weeks to every 8 weeks as my blood tests
Bazinga89
in
British Liver Trust
2 years ago
My son has his first appointment with Vanderbilt Hepatologist this week, anything I need to be aware of?
My son finally has his first appointment with the hepatologist this week to just establish with them. We have been told he doesn't need a liver transplant yet from the GI physician. However, due to Covid and just how long it takes to get appointments for new patients, we wanted to get him established
My son finally has his first appointment with the hepatologist this week to just establish with them. We have been told he doesn't need a liver transplant yet from the GI physician. However, due to Covid and just how long it takes to get appointments for new patients, we wanted to get him established
Bloomwithgrace
in
Living with Fatty Liver and NASH
2 years ago
NEW TO THIS
I have not had a formal diagnosis yet, been referred to the Heptology department at the local hospital, not until July ! This is due to high ALT, just had another blood test. I have not drunk any alcohol since I found out about this. Have I been a heavy drinker, well I didn't think so, but I did
I have not had a formal diagnosis yet, been referred to the Heptology department at the local hospital, not until July ! This is due to high ALT, just had another blood test. I have not drunk any alcohol since I found out about this. Have I been a heavy drinker, well I didn't think so, but I did
borzoiharvey
in
British Liver Trust
2 years ago
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How long
Consultant is writing to Birmingham. Liver transplant team how long does it take from them receiving the letter will it take for us to hear anything 🙄
Consultant is writing to Birmingham. Liver transplant team how long does it take from them receiving the letter will it take for us to hear anything 🙄
Lippy42
in
British Liver Trust
2 years ago
Have to retake a bloodtest
Hi all I’m a 38 year old heavy drinker. I recently had a bout of food poisoning for which I had blood tests at my GP. No one got in touch so I contacted the surgery to chase the results, and the receptionist said that 2 test were normal but they want me to retake one in a month, I asked which one and
Hi all I’m a 38 year old heavy drinker. I recently had a bout of food poisoning for which I had blood tests at my GP. No one got in touch so I contacted the surgery to chase the results, and the receptionist said that 2 test were normal but they want me to retake one in a month, I asked which one and
Hogeyz
in
British Liver Trust
2 years ago
High GGT, no alcohol use
I am a 59 year old female and I rarely drink alcohol. My ggt is 137 and other enzymes ok. I have had liver pain, get nausea and vague general pain all over abdomen. One ulstrasound clear six months ago, got to have another one and further blood tests. Anyone on here had same, who doesn't drink? Once
I am a 59 year old female and I rarely drink alcohol. My ggt is 137 and other enzymes ok. I have had liver pain, get nausea and vague general pain all over abdomen. One ulstrasound clear six months ago, got to have another one and further blood tests. Anyone on here had same, who doesn't drink? Once
salts99
in
British Liver Trust
2 years ago
ALBUMIN and EDEMA and COMPRESSION SOCKS - oh my!
partner diagnosed decompensated cirrhosis 22.12.21 - stopped drinking the same day. Albumin 18 at diagnosis, 24 at best since now dipped again to 22. How long did people's albumin take to recover - is it normally so slow to improve - in contrast bilirubin gone from 256 to 58 since Dec. He is having
partner diagnosed decompensated cirrhosis 22.12.21 - stopped drinking the same day. Albumin 18 at diagnosis, 24 at best since now dipped again to 22. How long did people's albumin take to recover - is it normally so slow to improve - in contrast bilirubin gone from 256 to 58 since Dec. He is having
Rshc
in
British Liver Trust
2 years ago
Ischaemic cholangiopathy. Does anyone have experience of dealing with this diagnosis, treatments, etc. I take Urso for increasing bile flow
Does anyone have experience of dealing with this diagnosis, treatments, etc. I take Urso everyday for increasing bile flow and had my second MRCP scan yesterday 1 year post diagnosis
Does anyone have experience of dealing with this diagnosis, treatments, etc. I take Urso everyday for increasing bile flow and had my second MRCP scan yesterday 1 year post diagnosis
Jonnyraguskas
in
British Liver Trust
2 years ago
Update
Morning everyone my hubby went for his appointment with gastroenterologist yesterday after having mri escoptomy and ecg for his liver disease she said in simple terms his liver is "knackered " she is now writing to the liver transplant team in Birmingham. So we know if it goes further then ste will undergo
Morning everyone my hubby went for his appointment with gastroenterologist yesterday after having mri escoptomy and ecg for his liver disease she said in simple terms his liver is "knackered " she is now writing to the liver transplant team in Birmingham. So we know if it goes further then ste will undergo
Lippy42
in
British Liver Trust
2 years ago
What not to eat AIH
Hi. I was told that with AIH you can eat 'as normal' which I take as no changes required to existing diet. I am not overweight and eat all the good stuff i.e veggies and fruit on a daily basis. I love my dairy and eat plain unsweetened full fat yoghurt and cheese and full fat butter. I have a bowl of
Hi. I was told that with AIH you can eat 'as normal' which I take as no changes required to existing diet. I am not overweight and eat all the good stuff i.e veggies and fruit on a daily basis. I love my dairy and eat plain unsweetened full fat yoghurt and cheese and full fat butter. I have a bowl of
Aztec632
in
British Liver Trust
2 years ago
Up date on my ast elevation.
I want to let you know that my liver enzymes went back to normal. My ct scan is normal as well—no liver damage. It must have been the cinnamon and the cinnamon capsules that I took to lower my prediabetes that caused my enzymes to elevate so fast. Thank you all for the support. Sincerely, Jenny
I want to let you know that my liver enzymes went back to normal. My ct scan is normal as well—no liver damage. It must have been the cinnamon and the cinnamon capsules that I took to lower my prediabetes that caused my enzymes to elevate so fast. Thank you all for the support. Sincerely, Jenny
Jennyhadenough
in
PBC Foundation
2 years ago
Bad nausea
Hi everyone I've been on Urso now for about 1 month and have started with quite bad nausea waves throughout the day. I take mine in the evening about 8pm with food so I don't know if it's the Urso or the liver itself. Also have started peeing more. Have to admit this is worrying me now and an still
Hi everyone I've been on Urso now for about 1 month and have started with quite bad nausea waves throughout the day. I take mine in the evening about 8pm with food so I don't know if it's the Urso or the liver itself. Also have started peeing more. Have to admit this is worrying me now and an still
Casslucy
in
PBC Foundation
2 years ago
Previous platelets...
Just looking back through my medical records and I noticed a blood test I had done for unrelated reasons to my liver(all LFTs etc normal) in 2015,my platelets were at 138k. That’s what they are now? Could I just have low platelets then? Interesting.......
Just looking back through my medical records and I noticed a blood test I had done for unrelated reasons to my liver(all LFTs etc normal) in 2015,my platelets were at 138k. That’s what they are now? Could I just have low platelets then? Interesting.......
deanw41
in
British Liver Trust
2 years ago
Biliary Atresia
My daughter had a Kasai procedure a little over a month ago. We noticed today her stool went from bright yellow to pale cream. No temperature, normal appetite and very active. GGT levels fluctuate from 252 to 180 to 352. Could GGT be a factor? Anybody else have experienced a similar case? Did you require
My daughter had a Kasai procedure a little over a month ago. We noticed today her stool went from bright yellow to pale cream. No temperature, normal appetite and very active. GGT levels fluctuate from 252 to 180 to 352. Could GGT be a factor? Anybody else have experienced a similar case? Did you require
Gotita0505
in
Children's Liver Disease Foundation
2 years ago
Fibroscan Results
I got a copy of my results Median Liver Stiffness 10.9 IQR/Median 12% Cap Median 269 Cap Interquartile Range 31 Fibrosis Stage F3 is there somewhere I can interpret these results?
I got a copy of my results Median Liver Stiffness 10.9 IQR/Median 12% Cap Median 269 Cap Interquartile Range 31 Fibrosis Stage F3 is there somewhere I can interpret these results?
drittz78
in
British Liver Trust
2 years ago
Updated information causing confusion
Hi all, my cancer recurred in January 2022. It’s in the right side of my liver this time. Three Tumor Boards later I have spent 10 weeks trying to come to an agreed upon plan and don’t yet have one. My cancer is aggressive so time is not on my side. My local oncologist recommend Y90 and immunotherapy
Hi all, my cancer recurred in January 2022. It’s in the right side of my liver this time. Three Tumor Boards later I have spent 10 weeks trying to come to an agreed upon plan and don’t yet have one. My cancer is aggressive so time is not on my side. My local oncologist recommend Y90 and immunotherapy
Iggy08713287
Patient
in
Blue Faery Liver Cancer
2 years ago
Cheerful news
I have posted a few times before with questions. Today is a cheerful post. I have decompensated cirrhosis with varices and ascites. I had a stint in rehab in January which I actually enjoyed quite a lot of (it cost a lot though) I was on 6-8 weekly gastroscopies, usually with banding because of two life
I have posted a few times before with questions. Today is a cheerful post. I have decompensated cirrhosis with varices and ascites. I had a stint in rehab in January which I actually enjoyed quite a lot of (it cost a lot though) I was on 6-8 weekly gastroscopies, usually with banding because of two life
theoldboiler
in
British Liver Trust
2 years ago
Hello
What's going on? Eventually got a fibroscan on Monday 11/4/22 after badgering my doc as I have just cleared hep c but no follow up. Just a telephone call to say I was clear. This is, of course, brilliant news. However I have been carrying the virus for 35 years. I am 53 now and have symptoms related
What's going on? Eventually got a fibroscan on Monday 11/4/22 after badgering my doc as I have just cleared hep c but no follow up. Just a telephone call to say I was clear. This is, of course, brilliant news. However I have been carrying the virus for 35 years. I am 53 now and have symptoms related
Sharona68
in
British Liver Trust
2 years ago
CT Scan unable to diagnose Liver Haemangioma vs malignant Tumours?
Can any kind folks help me out on this? I had some stomach pain issues and went for an endoscopy back in Nov 2021. The doc found Gastritis but also asked me to do an ultrasound. I did and they found a mass on my liver. Doc asked me to go for a CT scan with IV contrast of the abdominal. The results came
Can any kind folks help me out on this? I had some stomach pain issues and went for an endoscopy back in Nov 2021. The doc found Gastritis but also asked me to do an ultrasound. I did and they found a mass on my liver. Doc asked me to go for a CT scan with IV contrast of the abdominal. The results came
jerrylimkk
in
British Liver Trust
2 years ago
Cirrhosis
I've had diarrhea four about 4 days and feel like I got the flue I done a COVID test .. negative I have only had about 2 wees a day too ,I spoke to my GP and he asked if I was yellow,I said no more than usual he said he will give me some immodium ,but I don't want to get bunged up ,I've been taking all
I've had diarrhea four about 4 days and feel like I got the flue I done a COVID test .. negative I have only had about 2 wees a day too ,I spoke to my GP and he asked if I was yellow,I said no more than usual he said he will give me some immodium ,but I don't want to get bunged up ,I've been taking all
Ozzie1961
in
British Liver Trust
2 years ago
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