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New medication for boosting immunity against covid19
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Hello everyone from snowy NY. My spouse received his first kidney transplant 11/2018 and I just told him about this news. Apparently, there is a new IV infusion for people who are very immunocompromised to help improve their health from getting covid19, since the vaccinations were not working as hoped
Gardner-NY
in
Kidney Transplant
6 months ago
B LARGE CELL DIFFUSE LYMPHOMA AFTER 5 YEAR OF POST KIDNEY TRANSPLANT
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
I got my kidney transplant in dec 2018 now In nov 2024 suffered from NON hodgkin lymphoma now only on tacrolimus 5mg daily .Any advice regarding this then plz
bal_123
in
Kidney Transplant Patient Support
6 months ago
Kidney Transplant & Primary Immune Deficiency
I'm looking to connect with some who have a Primary Immune deficiency and on immunoglobulin replacement. I have both and am having some issues specific to them.
I'm looking to connect with some who have a Primary Immune deficiency and on immunoglobulin replacement. I have both and am having some issues specific to them.
viviselphie
in
Kidney Disease
6 months ago
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Timing of Gabapentin dose
I was seen yesterday at by Dr Tarpara at Vanderbilt’s QCC for RLS. Officially confirmed augmentation from ropinirole usage. The RLS controls my life 7 days a week. Symptoms start as early as 1-2 pm. Afternoons are something I just try to get through until bedtime. I take ropinirole 2 mg per day total
I was seen yesterday at by Dr Tarpara at Vanderbilt’s QCC for RLS. Officially confirmed augmentation from ropinirole usage. The RLS controls my life 7 days a week. Symptoms start as early as 1-2 pm. Afternoons are something I just try to get through until bedtime. I take ropinirole 2 mg per day total
Flowergarden2
in
Restless Legs Syndrome
30 days ago
creatinine in old age--an interesting question
I am 76 year old Indian man with excellent health and no health issues like B.P, thyroid, Liver lssues, Diabetes etc.,No protein in urine. Even all my my kidney parameters are normal including all electrolytes, BUN, Uric Acid, Urea etc. etc. My nephrologist says that not to worry. Just monitor creatinine
I am 76 year old Indian man with excellent health and no health issues like B.P, thyroid, Liver lssues, Diabetes etc.,No protein in urine. Even all my my kidney parameters are normal including all electrolytes, BUN, Uric Acid, Urea etc. etc. My nephrologist says that not to worry. Just monitor creatinine
vinadhun2
in
Kidney Disease
1 month ago
Fenofibrates
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
Someone asked if Dr. Jones' book mentioned the use of fenofibrates.... yes, it does in several places. This might be a good book to have if you are considering using them. He is the leading expert on PBC. Hope it helps... The subject is discussed in the chapter for 'Treatment of PBC'. Many have been
DonnaBoll
Administrator
in
PBC Foundation
8 months ago
Terrified - just dropped to stage 4 CKD
I’ve had my kidney transplant - living, from my mom, for 32 years. I know that’s amazing and I’ve been so incredibly fortunate thus far. But I think it’s starting to fail, my GFR just dropped to 29 which puts me in stage 4 ckd after being in 3a w/ a creatine hovering 1.5 for oh probably over 15 years
I’ve had my kidney transplant - living, from my mom, for 32 years. I know that’s amazing and I’ve been so incredibly fortunate thus far. But I think it’s starting to fail, my GFR just dropped to 29 which puts me in stage 4 ckd after being in 3a w/ a creatine hovering 1.5 for oh probably over 15 years
SOct91
in
Kidney Transplant
6 months ago
Peginterferon
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
I'm wondering if anyone else is struggling with poor appetite while being o peginterferon.I have been on it for 4 years diagnosed with MF. The dose has gradually been raised but was then put up again to 135 weekly a few months ago because my spleen was enlarging.im now waiting for another appointment
caroline_284
in
MPN Voice
1 year ago
Real-world incidence and prevention of tumor lysis syndrome (TLS) in chronic lymphocytic leukemia (CLL) treated with venetoclax. From MSK
A few members who have been recommended ventoclax/Venclexta treatment, have posted about their concerns of developing Tumor Lysis Syndrome (TLS). So hopefully the following report from Memorial Sloan Kettering (MSK), summarising 5 years of experience (2016 to 2020 inclusive), of [i]"616 venetoclax escalations
A few members who have been recommended ventoclax/Venclexta treatment, have posted about their concerns of developing Tumor Lysis Syndrome (TLS). So hopefully the following report from Memorial Sloan Kettering (MSK), summarising 5 years of experience (2016 to 2020 inclusive), of [i]"616 venetoclax escalations
AussieNeil
Partner
in
CLL Support
2 months ago
And again news about clinical trials
Clinical trial tests creatine monohydrate and exercise to preserve muscle mass in prostate cancer
https://www.news-medical.net/news/20231011/Clinical-trial-tests-creatine-monohydrate-and-exercise-to-preserve-muscle-mass-in-prostate-cancer-patients.aspx (hint: been a natural bodybuilder from
Clinical trial tests creatine monohydrate and exercise to preserve muscle mass in prostate cancer
https://www.news-medical.net/news/20231011/Clinical-trial-tests-creatine-monohydrate-and-exercise-to-preserve-muscle-mass-in-prostate-cancer-patients.aspx (hint: been a natural bodybuilder from
Maxone73
in
Advanced Prostate Cancer
1 year ago
GFR question
Hi everyone, I'm a 59 year old male. I have high blood pressure and diabetes. A few years ago my GP said that I was dehydrated and need to drink more water. Didn't look at my test results other than to keep taking my meds for high blood pressure and diabetes. Fast forward to around 6 months ago I
Hi everyone, I'm a 59 year old male. I have high blood pressure and diabetes. A few years ago my GP said that I was dehydrated and need to drink more water. Didn't look at my test results other than to keep taking my meds for high blood pressure and diabetes. Fast forward to around 6 months ago I
tatarsalad
in
Early CKD Support
1 year ago
Hemodialysis Technician Teacher Turned TikTok Star
Lamarr Holland is not only an incredible dialysis educator, but also a TikTok star! Hear how his skills are allowing him to spread information on CKD and dialysis to patients world wide. Learn more at: https://www.kidney.org/newsletter/hemodialysis-technician-teacher-turned-tiktok-star
Lamarr Holland is not only an incredible dialysis educator, but also a TikTok star! Hear how his skills are allowing him to spread information on CKD and dialysis to patients world wide. Learn more at: https://www.kidney.org/newsletter/hemodialysis-technician-teacher-turned-tiktok-star
JackieJ_NKF
Partner
in
Kidney Dialysis
1 year ago
New here
Hi everyone. I’m new here. 32 weeks pregnant and experiencing severe urethral pain for over a month. Doctors think the baby is on the nerves supplying the urethra. Cystoscopy was clear, no uti. Has anyone ever had this experience? Constant urge to pee and lightning bolts every few minutes shooting down
Hi everyone. I’m new here. 32 weeks pregnant and experiencing severe urethral pain for over a month. Doctors think the baby is on the nerves supplying the urethra. Cystoscopy was clear, no uti. Has anyone ever had this experience? Constant urge to pee and lightning bolts every few minutes shooting down
PrincessPeachPirate
in
Pelvic Pain Support Network
7 months ago
PSA to have stabilized after skyrocketing. What does this mean?
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
With PSA rising very rapidly four months ago after finishing Eclipse Trial, I had SBRT done immediately followed by Provenge. PSA on the day of SBRT was 2.0. It’s my understanding that Provenge will not affect PSA testing so it’s hard to determine progress. Obviously, there is still cancer still there
SViking
in
Advanced Prostate Cancer
8 months ago
Lab work
Got my labs yesterday and. Was happy to see how well they were. ALB is still low but coming up. Kt/v was 2.41 not sure how they do that on hemo but I’ll take it. Potassium and phosphorus are in range as is hemoglobin. My PTH was low so I need to stop the calciteol. Since my BP at dialysis on Thursday
Got my labs yesterday and. Was happy to see how well they were. ALB is still low but coming up. Kt/v was 2.41 not sure how they do that on hemo but I’ll take it. Potassium and phosphorus are in range as is hemoglobin. My PTH was low so I need to stop the calciteol. Since my BP at dialysis on Thursday
horsie63
in
Kidney Dialysis
1 year ago
trying to get a diagnoses
Hello, I was wondering if anyone can offer any advice or support. For years now Iv been having body pains being exhausted to the point I would fall asleep sat up. Not being able to do normal day to day things some days. . I got diagnosed with vit d deficiency I’m on tablets everyday for this for
Hello, I was wondering if anyone can offer any advice or support. For years now Iv been having body pains being exhausted to the point I would fall asleep sat up. Not being able to do normal day to day things some days. . I got diagnosed with vit d deficiency I’m on tablets everyday for this for
Rubydax
in
LUPUS UK
3 months ago
Constipation
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Hi helpful community. I am on 40 mg or prednisone for CGA, tapering down to 35 in 2 days for 2 weeks. I am suffering from constipation. Is it due to the prednisone or the Calcium supplements (600 mg x 2 per day)? I take Miralax (Restorolax) every couple of days. then I take mineral oil for couple
Groda
in
PMRGCAuk
1 year ago
Any experience with pregnancy after kidney transplant?
hi everyone, I had my kidney transplant in April 2022 and have been given the green light by my nephrologist and transplant team that I am able to go ahead with a pregnancy. Having been through a lot medically including a bilateral nephrectomy prior to transplant, I am overwhelmed at the possibility
hi everyone, I had my kidney transplant in April 2022 and have been given the green light by my nephrologist and transplant team that I am able to go ahead with a pregnancy. Having been through a lot medically including a bilateral nephrectomy prior to transplant, I am overwhelmed at the possibility
Hazzbaz
in
Kidney Transplant
7 months ago
Failing kidney transplant
Has anyone over 70 had the experience of a long term transplant failing. What treatment were you offered and is it feasible to expect some form of dialysis?
Has anyone over 70 had the experience of a long term transplant failing. What treatment were you offered and is it feasible to expect some form of dialysis?
Nanatotwo
in
Kidney Transplant
7 months ago
Kidney disease scare
Hi. Got a renal function test done a week ago. Blood and urine. All the results came out fine except for low calcium, 1.91mmol/l. Does this indicate kidney disease?Creatinine is within normal range Urea is within normal range Urinalysis is good. No blood or protein. But calcium is 1.91mmol/l. Should
Hi. Got a renal function test done a week ago. Blood and urine. All the results came out fine except for low calcium, 1.91mmol/l. Does this indicate kidney disease?Creatinine is within normal range Urea is within normal range Urinalysis is good. No blood or protein. But calcium is 1.91mmol/l. Should
SurvivorA
in
Kidney Disease
3 months ago
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