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C3G
Namaste I am post renal transplant (8 years) with C3G (2.5 years), protin uria 2.5 mg per day. Creatinine increased to 2.2 mg, doctors asked to stop mycophenolate and started Azathioprine. Now creatinine is 1.2 mg. I am taking Telmisartan. What can i do to keep my current trasplanted kidney safe...
Namaste I am post renal transplant (8 years) with C3G (2.5 years), protin uria 2.5 mg per day. Creatinine increased to 2.2 mg, doctors asked to stop mycophenolate and started Azathioprine. Now creatinine is 1.2 mg. I am taking Telmisartan. What can i do to keep my current trasplanted kidney safe...
173001
in
C3 Glomerulopathy
4 years ago
Leg cramps in the morning
I have been waking up in the morning with intense lower leg cramps. I am thinking this could be from the Firmagon or the chemo treatments. Anyone experience this? If so is there a supplement to help with this?
I have been waking up in the morning with intense lower leg cramps. I am thinking this could be from the Firmagon or the chemo treatments. Anyone experience this? If so is there a supplement to help with this?
Pianodude
in
Advanced Prostate Cancer
4 years ago
Has anyone got Pemphigoid
Hi Has anyone on here been diagnosed with pemphigoid ( it’s a rare autoimmune condition of the skin ) there’s not loads of information out there I’ve also got PBC but this is so different, I had a biopsy of my skin which has confirmed this but now waiting for my appointment to start treatment Hoping
Hi Has anyone on here been diagnosed with pemphigoid ( it’s a rare autoimmune condition of the skin ) there’s not loads of information out there I’ve also got PBC but this is so different, I had a biopsy of my skin which has confirmed this but now waiting for my appointment to start treatment Hoping
Rozm2004
in
PBC Foundation
4 years ago
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How should I feel after a lobectomy?
I had an upper right lobectomy 6 months ago (Robot/VAT I believe it’s called). Should I be feeling “normal” now. Currently, I have pain below my breasts for which I take over-the-counter Percogesic. That works pretty well. And, my lungs don’t feel normal. I would describe them as feeling tight.
I had an upper right lobectomy 6 months ago (Robot/VAT I believe it’s called). Should I be feeling “normal” now. Currently, I have pain below my breasts for which I take over-the-counter Percogesic. That works pretty well. And, my lungs don’t feel normal. I would describe them as feeling tight.
Jagsmom
in
Lung Cancer Support
4 years ago
Impact of Vasectomy on the Development and Progression of PCa: Preclinical Evidence
New study below [1]. A post on the possible influence of vasectomy on PCa development might seem like navel gazing at this point, but the subject continues to interest me. When the first "bad news" about vasectomy was published long ago, the reaction was unexpected. Rather than warn men about to be
New study below [1]. A post on the possible influence of vasectomy on PCa development might seem like navel gazing at this point, but the subject continues to interest me. When the first "bad news" about vasectomy was published long ago, the reaction was unexpected. Rather than warn men about to be
pjoshea13
in
Advanced Prostate Cancer
4 years ago
Misdiagnosedive Dr Phibes.........
I would like to thank everyone of you for the support and kind words and most of all advice. I have only just started looking into what fibro actually is and does. I have to admit that I am almost as ignorant as most doctors about the facts. I must also point out I may not have it. I have no proof and
I would like to thank everyone of you for the support and kind words and most of all advice. I have only just started looking into what fibro actually is and does. I have to admit that I am almost as ignorant as most doctors about the facts. I must also point out I may not have it. I have no proof and
ChristCornHell
in
Fibromyalgia Action UK
4 years ago
“After the Lord Mayor’s Show.....”
Photo for OldGirlRuns and Sofaspud - todays leggings -forgot to take a pic wearing them so they are now washed, dried and in airing cupboard. Well after two fabulous runs this week, today was hell. I have had a niggly back for a couple of days now. Not all the time just every now and then I’ll be
Photo for OldGirlRuns and Sofaspud - todays leggings -forgot to take a pic wearing them so they are now washed, dried and in airing cupboard. Well after two fabulous runs this week, today was hell. I have had a niggly back for a couple of days now. Not all the time just every now and then I’ll be
limberlou
Graduate10
in
Bridge to 10K
4 years ago
New to ckd and need help understanding creatinine
I’m newly diagnosed with ckd. I’m told my creatinine levels aren’t too good. Questions I would like help with please: 1. What is considered a good or reasonable level. 2. Which is better a higher reading or a lower reading. 3. Can these figures fluctuate or do they continue to rise/fall as the condition
I’m newly diagnosed with ckd. I’m told my creatinine levels aren’t too good. Questions I would like help with please: 1. What is considered a good or reasonable level. 2. Which is better a higher reading or a lower reading. 3. Can these figures fluctuate or do they continue to rise/fall as the condition
Animal240
in
Early CKD Support
4 years ago
Father having a first episode of HE
My father had drained 8 ltr ascites on 8th. He felt good and his liver plus kidney function reports were within mid normal range and improved in comparison to previous reports. However due to drain his albumin came little less than required level. After couple of days he had constipation and couldn’t
My father had drained 8 ltr ascites on 8th. He felt good and his liver plus kidney function reports were within mid normal range and improved in comparison to previous reports. However due to drain his albumin came little less than required level. After couple of days he had constipation and couldn’t
zvhipp
in
British Liver Trust
4 years ago
How do you calculate cancer free years?
Hi All, I was diagnosed with 2B non small cell adenocarcinoma lung cancer December 2019. 2/20/2020 I had my upper left lobe removed. Beginning of March I started chemo. Last chemo 5/6/2020. Scan 6/21/2020 (NED). 2 years and 5 years are considered milestones. What date do I use as the start date
Hi All, I was diagnosed with 2B non small cell adenocarcinoma lung cancer December 2019. 2/20/2020 I had my upper left lobe removed. Beginning of March I started chemo. Last chemo 5/6/2020. Scan 6/21/2020 (NED). 2 years and 5 years are considered milestones. What date do I use as the start date
Jagsmom
in
Lung Cancer Support
4 years ago
I get heavy after the day is it normal?
I got my kidney transplant in July 2020 and know I'm getting rocking nr on my scale I go from 84 kg to 88 kg in a day and sometimes it resets when I sleep because I urinate most in the night is this normal?
I got my kidney transplant in July 2020 and know I'm getting rocking nr on my scale I go from 84 kg to 88 kg in a day and sometimes it resets when I sleep because I urinate most in the night is this normal?
mrkh09
in
Kidney Transplant
4 years ago
Arthritis and Kidney Transplant
Does anyonesuffer from terrible arthritis, what if anything do you take for the pain?
Does anyonesuffer from terrible arthritis, what if anything do you take for the pain?
1transplant
in
Kidney Transplant
4 years ago
I WANT TO KNOW IF ANYONE ELSE HAS HAS BEEN DENIED A KIDNEY TRANSPLANT JUST BECAUSE THEY WERE TREATED BY RADIATION FOR STAGE 1 colon cancer.
I need answers for my question.
I need answers for my question.
VokMe
in
Kidney Transplant
4 years ago
rapid decline in gfr
I am a 67 yr old white male. My gfr fell from 51 on 10/19 to 34 in 5/20 with readings of 36 on 7/17, 31 on 7/31 and 21 on August 17. Creatinine was last read at 2.86 and had very high levels of protein but it is still high but trending down. I workout with machines and weights 6 times a week. I walk
I am a 67 yr old white male. My gfr fell from 51 on 10/19 to 34 in 5/20 with readings of 36 on 7/17, 31 on 7/31 and 21 on August 17. Creatinine was last read at 2.86 and had very high levels of protein but it is still high but trending down. I workout with machines and weights 6 times a week. I walk
5911jovet
in
Early CKD Support
4 years ago
Urine foamy
I did ct scan with dye for chest pain in dec2018. Results were normal including kidney and bladder. From then I have pain in bladder area. I saw urologist multilple times in 2019 and 2020. He did many urine tests, prostate test and bladder cather. Everything were normal. No blood or protein detected
I did ct scan with dye for chest pain in dec2018. Results were normal including kidney and bladder. From then I have pain in bladder area. I saw urologist multilple times in 2019 and 2020. He did many urine tests, prostate test and bladder cather. Everything were normal. No blood or protein detected
Anxoiusguy
in
Men's Health Forum
4 years ago
Always need to urinate
I am 16 months post kidney transplant. I always have the need to urinate and this is affecting my life in many ways. I cannot hold my urine there is too much pain and there is always this urge to go. Sometimes I even have to go every 30 minutes. I got tested for urine infection and it was negative
I am 16 months post kidney transplant. I always have the need to urinate and this is affecting my life in many ways. I cannot hold my urine there is too much pain and there is always this urge to go. Sometimes I even have to go every 30 minutes. I got tested for urine infection and it was negative
Tahmed251
in
Kidney Transplant
4 years ago
Dialysis patient from Turkey
Dear All I was a dialysis nurse in Turkey for 8 years but when I move to London unfortunately I have to give up my job :( So I know everything about the dialysis and what’s the feeling like and now my dad start to receive dialysis treatment in turkey plus he has cancer :( I m 32 weeks pregnant and single
Dear All I was a dialysis nurse in Turkey for 8 years but when I move to London unfortunately I have to give up my job :( So I know everything about the dialysis and what’s the feeling like and now my dad start to receive dialysis treatment in turkey plus he has cancer :( I m 32 weeks pregnant and single
Rana79
in
Dialysis Support
4 years ago
Very Informative Podcast
https://m.soundcloud.com/prostate-oncology/off-label-treatment-used-for-prostate-cancer This podcast was done by Mark Scholz (my oncologist from Prostate Oncology Specialists). Very worthwhile information. He discusses off label uses. Some here oppose that but Scholz was using Taxotere long before
https://m.soundcloud.com/prostate-oncology/off-label-treatment-used-for-prostate-cancer This podcast was done by Mark Scholz (my oncologist from Prostate Oncology Specialists). Very worthwhile information. He discusses off label uses. Some here oppose that but Scholz was using Taxotere long before
Schwah
in
Advanced Prostate Cancer
4 years ago
Immune response to Sars-Cov-2 following organ transplantation.
Even patients with suppressed immune systems can achieve a strong immune response to Sars-Cov-2. A test helps to adapt therapy following an infection. A research team from the University Hospital at Ruhr-Universität Bochum (RUB) has developed a test that provides information on the immune response
Even patients with suppressed immune systems can achieve a strong immune response to Sars-Cov-2. A test helps to adapt therapy following an infection. A research team from the University Hospital at Ruhr-Universität Bochum (RUB) has developed a test that provides information on the immune response
2greys
in
Lung Conditions Community Forum
4 years ago
Done it!! Feeling like a champ.
Week 9 Run 3 - DONE!! This programme is so amazing. To start just over 2 months ago hardly able to get through 1 minute of running to graduating today is just blowing my mind. It’s such a sense of achievement. The health of my body and my mind is so much improved. As I’ve posted before I’m exactly a
Week 9 Run 3 - DONE!! This programme is so amazing. To start just over 2 months ago hardly able to get through 1 minute of running to graduating today is just blowing my mind. It’s such a sense of achievement. The health of my body and my mind is so much improved. As I’ve posted before I’m exactly a
Dootamie
Graduate
in
Couch to 5K
4 years ago
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