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Trying another dopamine agonist (yeah, I know....š)
Iāve posted here before. I have severe RLS. I was on requip and ambien for several years and augmented on the requip. Took me a year and a half to come off it-had terrible withdrawals. Took klonopin to help come off the last of it. Went on gabapentin 900 mg -still didnāt work with klonopin for help
Iāve posted here before. I have severe RLS. I was on requip and ambien for several years and augmented on the requip. Took me a year and a half to come off it-had terrible withdrawals. Took klonopin to help come off the last of it. Went on gabapentin 900 mg -still didnāt work with klonopin for help
11love
in
Restless Legs Syndrome
4 years ago
Could Shallow Breathing be related to RL symptoms?
Hi everyone, I'm still suffering from RLS with the horrible sensations in my legs, shoulders and recently my hand. Have those of you with these symptoms noticed a relationship between your breathing when you go to bed at night - such that shallow breathing or congestion (lack of enough oxygen through
Hi everyone, I'm still suffering from RLS with the horrible sensations in my legs, shoulders and recently my hand. Have those of you with these symptoms noticed a relationship between your breathing when you go to bed at night - such that shallow breathing or congestion (lack of enough oxygen through
Reb0013
in
Restless Legs Syndrome
4 years ago
Off topic just to make you smile
My little pug leah as myopathy vet recommend this foot wear to protect her paws ..well she squeaking and squealing all over the house . There latex you would have to have seen the video I put on Facebook for my mates we had a laugh we all need a laugh right now ..song playing these boots are made for
My little pug leah as myopathy vet recommend this foot wear to protect her paws ..well she squeaking and squealing all over the house . There latex you would have to have seen the video I put on Facebook for my mates we had a laugh we all need a laugh right now ..song playing these boots are made for
Vonnie10
in
NRAS
4 years ago
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Sister had cardiac arrest 1/25/21. Cpr started immediately, ems took over 2 minutes later. Not sure what caused it, she couldn't breath suddenly for no reason. Intubated and induced coma 3 days. Each day made progress maintaining temperature, blood pressure, heart in rhythm. Not breathing fully on her
Sister had cardiac arrest 1/25/21. Cpr started immediately, ems took over 2 minutes later. Not sure what caused it, she couldn't breath suddenly for no reason. Intubated and induced coma 3 days. Each day made progress maintaining temperature, blood pressure, heart in rhythm. Not breathing fully on her
Angech
in
ICUsteps
4 years ago
I have severe restless syndrome. Is lipitor aggravating my restless leg syndrome?
I have severe restless leg syndrome has had it since I was a child. I've been taking pramipexole for it for the last 10 years or so and it's under control. however I recently had a heart attack and my doctor put me on at 80 mg dose of Lipitor. Or the generic form of it anyways. The last few nights in
I have severe restless leg syndrome has had it since I was a child. I've been taking pramipexole for it for the last 10 years or so and it's under control. however I recently had a heart attack and my doctor put me on at 80 mg dose of Lipitor. Or the generic form of it anyways. The last few nights in
SlickNC
in
Restless Legs Syndrome
4 years ago
RLS relief
I would just like to say hoping that it might help some people, that I was put on 6 mg of prolonged-release tablets Ropinirole about six months ago which helped on and off, also Iam on a course of iron tablets which have helped my specialist said it was found to be better to take one a day than three
I would just like to say hoping that it might help some people, that I was put on 6 mg of prolonged-release tablets Ropinirole about six months ago which helped on and off, also Iam on a course of iron tablets which have helped my specialist said it was found to be better to take one a day than three
BTABKWJ4561
in
Restless Legs Syndrome
4 years ago
Viral meningitis do's & dont's
My daughter (5) was discharged from hospital 2 days ago with VM. Question may seem silly but can i wash her hair as normal? Im asking because of the headaches and because i wouldn't want to unintentionally hurt her.
My daughter (5) was discharged from hospital 2 days ago with VM. Question may seem silly but can i wash her hair as normal? Im asking because of the headaches and because i wouldn't want to unintentionally hurt her.
Sounsure
in
Meningitis Now
4 years ago
Stopping medication
Hi, I have suffered with restless legs all my life but they only became unbearable after having my second son. I tried all sorts of different things with varying success, initially Magnesium helped, then Iron, then an iron infusion but then they gradually became less and less effective. I was exhausted
Hi, I have suffered with restless legs all my life but they only became unbearable after having my second son. I tried all sorts of different things with varying success, initially Magnesium helped, then Iron, then an iron infusion but then they gradually became less and less effective. I was exhausted
Ozzy2021
in
Restless Legs Syndrome
4 years ago
Evorel HRT patches
I started using these patches 3 weeks ago but after a few days i woke up with rls and now 3 weeks in am up every night after having it mostly under control with Tramadol and Lyrica. Has Evorel caused worsening of rls for anyone else?
I started using these patches 3 weeks ago but after a few days i woke up with rls and now 3 weeks in am up every night after having it mostly under control with Tramadol and Lyrica. Has Evorel caused worsening of rls for anyone else?
mantel
in
Restless Legs Syndrome
4 years ago
RLS and progesterone birth control... trigger?
I was doing really well on 10/325 hydrocodone every night plus 1/2 pill of my .25 mg Requip to keep the RLS at bay. But lately, I have had a series of really bad nights (and then DAYS) when I canāt seem to get relief from my regular meds. The only thing I can think of that is different is that I got
I was doing really well on 10/325 hydrocodone every night plus 1/2 pill of my .25 mg Requip to keep the RLS at bay. But lately, I have had a series of really bad nights (and then DAYS) when I canāt seem to get relief from my regular meds. The only thing I can think of that is different is that I got
Newmomma567
in
Restless Legs Syndrome
4 years ago
Can Oral Thrush make you feel really poorly
Can oral thrush make you feel quite poorly? Iāve been extremely fatigued and just no energy to function what so ever..and a real feeling of weakness. Iāve had some palpitations too and Iāve never experienced this..even when taking too much ventolin! I had suspected tonsillitis beginning Nov so was
Can oral thrush make you feel quite poorly? Iāve been extremely fatigued and just no energy to function what so ever..and a real feeling of weakness. Iāve had some palpitations too and Iāve never experienced this..even when taking too much ventolin! I had suspected tonsillitis beginning Nov so was
JustR
in
Asthma Community Forum
4 years ago
Herbal Alternative of doxycycline (Quinine and knotweed)
The in vitro tests suggested that extracts from seven different plants were more effective against the Lyme disease bacteria than doxycycline and cefuroxime. The plants in question were black walnut (Juglans nigra), catās claw (Uncaria tomentosa), sweet wormwood (Artemisia annua), Mediterranean rockrose
The in vitro tests suggested that extracts from seven different plants were more effective against the Lyme disease bacteria than doxycycline and cefuroxime. The plants in question were black walnut (Juglans nigra), catās claw (Uncaria tomentosa), sweet wormwood (Artemisia annua), Mediterranean rockrose
Farooqji
in
Cure Parkinson's
4 years ago
Coke helps - very strange
I've had RLS for almost 20 years. I take Pramipexole and it totally works. But, yesterday, I learned something new. I have never, never had caffeine any time after noon because it makes me jumpy and I don't sleep. (I don't sleep well anyway, so the caffeine meant I didn't sleep at all). But, yesterday
I've had RLS for almost 20 years. I take Pramipexole and it totally works. But, yesterday, I learned something new. I have never, never had caffeine any time after noon because it makes me jumpy and I don't sleep. (I don't sleep well anyway, so the caffeine meant I didn't sleep at all). But, yesterday
kittyknitter
in
Restless Legs Syndrome
4 years ago
Has anyone experienced this?
I am tapering ropinirole from 4 mg by .25 mg and last night went down to 2.75 mg. I did not have any augmentation and have had an easy time with the tapering. I, also, tapered my clonazepam down from .5 mg to ,25 mg by January 19th and I am temporarily staying at .25 .I have been taking 100 mg of gabapentin
I am tapering ropinirole from 4 mg by .25 mg and last night went down to 2.75 mg. I did not have any augmentation and have had an easy time with the tapering. I, also, tapered my clonazepam down from .5 mg to ,25 mg by January 19th and I am temporarily staying at .25 .I have been taking 100 mg of gabapentin
SueJohnson
in
Restless Legs Syndrome
4 years ago
Something good for pain between shoulders
PMR not too bad - on 6 mg pred - diagnosed Oct 18 - have pain at top of back below neck in middle of shoulders - I use Glucosamine Complex Gel with Aloe Vera Devils Claw and MSM - very soothing
PMR not too bad - on 6 mg pred - diagnosed Oct 18 - have pain at top of back below neck in middle of shoulders - I use Glucosamine Complex Gel with Aloe Vera Devils Claw and MSM - very soothing
Daffodilia
in
PMRGCAuk
4 years ago
My Soul Mate is fighting for his life!
My husband was admitted on November 1, with covid pneumonia. On November 10, he was intebated and put on vent on high sedation. They struggled weaning him because he bucked the vent. His lungs began to fill with blood clots, so we agreed to try an aggressive approach and use blood thinners. On
My husband was admitted on November 1, with covid pneumonia. On November 10, he was intebated and put on vent on high sedation. They struggled weaning him because he bucked the vent. His lungs began to fill with blood clots, so we agreed to try an aggressive approach and use blood thinners. On
lynnmarr
in
ICUsteps
4 years ago
Glutamate triggers!
First line treatment goes after how the body absorbs glutamate. Not surprisingly foods high in glutamate are triggers for me, and I assume would be triggers for others (yes, we are all different). The reason I mention this is some of the foods high in glutamate, like parmesan cheese (all aged cheeses
First line treatment goes after how the body absorbs glutamate. Not surprisingly foods high in glutamate are triggers for me, and I assume would be triggers for others (yes, we are all different). The reason I mention this is some of the foods high in glutamate, like parmesan cheese (all aged cheeses
wantokporo
in
Restless Legs Syndrome
4 years ago
Shingles and PMR
Does anyone know if susceptibility to shingles is increased by having PMR? I've just had a shingles bout and have PMR.
Does anyone know if susceptibility to shingles is increased by having PMR? I've just had a shingles bout and have PMR.
ian1951
in
PMRGCAuk
4 years ago
Hot water bottles
Hi all hope yr all staying g safe and well . Im on day 12 of 12.5 mg well I think I am every day the same as moment. Have spent last few days cwtched up to hot water bottles and electric blanket only thing that seems to keep pain to a minimum along with paracetamol. Even thou we have snow in wales at
Hi all hope yr all staying g safe and well . Im on day 12 of 12.5 mg well I think I am every day the same as moment. Have spent last few days cwtched up to hot water bottles and electric blanket only thing that seems to keep pain to a minimum along with paracetamol. Even thou we have snow in wales at
Hidden
in
PMRGCAuk
4 years ago
Targinact working
I have been on Targinact for 2 weeks in conjunction with Gabapentin & Ropinirole - it's been transformational , with no more standing up swaying during the evening plus I am sleeping much better now. I would say 95% gone. I hope it's not temporary as that was my experience with Ropinirole years back
I have been on Targinact for 2 weeks in conjunction with Gabapentin & Ropinirole - it's been transformational , with no more standing up swaying during the evening plus I am sleeping much better now. I would say 95% gone. I hope it's not temporary as that was my experience with Ropinirole years back
joepublic
in
Restless Legs Syndrome
4 years ago
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