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Am I being blasé about stomach protectors whilst on Pred?
I have had PMR for 3 and a half years and generally feel lucky that I am not feeling as bad or fatigued as many on this forum. I am certainly not as fit as I was but age has a part to play. I am 75 and used to be able to do big hikes, Zumba and so on but can still walk 4 to 5 miles and have just moved
I have had PMR for 3 and a half years and generally feel lucky that I am not feeling as bad or fatigued as many on this forum. I am certainly not as fit as I was but age has a part to play. I am 75 and used to be able to do big hikes, Zumba and so on but can still walk 4 to 5 miles and have just moved
Stargiver
in
PMRGCAuk
2 months ago
RLS? PLMD? Myoclonic Jerks? All of the above?
I am a 69 year old man in the United States. In 2016, I started experiencing leg spasms that would occur when I lie prone or leaned back in my recliner. I first noticed it during the day, but it would soon keep me from falling asleep and staying asleep. I mentioned it to a doctor I was visiting for
I am a 69 year old man in the United States. In 2016, I started experiencing leg spasms that would occur when I lie prone or leaned back in my recliner. I first noticed it during the day, but it would soon keep me from falling asleep and staying asleep. I mentioned it to a doctor I was visiting for
LAdudePRS
in
Restless Legs Syndrome
2 months ago
help please osteoporosis at 48
hi there DEXA -3.7 and -3.5 Did have low bmi for many years no oestrogen Now on HRT What levels is ideal for hrt ? No one can tell me optimal range ? Ctx and 0.5 and Pn1p 106 All the rest is normal. T4 16 12 to 22 And t3 5.1 4.1 to 6.8 I’m only 48 . Can I improve it with jumping
hi there DEXA -3.7 and -3.5 Did have low bmi for many years no oestrogen Now on HRT What levels is ideal for hrt ? No one can tell me optimal range ? Ctx and 0.5 and Pn1p 106 All the rest is normal. T4 16 12 to 22 And t3 5.1 4.1 to 6.8 I’m only 48 . Can I improve it with jumping
Chouchou1234
in
Bone Health and Osteoporosis UK
2 months ago
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B12 levels
Hello, I'm thinking of getting my daughter checked for Hashimotis and ceoliac after I was diagnosed. She had some symptoms (fatigue, irritability, headaches) but is only 7 and a great eater!. Her ferritin is very low at only 11 (20-100) and B12 is 228 (300-600) but her active B12 is in range at 68 (above
Hello, I'm thinking of getting my daughter checked for Hashimotis and ceoliac after I was diagnosed. She had some symptoms (fatigue, irritability, headaches) but is only 7 and a great eater!. Her ferritin is very low at only 11 (20-100) and B12 is 228 (300-600) but her active B12 is in range at 68 (above
Kmurr144
in
Thyroid UK
2 months ago
cathy
I need to have a thyroid test. Before I book it what time of day should I book it for and in your opinion what time of day should I take my T4 and T 3 and what are the reasons for this. Thanks so much.
I need to have a thyroid test. Before I book it what time of day should I book it for and in your opinion what time of day should I take my T4 and T 3 and what are the reasons for this. Thanks so much.
Puddingym
in
Thyroid UK
2 months ago
Me again! Ferritin 37 midJune,baffled as to how it has raised another 25 to 110 in a wk,taking no iron please?
Hi,I posted recently a bit confused due to ferritin results... March 25th 48 (nhs) 8wks later after loading dose-37 (nhs) 2wks ago 85 (medichecks pinprk) after 1 wk not taking iron-advanced thyroid check. Last wk 110 (medichecks Iron Panel-no.other results worked) I've only been taking 1 ferrous fumarate
Hi,I posted recently a bit confused due to ferritin results... March 25th 48 (nhs) 8wks later after loading dose-37 (nhs) 2wks ago 85 (medichecks pinprk) after 1 wk not taking iron-advanced thyroid check. Last wk 110 (medichecks Iron Panel-no.other results worked) I've only been taking 1 ferrous fumarate
Jo5454
in
Pernicious Anaemia Society
2 months ago
My Longevity after a Triple Bypass.
My reason for my existence for so long after my op I feel was due to me never having a heart attack. I was fantastically fit involved in many sports and only got mild angina when at the extremes of exercising.Caught very early l was very young to 30 years of age. Still rather scary setting out on my
My reason for my existence for so long after my op I feel was due to me never having a heart attack. I was fantastically fit involved in many sports and only got mild angina when at the extremes of exercising.Caught very early l was very young to 30 years of age. Still rather scary setting out on my
Bigscar
in
British Heart Foundation
2 months ago
Still suffering
My story is so long, so I will try to start where I am currently. An update: I have been on gabapentin (1800mg) and Rquip (4mg) for over 20 years. Just recently my RLS became unrelenting. I can't sleep, and I am so tired. Ihave been to so many doctors here in Oklahoma who really know nothing about RLS
My story is so long, so I will try to start where I am currently. An update: I have been on gabapentin (1800mg) and Rquip (4mg) for over 20 years. Just recently my RLS became unrelenting. I can't sleep, and I am so tired. Ihave been to so many doctors here in Oklahoma who really know nothing about RLS
Littlegran
in
Restless Legs Syndrome
2 months ago
Tips for Apt with NHS Endo
Hi All, hope you are having a good day. I’m a few months into taking Thybon Henning T3 only and I finally think I have found a medication that is working for me. Less anxiety, pain and I’m generally coping better. Any tips on how to persuade the NHS Endocrinologist to potentially prescribe Thybon Henning
Hi All, hope you are having a good day. I’m a few months into taking Thybon Henning T3 only and I finally think I have found a medication that is working for me. Less anxiety, pain and I’m generally coping better. Any tips on how to persuade the NHS Endocrinologist to potentially prescribe Thybon Henning
Blu-cat11
in
Thyroid UK
2 months ago
Von Hippel Lindau Syndrome
Hi APS friends- 2 years ago I underwent a partial nephrectomy to remove a large (2 inch in diameter) tumor in my kidney. Pathology showed that I have/had clear cell renal cell carcinoma (ccRCC). Throughout my life small tumors have been found in different places in my body, but all benign. I was
Hi APS friends- 2 years ago I underwent a partial nephrectomy to remove a large (2 inch in diameter) tumor in my kidney. Pathology showed that I have/had clear cell renal cell carcinoma (ccRCC). Throughout my life small tumors have been found in different places in my body, but all benign. I was
myarabella
in
Hughes Syndrome APS Forum
2 months ago
Change to Levo timings/splitting dose?
After PM in with a very helpful Forumite, she has given me the idea of splitting my dose. One part in the morning and one part later in the day. I think this is worth pursuing for two reasons. 1.) My night time heart racing is a blooming nuisance if nothing else. 2.) I am getting the sense that my
After PM in with a very helpful Forumite, she has given me the idea of splitting my dose. One part in the morning and one part later in the day. I think this is worth pursuing for two reasons. 1.) My night time heart racing is a blooming nuisance if nothing else. 2.) I am getting the sense that my
arTistapple
in
Thyroid UK
2 months ago
Following on from synacthen test.....
....and feeling pathetic at the hospital. Thank you for all your replies. On to my next question - Prior to the synacthen test I got down to 5mg pred but the last 3 weeks I had been feeling as though 5mg wasn't enough. I'd had several bouts of S&D, also fatigued by the heat..I thought it may have been
....and feeling pathetic at the hospital. Thank you for all your replies. On to my next question - Prior to the synacthen test I got down to 5mg pred but the last 3 weeks I had been feeling as though 5mg wasn't enough. I'd had several bouts of S&D, also fatigued by the heat..I thought it may have been
CygnusX1
in
PMRGCAuk
2 months ago
Thyroxine and methylprednisolone
Can I take my prednisolone and levothyroxine together or better one hour apart ?
Can I take my prednisolone and levothyroxine together or better one hour apart ?
Lasagne777
in
PMRGCAuk
2 months ago
body giving up on me after Covid… the saga continues!
Hi all - body is still really giving up on me after contracting Covid in May and struggling to put it all right. I’ve had pernicious anaemia for many, many years but never experienced anything like this. My B12 definitely isn’t working properly and neither is my stomach! First came the tanking ferritin
Hi all - body is still really giving up on me after contracting Covid in May and struggling to put it all right. I’ve had pernicious anaemia for many, many years but never experienced anything like this. My B12 definitely isn’t working properly and neither is my stomach! First came the tanking ferritin
Littledancingtiger
in
Pernicious Anaemia Society
2 months ago
How to Improve T4
Here are latest results. Currently on 125mg Levothyroxine As my T4 is quite good, is there room for improving T3. Thank you
Here are latest results. Currently on 125mg Levothyroxine As my T4 is quite good, is there room for improving T3. Thank you
pussycatwillow
in
Thyroid UK
2 months ago
What is best time to take adrenal context? Post major surgery thyroid, para thyroid & cortisol results. Steroids
hi everyone cortisol is 125 range(185-624) 9am cortisol parathyroid is 2.3 range (1.3-9.3) thyroid results in picture above. I have just had very major vascular compression surgery in Germany on both left kidney veins. I am 5 weeks post surgery. I have been on steroids for a year due to
hi everyone cortisol is 125 range(185-624) 9am cortisol parathyroid is 2.3 range (1.3-9.3) thyroid results in picture above. I have just had very major vascular compression surgery in Germany on both left kidney veins. I am 5 weeks post surgery. I have been on steroids for a year due to
Ajva
in
Thyroid UK
2 months ago
Monitor my health test results can anyone advise please?
These are my new bloods taking 50 levo (started on 25) & I'm lower through the ranges than before I took it 😔Should I up it myself before I see the doctor next month? Vitamin D 94 Ferritin 93 B12 157 Folate >20 No ratio provided, have requested them? Cholesterol has gone down as has HbA1c, thank you
These are my new bloods taking 50 levo (started on 25) & I'm lower through the ranges than before I took it 😔Should I up it myself before I see the doctor next month? Vitamin D 94 Ferritin 93 B12 157 Folate >20 No ratio provided, have requested them? Cholesterol has gone down as has HbA1c, thank you
Elle137
in
Thyroid UK
2 months ago
40 T3
Im now on 100 levo and 40 T3 and still tired. Next appointment September.
Im now on 100 levo and 40 T3 and still tired. Next appointment September.
JCMartin
in
Thyroid UK
2 months ago
Endo consult..... confused 😕
I had my endo consult yesterday, phone consultation, and was literally on the phone for just over...... 8mins! Felt like he couldn't get off the phone quick enough. I was surprised tbh as he is normally really good and this is the first phone consult I've had with him as he's normally f2f. I asked about
I had my endo consult yesterday, phone consultation, and was literally on the phone for just over...... 8mins! Felt like he couldn't get off the phone quick enough. I was surprised tbh as he is normally really good and this is the first phone consult I've had with him as he's normally f2f. I asked about
Horsecrazylady79
in
Thyroid UK
2 months ago
Vitamins?
I am reducing my dose to 75mg as per previous post (TSH 0.035 0.27-4.2T4 21.5 12-22 and T3 4.4. 3.1-6.8) I was wondering about my supplements and what I could take to help. I have restarted my Vit D300+K2 spray. Inflammation CRP 3.07 <3 Ferritin 230 30-332 Folate
I am reducing my dose to 75mg as per previous post (TSH 0.035 0.27-4.2T4 21.5 12-22 and T3 4.4. 3.1-6.8) I was wondering about my supplements and what I could take to help. I have restarted my Vit D300+K2 spray. Inflammation CRP 3.07 <3 Ferritin 230 30-332 Folate
Lolalottie
in
Thyroid UK
2 months ago
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