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feeling completely lost😔 sorry it's a long post
hello! Im new to the group! I've recently been diagnosed with endometriosis via a laparoscopy last month! Ive been suffering for many years. I've been treated by diathermy it was found on my pouch of douglas and left uterosacral. I believe by what I've read I don't think I've got it that bad,but
hello! Im new to the group! I've recently been diagnosed with endometriosis via a laparoscopy last month! Ive been suffering for many years. I've been treated by diathermy it was found on my pouch of douglas and left uterosacral. I believe by what I've read I don't think I've got it that bad,but
Lanniepie
in
Endometriosis UK
2 years ago
musical instruments I shouldn’t play
I’ve just seen a theramin on the TV. I guess, with an ICD, I shouldn’t play one of these? Tia B
I’ve just seen a theramin on the TV. I guess, with an ICD, I shouldn’t play one of these? Tia B
BenThom-Wood
in
British Heart Foundation
2 years ago
Merina Coil removal/pregnancy
Hello, I am due to be getting my coil taken out, had it for 7 years now, and changed 3 times due to having surgery last November again for endo. After it was taken out did any one else find falling pregnant quickly? my dr seems to think i will but i have seen a lot of it will still take a good amount
Hello, I am due to be getting my coil taken out, had it for 7 years now, and changed 3 times due to having surgery last November again for endo. After it was taken out did any one else find falling pregnant quickly? my dr seems to think i will but i have seen a lot of it will still take a good amount
EQAC
in
Endometriosis UK
2 years ago
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Passed from pillar to post, feeling ignored and dismissed
After years of severe pain with periods, I finally gave in and saw the gp, told twas normal and to get on with it. I kept returning to the gp who finally sent me to gynaecology, told i had cysts and was normal and they wouldnt cause that much pain. Off I go again, then pains return and i go back to
After years of severe pain with periods, I finally gave in and saw the gp, told twas normal and to get on with it. I kept returning to the gp who finally sent me to gynaecology, told i had cysts and was normal and they wouldnt cause that much pain. Off I go again, then pains return and i go back to
rubine7521
in
Endometriosis UK
2 years ago
Passed from pillar to post, feeling ignored and dismissed
After years of severe pain with periods, I finally gave in and saw the gp, told twas normal and to get on with it. I kept returning to the gp who finally sent me to gynaecology, told i had cysts and was normal and they wouldnt cause that much pain. Off I go again, then pains return and i go back to
After years of severe pain with periods, I finally gave in and saw the gp, told twas normal and to get on with it. I kept returning to the gp who finally sent me to gynaecology, told i had cysts and was normal and they wouldnt cause that much pain. Off I go again, then pains return and i go back to
rubine7521
in
Women's Health
2 years ago
Being passed from pillar to post, feeling ignored and dismissed.
After years of severe pain with periods, I finally gave in and saw the gp, told twas normal and to get on with it. I kept returning to the gp who finally sent me to gynaecology, told i had cysts and was normal and they wouldnt cause that much pain. Off I go again, then pains return and i go back to
After years of severe pain with periods, I finally gave in and saw the gp, told twas normal and to get on with it. I kept returning to the gp who finally sent me to gynaecology, told i had cysts and was normal and they wouldnt cause that much pain. Off I go again, then pains return and i go back to
rubine7521
in
Pelvic Pain Support Network
2 years ago
feeling a bit lost
I finally got my medical records from the consultant who performed my laparscopy and diagnosed me with endometriosis in 2018 and feeling so lost. it plainly confirmed that since the laparscopy he did in early 2018 he'd found I have endometriosis on the bladder and rectum and tubes were removed
I finally got my medical records from the consultant who performed my laparscopy and diagnosed me with endometriosis in 2018 and feeling so lost. it plainly confirmed that since the laparscopy he did in early 2018 he'd found I have endometriosis on the bladder and rectum and tubes were removed
Escapologygirl
in
Endometriosis UK
2 years ago
Low Amh : IVF vs IUI.
Hi I am looking for people who may share similar situations to share with me: My situation : I got pregnant without med this year, but had a missed miscarriage at 7w4d. The positive side is that it worked after 2 attempts. Because I am 41, single, I decided I would try IVF. I did 1 cycle, turns
Hi I am looking for people who may share similar situations to share with me: My situation : I got pregnant without med this year, but had a missed miscarriage at 7w4d. The positive side is that it worked after 2 attempts. Because I am 41, single, I decided I would try IVF. I did 1 cycle, turns
CBFRHK
in
Fertility Network UK
2 years ago
ICD's
Hi everyone, I've been waiting for a ICD fitted for over six months now and every time I call to ask for a date the hospital just says they will let me know but nothing happens so I was just wondering if anyone knew what the average waiting time is for this procedure
Hi everyone, I've been waiting for a ICD fitted for over six months now and every time I call to ask for a date the hospital just says they will let me know but nothing happens so I was just wondering if anyone knew what the average waiting time is for this procedure
Charlesthru
in
British Heart Foundation
2 years ago
is there a cardiac uniform at all?
I was called Iron Man by my son after I had the ICD fitted. He’s into his Marvel universe but it stuck in my head. Each time I attend a hospital appointment I wear my Iron Man T-shirt. It’s become something of a uniform for me. makes me feel better in places full of ill people.
I was called Iron Man by my son after I had the ICD fitted. He’s into his Marvel universe but it stuck in my head. Each time I attend a hospital appointment I wear my Iron Man T-shirt. It’s become something of a uniform for me. makes me feel better in places full of ill people.
BenThom-Wood
in
British Heart Foundation
2 years ago
Periods getting heavier again!!!
i had a laparoscopy 6 monthsa go. My left ovary had to be removed as it was demolished my a 6cm chocolate cyst. Other bits had to be unstuck from each other. I had the coil fitted at the same time.... It was meant to stop My periods and the pain. Well 6 months on and I'm bleeding more again and the
i had a laparoscopy 6 monthsa go. My left ovary had to be removed as it was demolished my a 6cm chocolate cyst. Other bits had to be unstuck from each other. I had the coil fitted at the same time.... It was meant to stop My periods and the pain. Well 6 months on and I'm bleeding more again and the
Bubble41
in
Endometriosis UK
2 years ago
Frustrated and hopeless....
I just wanted to vent and share with people who might be going through something similar. I am nearly 35 and have been waiting for a date for my excision surgery since November. They think my endo is now stage 4 and in my bowels, bladder and ureters. Despite being at the top of this waiting list
I just wanted to vent and share with people who might be going through something similar. I am nearly 35 and have been waiting for a date for my excision surgery since November. They think my endo is now stage 4 and in my bowels, bladder and ureters. Despite being at the top of this waiting list
Hungry_armadillo
in
Endometriosis UK
2 years ago
Periods stopped with mirena coil
Hello, I wanted to ask if anyone's periods stopped after having the mirena coil inserted? If so, how long after insertion did the periods stop? I had my coil fitted after a laparoscopy last year where endometriosis tissue was removed. I had the coil for a year and 4 months with periods every month and
Hello, I wanted to ask if anyone's periods stopped after having the mirena coil inserted? If so, how long after insertion did the periods stop? I had my coil fitted after a laparoscopy last year where endometriosis tissue was removed. I had the coil for a year and 4 months with periods every month and
Kayla_a4
in
Endometriosis UK
2 years ago
Contraception methods used with Lupus
Hi all A rather personal question today but if I can't ask it here then I'm not sure where I can. I currently have m=Merina coil fitted that is coming up to its 5 year life. I wondered what other medications etc Lupus patients have been recommended please. Thanks.
Hi all A rather personal question today but if I can't ask it here then I'm not sure where I can. I currently have m=Merina coil fitted that is coming up to its 5 year life. I wondered what other medications etc Lupus patients have been recommended please. Thanks.
SunshineFarm
in
LUPUS UK
2 years ago
Stopping Amiodarone Because of Side-Effects
Hi all, just wanted to share this with the group in case anyone else has had a similar experience. I have been taking Amiodarone since my last(yes, I've had 2!) cardiac arrest in Christmas 2019, with no obvious side-effect apart from burning easily in the sunshine. However, around 6 weeks ago
Hi all, just wanted to share this with the group in case anyone else has had a similar experience. I have been taking Amiodarone since my last(yes, I've had 2!) cardiac arrest in Christmas 2019, with no obvious side-effect apart from burning easily in the sunshine. However, around 6 weeks ago
Guitarman666
in
British Heart Foundation
2 years ago
PD Dialysis - Week 5 - Training Day 2
Today, my PD nurse hooked me up and filled me with 1200ml of PD solution 2.5 today and I was to "Dwell" for 4 hours. She checked the TB test she did yesterday and it is looking ok. She also had me to bring my vaccination and immunization records that I keep on a card at home as well as my Covid immunization
Today, my PD nurse hooked me up and filled me with 1200ml of PD solution 2.5 today and I was to "Dwell" for 4 hours. She checked the TB test she did yesterday and it is looking ok. She also had me to bring my vaccination and immunization records that I keep on a card at home as well as my Covid immunization
RonZone
in
Kidney Dialysis
2 years ago
Mitral valve prolapse, regurgitation, annular disjunction & fibrosis
Hi, I was diagnosed with mitral valve prolapse 3years ago after being admitted to hospital with an arythmia and heart failure (dilated cardiomyopathy) with an EF of 30%. With medication, my EF improved to normal (58%).A subsequent MRI showed a small scar in the inferior lateral wall. At the time, they
Hi, I was diagnosed with mitral valve prolapse 3years ago after being admitted to hospital with an arythmia and heart failure (dilated cardiomyopathy) with an EF of 30%. With medication, my EF improved to normal (58%).A subsequent MRI showed a small scar in the inferior lateral wall. At the time, they
Islandhopper77
in
British Heart Foundation
2 years ago
struggling with Adenomyosis
Long post sorry in advance, I’m just struggling today and need some advice. Can anyone recommend an adenomyosis specialist? My consultant was a BSGE endo specialist so I had high hopes but since I was diagnosed in November after my laparoscopy he discharged me. He’s told me my adeno isn’t responsible
Long post sorry in advance, I’m just struggling today and need some advice. Can anyone recommend an adenomyosis specialist? My consultant was a BSGE endo specialist so I had high hopes but since I was diagnosed in November after my laparoscopy he discharged me. He’s told me my adeno isn’t responsible
Dartmouth93
in
Endometriosis UK
2 years ago
mirena coil threads
I have the mirena coil inserted at the end of July for the first time (approx 3 weeks ago) at first all was fine and I could feel 2 threads quite high up. I am currently on day 14 of a very light period (lighter but longer than usual) and I can only feel one thread which is quite low down. The other
I have the mirena coil inserted at the end of July for the first time (approx 3 weeks ago) at first all was fine and I could feel 2 threads quite high up. I am currently on day 14 of a very light period (lighter but longer than usual) and I can only feel one thread which is quite low down. The other
Hetty177
in
BASHH
2 years ago
Mirena and pain!
Ended up in A and E this morning with severe stabbing pain in my uterus/ ovaries and colon. I was diaognoised with endometriosis back in february this year via a laparoscopy. I had my left ovary removed and my uterus unstuck from my colon. The surgeon said he had to leave some tissue near my colon
Ended up in A and E this morning with severe stabbing pain in my uterus/ ovaries and colon. I was diaognoised with endometriosis back in february this year via a laparoscopy. I had my left ovary removed and my uterus unstuck from my colon. The surgeon said he had to leave some tissue near my colon
Bubble41
in
Endometriosis UK
2 years ago
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