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APNEA v RLS - something else
I have recently been diagnosed with Sleep Apnea & have been given a CPAP machine to use but it seems the drugs I take for RLS (Oxycodone & Gabapentin) are conflicting with the efficacy of the CPAP kit and not bring down my incidence of AHI during the night. The consultant has asked me to row back
I have recently been diagnosed with Sleep Apnea & have been given a CPAP machine to use but it seems the drugs I take for RLS (Oxycodone & Gabapentin) are conflicting with the efficacy of the CPAP kit and not bring down my incidence of AHI during the night. The consultant has asked me to row back
joepublic
in
Restless Legs Syndrome
1 year ago
ET related fatigue
Hi my husband is 50 and was diagnosed with ET in January 2023 due to high platelets (917). He is overweight a little but other than that he does not have any other risk factors. All other bloods have come back normal. He is taking daily aspirin. We live in the UK. Since around September 2022 (prior
Hi my husband is 50 and was diagnosed with ET in January 2023 due to high platelets (917). He is overweight a little but other than that he does not have any other risk factors. All other bloods have come back normal. He is taking daily aspirin. We live in the UK. Since around September 2022 (prior
Morris941
in
MPN Voice
1 year ago
Horizant
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
After pregabalin and gabapentin both made me nervous (I successfully tolerated the pregabalin for years, with daytime sedation however). Codeine also seems to be waking me up instead of sedating me. Doctor is suggesting trying Horizant. I know it is for people who experience symptoms all day, but
wantokporo
in
Restless Legs Syndrome
1 year ago
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Off topic. In Wales visiting sister 😄
Well now on new pain killers and patch I decided time to go away. We are in chilly but sunny Wales visiting my sister. It's done us both a world of good! Menorca booked for end of may too! Last day today but we'll be back 😉😎😎
Well now on new pain killers and patch I decided time to go away. We are in chilly but sunny Wales visiting my sister. It's done us both a world of good! Menorca booked for end of may too! Last day today but we'll be back 😉😎😎
Haz58
in
NRAS
1 year ago
gardenergirl1947
Hello, having been previously fit and well, I was surprised to have a an ever increasing amount of severe pain in my shoulders,hips and wrists in July 2022. Blood tests showed high levels of Calcium and a diagnosis of Hyperparathyroidism was made. However pain increased despite very large painkiller
Hello, having been previously fit and well, I was surprised to have a an ever increasing amount of severe pain in my shoulders,hips and wrists in July 2022. Blood tests showed high levels of Calcium and a diagnosis of Hyperparathyroidism was made. However pain increased despite very large painkiller
Gardenergirl1947
in
PMRGCAuk
1 year ago
ropinerole withdrawal
I have had restless legs for most of my life. The restless legs are out of control now so my GP put me on ropinerole 4 mg a day to begin with and them upped it 8 mg a day. That’s making me have funny feelings, like I’m buzzed or high but I’m not. So I went to a neurologist and he has started taking me
I have had restless legs for most of my life. The restless legs are out of control now so my GP put me on ropinerole 4 mg a day to begin with and them upped it 8 mg a day. That’s making me have funny feelings, like I’m buzzed or high but I’m not. So I went to a neurologist and he has started taking me
wyomingquilter
in
Restless Legs Syndrome
1 year ago
Attitudes to people using opiates
We all have a back story. I know nobody wishes to be thought of as a drug addict. But there may be members with RLS who are recovering drug addicts, or alcoholics trying to get their lives back on track, and needing support from this forum. Its a sensitive are. I hope I haven't offended or upset anyone
We all have a back story. I know nobody wishes to be thought of as a drug addict. But there may be members with RLS who are recovering drug addicts, or alcoholics trying to get their lives back on track, and needing support from this forum. Its a sensitive are. I hope I haven't offended or upset anyone
pennygates
in
Restless Legs Syndrome
1 year ago
Hysterectomy, Oophorectomy or neither?
Endo sufferer since forever. Have moderate/severe endo & significant adhesions from laps, c - section & appendectomy. Several laps later, mirena, decapeptyl treatment last year & yet here I am back to square 1 but now perimenopausal for real & in a dilemma. Have a 5cm endometrioma on left ovary with
Endo sufferer since forever. Have moderate/severe endo & significant adhesions from laps, c - section & appendectomy. Several laps later, mirena, decapeptyl treatment last year & yet here I am back to square 1 but now perimenopausal for real & in a dilemma. Have a 5cm endometrioma on left ovary with
AilsS
in
Endometriosis UK
1 year ago
possible diagnosis of PMR for my husband.
for the last 2 weeks my husband has had some headaches, neck ache, back ache, right
leg
ache and a
pain
in his groin. He’s found it difficult to sleep during the night. I’ve giving him a hot water bottle to wrap around the top of his leg which he says helped.
for the last 2 weeks my husband has had some headaches, neck ache, back ache, right
leg
ache and a
pain
in his groin. He’s found it difficult to sleep during the night. I’ve giving him a hot water bottle to wrap around the top of his leg which he says helped.
JayceeJC
in
PMRGCAuk
10 months ago
Opioid prejudice at the pharmacy
I wonder if other HU members have experienced hostile treatment from the pharmacy, while collecting their opioid medication?At my local chemist, there are a few members of staff who are rude and hostile towards patients who are prescribed opiates. I pick up my prescription every month. When I go in
I wonder if other HU members have experienced hostile treatment from the pharmacy, while collecting their opioid medication?At my local chemist, there are a few members of staff who are rude and hostile towards patients who are prescribed opiates. I pick up my prescription every month. When I go in
pennygates
in
Restless Legs Syndrome
1 year ago
Interesting Tx for OIC
Sorry about the abbreviations. If you have Opioid-Induced Constipation (OIC) you might be interested in this little story. Tx means Treatment. I am currently on low-dose opioid for RLS--buprenorphine, but previously methadone--and I suffer from OIC. I have been taking a variety of laxatives
Sorry about the abbreviations. If you have Opioid-Induced Constipation (OIC) you might be interested in this little story. Tx means Treatment. I am currently on low-dose opioid for RLS--buprenorphine, but previously methadone--and I suffer from OIC. I have been taking a variety of laxatives
Doctorplacebo
in
Restless Legs Syndrome
1 year ago
Restless Legs and Sleeping Tablets?
Tried the usual meds, Ropinirole, Amtriphyline, Pregabalin and Gabapentin - all useless. Having to stop one and gradually increase of the other has been tortuous. Hell. My mental health is suffering with the nightly and now early evening frequent, wired, compulsive urge to move. Also affecting my arm
Tried the usual meds, Ropinirole, Amtriphyline, Pregabalin and Gabapentin - all useless. Having to stop one and gradually increase of the other has been tortuous. Hell. My mental health is suffering with the nightly and now early evening frequent, wired, compulsive urge to move. Also affecting my arm
Springfiel1
in
Restless Legs Syndrome
1 year ago
update on flare versus muscle pain contd
Thank you everyone for your kind words. i will stay on 11mg pred for the time being. I am really struggling with the side effects of the various pain killers, blood pressure meds and water tablets; everything seems to list nausea, constipation and sleepiness as a side effect. The nausea in particular
Thank you everyone for your kind words. i will stay on 11mg pred for the time being. I am really struggling with the side effects of the various pain killers, blood pressure meds and water tablets; everything seems to list nausea, constipation and sleepiness as a side effect. The nausea in particular
sewinggranny
in
PMRGCAuk
1 year ago
HELP, PLEASE??!!
I just had a total knee replacement. For 3 years now buprenorphine has helped, but today I took hydromorphone for pain that my surgeon prescribed, Nexium that my family doctor recommended to take to keep the aspirin I have to take postop to keep from getting ulcers, and cyclobenzaprine. Unfortunately
I just had a total knee replacement. For 3 years now buprenorphine has helped, but today I took hydromorphone for pain that my surgeon prescribed, Nexium that my family doctor recommended to take to keep the aspirin I have to take postop to keep from getting ulcers, and cyclobenzaprine. Unfortunately
LanaCSR
in
Restless Legs Syndrome
1 year ago
cancer has invaded the bowel
Hello everyone, I wonder if anyone can help me. For months now I have been having runny poo and it doesn’t stop. I have also had bleeding. My oncologist has never given me a reason for this extremely uncomfortable and inconvenient problem. Recently cancerous nodules were found on my bladder wall and
Hello everyone, I wonder if anyone can help me. For months now I have been having runny poo and it doesn’t stop. I have also had bleeding. My oncologist has never given me a reason for this extremely uncomfortable and inconvenient problem. Recently cancerous nodules were found on my bladder wall and
Pippasandy
in
My Ovacome
1 year ago
heart palpitations anxiety
hey guys. Me again, sorry to bother and ramble on, the past 3 days I’ve been having a few heart palpitations a day. Now I did phone my doctors and they told me this didn’t sound serious and it was normal. They said if the palpitations were regular every few minutes it would be a concern. I get 2 or 3
hey guys. Me again, sorry to bother and ramble on, the past 3 days I’ve been having a few heart palpitations a day. Now I did phone my doctors and they told me this didn’t sound serious and it was normal. They said if the palpitations were regular every few minutes it would be a concern. I get 2 or 3
Littlechopsxo
in
Anxiety and Depression Support
1 year ago
RA reaction to medication would like general advice on how to manage RA
Hello, I’ve had a reaction to medication I was on for an over active thyroid, which has given me RA symtoms, came on very suddenly so hoping it will eventually clear (have read can take 3/4 weeks). Have been referred to a rheumatoid specialist but apparently it might take months for an appointment. I
Hello, I’ve had a reaction to medication I was on for an over active thyroid, which has given me RA symtoms, came on very suddenly so hoping it will eventually clear (have read can take 3/4 weeks). Have been referred to a rheumatoid specialist but apparently it might take months for an appointment. I
Abimilne
in
NRAS
1 year ago
Augmentation
Hi all , Im slowly weaning off Ropinirole and it has been hell with lots of sleepless nights , I even fell asleep walking and fell , bruising all my back .Im down to 1mg now from 6mg taking the immediate release. Last night my legs were fine until I took my tablet at 20.00 and by 20.15 they were going
Hi all , Im slowly weaning off Ropinirole and it has been hell with lots of sleepless nights , I even fell asleep walking and fell , bruising all my back .Im down to 1mg now from 6mg taking the immediate release. Last night my legs were fine until I took my tablet at 20.00 and by 20.15 they were going
Huntingleroy
in
Restless Legs Syndrome
1 year ago
Seeking some advice [Had numerous tests]
Hi, 48yr old male, not overweight, eat relatively healthy, but due to a back issue, limited exercise. Take no meds other than painkillers from time to time for my back. But wasn't taking them during these episodes. My issues began a week today exactly. Got up for the loo around 4am, and went back to
Hi, 48yr old male, not overweight, eat relatively healthy, but due to a back issue, limited exercise. Take no meds other than painkillers from time to time for my back. But wasn't taking them during these episodes. My issues began a week today exactly. Got up for the loo around 4am, and went back to
ProfBaw
in
British Heart Foundation
1 year ago
liver and pain relief medication
I take pregabalin and cocodamol for neuropathic pain relief plus cervical spondylosis pain relief but I was given a blood test last week and the do raid there was a problem with my liver and I’m to have another blood test Monday but I’m wondering if it’s the pain reliever meds I take that has caused
I take pregabalin and cocodamol for neuropathic pain relief plus cervical spondylosis pain relief but I was given a blood test last week and the do raid there was a problem with my liver and I’m to have another blood test Monday but I’m wondering if it’s the pain reliever meds I take that has caused
Pearce1940oscar
in
Pain Concern
1 year ago
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