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Kidney diseases in childhood
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GI issues post transplant
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
I am now 7 months post kidney transplant. I was fortunate to never be on dialysis and had a living donor. Things are going just fine with good lab work and I feel great. I am back doing most of what I did prior to transplant. Now the reason for my question is that the only thing I have had issues
Tankjsl
in
Kidney Transplant
7 months ago
Options for Recurrent PCa w/ RT Initial Therapy
Looking for options with intent to [u]cure[/u] if recurrence is limited to prostate only, pending PET-PSMA. Have read about these options: Prostatectomy/Brachytherapy/Cystoprostatectomy/Cryotherapy Anybody have any knowledge or studies that might suggest a direction? Still hoping for the possibility
Looking for options with intent to [u]cure[/u] if recurrence is limited to prostate only, pending PET-PSMA. Have read about these options: Prostatectomy/Brachytherapy/Cystoprostatectomy/Cryotherapy Anybody have any knowledge or studies that might suggest a direction? Still hoping for the possibility
Researcher50
in
Advanced Prostate Cancer
1 year ago
kt/v test
yeah I pass I was worried I wouldn’t last time I barely did with 1.71 but this time I got 1.99 I didn’t have a lot of urine output it seem since I started dialysis it less I think I only did five oz in 24 hours when I first started I had like 14 oz I ask my nurse well where does the urine go she said
yeah I pass I was worried I wouldn’t last time I barely did with 1.71 but this time I got 1.99 I didn’t have a lot of urine output it seem since I started dialysis it less I think I only did five oz in 24 hours when I first started I had like 14 oz I ask my nurse well where does the urine go she said
Beachgirl32
in
Kidney Dialysis
1 year ago
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Zanubrutinib and ACE inhibitors
I am approaching the start of treatment for the first time. I have for many years been taking an ACE inhibitor (perindropril) for high blood pressure, which is now well controlled. I have CLL, my lymphocyte count is doubling quickly (~2 months) and my haematologist is considering options for treatment
I am approaching the start of treatment for the first time. I have for many years been taking an ACE inhibitor (perindropril) for high blood pressure, which is now well controlled. I have CLL, my lymphocyte count is doubling quickly (~2 months) and my haematologist is considering options for treatment
Fogey
in
CLL Support
8 months ago
Seeking advice re: end-of-life planning with family
Hello everyone – I am a 70-yr-old retired health care professional and writer; my EGFR has been in the low teens since 2019, and I have most of the challenges you would expect. As time goes by my renal status continues to deteriorate, and I’m not functioning as well as I used to in any area of my life
Hello everyone – I am a 70-yr-old retired health care professional and writer; my EGFR has been in the low teens since 2019, and I have most of the challenges you would expect. As time goes by my renal status continues to deteriorate, and I’m not functioning as well as I used to in any area of my life
Havik
in
Kidney Dialysis
1 year ago
Postive ANA?
Hi, I recently had a postive ANA result (1:160 speckled) alongside elevated CRP. Few years ago had tests that my GP said were indicative of lupus (abnormal urine sample, elevated serum creatine and elevated lupus anti coag) he said if I felt okay to just leave it there… Since 2020 I have felt gradually
Hi, I recently had a postive ANA result (1:160 speckled) alongside elevated CRP. Few years ago had tests that my GP said were indicative of lupus (abnormal urine sample, elevated serum creatine and elevated lupus anti coag) he said if I felt okay to just leave it there… Since 2020 I have felt gradually
GreenTealSeal
in
LUPUS UK
1 year ago
Kidney Function eGFR. Good news.
I thought for a change I'd post something positive. My kidney function is back in the healthy range after 15 months of thyroid replacement medication. In March 2022 at diagnosis my eGFR was 55, Creatinine 97. Started levo. November 2022 eGFR 61, Creatinine 89 June 2023 eGFR 83, Creatinine 66
I thought for a change I'd post something positive. My kidney function is back in the healthy range after 15 months of thyroid replacement medication. In March 2022 at diagnosis my eGFR was 55, Creatinine 97. Started levo. November 2022 eGFR 61, Creatinine 89 June 2023 eGFR 83, Creatinine 66
Pearlteapot
in
Thyroid UK
1 year ago
CMV Update
Kidney transplant: Nov 16, 2022 ( donor kidney CMV+, recipient CMV-) kidney (I’ve named Cindy): Doing very well (creatinine .81, eGFR 78) Struggles: very low white blood cell count from Feb through July & CMV from May to date CMV: 4 flare-ups to date I was referred out to see an infectious disease
Kidney transplant: Nov 16, 2022 ( donor kidney CMV+, recipient CMV-) kidney (I’ve named Cindy): Doing very well (creatinine .81, eGFR 78) Struggles: very low white blood cell count from Feb through July & CMV from May to date CMV: 4 flare-ups to date I was referred out to see an infectious disease
Jayhawker
in
Kidney Transplant
8 months ago
Looking for a Surgeon with Specific Skills
This is a long shot. I’m an Aussie. I had HD brachytherapy for prostate cancer in 2010. In 2016, I was diagnosed with Carcinoma in Situ in the bladder. I’ve had multiple rounds of BCG, and I’m now heading towards a radical cystectomy. My urologist is nervous about the risk of damage to the rectum
This is a long shot. I’m an Aussie. I had HD brachytherapy for prostate cancer in 2010. In 2016, I was diagnosed with Carcinoma in Situ in the bladder. I’ve had multiple rounds of BCG, and I’m now heading towards a radical cystectomy. My urologist is nervous about the risk of damage to the rectum
Anthonyve
in
Advanced Prostate Cancer
1 year ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center!
Have questions about kidney disease or kidney failure?
Sign up for our NEW, self-paced education program to learn more about your kidneys and what
Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center!
Have questions about kidney disease or kidney failure?
Sign up for our NEW, self-paced education program to learn more about your kidneys and what
KateyC_NKF
Partner
in
Parents of Children with Kidney Disease
8 months ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center!
Have questions about kidney disease or kidney failure?
Sign up for our NEW, self-paced education program to learn more about your kidneys and what
Interested in learning more about Chronic Kidney Disease and Treatment Options? Take a look at our two new courses on the Kidney Learning Center!
Have questions about kidney disease or kidney failure?
Sign up for our NEW, self-paced education program to learn more about your kidneys and what
KateyC_NKF
Partner
in
Kidney Disease
8 months ago
Check out our Kidney Disease Education courses on the Kidney Learning Center!
Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org
Want to know more about your choices for kidney failure treatment? Sign up for our NEW, self-paced education program to learn more ALL of your options, including kidney transplant, both kinds of dialysis (peritoneal dialysis and hemodialysis), and medical management, or no treatment. https://learningcenter.kidney.org
KateyC_NKF
Partner
in
Kidney Dialysis
8 months ago
Disimpaction photos anyone?
Has anyone got a series of photos to show when disimpaction has completed? Does the poo go completely watery as with diarrhoea from a bug? Or does the macrogol thicken it a little? I can't tell if we can stop yet and I don't want her missing school so close to the end of term. Can I stop disimpaction
Has anyone got a series of photos to show when disimpaction has completed? Does the poo go completely watery as with diarrhoea from a bug? Or does the macrogol thicken it a little? I can't tell if we can stop yet and I don't want her missing school so close to the end of term. Can I stop disimpaction
Mamar3
in
ERIC
1 year ago
Not posted for a while
since coming off Ropinirole in October 2023 a lot has happened. I saw Doctor Jose Thomas at the Spire hospital in Cardiff South Wales before Christmas and completed his standard forms relating to RLS, sleep patterns mental state and so on. He wrote to my GP suggesting i commence a course of Pregabalin
since coming off Ropinirole in October 2023 a lot has happened. I saw Doctor Jose Thomas at the Spire hospital in Cardiff South Wales before Christmas and completed his standard forms relating to RLS, sleep patterns mental state and so on. He wrote to my GP suggesting i commence a course of Pregabalin
HipHop1972
in
Restless Legs Syndrome
5 months ago
dye used in a CT Kidney scan, triple phase BOTH,
I had a CT Kidney scan, triple phase BOTH with dye earlier this week. The two day following I experienced more inflammation pain than I have since starting treatment in early May. After having the dye I had to drink plenty of fluid for a few days. My earlier blood test indicated my kidney function was
I had a CT Kidney scan, triple phase BOTH with dye earlier this week. The two day following I experienced more inflammation pain than I have since starting treatment in early May. After having the dye I had to drink plenty of fluid for a few days. My earlier blood test indicated my kidney function was
Thiago1396
in
PMRGCAuk
1 year ago
zookeeper54
I am 69 years old, i have polycystic disease and I received a kidney transplant in July of this year, 2023. I want to talk to others who have shared this journey. I am only 4 months post transplant.
I am 69 years old, i have polycystic disease and I received a kidney transplant in July of this year, 2023. I want to talk to others who have shared this journey. I am only 4 months post transplant.
zookeeper54
in
Kidney Transplant
8 months ago
Left pain above left hip?
I have had IBS for several years. Have had a sigmoidectomy over 30 years ago. Since January my bm's have been normal to constipation. For several year's I took bentyl and due to circumstances quit taking it. I now have pain like a side cramp from running. It goes around my back, to the front of my abdomen
I have had IBS for several years. Have had a sigmoidectomy over 30 years ago. Since January my bm's have been normal to constipation. For several year's I took bentyl and due to circumstances quit taking it. I now have pain like a side cramp from running. It goes around my back, to the front of my abdomen
seagullkc
in
IBS Network
1 year ago
prednisone and antibiotics
Has anyone had a problem with antibiotics wiping out prednisone. Was down to 2.5-lowest in 8 years. Took antibiotics (Bactrim) and all old PMR symptoms came back. Hurt all over. Read Bactrim and Cipro are quinolones and do not work well with Steroids. Neither Dr or pharmacist knew this. Not sure how
Has anyone had a problem with antibiotics wiping out prednisone. Was down to 2.5-lowest in 8 years. Took antibiotics (Bactrim) and all old PMR symptoms came back. Hurt all over. Read Bactrim and Cipro are quinolones and do not work well with Steroids. Neither Dr or pharmacist knew this. Not sure how
Cycles4fun
in
PMRGCAuk
8 months ago
Hi... was blessed to have a kidney transplant 6 weeks ago... anyone eve struggle with the meds?
So thankful for a working kidney and the blessing of a Living donor.... but the meds have been almost more than I can handle. And the toll they are taking on my body is immense. Can anyone tell me their experience with all these meds and how they worked through and held on through recovery. I am 6
So thankful for a working kidney and the blessing of a Living donor.... but the meds have been almost more than I can handle. And the toll they are taking on my body is immense. Can anyone tell me their experience with all these meds and how they worked through and held on through recovery. I am 6
Highgfr
in
Kidney Disease
8 months ago
Goat whey, casein, IGF-1 etc. - Do they promote or slow cancer growth?
I've been trying for many years to decide whether to take a protein powder supplement to help maintain muscle mass. Since I started on ADT in 2016, I've lost 30 pounds. I don't know how much is due to the ADT, and how much is due to my diet. I'm 172 pounds now. I was muscular and athletic at 202,
I've been trying for many years to decide whether to take a protein powder supplement to help maintain muscle mass. Since I started on ADT in 2016, I've lost 30 pounds. I don't know how much is due to the ADT, and how much is due to my diet. I'm 172 pounds now. I was muscular and athletic at 202,
GeorgeGlass
in
Advanced Prostate Cancer
1 year ago
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