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ONLINE SUPPORT GROUPS
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
Our support groups are such a good way to connect with other's in a similar situation, they have really helped so many people make friendships and gain valuable knowledge around their treatment and care. If you have any queries about anything please get in touch, we would love to hear from you and help
ConnectRoyCastle
Administrator
in
The Roy Castle Lung Cancer Foundation
5 months ago
endo surgery
Hi there- just found this platform and keen to reach out for some support. After years of being misdiagnosed with IBS and extremely painful periods, a scan and following MRI suggested 4 endometriomas on r ovary (6.5cm, 4cm, 3cm and 2cm) and left ovary stuck to back of uterus. Also adenomyosis. My
Hi there- just found this platform and keen to reach out for some support. After years of being misdiagnosed with IBS and extremely painful periods, a scan and following MRI suggested 4 endometriomas on r ovary (6.5cm, 4cm, 3cm and 2cm) and left ovary stuck to back of uterus. Also adenomyosis. My
Jenny_91-
in
Endometriosis UK
5 months ago
Hi. Im Ziggy.
I am 66 years young. I have had DSM1 Autism diagnosis since 2021. I now, since surgery for Graves Disease, am hypothyroid. I have osteoporosis, osteoarthritis, rheumatoid arthritis, spondylosis, fibromyalgia, lifelong anxiety and depression disorder. I am disabled... Apart from those things I love
I am 66 years young. I have had DSM1 Autism diagnosis since 2021. I now, since surgery for Graves Disease, am hypothyroid. I have osteoporosis, osteoarthritis, rheumatoid arthritis, spondylosis, fibromyalgia, lifelong anxiety and depression disorder. I am disabled... Apart from those things I love
Max__1957
in
Anxiety and Depression Support
5 months ago
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Mom and ICU
In December 2023, my mom learned she has colon cancer. On December 28, 2023 she went into the hospital to have a colon resection to remove the cancerous area. This was done robotically. After the surgery she was groggy but responsive. On day 2 post op my mom started having delirium (hospital psychosis
In December 2023, my mom learned she has colon cancer. On December 28, 2023 she went into the hospital to have a colon resection to remove the cancerous area. This was done robotically. After the surgery she was groggy but responsive. On day 2 post op my mom started having delirium (hospital psychosis
wcase372
in
ICUsteps
5 months ago
Blood results.
After blood tests last week and receiving a "No action required "phone call from Gp surgery, I returned to surgery to see practice nurse for a foot ailment and asked for my actual results. She wrote them downSerum ferritin 759 Transferritin (not sure if she wrote 1.7 or17)couple of extra full stops
After blood tests last week and receiving a "No action required "phone call from Gp surgery, I returned to surgery to see practice nurse for a foot ailment and asked for my actual results. She wrote them downSerum ferritin 759 Transferritin (not sure if she wrote 1.7 or17)couple of extra full stops
Lambretta175
in
Restless Legs Syndrome
5 months ago
Pain relief?
Hi endo community I've been on pain relief for the last 2 years as since being diagnosed with endometriosis thats spread to bladder and rectum in 2018 noone will touch me for surgery and have been referred to the endometriosis clinic in the Coombe hospital Dublin with a couple years long waiting list
Hi endo community I've been on pain relief for the last 2 years as since being diagnosed with endometriosis thats spread to bladder and rectum in 2018 noone will touch me for surgery and have been referred to the endometriosis clinic in the Coombe hospital Dublin with a couple years long waiting list
Escapologygirl
in
Endometriosis UK
5 months ago
Participant Recruitment - Post Surgery Pain Management
Researchers from the
University of Manchester
are
recruiting participants for a study on post-surgery pain management
. Please get in touch with Neetu Bansal (lead researcher) directly if you are interested in taking part, or to get further information: š§ neetu.bansal@manchester.ac.uk
Researchers from the
University of Manchester
are
recruiting participants for a study on post-surgery pain management
. Please get in touch with Neetu Bansal (lead researcher) directly if you are interested in taking part, or to get further information: š§ neetu.bansal@manchester.ac.uk
PainConcernProjects
Pain Concern
in
Pain Concern
5 months ago
Burning sensation- anyone else?
Hi allI was diagnosed with endometriosis in 2020 (never told stage or anything like that) and scans I've had show probable adenomyosis as well. After my laparoscopy my pains came back fairly quickly and have escalated. About a year ago i started getting pain in the glutes and all down my leg (more on
Hi allI was diagnosed with endometriosis in 2020 (never told stage or anything like that) and scans I've had show probable adenomyosis as well. After my laparoscopy my pains came back fairly quickly and have escalated. About a year ago i started getting pain in the glutes and all down my leg (more on
Redfan
in
Endometriosis UK
5 months ago
Multi Ablations?
Hello all, Big cardio surgery history, last one 25 years ago, still here thanks to surgeons who were willing to take risks where others weren't! Developed AFib 5 years ago. Had a cryo, success for 2 years then a redo RF, success for 18 months but also had more cardio versions that you can shake a stick
Hello all, Big cardio surgery history, last one 25 years ago, still here thanks to surgeons who were willing to take risks where others weren't! Developed AFib 5 years ago. Had a cryo, success for 2 years then a redo RF, success for 18 months but also had more cardio versions that you can shake a stick
timelucky
in
AF Association
5 months ago
Cataract surgery
Good morning Everyone I had my cataract surgery yesterday lunchtime on my good eye. To get that strong again to start with. So I am struggling at present because my other eyehas always not been very good. The surgery went well I was told. I was worried because I have Corneal Dystrophy in my eyes as
Good morning Everyone I had my cataract surgery yesterday lunchtime on my good eye. To get that strong again to start with. So I am struggling at present because my other eyehas always not been very good. The surgery went well I was told. I was worried because I have Corneal Dystrophy in my eyes as
Bingo88
in
Lung Conditions Community Forum
1 day ago
How long were your symptoms relieved after surgery?
Hello š, I had my laparoscopy just over a month ago. They removed adhesions from left ovary and bowel. I feel like the symptoms I had before are ramping back up again but I donāt know if itās all in my head or if itās because Iām still healing from the op. Iām waiting for my follow up appointment
Hello š, I had my laparoscopy just over a month ago. They removed adhesions from left ovary and bowel. I feel like the symptoms I had before are ramping back up again but I donāt know if itās all in my head or if itās because Iām still healing from the op. Iām waiting for my follow up appointment
Tiff22
in
Endometriosis UK
5 months ago
surgery
got my bypass surgery tomorrow quite nervousšš¼š¤
got my bypass surgery tomorrow quite nervousšš¼š¤
Mintilharry
in
British Heart Foundation
5 days ago
Still in recovery..........
Morning everyone, i think it is time for a update. Well for a start it is only 4.45am and i have been awake since three. I decided to come down here as there is only so much tossing and turning one can do. So while it is quiet i thought i would let you all know how i am. Well it is three weeks
Morning everyone, i think it is time for a update. Well for a start it is only 4.45am and i have been awake since three. I decided to come down here as there is only so much tossing and turning one can do. So while it is quiet i thought i would let you all know how i am. Well it is three weeks
sylvi
in
NRAS
7 days ago
Malignant Glaucoma
My official diagnosis is "Malignant glaucoma following macular hole surgery". After two laser treatments I had cataract surgery. The following day my pressure in the right eye went to 60. Later that day I lost the sight in my right eye. The macular hole surgery took place on 6th February. The
My official diagnosis is "Malignant glaucoma following macular hole surgery". After two laser treatments I had cataract surgery. The following day my pressure in the right eye went to 60. Later that day I lost the sight in my right eye. The macular hole surgery took place on 6th February. The
Birdie25
in
Glaucoma UK
7 days ago
Chemo question
Hello everyone, I was diagnosed with stage 4 ovarian cancer a couple days before last Christmas so I am early in my journey and feeling very scared and discouraged. Since my tumor is too large, I canāt have surgery yet. I had my first taxol/carboplatin treatment last week. I had an allergic reaction
Hello everyone, I was diagnosed with stage 4 ovarian cancer a couple days before last Christmas so I am early in my journey and feeling very scared and discouraged. Since my tumor is too large, I canāt have surgery yet. I had my first taxol/carboplatin treatment last week. I had an allergic reaction
Buster98
in
My Ovacome
5 months ago
Piggy back surgery
HiI recently had cataract surgery I was long sighted now short sighted so as otherveye us long sighted makes it hardcover does anybody know of any wrrr I can get piggy back surgery in the hereford area
HiI recently had cataract surgery I was long sighted now short sighted so as otherveye us long sighted makes it hardcover does anybody know of any wrrr I can get piggy back surgery in the hereford area
Janebirch1
in
Glaucoma UK
7 days ago
Heart bypass surgery
Hi everyone. I'm new here. My boyfriend has recently been under the cardiologist for tests following mild angina symptoms and is now booked in for heart bypass surgery. It's all happened quite quickly and is a lot to get your head around as we certainly werent expecting it. His surgery is scheduled for
Hi everyone. I'm new here. My boyfriend has recently been under the cardiologist for tests following mild angina symptoms and is now booked in for heart bypass surgery. It's all happened quite quickly and is a lot to get your head around as we certainly werent expecting it. His surgery is scheduled for
Bluey73
in
British Heart Foundation
8 days ago
switching capsule acalabrutinib to tablet form promoted vomiting, migraine headache, anyone else?
switching capsule acalabrutinib to tablet promoted vomiting, migraine headache Recent posting about switching from capsules to tablet form for Acalabrutinib have been discussed. Here is my experience and perhaps others. I had been on capsule acalabrutinib with great results and no ill side effect
switching capsule acalabrutinib to tablet promoted vomiting, migraine headache Recent posting about switching from capsules to tablet form for Acalabrutinib have been discussed. Here is my experience and perhaps others. I had been on capsule acalabrutinib with great results and no ill side effect
234me
in
CLL Support
5 months ago
What a month!
Don't worry about reading if too long and boring.............. After a year that was pretty much boring (felt well, no changes to meds etc.) along came June,which fell over! Started with broken ankle (missed that darn bottom step) and then a week in Hospital with a bowel obstruction followed by yearly
Don't worry about reading if too long and boring.............. After a year that was pretty much boring (felt well, no changes to meds etc.) along came June,which fell over! Started with broken ankle (missed that darn bottom step) and then a week in Hospital with a bowel obstruction followed by yearly
Ozchick
in
Hughes Syndrome APS Forum
10 days ago
TRAUMA INDUCED LYMPHODEMA ?? A CAUTIONARY WORD OF WARNING . . HAVE YOU REALLY GOT IT ??
I have been posting on this site for the last 4 years or so, ever since I was diagnosed with Lymphodema.Some of you may remember my posts. My Lymphodema was said to be, trauma induced from a severe fall where I broke my left shoulder and detached my humorous bone. My Lymphodema was from shoulder, in
I have been posting on this site for the last 4 years or so, ever since I was diagnosed with Lymphodema.Some of you may remember my posts. My Lymphodema was said to be, trauma induced from a severe fall where I broke my left shoulder and detached my humorous bone. My Lymphodema was from shoulder, in
WardijaWardija
in
LSN
5 months ago
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