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Juvenile idiopathic arthritis
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Anyone on Angelita?
Hello. I have recently been put on Adilimumab plus methotrexate after a year on methotrexate for inflammatory arthritis (RA and OA). It has been a rough time with all the meds - how have folks got on with adilimumab? Thanks
Hello. I have recently been put on Adilimumab plus methotrexate after a year on methotrexate for inflammatory arthritis (RA and OA). It has been a rough time with all the meds - how have folks got on with adilimumab? Thanks
Dempstercom
in
Arthritis Action
5 years ago
Why is a 70 year old female already taking iron tablets always so washed out with no energy everything too much trouble
Arthritis and tiredness
Arthritis and tiredness
cavalierqueen2001
in
Arthritis Action
5 years ago
PA and PA?
Hi all.. does anybody have PA and psoriatic arthritis? I’ve just started on prednisone and methotrexate and feeling very depressed and hopeless about my future wondering what’s next?
Hi all.. does anybody have PA and psoriatic arthritis? I’ve just started on prednisone and methotrexate and feeling very depressed and hopeless about my future wondering what’s next?
Over10pain
in
Pernicious Anaemia Society
5 years ago
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Happy Graduate!
Hot, sweaty, tired, happy Graduate! 💪🏻 Psoriatic arthritis survivor, never, ever thought I would do this but graduated today. Even got my pace down to 12.38! Covered about 2.4 miles (still to convert) and now got parkrun and 5k to work towards. Following all your posts has been such a support.
Hot, sweaty, tired, happy Graduate! 💪🏻 Psoriatic arthritis survivor, never, ever thought I would do this but graduated today. Even got my pace down to 12.38! Covered about 2.4 miles (still to convert) and now got parkrun and 5k to work towards. Following all your posts has been such a support.
Paddywak
Graduate
in
Couch to 5K
5 years ago
Turning over in bed
I wonder if anyone finds turning over in bed difficult. I find it a huge effort and feel like a beached whale as I struggle to do lots of wiggles! Is it PMR or could it be my 82 year old body, which also has some arthritis? But it is not so much painful as very difficult and exhausting. Comments appreciated
I wonder if anyone finds turning over in bed difficult. I find it a huge effort and feel like a beached whale as I struggle to do lots of wiggles! Is it PMR or could it be my 82 year old body, which also has some arthritis? But it is not so much painful as very difficult and exhausting. Comments appreciated
Trulyscrumpious
in
PMRGCAuk
5 years ago
Arthritis pain not relieved by Pred.
I have had to give in and put on a BuTrans patch as well as cocodamol, for pain relief. Most of my pain from PMR has gone but the Pred is not hitting the OA as I expected it would. Any advice would be so helpful, I’m on 15 mg Pred and have been for 4 weeks.
I have had to give in and put on a BuTrans patch as well as cocodamol, for pain relief. Most of my pain from PMR has gone but the Pred is not hitting the OA as I expected it would. Any advice would be so helpful, I’m on 15 mg Pred and have been for 4 weeks.
Freshmimt
in
PMRGCAuk
5 years ago
Catch up on Knee problem
Saw doctor yesterday, scan results say its arthritis in knee with both meniscus worn referred for orthopeadic assessment , but as usual weight will be classed as the main culprit no doubt, when in fact I come from a family with history of such arthritis including gout. Anyway we are moving forward now
Saw doctor yesterday, scan results say its arthritis in knee with both meniscus worn referred for orthopeadic assessment , but as usual weight will be classed as the main culprit no doubt, when in fact I come from a family with history of such arthritis including gout. Anyway we are moving forward now
katieoxo60
in
Arthritis Action
5 years ago
Safe exercise with osteoarthritis
Although I have lost weight in the last year I have recently been diagnosed with mild/moderate OA. How do I exercise safely without making things worse? I teach linedance too. Thank you.
Although I have lost weight in the last year I have recently been diagnosed with mild/moderate OA. How do I exercise safely without making things worse? I teach linedance too. Thank you.
MaggieAndy1954
in
Weight Loss Support
5 years ago
I'm confused
My doctor sent me for blood tests to check for rheumatoid arthritis,he said the test came back negative but my other blood test showed inflammation.He said he would get in touch with rheumatology and get back to me.The doctors receptionist rang me yesterday and said my doctor is going to ring me on Wednesday
My doctor sent me for blood tests to check for rheumatoid arthritis,he said the test came back negative but my other blood test showed inflammation.He said he would get in touch with rheumatology and get back to me.The doctors receptionist rang me yesterday and said my doctor is going to ring me on Wednesday
Kels1974
in
Pain Concern
5 years ago
Frogmore House & Garden Open Day in support of NRAS | 30th May 2019
By purchasing a ticket, you will also be helping to raise funds and awareness of those living with Rheumatoid
Arthritis
(RA) and
Juvenile
Idiopathic
Arthritis
(JIA). For further information and to purchase your tickets visit www.nras.org.uk/frogmore2019
By purchasing a ticket, you will also be helping to raise funds and awareness of those living with Rheumatoid
Arthritis
(RA) and
Juvenile
Idiopathic
Arthritis
(JIA). For further information and to purchase your tickets visit www.nras.org.uk/frogmore2019
Hidden
NRAS
in
NRAS
5 years ago
GPA under control but still get joint pain
I have GPA which is under control but I still get joint pain. My rheumatologist has scanned my joints & says its not inflammatory so is unrelated to the gpa. She says it's osteoarthritis. I'm not so sure. Has anyone else experienced this & can I still have joint pain related to vasculitis if my bloods
I have GPA which is under control but I still get joint pain. My rheumatologist has scanned my joints & says its not inflammatory so is unrelated to the gpa. She says it's osteoarthritis. I'm not so sure. Has anyone else experienced this & can I still have joint pain related to vasculitis if my bloods
rwl89t1967
in
Vasculitis UK
5 years ago
Humira?
I don't really know if I'm finished with PMR, since I still have a lot of pain. But the dr. thinks this pain is now mostly fibromyalgia with osteoarthritis, too. I have a feeling she is right now, but I still take the prednisone 25mg and feel like I need it. But probably I don't, since it isn't helping
I don't really know if I'm finished with PMR, since I still have a lot of pain. But the dr. thinks this pain is now mostly fibromyalgia with osteoarthritis, too. I have a feeling she is right now, but I still take the prednisone 25mg and feel like I need it. But probably I don't, since it isn't helping
Trevgrrl
in
PMRGCAuk
5 years ago
Reducing tocilizumab injections
I was told to try to take my tocilizumab injections every 4 weeks but struggled so much I have taken this last one after 3 weeks, before that 3 1/2 weeks twice. Does anyone have any experience of reducing the injections. I am feeling increasingly ill, sweating, extreme tiredness - signs the GCA is back
I was told to try to take my tocilizumab injections every 4 weeks but struggled so much I have taken this last one after 3 weeks, before that 3 1/2 weeks twice. Does anyone have any experience of reducing the injections. I am feeling increasingly ill, sweating, extreme tiredness - signs the GCA is back
christine2715
in
PMRGCAuk
5 years ago
Has anyone with knee arthritis got on well with an e-bike?
Hello all, About two years ago I bought a bike to ride on weekends etc, but the osteoarthritis in my knees really flared. I got my positioning checked at bike shop which helped but I find the bike very hard on my knees. I have been seeing more e-bikes around but know they are expensive and wanted to
Hello all, About two years ago I bought a bike to ride on weekends etc, but the osteoarthritis in my knees really flared. I got my positioning checked at bike shop which helped but I find the bike very hard on my knees. I have been seeing more e-bikes around but know they are expensive and wanted to
Stillsmiling_Just
in
Arthritis Action
5 years ago
Week 4 R1 Tomorrow...eek!
Wk 4 tomorrow. Bit nervous as had a week off being an XR rebel but now back to it! Pleased to have got this far again though as have uncontrolled rheumatoid arthritis so its been an even bigger challenge this rime round. Can someone point me towards page on warm down exercises please. Had them before
Wk 4 tomorrow. Bit nervous as had a week off being an XR rebel but now back to it! Pleased to have got this far again though as have uncontrolled rheumatoid arthritis so its been an even bigger challenge this rime round. Can someone point me towards page on warm down exercises please. Had them before
Beelady
Graduate
in
Couch to 5K
5 years ago
Inflammatory Arthritis, with PMR/GCA
Well, I did something that was stupid. I vacuumed and mopped my entire 2nd floor last Saturday. I moved furniture. I tried to store a large item under the bed, and when it got stuck I tugged real hard to get it back out. Later that evening I developed level 10 paint, blood pressure shot up, and went
Well, I did something that was stupid. I vacuumed and mopped my entire 2nd floor last Saturday. I moved furniture. I tried to store a large item under the bed, and when it got stuck I tugged real hard to get it back out. Later that evening I developed level 10 paint, blood pressure shot up, and went
phebamom
in
PMRGCAuk
5 years ago
First dose of Humira yesterday, now a question
I am concerned for my 20 year old daughter who was diagnosed with RA a few months ago. Initially she was put on Methotrexate & steroids. She had trouble with Methotrexate (caused shortness of breath) and had to stop it. Then started on Sulfasalazine and her RA symptoms actually worsened & she was
I am concerned for my 20 year old daughter who was diagnosed with RA a few months ago. Initially she was put on Methotrexate & steroids. She had trouble with Methotrexate (caused shortness of breath) and had to stop it. Then started on Sulfasalazine and her RA symptoms actually worsened & she was
arkies
in
NRAS
5 years ago
Normal blood test results mean poor DAS28 score & no biologic. In pain and treatment ineffective
Hello I am a new member experiencing severe problems with my NHS treatment for rheumatoid arthritis which is currently ineffective. I am currently taking hydroxychloroquine sulphate, sulfasalazine, prednisolone, methotrexat and folic acid. I have been taken methotrexat for four months, initially I
Hello I am a new member experiencing severe problems with my NHS treatment for rheumatoid arthritis which is currently ineffective. I am currently taking hydroxychloroquine sulphate, sulfasalazine, prednisolone, methotrexat and folic acid. I have been taken methotrexat for four months, initially I
ma73jon
in
NRAS
5 years ago
Update on: Off MTX. What comes next?
Saw my rheumy yesterday. If I have a flare, I go back to see her right away otherwise in three months. My bloodwork came back good. She does not feel I have PMR but she said it may be osteoarthritis rather than rheumatoid arthritis. My bloodwork is not definitive but it is definitely autoimmune according
Saw my rheumy yesterday. If I have a flare, I go back to see her right away otherwise in three months. My bloodwork came back good. She does not feel I have PMR but she said it may be osteoarthritis rather than rheumatoid arthritis. My bloodwork is not definitive but it is definitely autoimmune according
BonnieT
in
NRAS
5 years ago
Reduced Pred from 10 to 8 mg
I reduced from 10mg and have been on 8mg prednisone for 21 days. Just started feeling a little pain in my shoulders, could it be inflammation building back up or my osteoarthritis? I thought after 21 days I would be ok on 8mg.
I reduced from 10mg and have been on 8mg prednisone for 21 days. Just started feeling a little pain in my shoulders, could it be inflammation building back up or my osteoarthritis? I thought after 21 days I would be ok on 8mg.
Sadie1024
in
PMRGCAuk
5 years ago
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