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TKR April 2018 stiffness and sore at 7 months out.
Hi, Im 7 months out of TKR and wish I had never had this surgery. My knee is very mechanical feeling, sore and stiff. I have pretty good range of motion but not w/o pain. I dont need any pain meds and I dont take any RX or OTC drugs. I suspect my spine is the culprit as Ive have spinal fusion at L3-L5
Hi, Im 7 months out of TKR and wish I had never had this surgery. My knee is very mechanical feeling, sore and stiff. I have pretty good range of motion but not w/o pain. I dont need any pain meds and I dont take any RX or OTC drugs. I suspect my spine is the culprit as Ive have spinal fusion at L3-L5
Hidden
in
Pain Concern
6 years ago
Unexpected elevated and erratic blood pressure
Please could the community help with answers on my recent readings of elevated systolic blood pressure. I have been on Eutroxtig for about 25 years and always been very healthy with normal or low blood pressure of between 110-120/80mm Hg and resting heart rate of around 54 bpm. I'm vegetarian, weight
Please could the community help with answers on my recent readings of elevated systolic blood pressure. I have been on Eutroxtig for about 25 years and always been very healthy with normal or low blood pressure of between 110-120/80mm Hg and resting heart rate of around 54 bpm. I'm vegetarian, weight
maggiesloper
in
Thyroid UK
6 years ago
Osteoarthritis in both hips -age 41
Hi all, I’m new here and I think I need a bit of help. I have been diagnosed with severe osteoarthritis in both my hips and from the MRI scan it seems that I am bone on bone. I am in so much pain all the time and cry every time I get up to stand. I am only 41 and my GP is certain that I will need both
Hi all, I’m new here and I think I need a bit of help. I have been diagnosed with severe osteoarthritis in both my hips and from the MRI scan it seems that I am bone on bone. I am in so much pain all the time and cry every time I get up to stand. I am only 41 and my GP is certain that I will need both
Yellow77
in
Arthritis Action
6 years ago
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HA (hyaluronic acid) injection - anyone?
Not exactly CLL related but have been offered an HA injection to treat severe ankle pain associated with adjacent
joint
to my ankle
fusion
. I am on Ibrutinib so will I need to take a pause for this and also if this is contra indicated with the IB? Thanks
Not exactly CLL related but have been offered an HA injection to treat severe ankle pain associated with adjacent
joint
to my ankle
fusion
. I am on Ibrutinib so will I need to take a pause for this and also if this is contra indicated with the IB? Thanks
Redlion
in
CLL Support
6 years ago
New :)
Hi, I’ve just joined as I’m currently under investigation for EDS, but we are unsure what type. I have a rheumatologist appointment on Tuesday and it seems it is with a really good Dr, he is also a medical director or something fancy like that. I’m just wondering what may happen? My GP completely
Hi, I’ve just joined as I’m currently under investigation for EDS, but we are unsure what type. I have a rheumatologist appointment on Tuesday and it seems it is with a really good Dr, he is also a medical director or something fancy like that. I’m just wondering what may happen? My GP completely
laurenamy_p
in
Ehlers-Danlos Support UK
6 years ago
Benztropine mes
I ask my neurologist could I try kemadrin for tremor and she suggested benztropine instead. Has anyone ever tried this?
I ask my neurologist could I try kemadrin for tremor and she suggested benztropine instead. Has anyone ever tried this?
Rosabellazita
in
Cure Parkinson's
6 years ago
EGPA/CSS with Thymoma
HI all, One of my early CTs soon after diagnosis of EGPA/Churg-Strauss Syndrome was of the chest, to look at lungs, as I also had breathing problems (asthma, pneumonia). The radiologist report included a finding of a mediastinal mass - it appeared to be encapsulated and wrapped around my thymus. Thymoma
HI all, One of my early CTs soon after diagnosis of EGPA/Churg-Strauss Syndrome was of the chest, to look at lungs, as I also had breathing problems (asthma, pneumonia). The radiologist report included a finding of a mediastinal mass - it appeared to be encapsulated and wrapped around my thymus. Thymoma
grindhaus
in
Vasculitis UK
6 years ago
Enlarged Lymph nodes
I want to thank DebraM for sharing your story & remedies, as some of my symptoms/conditions are very similar ~ fybromyalgia, hashimoto's & enlarged lymph glands, h.pylori, among other 'things.' In 2016 I was diagnosed with carcinoma. After the excruciating biopsy they claimed it was only a possible "
I want to thank DebraM for sharing your story & remedies, as some of my symptoms/conditions are very similar ~ fybromyalgia, hashimoto's & enlarged lymph glands, h.pylori, among other 'things.' In 2016 I was diagnosed with carcinoma. After the excruciating biopsy they claimed it was only a possible "
Hidden
in
Thyroid UK
6 years ago
SO BAD OFF READY TO GIVE UP
I HAD A DOCTOR DO THE WRONG SURGERY ON ME IN 2005. I WAS NEVER GIVEN ANYTHING FOR PAIN AFTER A 8 1/2 LONG SPINAL FUSION. HE SNIPPED MY SPINAL CORD CAUSING ME TO HAVE A NEUROGENIC BOWEL/BLADDER. THE YANKED ME OFF THE OR TABLE VS USING THE DRAW SHEETS CREATING RSD WHICH TODAY ITS CALLED CRPS CHRONIC REGIONAL
I HAD A DOCTOR DO THE WRONG SURGERY ON ME IN 2005. I WAS NEVER GIVEN ANYTHING FOR PAIN AFTER A 8 1/2 LONG SPINAL FUSION. HE SNIPPED MY SPINAL CORD CAUSING ME TO HAVE A NEUROGENIC BOWEL/BLADDER. THE YANKED ME OFF THE OR TABLE VS USING THE DRAW SHEETS CREATING RSD WHICH TODAY ITS CALLED CRPS CHRONIC REGIONAL
DEPRESANXIETYPAIN
in
Anxiety and Depression Support
6 years ago
DONEPEZIL
i have P D are Drs think i have the start of dementia. i take co-careldopa for the P D. they have started me on donepezil 5mg for a month then 10mg after that. as yet as far as i can tell i cannot see any side effects, other than my stools are much softer ( thank god for small mercies as im used to bad
i have P D are Drs think i have the start of dementia. i take co-careldopa for the P D. they have started me on donepezil 5mg for a month then 10mg after that. as yet as far as i can tell i cannot see any side effects, other than my stools are much softer ( thank god for small mercies as im used to bad
1066dpk
in
Cure Parkinson's
6 years ago
Fibromyalgia and joint hypermobility
This may have been discussed but has anyone any advice. -i was diagnosed with fibromyalgia some 10 yrs ago but given family history and various symptoms I think I may have joint hypermobility. Have got another referral to see a rheumatologist soon and wondered how I should broach/discuss this. I seem
This may have been discussed but has anyone any advice. -i was diagnosed with fibromyalgia some 10 yrs ago but given family history and various symptoms I think I may have joint hypermobility. Have got another referral to see a rheumatologist soon and wondered how I should broach/discuss this. I seem
Lambsceugh07
in
Fibromyalgia Action UK
6 years ago
From GCA to Myasthenia Gravis
Had PMR since 2009 and treated for GCA from 2013 including negative TAB. Been on a pred roller coaster since with 3 or 4 episodes of double vision per year and pred up to 60 and then the long trip down only to go up again. In the first couple of years the high dose of pred resolved the double vision
Had PMR since 2009 and treated for GCA from 2013 including negative TAB. Been on a pred roller coaster since with 3 or 4 episodes of double vision per year and pred up to 60 and then the long trip down only to go up again. In the first couple of years the high dose of pred resolved the double vision
Rancho
in
PMRGCAuk
6 years ago
Avoiding Big Pharma.
I am new to blogging, this is our story. My wife has had PD for 3 years and treated only with Sifrol (pramipexole) and Cipramil for the nerves, we found when we increased doses the PD symptoms got worse, so we reduced to the current level which was okay til now, then the local GP suggested 'it is time
I am new to blogging, this is our story. My wife has had PD for 3 years and treated only with Sifrol (pramipexole) and Cipramil for the nerves, we found when we increased doses the PD symptoms got worse, so we reduced to the current level which was okay til now, then the local GP suggested 'it is time
FORRESTL
in
Cure Parkinson's
6 years ago
CSR. Eplerenone
Hi has anyone been on eplerenone for Csr? I am to begin this next week. Distorted vision in right eye. Maculer swelling in both - it's to reduce the fluid. Also getting torn retina lasered. Terrified 😞
Hi has anyone been on eplerenone for Csr? I am to begin this next week. Distorted vision in right eye. Maculer swelling in both - it's to reduce the fluid. Also getting torn retina lasered. Terrified 😞
Oggy123
in
Macular Society
6 years ago
I hate this disease.
Hi again I have written a few posts about blood results and symptom on what sort of thyrotoxicosos ( or however you spell it) I have. Right now I really don't care . NHS seem to really struggle with the symptoms and the diagnosis of our problems. I have had epilepsy for ten years and I promise you
Hi again I have written a few posts about blood results and symptom on what sort of thyrotoxicosos ( or however you spell it) I have. Right now I really don't care . NHS seem to really struggle with the symptoms and the diagnosis of our problems. I have had epilepsy for ten years and I promise you
Hidden
in
Thyroid UK
6 years ago
Motivation?
I exercise because I know I have to, because I know it will help strengthen the muscles and support my diseased joints but on a cold, wintry day when I have a 40 minute drive to get to the nearest hydrotherapy pool I have to dig deep to find motivation! Once I'm there I enjoy it but exercising when
I exercise because I know I have to, because I know it will help strengthen the muscles and support my diseased joints but on a cold, wintry day when I have a 40 minute drive to get to the nearest hydrotherapy pool I have to dig deep to find motivation! Once I'm there I enjoy it but exercising when
NanaFifi
in
Stand Up 2 OA
6 years ago
Exenatide
Further evidence of the neuroprotective properties of exendin-4 (Exenatide) in a model of hypoxic-ischaemic encephalopathy. Exenatide is shortly going to be tested in phase III trials for PD https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awy220/5079387
Further evidence of the neuroprotective properties of exendin-4 (Exenatide) in a model of hypoxic-ischaemic encephalopathy. Exenatide is shortly going to be tested in phase III trials for PD https://academic.oup.com/brain/advance-article/doi/10.1093/brain/awy220/5079387
Farooqji
in
Cure Parkinson's
6 years ago
I am a newby here, but not to ADD!
I knew I was different most of my life, but tried to hide it. Hurt my back at work, had a spinal fusion which worked very well. But i was at a conference and was given a fruit smoothie which turned into the worst food poisoning I could ever imagine. to keep it short I lost consciousness and my forehead
I knew I was different most of my life, but tried to hide it. Hurt my back at work, had a spinal fusion which worked very well. But i was at a conference and was given a fruit smoothie which turned into the worst food poisoning I could ever imagine. to keep it short I lost consciousness and my forehead
StoneJeweler
in
CHADD's Adult ADHD Support
6 years ago
REVIEW ARTICLE: Drug Repurposing in Parkinson's Disease (31 July 2018)
Drugs covered in this review article: Ambroxol, Isradipine, Inosine, UDCA, Deferiprone, Exenatide, Nilotinib, Simvastatin. https://link.springer.com/epdf/10.1007/s40263-018-0548-y?author_access_token=prroPrsGkRgpSxl0feb8J_e4RwlQNchNByi7wbcMAY4G2iOD7SvF_YME0fXxUkcnyCneCpfv21s7qnxtE24aSKQTAM4whHMLH9
Drugs covered in this review article: Ambroxol, Isradipine, Inosine, UDCA, Deferiprone, Exenatide, Nilotinib, Simvastatin. https://link.springer.com/epdf/10.1007/s40263-018-0548-y?author_access_token=prroPrsGkRgpSxl0feb8J_e4RwlQNchNByi7wbcMAY4G2iOD7SvF_YME0fXxUkcnyCneCpfv21s7qnxtE24aSKQTAM4whHMLH9
jeffreyn
in
Cure Parkinson's
6 years ago
Reducing Pred and possible side effects
I've had PMR for 10 years and GCA for 7 years. With fairly recent GCA episodes over these years I've fluctuated on pred between 5mg and 80mg. Vicious circle familiar to many as you get low on pred then a GCA outbreak and up goes the pred and the slow journey down. Early episodes of GCA responded to 60mg
I've had PMR for 10 years and GCA for 7 years. With fairly recent GCA episodes over these years I've fluctuated on pred between 5mg and 80mg. Vicious circle familiar to many as you get low on pred then a GCA outbreak and up goes the pred and the slow journey down. Early episodes of GCA responded to 60mg
Rancho
in
PMRGCAuk
6 years ago
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