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how did your GI/gut symptoms start?
Hi All I hope everyone is doing well. looking for some insight - I’ve been diagnosed nearly 2 years. recently I have been having some minor gut issues and wondered if this was the beginning of SSC related gut problems and if there is anything I can do to prevent worse progression. I’ve found my
Hi All I hope everyone is doing well. looking for some insight - I’ve been diagnosed nearly 2 years. recently I have been having some minor gut issues and wondered if this was the beginning of SSC related gut problems and if there is anything I can do to prevent worse progression. I’ve found my
ruablue
in
Scleroderma & Raynaud's UK (SRUK)
2 months ago
Has anyones Endo returning after hysterectomy?
It's been awhile since I've posted.I got an MRI report back, after urologist found abnormality after bladder stretch. The MRI found endometriotic deposits by the rectosigmoid colon. I have extensive surgery and hysterectomy in January. Having a bowel shave, rectosigmoid colon as well DIE within the
It's been awhile since I've posted.I got an MRI report back, after urologist found abnormality after bladder stretch. The MRI found endometriotic deposits by the rectosigmoid colon. I have extensive surgery and hysterectomy in January. Having a bowel shave, rectosigmoid colon as well DIE within the
Jasmin24
in
Endometriosis UK
6 months ago
high b12 high mch and mcv
Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 - 157) What does this mean? I am not taking b12 supplements or injections. My GP said that I had a b12 deficiency (she didn't measure my b12),
Hi, b12 797 (145 - 637) folate 35.1 (7 - 39) mch 37.6 (27.4 - 33.9) mcv 110 (83 - 97) iron 12 (8 - 30) ferritin 69.30 (13 - 150) haemoglobin 124 (119 - 157) What does this mean? I am not taking b12 supplements or injections. My GP said that I had a b12 deficiency (she didn't measure my b12),
nyx19
in
Pernicious Anaemia Society
2 months ago
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vitamin D and magnesium deficiency from B12 loading doses
good day, I'm on my sixth month of loading methy B12 and learning so much on with every ones posts, I am trying to balance out my cofactors now that I've started to feel better along this journey. So with other factors I'm finding out I'm deficient in from all my gastritis from B12 deficiency for several
good day, I'm on my sixth month of loading methy B12 and learning so much on with every ones posts, I am trying to balance out my cofactors now that I've started to feel better along this journey. So with other factors I'm finding out I'm deficient in from all my gastritis from B12 deficiency for several
JesusMercy60
in
Pernicious Anaemia Society
2 months ago
Cause of RLS - another step
Brain Iron Dysregulation in Iron Deficiency Anemia-Related Restless Leg Syndrome Revealed by Neuron-Derived Extracellular Vesicles: A Case–Control Study Apostolos Manolopoulos, MD ,1 William York, BS,1 Krishna Ananthu Pucha, BS,1 Christopher J. Earley, MBBCh, PhD,2 and Dimitrios Kapogiannis, MD1
Brain Iron Dysregulation in Iron Deficiency Anemia-Related Restless Leg Syndrome Revealed by Neuron-Derived Extracellular Vesicles: A Case–Control Study Apostolos Manolopoulos, MD ,1 William York, BS,1 Krishna Ananthu Pucha, BS,1 Christopher J. Earley, MBBCh, PhD,2 and Dimitrios Kapogiannis, MD1
RLSLearner
in
Restless Legs Syndrome
2 months ago
Haematologist’s unsupportive B12 response
In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m low in ferritin (40) I’m not yet needing an iron infusion just yet. My white cell count was seemingly low also and she suggested that I should get
In a recent pathology test, my gastroenterologist was concerned with my low haemoglobin count and a high reticulocyte count. She mentioned that although I’m low in ferritin (40) I’m not yet needing an iron infusion just yet. My white cell count was seemingly low also and she suggested that I should get
GoneWithTheWind1972
in
Pernicious Anaemia Society
2 months ago
Xeloda
I’m only on second round of six total. So far, labs are looking good except LDH is slightly higher than normal. I, like you, ask my oncologist for info. Mostly, I focus on how am I doing today…. What’s my energy level, status of my hands and feet (hand and foot syndrome for which I use Voltaren
I’m only on second round of six total. So far, labs are looking good except LDH is slightly higher than normal. I, like you, ask my oncologist for info. Mostly, I focus on how am I doing today…. What’s my energy level, status of my hands and feet (hand and foot syndrome for which I use Voltaren
YogaGRL52
in
SHARE Metastatic Breast Cancer
6 months ago
Iron Levels
I am a 74-year-old woman living in New Zealand. I was on Ropinirole for restless legs for approximately 3 years. Augmentation set in and I saw his forum went to my doctor who has changed my medication to Pregabalin. Currently on 50mg per day as I weaned off Ropinirole (completely weaned off for 3 nights
I am a 74-year-old woman living in New Zealand. I was on Ropinirole for restless legs for approximately 3 years. Augmentation set in and I saw his forum went to my doctor who has changed my medication to Pregabalin. Currently on 50mg per day as I weaned off Ropinirole (completely weaned off for 3 nights
Brufax
in
Restless Legs Syndrome
2 months ago
Biopsy Results
Hi all, went to clinic today and as I suspected, my adenoid cystic carcinoma has metastersised to my lungs. I am told I am being refered to the head & neck cancer in Liverpool where I sent 21yrs ago! Still no idea of treatment until I go for my appointment whenever that may be! Frustrating 3 months on
Hi all, went to clinic today and as I suspected, my adenoid cystic carcinoma has metastersised to my lungs. I am told I am being refered to the head & neck cancer in Liverpool where I sent 21yrs ago! Still no idea of treatment until I go for my appointment whenever that may be! Frustrating 3 months on
Mindini1964
in
The Roy Castle Lung Cancer Foundation
6 months ago
diverticulosis, itis, IBS etc
Hi everyone, I’ve taken note of discussions on here regarding gut issues vis a vis under active thyroid. Does levothyroxine of itself also cause gut issues? Many thanks.
Hi everyone, I’ve taken note of discussions on here regarding gut issues vis a vis under active thyroid. Does levothyroxine of itself also cause gut issues? Many thanks.
Calceolaria
in
Thyroid UK
2 months ago
Stopping iron supplement
Hi all hope everyone is well. I am going to have a iron blood test. How many days before the test do i stop my iron supplement?
Hi all hope everyone is well. I am going to have a iron blood test. How many days before the test do i stop my iron supplement?
giggy63
in
Thyroid UK
2 months ago
AML update
Hello MPN friends, I thought I would post an update on my AML. I am now having Azacitadine and Venetoclax as an in-patient and so far so good - I just have red marks around the injection sites and constipation. I am otherwise well. Shockingly, my husband has been diagnosed with a melanoma just last
Hello MPN friends, I thought I would post an update on my AML. I am now having Azacitadine and Venetoclax as an in-patient and so far so good - I just have red marks around the injection sites and constipation. I am otherwise well. Shockingly, my husband has been diagnosed with a melanoma just last
Otterfield
in
MPN Voice
6 months ago
Ovary discomfort a month after failed ET.
I’ve been experiencing some dull aches in my ovary over the last few days. Occasionally I get sharp pains in my ovary, although I have always had this now and again. It has been about a month since my ET which failed and I have had a bleed since. And I have already ovulated. I spoke to my clinic and
I’ve been experiencing some dull aches in my ovary over the last few days. Occasionally I get sharp pains in my ovary, although I have always had this now and again. It has been about a month since my ET which failed and I have had a bleed since. And I have already ovulated. I spoke to my clinic and
Saskiahope
in
Fertility Network UK
2 months ago
Alendronate/Fosamax
Good Morning All~ Anyone using Fosamax? How Long? Any serious side effects? Any results? I just started taking because I was scared into it and have a hx of fractures. Still am uncomfortable with taking it and eventually being able to come off of it. Any input/experiences with this med will be highly
Good Morning All~ Anyone using Fosamax? How Long? Any serious side effects? Any results? I just started taking because I was scared into it and have a hx of fractures. Still am uncomfortable with taking it and eventually being able to come off of it. Any input/experiences with this med will be highly
Bugosun
in
Osteoporosis Support
8 months ago
Increased my ferritin levels
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Hi all,I have known about the RLS/iron link for many years however as my ferritin iron level has always been around 100 I haven't taken iron consistently.Five months ago I started "getting serious " in taking it every other night with vitamin C as even with my Zomorph and Pregablin I was still getting
Pippins2
in
Restless Legs Syndrome
2 months ago
Chronic Pain,and fear.
Hi All,I’m hoping for some advice off anyone on here who suffers with flare ups of Diverticulitis. I won’t go into my full story ,as I would be here all day. Basically I’m 80yrs old,and about 9mths ago I was told I have Diverticula,just to add to all my other problems. Well I’ve had about 5 flare
Hi All,I’m hoping for some advice off anyone on here who suffers with flare ups of Diverticulitis. I won’t go into my full story ,as I would be here all day. Basically I’m 80yrs old,and about 9mths ago I was told I have Diverticula,just to add to all my other problems. Well I’ve had about 5 flare
Breathless1943
in
Bowel Disease Support
2 months ago
Really lost - doctor advised me to stop injecting and now B12 keeps going down
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
Hi everyone, First, I want to say how much this group has been a help and source of comfort and much needed information! Thank you. In Feb 2019 I was diagnosed as having "Vitamin B12 deficiency anemia due to intrinsic factor deficiency." At the time I was 35. My doctor did not say "Pernicious Anemia
marlesk
in
Pernicious Anaemia Society
2 months ago
Pain and Laxido
Ive been taking Laxido for eight months now for recurring impactions and now down to one a day where I do a good BM most days but the last week started to get the most awful stomach pain and bloating which lasts all day . Has anybody else experienced this after taking this product for quite a while
Ive been taking Laxido for eight months now for recurring impactions and now down to one a day where I do a good BM most days but the last week started to get the most awful stomach pain and bloating which lasts all day . Has anybody else experienced this after taking this product for quite a while
Shopnow1
in
IBS Network
2 months ago
Food sensitivities
Hi everyone, just looking for a bit advice re food issues. I have had long term issues with constipation, which resolved when I went dairy free. I also find I feel much better on a gluten free diet so have been GF and DF for about 1 year. These are both very tricky to manage when eating out and I know
Hi everyone, just looking for a bit advice re food issues. I have had long term issues with constipation, which resolved when I went dairy free. I also find I feel much better on a gluten free diet so have been GF and DF for about 1 year. These are both very tricky to manage when eating out and I know
DaisyTed
in
Thyroid UK
2 months ago
3 failed coloscopies
I have had three failed colonoscopies in the past, one being totally horrifically painful. Due to the growth of very large polyps one over 2cm I am being asked to have another colonoscopy. To say that I am terrified is an understatement. I was told by the consultant 10 years ago that I was a very
I have had three failed colonoscopies in the past, one being totally horrifically painful. Due to the growth of very large polyps one over 2cm I am being asked to have another colonoscopy. To say that I am terrified is an understatement. I was told by the consultant 10 years ago that I was a very
ledge
in
Bowel Disease Support
2 months ago
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