Search
Search
About
Log in
Join
Experiences with
Kidney transplant
Posts
Communities
7,910 public posts
Filter results
Recently diagnosed with MF
Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed stem cell transplant later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated. Given the recent diagnosis still taking
Hi Recently been diagnosed with MF at the age of 53, and the consultant at Guy's has proposed stem cell transplant later this year, has anyone had this treatment and if so any suggestions? I have a potential sibling match which is currently being investigated. Given the recent diagnosis still taking
67Red
in
MPN Voice
3 years ago
Undiagnosed and positive ANA
I joined in 2013 with a positive ANA Test 1:80 Nucleolar pattern suggesting schleroderma. I had follow up tests and no diagnosis. I’ve had 3 failed Endoscopes, as I woke up from sedation grabbing the camera, so Gastro has never found out, why I choke when eating, barium swallow confirmed GERD, I have
I joined in 2013 with a positive ANA Test 1:80 Nucleolar pattern suggesting schleroderma. I had follow up tests and no diagnosis. I’ve had 3 failed Endoscopes, as I woke up from sedation grabbing the camera, so Gastro has never found out, why I choke when eating, barium swallow confirmed GERD, I have
angelharley
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Egfr results
I had an appt with my renal consultant on the 26th April which was canx & re-scheduled for 10th May. I went onto patient view & checked my bloods etc from previous week. I am not sure if I am worrying unnecessarily but my creatine was 125 & egfr was 38. I checked back on previous results & my 1st
I had an appt with my renal consultant on the 26th April which was canx & re-scheduled for 10th May. I went onto patient view & checked my bloods etc from previous week. I am not sure if I am worrying unnecessarily but my creatine was 125 & egfr was 38. I checked back on previous results & my 1st
juli-pa
in
Vasculitis UK
3 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Good news for those suffering from heart failure, you CAN recover, I DID, thanks God.
First sorry for long post but it could be really helpful to those with heart failure. Nov 2019 ejection fraction at 15% , Mitral valve regurgitations (means not even pumping the 15% out correctly!), Got steadily worse, movement severely restricted, 80-year-old man fitter than me..and i was very fit
First sorry for long post but it could be really helpful to those with heart failure. Nov 2019 ejection fraction at 15% , Mitral valve regurgitations (means not even pumping the 15% out correctly!), Got steadily worse, movement severely restricted, 80-year-old man fitter than me..and i was very fit
hf54
in
British Heart Foundation
3 years ago
Lung transplant list
So today I learned my lung transplant journey has come to an end. My body has failed me whilst my mind is still breakdancing. An osteoporotic fracture in my spine is one risk too many for me to receive the gift of new lungs - it was going to be an already high risk operation due to my many complications
So today I learned my lung transplant journey has come to an end. My body has failed me whilst my mind is still breakdancing. An osteoporotic fracture in my spine is one risk too many for me to receive the gift of new lungs - it was going to be an already high risk operation due to my many complications
Joseph260268
in
Lung Conditions Community Forum
3 years ago
improved catheter
I have been having great difficulty urinating and most recently it has become scary. I live in the middle of nowhere, a trip to a competent hospital is 2 hours and a good one with a urologist on-call is 3 hours (if we drive the Rover without regard for speed limits) So it can be very scary to have retention
I have been having great difficulty urinating and most recently it has become scary. I live in the middle of nowhere, a trip to a competent hospital is 2 hours and a good one with a urologist on-call is 3 hours (if we drive the Rover without regard for speed limits) So it can be very scary to have retention
spencoid2
in
Advanced Prostate Cancer
3 years ago
Abnormal Iron Studies Results
A couple of weeks ago I experienced severe debilitating pain in the lower abdomen and lower back. I had developed a stomach upset that including a couple of gastric symptoms 24hrs earlier. Because of the severe nature of the pain I made an urgent appointment to see a Dr at my local practice the same
A couple of weeks ago I experienced severe debilitating pain in the lower abdomen and lower back. I had developed a stomach upset that including a couple of gastric symptoms 24hrs earlier. Because of the severe nature of the pain I made an urgent appointment to see a Dr at my local practice the same
golfnutter
in
PMRGCAuk
3 years ago
What to do when in remission?
PSA now at >0.1 and T > 10 after seven months after four trips to University of Heidelberg and no ADT besides Dutasteride and Finasteride what can be done to keep the demon from awakening? Provenge, Bicalutemide, and supplements. Supplements are hard to choose since there are so many and costly. Is
PSA now at >0.1 and T > 10 after seven months after four trips to University of Heidelberg and no ADT besides Dutasteride and Finasteride what can be done to keep the demon from awakening? Provenge, Bicalutemide, and supplements. Supplements are hard to choose since there are so many and costly. Is
lewicki
in
Advanced Prostate Cancer
3 years ago
Tired
Like many of you I’m sure, but just speaking for myself, I am so incredibly tired of dialysis and kidney disease. I try to just get through a day at a time but it just seems like an endless bad dream ! I still work but have reached a point where I am to tired to do much else. As a former athlete and
Like many of you I’m sure, but just speaking for myself, I am so incredibly tired of dialysis and kidney disease. I try to just get through a day at a time but it just seems like an endless bad dream ! I still work but have reached a point where I am to tired to do much else. As a former athlete and
Frankie24
in
Kidney Dialysis
3 years ago
mpal leukaemia
Hi Would really love to hear from anyone who has experience with this rare type of leukaemia. My son was diagnosed in December 2020 and is about to undergo a bone marrow transplant
Hi Would really love to hear from anyone who has experience with this rare type of leukaemia. My son was diagnosed in December 2020 and is about to undergo a bone marrow transplant
su0906
in
Leukaemia CARE
3 years ago
“I think we’ll cure leukemia in my lifetime”
“Is there anything else you’d like to share about leukemia treatment? I'm very excited because I think we’ll cure leukemia in my lifetime. We’ve already come so far. For example, before 2000, patients with Philadelphia chromosome-positive acute lymphoblastic leukemia had a survival rate of 10%. Targeted
“Is there anything else you’d like to share about leukemia treatment? I'm very excited because I think we’ll cure leukemia in my lifetime. We’ve already come so far. For example, before 2000, patients with Philadelphia chromosome-positive acute lymphoblastic leukemia had a survival rate of 10%. Targeted
Manouche
in
MPN Voice
3 years ago
Salvage Cryoablation
So..my UroOnc wants to pursue cryoablation after my failed radiotherapy (EBRT/LDR Brachytherapy ). I don't know yet if I can have focal only cryo or have to have whole prostate ablation. I know the ED outcome is bad, but has anyone else had this treatment and how are you doing afterward? Any other
So..my UroOnc wants to pursue cryoablation after my failed radiotherapy (EBRT/LDR Brachytherapy ). I don't know yet if I can have focal only cryo or have to have whole prostate ablation. I know the ED outcome is bad, but has anyone else had this treatment and how are you doing afterward? Any other
Deadstick
in
Advanced Prostate Cancer
3 years ago
Protein in Urine should I be concerned?
I have high levels of protein in my Urine, I’ve felt like I have had a urine infection, but other than Protein and a sore back on my left side when I need to pee, there a no indications of an infection. I have Lupus panniculitis/profundus and my GP doesn’t appear interested. What can I do and should
I have high levels of protein in my Urine, I’ve felt like I have had a urine infection, but other than Protein and a sore back on my left side when I need to pee, there a no indications of an infection. I have Lupus panniculitis/profundus and my GP doesn’t appear interested. What can I do and should
CJT37
in
LUPUS UK
3 years ago
It's Never too Late!
My donor family told me how important it is to know that I am taking care of Ryan's'
kidney
and his memory. Contact your
transplant
center if in doubt how to contact your donor family! Picture of Jeff, me and Ann!
My donor family told me how important it is to know that I am taking care of Ryan's'
kidney
and his memory. Contact your
transplant
center if in doubt how to contact your donor family! Picture of Jeff, me and Ann!
WYOAnne
NKF Ambassador
in
Kidney Transplant
3 years ago
Can kidney transplant patients be architects?
I am an architecture student possibly having a living donor kidney soon (stable on HD) I was wondering, does the tac tremor mean that architecture would be unrealistic? Are there any architects on here? Thanks.
I am an architecture student possibly having a living donor kidney soon (stable on HD) I was wondering, does the tac tremor mean that architecture would be unrealistic? Are there any architects on here? Thanks.
Mollymoo100
in
Kidney Transplant
3 years ago
Which high blood pressure medication does not affect RLS ?
Hi I have just been diagnosed as having high blood pressure and have been given Felodipine as my treatment but have noticed that it seems to be aggravating my RLS. Is there other medication which would be more suitable?
Hi I have just been diagnosed as having high blood pressure and have been given Felodipine as my treatment but have noticed that it seems to be aggravating my RLS. Is there other medication which would be more suitable?
glamourcat
in
Restless Legs Syndrome
3 years ago
COVID-19 Patient Receives Lung Transplant From Living Donors
https://time.com/5953534/covid19-lung-transplant/?utm_medium=email&utm_source=sfmc&utm_campaign=newsletter+health-friday+default+ac&utm_content=+++20210409+++body&et_rid=33540339 Ken
https://time.com/5953534/covid19-lung-transplant/?utm_medium=email&utm_source=sfmc&utm_campaign=newsletter+health-friday+default+ac&utm_content=+++20210409+++body&et_rid=33540339 Ken
Elpojohn
in
Lung Conditions Community Forum
3 years ago
Oxygen and Holidays
Hi, I know it’s possible to have a concentrator delivered to a holiday cottage. Can you tell me whether it is sometimes a problem with the cottage owners. I’m on the lung transplant list, but at the moment none are being done. I heard yesterday that it will be at least 2 months, until transplants are
Hi, I know it’s possible to have a concentrator delivered to a holiday cottage. Can you tell me whether it is sometimes a problem with the cottage owners. I’m on the lung transplant list, but at the moment none are being done. I heard yesterday that it will be at least 2 months, until transplants are
mary1956
in
Lung Conditions Community Forum
3 years ago
Referred by GP but renal team won't see me
I was diagnosed with CKD last November but, like so many others, my kidney function had been declining for several years (although I hadn't been told!). After several more blood tests my GP referred me to the Renal team at East Sussex hospital. Today I spoke to one of the secreataries who told me they
I was diagnosed with CKD last November but, like so many others, my kidney function had been declining for several years (although I hadn't been told!). After several more blood tests my GP referred me to the Renal team at East Sussex hospital. Today I spoke to one of the secreataries who told me they
Rowdy17
in
Early CKD Support
3 years ago
CKD symptoms information
A little background before my question. I am going through testing for what was believed to be a neurological issues, at the same time believed I had a kidney infection as I was experiencing pain in the mid back and foamy urine. I had blood taken by the GP in Feb to check for any issues and it came back
A little background before my question. I am going through testing for what was believed to be a neurological issues, at the same time believed I had a kidney infection as I was experiencing pain in the mid back and foamy urine. I had blood taken by the GP in Feb to check for any issues and it came back
ScotBoy
in
Early CKD Support
3 years ago
1
...
90
91
92
...
100
Next page
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
British Liver Trust
882 results
Early CKD Support
787 results
Lung Conditions Community Forum
574 results
View top 10 communities
Sort by
Most Relevant
Newest