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When to test?
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
Good morning.....I have PA diagnosed in 2016. My younger daughter has Sapho Syndrome (autoimmune) and has also suffered Endometriosis (?autoimmune) for nearly 30 years....She is about to have an endoscopy, also several bi opsies. I keep feeling that a lot of her symptoms could be PA...I have eventually
edeuweed
in
Pernicious Anaemia Society
4 months ago
Waiting for a Hysterectomy
Hello everyone, I am writing to ask for any advice/support or similar situations. I am 39, F, live in Scotland UK Have been having problems since May 2021 - heavy menstrual bleeding and pain, hadn't had any issues or bleeding for 20+ years on the mini-Pill Degestrel, so it came as a bit of a shock
Hello everyone, I am writing to ask for any advice/support or similar situations. I am 39, F, live in Scotland UK Have been having problems since May 2021 - heavy menstrual bleeding and pain, hadn't had any issues or bleeding for 20+ years on the mini-Pill Degestrel, so it came as a bit of a shock
Kittie5117
in
Endometriosis UK
9 months ago
Looking for advice, yet again, please.
I had an appointment to see my GP today regarding high blood pressure. I have been taking 10mg Ramipril for some time but recently BP has been high and erratic. Apparently, I cannot go to a higher Ramipril dose, therefore, need to change. I’m aware that some BP medication can interfere with RLS, so
I had an appointment to see my GP today regarding high blood pressure. I have been taking 10mg Ramipril for some time but recently BP has been high and erratic. Apparently, I cannot go to a higher Ramipril dose, therefore, need to change. I’m aware that some BP medication can interfere with RLS, so
Mulberry100
in
Restless Legs Syndrome
9 months ago
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Betaine Hydrochloride and ACV-low stomach acid
Hi there, I have a hiatus hernia, jus a small one by all accounts. Recently I have been having tests for thyroid problems due to finding a Nodulars on my thyroid with 1 dominate one 2.6cm. Also all vits and iron in bloods extremely low. Anyway in the past 2 weeks my GERD has been so so bad, its
Hi there, I have a hiatus hernia, jus a small one by all accounts. Recently I have been having tests for thyroid problems due to finding a Nodulars on my thyroid with 1 dominate one 2.6cm. Also all vits and iron in bloods extremely low. Anyway in the past 2 weeks my GERD has been so so bad, its
madeline05
in
Thyroid UK
4 months ago
B12 deficiency
Hi has anyone been diagnosed with a B12 deficiency and did it affect your Hugh's syndrome Thanks
Hi has anyone been diagnosed with a B12 deficiency and did it affect your Hugh's syndrome Thanks
Calver10
in
Hughes Syndrome APS Forum
4 months ago
Starting on Verzenio
Hello all my fellow thrivers! After taking Piqray + monthly shots of Fulvestrant and Zoladex for more than a year, my latest pet scan revealed progression and found new mets in liver, lymph nodes and bone. Therefore, my oncologist is starting me on Verzenio 100mg next week while keeping my Fulvestrant
Hello all my fellow thrivers! After taking Piqray + monthly shots of Fulvestrant and Zoladex for more than a year, my latest pet scan revealed progression and found new mets in liver, lymph nodes and bone. Therefore, my oncologist is starting me on Verzenio 100mg next week while keeping my Fulvestrant
hopeoflife
in
SHARE Metastatic Breast Cancer
7 months ago
Timings of NDT and iron supplements
Hi all, I'm struggling to maintain ferritin levels whilst also trying to adhere to the timings of iron supplements around my NDT and other vitamins. My ferritin is rarely higher than 20s (in the last ten years the highest it has been was 52 just once). I've been on NDT for a year and am gradually
Hi all, I'm struggling to maintain ferritin levels whilst also trying to adhere to the timings of iron supplements around my NDT and other vitamins. My ferritin is rarely higher than 20s (in the last ten years the highest it has been was 52 just once). I've been on NDT for a year and am gradually
Maldeerum
in
Thyroid UK
4 months ago
Paclitaxel and hair loss
hi everyone, I have just had my 3rd paclitaxel today, I am on weekly doses via IV and have no signs of my hair falling out? Not even a slight bit? I’m concerned that it means it’s not working, has this happened to anyone else or does the hair loss come a little later down the line?
hi everyone, I have just had my 3rd paclitaxel today, I am on weekly doses via IV and have no signs of my hair falling out? Not even a slight bit? I’m concerned that it means it’s not working, has this happened to anyone else or does the hair loss come a little later down the line?
RachH20
in
SHARE Metastatic Breast Cancer
7 months ago
My Cancer and other health issues update.
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
After months of pretty bad news over my bladder cancer which is high grade and had spread to the inner linings of my bladder. I was told I could not have BCG anymore and that was gloomy news. I have an appointment tomorrow for a new three bladder cancer BCG Treatment. I was surprised I was having
Ern007
in
Lung Conditions Community Forum
7 months ago
Autophagy could be bad for those who have cancer?
I was already aware for a few years that autophagy, which is triggered by intermittent fasting and long fasts, is very useful to prevent cancer as it is recycles old damaged proteins that could otherwise turn into cancer and also because it helps your body produce new cells and refreshes your immune
I was already aware for a few years that autophagy, which is triggered by intermittent fasting and long fasts, is very useful to prevent cancer as it is recycles old damaged proteins that could otherwise turn into cancer and also because it helps your body produce new cells and refreshes your immune
Mascouche
in
Advanced Prostate Cancer
7 months ago
Feeling scared
My husband was diagnosed with pancreatic cancer 2/11after a CT scan.Seen by the consultant on 20/11, requested an MRI which he Is having on the 7/12.The only assistance I have had is by contacting pancreatic cancer UK, they helped me get Creon after I looked up online.Just some back ground history my
My husband was diagnosed with pancreatic cancer 2/11after a CT scan.Seen by the consultant on 20/11, requested an MRI which he Is having on the 7/12.The only assistance I have had is by contacting pancreatic cancer UK, they helped me get Creon after I looked up online.Just some back ground history my
very
in
Pancreatic Cancer Action
7 months ago
natural modified fet
hi can anyone explain whats involved with a natural modified fet pls? Dr has suggested to me this as i suffered an allergic reaction to progynova and to my surprise I can’t believe there aint alternative for someone who would have an allergic reaction to progynova😫 The thought of a natural modified
hi can anyone explain whats involved with a natural modified fet pls? Dr has suggested to me this as i suffered an allergic reaction to progynova and to my surprise I can’t believe there aint alternative for someone who would have an allergic reaction to progynova😫 The thought of a natural modified
keepfaith1982
in
Fertility Network UK
4 months ago
Last vitamin results
last ferritin was 65 ug/L vitamin D 104 nmol/L Both done in December
last ferritin was 65 ug/L vitamin D 104 nmol/L Both done in December
Thywotsit
in
Thyroid UK
4 months ago
I have questions about Tamoxifen, aka Hormonal Therapy
Hello all, & blessed wishes during the Holiday Season. 🎄 I must admit I haven't been on here for a while, but I hope someone can give me some answers. I was diagnosed with Clear Cell Ovarian Cancer stage 4 in 2021. I have had 6 rounds of Chemo, & a total hysterectomy. I've been doing Avastin since
Hello all, & blessed wishes during the Holiday Season. 🎄 I must admit I haven't been on here for a while, but I hope someone can give me some answers. I was diagnosed with Clear Cell Ovarian Cancer stage 4 in 2021. I have had 6 rounds of Chemo, & a total hysterectomy. I've been doing Avastin since
gta03
in
SHARE Ovarian Cancer Support
7 months ago
Gastric endo - help!
I haven’t posted in the longest time but really need some help. I have extensive disease requiring surgery, thought to be bowel involvement. MRI due in the next week. I’ve been having dreadful constipation the last few weeks requiring manual evacuation (sorry TMI but it has been awful). Then two days
I haven’t posted in the longest time but really need some help. I have extensive disease requiring surgery, thought to be bowel involvement. MRI due in the next week. I’ve been having dreadful constipation the last few weeks requiring manual evacuation (sorry TMI but it has been awful). Then two days
applebird
in
Endometriosis UK
4 months ago
High Folate with PA terrible GP
Hello everyone, Im afraid this might be a little long, but i hope someone can help me. It has been a long and upsetting morning. It started with a 630am ER visit for excruciating groin/hip pain for past 6 days and very hard to walk. Anyway, I'm confused. Some of my tests came back surprising. I
Hello everyone, Im afraid this might be a little long, but i hope someone can help me. It has been a long and upsetting morning. It started with a 630am ER visit for excruciating groin/hip pain for past 6 days and very hard to walk. Anyway, I'm confused. Some of my tests came back surprising. I
EllaNore
in
Pernicious Anaemia Society
4 months ago
Extravasation
We are writing to reach out to individuals who may have experienced an extravasation during their medical treatment. Many patients are unaware of this patient-safety issue and we are hoping to bring it to light. We are kindly asking that you contribute to enforcing a safer healthcare environment while
We are writing to reach out to individuals who may have experienced an extravasation during their medical treatment. Many patients are unaware of this patient-safety issue and we are hoping to bring it to light. We are kindly asking that you contribute to enforcing a safer healthcare environment while
Extravasation
in
Blue Faery Liver Cancer
7 months ago
Started on piqray & fulvestrant yesterday
Hello to all I now know that on the trial I decided to be on, I’ve I’ve been alloted piqray with fulvestrant shots. I had my two first ever fulvestrant injections! Wow. They hurt. But nurse put ice packs on before. And also after. What a new onslaught to my system. Here we go. I never knew the ibrance
Hello to all I now know that on the trial I decided to be on, I’ve I’ve been alloted piqray with fulvestrant shots. I had my two first ever fulvestrant injections! Wow. They hurt. But nurse put ice packs on before. And also after. What a new onslaught to my system. Here we go. I never knew the ibrance
Timtam56
in
SHARE Metastatic Breast Cancer
7 months ago
Post ablation tubal sterilisation syndrome (PATTS)
Has anyone else had both of these surgeries and gone on to have excruciating pain? During my surgery they found endometriosis and I've since had an MRI and CT scan (as well as lots of useless ultrasounds that find nothing). I've been diagnosed with deep infiltrating endo on ovaries, peritoneum and bowel
Has anyone else had both of these surgeries and gone on to have excruciating pain? During my surgery they found endometriosis and I've since had an MRI and CT scan (as well as lots of useless ultrasounds that find nothing). I've been diagnosed with deep infiltrating endo on ovaries, peritoneum and bowel
MalachiteAli
in
Endometriosis UK
4 months ago
NAC with ferritin deficiency or PA
Hi all. Just thought I’d pop in and ask my new friends if they know of any reason NAC shouldn’t be taken with iron tablets or B12, or whether NAC could actually have a negative effect on ferritin/B12 levels. Can’t find any info on this, so here I am 😊 I am awaiting latest blood results, so don’t
Hi all. Just thought I’d pop in and ask my new friends if they know of any reason NAC shouldn’t be taken with iron tablets or B12, or whether NAC could actually have a negative effect on ferritin/B12 levels. Can’t find any info on this, so here I am 😊 I am awaiting latest blood results, so don’t
MLJ2024
in
Pernicious Anaemia Society
4 months ago
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