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How do you keep busy mentally, physically, socially etc... to help manage loneliness, self-worth?
This has been a big test of of character I’m sure for all of us. I’ve tried to find ways to stay active mentally and all other ways to beat depression, loneliness and self-worth! What do you do on good days? On bad days? On good days, I try and do the things I love! I listen to music, sing along!
This has been a big test of of character I’m sure for all of us. I’ve tried to find ways to stay active mentally and all other ways to beat depression, loneliness and self-worth! What do you do on good days? On bad days? On good days, I try and do the things I love! I listen to music, sing along!
Rheumagal
in
NRAS
6 years ago
Unable to sleep
Hello friends. Poor sleep quality is getting to me. I go to bed tired but am unable to get off to sleep for hours...Last night I only had about one hour. The quality of sleep is also not the same. It's a very superficial sort of sleep, unsatisfying and restless. I take 13 mg of pred in the morning and
Hello friends. Poor sleep quality is getting to me. I go to bed tired but am unable to get off to sleep for hours...Last night I only had about one hour. The quality of sleep is also not the same. It's a very superficial sort of sleep, unsatisfying and restless. I take 13 mg of pred in the morning and
AliDeJ
in
PMRGCAuk
6 years ago
Video telemetry
Having a 6 day video telemetry eeg next week with medication reduction or withdrawl to provoke seizures. Has any1 had eeg before with med reduction or withdrawl, if so what should I expect that anyone has experienced? I already know that if I am a bit late taking my tablets morning or night I can feel
Having a 6 day video telemetry eeg next week with medication reduction or withdrawl to provoke seizures. Has any1 had eeg before with med reduction or withdrawl, if so what should I expect that anyone has experienced? I already know that if I am a bit late taking my tablets morning or night I can feel
RR25
in
Epilepsy Action
6 years ago
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Horrible Leg pain following Rituxan
Hi everyone I was wondering if anyone has had an issue with increased pain following their Rituxan infusions? I am in excruciating pain from my groin to my toes on the right side and my muscles are stiff. I don’t know what it is. I’ve taken my Tylenol ER, BC Arthritis, Dexamethasone today and nothing
Hi everyone I was wondering if anyone has had an issue with increased pain following their Rituxan infusions? I am in excruciating pain from my groin to my toes on the right side and my muscles are stiff. I don’t know what it is. I’ve taken my Tylenol ER, BC Arthritis, Dexamethasone today and nothing
Maat2002
in
NRAS
6 years ago
Lyrica
I have read some of your posts about Lyrica and am not feeling very positive about trying it. My neurologist suggested it since I’m to not able to tolerate pramipexole and sinemet. I need some feedback. One of the side effects I’ve had from DAs is extreme depression/anxiety. I am at the end of my
I have read some of your posts about Lyrica and am not feeling very positive about trying it. My neurologist suggested it since I’m to not able to tolerate pramipexole and sinemet. I need some feedback. One of the side effects I’ve had from DAs is extreme depression/anxiety. I am at the end of my
Yakester
in
Restless Legs Syndrome
6 years ago
Opioids
I have been off pramipexole for close to two weeks. Then my (new) neurologist started me on carbadopa levodopa which caused extreme anxiety so only took for 4 days. I’m totally miserable. I am wondering what opioids are used and how much. I’m trying to gather information for doctors. Also, does
I have been off pramipexole for close to two weeks. Then my (new) neurologist started me on carbadopa levodopa which caused extreme anxiety so only took for 4 days. I’m totally miserable. I am wondering what opioids are used and how much. I’m trying to gather information for doctors. Also, does
Yakester
in
Restless Legs Syndrome
6 years ago
Restless legs after a total knee replacement
2014 I had a right total knee replacement about a year later I developed rls.I have never had rls before. Its been almost 4 years now since the surgery and really wish I would have never had it if I would have known what was to come.Ive read people do get rls after the surgery but it doesn't last 4 years.Is
2014 I had a right total knee replacement about a year later I developed rls.I have never had rls before. Its been almost 4 years now since the surgery and really wish I would have never had it if I would have known what was to come.Ive read people do get rls after the surgery but it doesn't last 4 years.Is
viviansmith
in
Restless Legs Syndrome
6 years ago
Lyme's Disease
I have just been reading about Lyme's disease and the controversy about whether it could become a chronic disease if not diagnosed early. A lot of the symptoms overlap with autoimmune disease. I thought this was interesting. The biggest problems with infected ticks occur in The Highlands of Scotland
I have just been reading about Lyme's disease and the controversy about whether it could become a chronic disease if not diagnosed early. A lot of the symptoms overlap with autoimmune disease. I thought this was interesting. The biggest problems with infected ticks occur in The Highlands of Scotland
bones-bones
in
LUPUS UK
6 years ago
Relief at last?
I am a 71 year old woman and have suffered from RLS since my 20s....when I was pregnant..but my mother also had RLS. I have tried everything..recently copper bracelets, giving up caffeine, alcohol-- taking Valerian, magnesium, lying down with legs up, exercises etc..Some days I am ok but others it is
I am a 71 year old woman and have suffered from RLS since my 20s....when I was pregnant..but my mother also had RLS. I have tried everything..recently copper bracelets, giving up caffeine, alcohol-- taking Valerian, magnesium, lying down with legs up, exercises etc..Some days I am ok but others it is
Allyp69
in
Restless Legs Syndrome
6 years ago
Cellulitis
Evening to you all. This is the second time this year I've had Cellulitis, was given a week's supply of Antibiotics 3 weeks ago, it didn't clear up, so been to the Dr,s today for another weeks supply. Has anyone got any tips to ease this complaint.
Evening to you all. This is the second time this year I've had Cellulitis, was given a week's supply of Antibiotics 3 weeks ago, it didn't clear up, so been to the Dr,s today for another weeks supply. Has anyone got any tips to ease this complaint.
Jansy16
in
Lung Conditions Community Forum
6 years ago
Tried EVERYTHING, and now...
EVERYTHING means just that, medication, body work, head trips...Just returned from a trip to Johns Hopkins Hospital where a Dr. Paul Allen's research showed excess glutamate in the thalamus of the brain is the etiology of the pathology of WED. Very SADLY the treatment from JHH is more pharmaceuticals
EVERYTHING means just that, medication, body work, head trips...Just returned from a trip to Johns Hopkins Hospital where a Dr. Paul Allen's research showed excess glutamate in the thalamus of the brain is the etiology of the pathology of WED. Very SADLY the treatment from JHH is more pharmaceuticals
auntiesioux
in
Restless Legs Syndrome
6 years ago
Can Lyme disease cause thyroidism?
I saw a piece on TV some time ago where the founder of Phones4U developed hyperthyroidism after being infected with Lyme disease. Now 11 members of his family have Lyme disease and he's convinced it's passed from human to human as well as through ticks. Have any thyroid sufferers been exposed to infected
I saw a piece on TV some time ago where the founder of Phones4U developed hyperthyroidism after being infected with Lyme disease. Now 11 members of his family have Lyme disease and he's convinced it's passed from human to human as well as through ticks. Have any thyroid sufferers been exposed to infected
pffft2017
in
Thyroid UK
6 years ago
Wrist heart monitor?
Hello All. I'm contacting you all out of desperation. My adult child has had severe epilepsy most of her life. As you may know people experiencing tonic clonic or major seizures can have their breathing arrested for a few seconds whereby their lips turn blue then ends up gasping for breath. This is very
Hello All. I'm contacting you all out of desperation. My adult child has had severe epilepsy most of her life. As you may know people experiencing tonic clonic or major seizures can have their breathing arrested for a few seconds whereby their lips turn blue then ends up gasping for breath. This is very
Goodheartgirl
in
British Heart Foundation
6 years ago
Is this fungal infection called ringworm?
I have a rough, thickened (hyperkeratosis) appearance on both hand
I have a rough, thickened (hyperkeratosis) appearance on both hand
sakinahpsyc
in
Fungal Infection Trust
6 years ago
Meningitis and influenza vaccines
Hello everyone, does anyone know if a CLL diagnosed person can take meningitis and influenza vaccine?
Hello everyone, does anyone know if a CLL diagnosed person can take meningitis and influenza vaccine?
JA14
in
CLL Support
6 years ago
Boil burst internally. Freaking out at the idea of bacteria spreading.
Hello I just need some helpful advice I have so much health anxiety right now. I had noticed an almond shaped boil that was inflamed two days ago. I had not noticed it before but two days ago it was bigger about 2.5cm longways and 1cm width. It was not white it had no pus at the surface or anything so
Hello I just need some helpful advice I have so much health anxiety right now. I had noticed an almond shaped boil that was inflamed two days ago. I had not noticed it before but two days ago it was bigger about 2.5cm longways and 1cm width. It was not white it had no pus at the surface or anything so
Misg
in
Anxiety Support
6 years ago
Restart pramipexole?
I have an appointment next week with a neurologist. I have just weaned off pramipexole due to augmentation. I'm a mess. 2 hours sleep last night. My backup drug, hydrocodone is not working. I don’t want to overdose on that. Should I take some pramipexole tonight and/or any night until my appointment
I have an appointment next week with a neurologist. I have just weaned off pramipexole due to augmentation. I'm a mess. 2 hours sleep last night. My backup drug, hydrocodone is not working. I don’t want to overdose on that. Should I take some pramipexole tonight and/or any night until my appointment
Yakester
in
Restless Legs Syndrome
6 years ago
Horizant
How much horizant is usually given. Just tried my 1st night with it. Saw no improvement....does it take awhile for good results to kick in? I'm still on 6mg ropinirole as well. Finally got an appt at mass general with a dr winkleman..... not until march!! Busy, popular specialist but i need help before
How much horizant is usually given. Just tried my 1st night with it. Saw no improvement....does it take awhile for good results to kick in? I'm still on 6mg ropinirole as well. Finally got an appt at mass general with a dr winkleman..... not until march!! Busy, popular specialist but i need help before
tweedy66
in
Restless Legs Syndrome
6 years ago
Viral meningitis
I have just been discharged from hospital following a diagnosis of viral meningitis. My husband remains in hospital and is very poorly. I suspect that we have the same virus but cannot understand why he isn’t responding to treatment. He seems to be getting worse. Doctors are at a loss and are running
I have just been discharged from hospital following a diagnosis of viral meningitis. My husband remains in hospital and is very poorly. I suspect that we have the same virus but cannot understand why he isn’t responding to treatment. He seems to be getting worse. Doctors are at a loss and are running
Rozey
in
Meningitis Now
6 years ago
Goodbye kettles!
At last - a new gadget to replace a kettle! For years I have struggled with carrying a full kettle and/or pouring water from it. One solution was to use a small travel kettle, which is fine for just one cup but not much more. So I was thrilled to discover this hot water dispenser. You just use a light
At last - a new gadget to replace a kettle! For years I have struggled with carrying a full kettle and/or pouring water from it. One solution was to use a small travel kettle, which is fine for just one cup but not much more. So I was thrilled to discover this hot water dispenser. You just use a light
MissMinto
in
NRAS
6 years ago
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