Experiences with

LDH test

Good morning! I'm happy to report that I had my third infusion last week, and my platelets are at 265,000 and seem to be stabilizing. My WBC, RBC, and LDH levels are normal, and my RDW is almost within the normal range as well! Currently, my regimen is 750mg every two weeks, and I'll continue this

Hello all. Looking for some insight or maybe just a glimmer of light today. So, I was diagnosed ET at 47, progressed to PV at 53 or so. Did Peg, then Besremi for 5 years, but could not tolerate interferon. On Jakafi now for almost a year. Platelets down from 1.1 mill to just over 400,000. But other

On Monday, I had my second infusion. My pre-lab results showed my platelets at 326,000 and my LDH was normal – numbers I haven't seen since before my ET diagnosis. So far, I'm only experiencing fatigue, which is to be expected as my body adjusts. Depending on how my platelet count responds, my doctor

Hello Friends, After careful consideration, I decided to join this trial. Since I was diagnosed in 2017 I have been on Hydrea, Interferon and Angerlide. Recently my platelets spiked over the millions so my MPN Specialist, Dr Gotlib at Stanford, suggested this trial. I was hesitant at first but the more

Should our heart doctors put us on a statin IF our LDH is 280? I have CLL. I also had congestive heart failure in 2016. I had my aortic valve replaced with an Edwards Sapien Pig Valve via TAVR. I began the statin and several times during the day, for a brief moment, I feel like I could pass out

Medical oncologist just added LDH to my regular ongoing blood work. Stage 4A RAPL, RT, ADT Lupron/Nubeqa Abiraterone was switched to Nubeqa due to liver inflammation 12/12/2024 RAPL 08/29/2023 ADT 11/07/2023 RT finished 07/28/2024 Undetected PSA since 01/06/2024 what is LDH a good marker for

My dad (72) was diagnosed in 02/24 with multiple bone mets, Gleason 9 an initial PSA of around 4000. He had triplet therapy with Docetaxel, Lupron and Nubeqa. His nadir was 26.1 in September 2024. His PSMA in November 2024 showed moderate to high activity in his prostate and in one area on his spine.

Hi After all the avoidable stress of getting bloods done at Guys, when I had my telephone con on Monday (- half an hour earlier than expected - good thing I was more or less ready) the momelitinib. Is doing the trick in terms of stabilising the Hb. Other numbers also OK. So I’ll stay on the same

I am 73, previously fit and active ,diagnosed with iron deficiency and PV after a Postive JAK2 IN MAY 2024. I had 2 venesections and had "luckily" been on Aspirin for 2 years prior to diagnosis. Later commenced HU but after 10 days my platelets had fallen drastically and I required hospitalisation ,

So I was at the Hemo/onco last week. I kind of jokingly asked him, "So do you think I will live another 10 years?", and he said "Maybe". Now before you get mad at him, he did, of course, quantify that no one knows, and no one can predict the course of the disease exactly yada yada [i]BUT,[/i] he thinks

Encouraging news in this abstract from CLL/SLL researchers at the Northwestern Memorial Hospital, Northwestern University Feinberg School of Medicine, Chicago, for those with aggressive/complex karyotype CLL/SLL* https://pubmed.ncbi.nlm.nih.gov/39243299 The abstract, with my emphasis; [i]Accelerated

I was just diagnosed last week. Wbc of 14 and alc of 8.8 - no symptoms or lymphadenopathy. My tests were just completed and everything seemed very favorable except one thing. The good was low ldh (138), low B2M (1.79), low CRP (.05mg/dl), only 13q14 deletion on FISH (everything else normal on that

Had some blood test results given to my wife who has MF and is feeling particularly weak, now six months after starting Jakafi, though the weakness and ascites began after 2 and half months.

Hi greetings to everyone. I was Dx two years ago per the only one test of Flow Cytometry, still in W&W, seeing GP and hematologist/oncologist every three months. In my last visit to the clinic on July 3, the NP found two more larger lymph nodes about 1/2 inch in diameter under my chins. Since then

Goid evening, I visited a local hematologist this week, not my MPN specialist, due to non coverage and he suggested trying combo of Hydroxyurea and Anagrelide. Has anyone used this combination for treatment of ET? Also, maybe (2) 81 mg baby aspirin/ day to counteract the ever increasing platelets which

Hi All, I was recently taking Dexamethasone and have started a new medication called Belzutifan. I have stopped from Tuesday 19th November 2024. I had a Liver blood test done on Tuesday 19th November 2024 and normally I am in normal range for everything please see below my blood test results is

Hello there, I'm a 42-year-old man. I've been experiencing significant anxiety over the past weeks as I'm preparing for a medical check required for a residency visa in a foreign country after about 3 weeks week. I've been feeling fatigued and very tired, so I decided to have a general blood test before

As some of you have posted about previously, today I also entered the NIH natural history study for CLL. The visit was good, efficient and pretty painless. Getting on the campus was straightforward only requiring a driver's license and a pre-registration with the CLL team that was seen by security.

Hi everyone. This is the first time I post here but your chats have been so helpful for me over the past few months. I’m 44 years old and got diagnosed with ET CARL mutation in September last year. It started off with a lot of bruising and fatigue (all drs originally said it was due to stress!) Blood