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Juvenile idiopathic arthritis
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Tocilizumab and coming off prednisolone
Just looking for current advice as regards the usage of tocilizumab as an aid to getting down and off prednisolone. I met a helpful person on this site and he had been on prednisolone for many years - more than my 12 years. He told me his endocrinologist had put him on tocilizumab and he had managed
Just looking for current advice as regards the usage of tocilizumab as an aid to getting down and off prednisolone. I met a helpful person on this site and he had been on prednisolone for many years - more than my 12 years. He told me his endocrinologist had put him on tocilizumab and he had managed
Stkeyna
in
PMRGCAuk
3 years ago
Sodium / potassium
Sodium intake . Hi a question regarding sodium intake and potassium .I’m on pred 15 mg - I have noticed the days I am not paying attention to diet ( most days Im Good !) but if I eat anything salty !! - ie crisps / chips with salt etc then my fluid balance seems to go completely out of whack - my eyes
Sodium intake . Hi a question regarding sodium intake and potassium .I’m on pred 15 mg - I have noticed the days I am not paying attention to diet ( most days Im Good !) but if I eat anything salty !! - ie crisps / chips with salt etc then my fluid balance seems to go completely out of whack - my eyes
Ballywilliam
in
PMRGCAuk
3 years ago
Firstly why do my legs feel like jelly, (now on 11mg) and secondly what is the threshold for referral to a rheumatologist?
I was first diagnosed with PMR at the start of lockdown and the euphoria triggered by pred was amazing but since then 3 attempts to get below 7mg haven’t succeeded. I walk my dog daily for about 1 hour so I don’t understand why my legs feel so weak. I am in a constant battle with tiredness but I don’
I was first diagnosed with PMR at the start of lockdown and the euphoria triggered by pred was amazing but since then 3 attempts to get below 7mg haven’t succeeded. I walk my dog daily for about 1 hour so I don’t understand why my legs feel so weak. I am in a constant battle with tiredness but I don’
AnniesRyder5
in
PMRGCAuk
3 years ago
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This year, #WearPurpleForJIA is bigger and better than ever!
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Juvenile
Idiopathic
Arthritis
.
Book your wellbeing sessions and order your free fundraising pack: https://jia.org.uk/event/wearpurpleforjia/ Buy your #WearPurpleForJIA merchandise here: https://jia.org.uk/shop/ Get involved to fundraise and raise awareness for
Juvenile
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Anita-NRAS
Partner
in
NRAS
3 years ago
Tocilizumab treatment?
A friend of mine recently suggested that I try the monoclonal antibody tocilizumab as a treatment for my PMR. My questions are as follows: Has tocilizumab brought anyone into remission and for how long? On balance, is treatment with tocilizumab preferable to the prednisone that I'm taking now? What is
A friend of mine recently suggested that I try the monoclonal antibody tocilizumab as a treatment for my PMR. My questions are as follows: Has tocilizumab brought anyone into remission and for how long? On balance, is treatment with tocilizumab preferable to the prednisone that I'm taking now? What is
Ozark
in
PMRGCAuk
3 years ago
Tips for coping with chronic pain etc
I posted a link in the Arthritis Action community and thought a lot of the points made apply to PMR too. https://healthunlocked.com/oa-action/posts/146520364/living-with-arthritis
I posted a link in the Arthritis Action community and thought a lot of the points made apply to PMR too. https://healthunlocked.com/oa-action/posts/146520364/living-with-arthritis
HeronNS
in
PMRGCAuk
3 years ago
Positive results on RA patients taking Vitamin K2 , whats your thoughts on this one?
Hi everyone I have been researching the benefits and side effects of Vitamin K2 MK-7 and how it can lower the calcification in the arteries then came across this interesting article about Rheumatoid Arthritis patients. Quote "The present study revealed that administration of MK-7 (100 µg/d) to RA patients
Hi everyone I have been researching the benefits and side effects of Vitamin K2 MK-7 and how it can lower the calcification in the arteries then came across this interesting article about Rheumatoid Arthritis patients. Quote "The present study revealed that administration of MK-7 (100 µg/d) to RA patients
Frankiefocus
in
NRAS
3 years ago
Sooo Frustrated!!!
I had a phone appt last week to discuss my going onto biologics as the only DMARD I can tolerate is up to 17.5 of MTX and I am in constant pain. I was diagnosed wth inflammatory arthritis in 2013 and have been on MTX ever since, with other DMARDs added then discarded. I had been told by my Rhuemy nurse
I had a phone appt last week to discuss my going onto biologics as the only DMARD I can tolerate is up to 17.5 of MTX and I am in constant pain. I was diagnosed wth inflammatory arthritis in 2013 and have been on MTX ever since, with other DMARDs added then discarded. I had been told by my Rhuemy nurse
Diamondpainting
in
NRAS
3 years ago
Open for recruitment: Manchester Digital Pain Manikin Study
Dr Sabine van der Veer, Chief Investigator is explaining "chronic pain and its measurement" and talking about a smartphone-based research opportunity that is open for all, who are suffering from fibromyalgia, osteoarthritis or rheumatoid arthritis. Learn about the study and express your interest at painmanikin
Dr Sabine van der Veer, Chief Investigator is explaining "chronic pain and its measurement" and talking about a smartphone-based research opportunity that is open for all, who are suffering from fibromyalgia, osteoarthritis or rheumatoid arthritis. Learn about the study and express your interest at painmanikin
MyDD
in
Pain Concern
3 years ago
Can anyone help with sleep advice and coming to terms with these conditions?
Hi recently diagnosed with fibamyelgia and osteoarthritis , I am feeling very overwhelmed and although everyone keeps telling me it's good news that we finally know I haven't taken it very well, im only 37 I don't want to live like this for the rest of my life! So my 2 questions are how can I get some
Hi recently diagnosed with fibamyelgia and osteoarthritis , I am feeling very overwhelmed and although everyone keeps telling me it's good news that we finally know I haven't taken it very well, im only 37 I don't want to live like this for the rest of my life! So my 2 questions are how can I get some
Cat1969
in
Fibromyalgia Action UK
3 years ago
Positive rheumatoid factor
After being back on forth to doctors for test and rheumatology for over 2 years and getting nowhere. I rang up the doctors today to ask if they'd do blood tests as my knees have flared up. She checked my records and told me I had a positive rheumatoid factor tests in 2019, what could this mean? She told
After being back on forth to doctors for test and rheumatology for over 2 years and getting nowhere. I rang up the doctors today to ask if they'd do blood tests as my knees have flared up. She checked my records and told me I had a positive rheumatoid factor tests in 2019, what could this mean? She told
Kels1974
in
NRAS
3 years ago
Roactemra Tocilizumab - lab out of stock - advice needed please.
Some of you may remember that I am taking Tocilizumab injections (only) regularly for GCA. Not long ago, others in my situation wrote saying that they had been warned that it was going to run out for a while due to the same drug being used world wide for covid patients. This has happened here in France
Some of you may remember that I am taking Tocilizumab injections (only) regularly for GCA. Not long ago, others in my situation wrote saying that they had been warned that it was going to run out for a while due to the same drug being used world wide for covid patients. This has happened here in France
Frenchduck
in
PMRGCAuk
3 years ago
Recommendations for the best London Hospital
Hey there, Can anyone recommend a London based Hospital with the best rheumatology department or a good specialist in Rheumatoid Arthritis? I’m not getting the right care or help with my current team and I’m going to change. My condition just keeps getting worse and I’m so worried and fed up. Any suggestions
Hey there, Can anyone recommend a London based Hospital with the best rheumatology department or a good specialist in Rheumatoid Arthritis? I’m not getting the right care or help with my current team and I’m going to change. My condition just keeps getting worse and I’m so worried and fed up. Any suggestions
Jellybean45
in
NRAS
3 years ago
Rheumatologist consultation since my original post
Today I have, finally, received a copy of a letter from my Rheumatologist, sent to my GP, following my consultation on the 1st July. Under “Diagnosis” she has written; ?Polymyaglia Rheumatica, ?Ploymyalgic Arthritis. So, apparently, the jury is still out! Under “Medication” she has put; 1. Prednisolone
Today I have, finally, received a copy of a letter from my Rheumatologist, sent to my GP, following my consultation on the 1st July. Under “Diagnosis” she has written; ?Polymyaglia Rheumatica, ?Ploymyalgic Arthritis. So, apparently, the jury is still out! Under “Medication” she has put; 1. Prednisolone
Flivoless
in
PMRGCAuk
3 years ago
Statins and Rituximab
Has anyone been advised to have Statins with Rheumatoid Arthritis , and on a biologic like Rituximab, did you experience any side effects?
Has anyone been advised to have Statins with Rheumatoid Arthritis , and on a biologic like Rituximab, did you experience any side effects?
-Mii
in
NRAS
3 years ago
Help to deal with osteoarthritis.
I suffer from arthritis on my neck, both shoulders, both elbows, left arms including my fingers, left hip and on my left knee which is causing my left knee to suffer from cramps while on sitting position. What kind of support is out there? As my GP only prescribe painkillers This’s affecting my daily
I suffer from arthritis on my neck, both shoulders, both elbows, left arms including my fingers, left hip and on my left knee which is causing my left knee to suffer from cramps while on sitting position. What kind of support is out there? As my GP only prescribe painkillers This’s affecting my daily
TM_Mansaray
in
Arthritis Action
3 years ago
Back pain
Hi everyone I’ve finally seen my RA consultant, first time since 2019, my recent spine X-ray done last December due to severe lower back pain has shown osteoarthritis, I’ve also had a scan for osteoporosis which I apparently have as well. The consultant has recommended amitriptilene for pain relief
Hi everyone I’ve finally seen my RA consultant, first time since 2019, my recent spine X-ray done last December due to severe lower back pain has shown osteoarthritis, I’ve also had a scan for osteoporosis which I apparently have as well. The consultant has recommended amitriptilene for pain relief
Freddiefan
in
NRAS
3 years ago
Apixaban and joint pain...
Hi all, I'm looking for advice from anyone who has changed from Warfarin to Apixaban. Exactly a year ago this month I asked my GP to make the change which he duly did but I think I'm starting to regret it now, only because in that year, my health in other areas appears to be going awol! Namely that
Hi all, I'm looking for advice from anyone who has changed from Warfarin to Apixaban. Exactly a year ago this month I asked my GP to make the change which he duly did but I think I'm starting to regret it now, only because in that year, my health in other areas appears to be going awol! Namely that
Chris1945
in
AF Association
3 years ago
OSTEOARTHRITIS OF THE HANDS
HELLO EVERYBODY ALMOST THREE MONTHS AGO I WAS DIAGNOSED OSTEOARTHRITIS IN MY HANDS 2 INFLAMMATORY OSTEOARTHRITIS 3 CERVICAL SPONDYLOPATHY AND THE RHEUMATOLOGIST HAS PRESCRIBED ME. HYDROXYCHLOROQUINE 200 MG. WHAT CAN YOU TELL ME ABOUT THIS MEDICATION AS IT IS CAUSING ME WITH CONSTIPATION AND A LOT OF
HELLO EVERYBODY ALMOST THREE MONTHS AGO I WAS DIAGNOSED OSTEOARTHRITIS IN MY HANDS 2 INFLAMMATORY OSTEOARTHRITIS 3 CERVICAL SPONDYLOPATHY AND THE RHEUMATOLOGIST HAS PRESCRIBED ME. HYDROXYCHLOROQUINE 200 MG. WHAT CAN YOU TELL ME ABOUT THIS MEDICATION AS IT IS CAUSING ME WITH CONSTIPATION AND A LOT OF
Abdellah
in
Arthritis Action
3 years ago
Is this the right help site for me.
I have been diagnosed with Inflammatory arthritis.
I have been diagnosed with Inflammatory arthritis.
Manderlina
in
NRAS
3 years ago
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