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Concerned with Diagnosis
How reliable are results from a lung biopsy.(VAT’s)? Mine on 2013 diagnosed Usual Interstitial Pneumonitis (UIP), but my Consiltant disagreed and has treated me since for Hypersensitivity Pneumonitis. Now my condition is getting worse and I do not know who was right. Lung Transplant next
How reliable are results from a lung biopsy.(VAT’s)? Mine on 2013 diagnosed Usual Interstitial Pneumonitis (UIP), but my Consiltant disagreed and has treated me since for Hypersensitivity Pneumonitis. Now my condition is getting worse and I do not know who was right. Lung Transplant next
mary1956
in
Lung Conditions Community Forum
5 years ago
Temporal Ultrasound May Be Useful in Giant Cell Arteritis Disease Monitoring (in patients paring corticosteroids with tocilizumab)
Thought this was an interesting article... wouldn't it be great if ultrasounds became the standard and most reliable source for monitoring and tracking GCA, in all patients, not just those paring their corticosteroids with tocilizumab. The more tracking/monitoring, the more data... the more data,
Thought this was an interesting article... wouldn't it be great if ultrasounds became the standard and most reliable source for monitoring and tracking GCA, in all patients, not just those paring their corticosteroids with tocilizumab. The more tracking/monitoring, the more data... the more data,
Hidden
in
PMRGCAuk
5 years ago
Decision time for Multiple Myeloma
I have been fighting PC for 23 years and six months ago I was told I had MM. Had treatments for MM and was told that I had an excellent response was a perfect candidate for Stem Cell Transplant even though I was 78 years old and have comorbidities. After going through what seemed like a thousand tests
I have been fighting PC for 23 years and six months ago I was told I had MM. Had treatments for MM and was told that I had an excellent response was a perfect candidate for Stem Cell Transplant even though I was 78 years old and have comorbidities. After going through what seemed like a thousand tests
mcp1941
in
Advanced Prostate Cancer
5 years ago
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I AM ON STUDY TRANSPLANT LIST
I signed up at my Transplant Hospital to be one of the study participants in the hep C+ deceased kidney transplant recipients. The transplant doctor said it could be three days or 70 days until I receive a kidney, but it will not be waiting four more years on the Wait List. I was put on the Wait List
I signed up at my Transplant Hospital to be one of the study participants in the hep C+ deceased kidney transplant recipients. The transplant doctor said it could be three days or 70 days until I receive a kidney, but it will not be waiting four more years on the Wait List. I was put on the Wait List
TaffyTwoshoes27
in
Kidney Dialysis
5 years ago
Dialysis/transplant advice
Hi Everyone, I'm new here. I was just told I need dialysis and to be put on a kidney transplant list, but I'm not feeling any pain or fatigue. I had kidney failure 22 years ago due to massive kidney stones in both kidneys. I know by blood pressure needs to be controlled, but I've been on a safer
Hi Everyone, I'm new here. I was just told I need dialysis and to be put on a kidney transplant list, but I'm not feeling any pain or fatigue. I had kidney failure 22 years ago due to massive kidney stones in both kidneys. I know by blood pressure needs to be controlled, but I've been on a safer
TAMS_SWEETASCANBE
in
Kidney Dialysis
5 years ago
Prednisolone missed doses.
'what did i do? I realised this evening that I had two boxes of asprin on my table,so i'v been taking two lots of asprin instead of my 5gm of prednisolone.....there are seven tablets of asprin missing from the box so I missed pred for seven days,I ' m a liver transplant recepient due to autoimmune hepititus
'what did i do? I realised this evening that I had two boxes of asprin on my table,so i'v been taking two lots of asprin instead of my 5gm of prednisolone.....there are seven tablets of asprin missing from the box so I missed pred for seven days,I ' m a liver transplant recepient due to autoimmune hepititus
manxonia
in
PMRGCAuk
5 years ago
Lung transplant
Waiting for an answer of yes or no to go on lung transplant list
Waiting for an answer of yes or no to go on lung transplant list
skylas
in
Lung Conditions Community Forum
5 years ago
Help with a mystery needed
In August I went went to a neurologist who tested my b12 levels because of neurological symptoms. I requested the test because in 2012 when I was trying to get pregnant a naturopathic dr found that my b12 levels were 350... at the time I had no symptoms. I remember her talking about intrinsic factor
In August I went went to a neurologist who tested my b12 levels because of neurological symptoms. I requested the test because in 2012 when I was trying to get pregnant a naturopathic dr found that my b12 levels were 350... at the time I had no symptoms. I remember her talking about intrinsic factor
CW12
in
Pernicious Anaemia Society
5 years ago
Turned Down By USC!!!
I am beyond frustrated and upset! Well, my case was being presented at USC yesterday before the Review Board and I’ve been sitting on pins and needles for 2 weeks. My Coordinator said she’d call me next week with the results. But INSTEAD, she called in the afternoon to tell me they are DECLINING me
I am beyond frustrated and upset! Well, my case was being presented at USC yesterday before the Review Board and I’ve been sitting on pins and needles for 2 weeks. My Coordinator said she’d call me next week with the results. But INSTEAD, she called in the afternoon to tell me they are DECLINING me
Crocheting-Cricket
in
Kidney Donation
5 years ago
Lung transplant
After 3 day lung transplant accesment
After 3 day lung transplant accesment
skylas
in
Lung Conditions Community Forum
5 years ago
Pulmonary arterial hypertension targeted for new treatment by Sheffield scientists.
Scientists at the University of Sheffield, working in collaboration with drug and vaccine developer Kymab Ltd, Cambridge, have identified a novel antibody that has the potential to become a new treatment for pulmonary arterial hypertension (PAH). Research published today in Nature Communications (Friday
Scientists at the University of Sheffield, working in collaboration with drug and vaccine developer Kymab Ltd, Cambridge, have identified a novel antibody that has the potential to become a new treatment for pulmonary arterial hypertension (PAH). Research published today in Nature Communications (Friday
2greys
in
Lung Conditions Community Forum
5 years ago
Has anyone been a live Liver Donor for their son or daughter with liver disease?
My son has PFIC Type 2 and we tried every type of medication available to him however none have been successful so on his 3rd birthday he has been put on the liver transplant waiting list and i am considering being assessed to be a donor for him. Any experience similar to this and comments would be greatly
My son has PFIC Type 2 and we tried every type of medication available to him however none have been successful so on his 3rd birthday he has been put on the liver transplant waiting list and i am considering being assessed to be a donor for him. Any experience similar to this and comments would be greatly
Jamiemack81
in
Children's Liver Disease Foundation
5 years ago
Headache and GCA
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4173245/ The article is entitled
Giant cell arteritis or tension-type headache?: A differential diagnostic dilemma
and details the presentation of an elderly lady who appeared to have a tension headache - but it was in fact GCA. It is probably a reference
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4173245/ The article is entitled
Giant cell arteritis or tension-type headache?: A differential diagnostic dilemma
and details the presentation of an elderly lady who appeared to have a tension headache - but it was in fact GCA. It is probably a reference
LilyBark
in
PMRGCAuk
5 years ago
A randomised single-centre trial of inhaled liposomal cyclosporine for bronchiolitis obliterans syndrome post-lung transplantation.
Outcomes after lung transplantation are poor due to bronchiolitis obliterans. Since bronchiolitis obliterans is not readily demonstrated by lung biopsies, the term bronchiolitis obliterans syndrome (BOS) is applied, defined as a sustained forced expiratory volume in 1 s (FEV1) decline. Treatments for
Outcomes after lung transplantation are poor due to bronchiolitis obliterans. Since bronchiolitis obliterans is not readily demonstrated by lung biopsies, the term bronchiolitis obliterans syndrome (BOS) is applied, defined as a sustained forced expiratory volume in 1 s (FEV1) decline. Treatments for
2greys
in
Lung Conditions Community Forum
5 years ago
Dietary Restrictions to Prolong the Life of a Kidney Transplant
It has been found that if patients substitute soya or some vegetable source for the animal proteins they normally eat and severely restrict the amount of salt they normally consume they can significantly slow the decline of renal transplants. From personal experience I can say that such a diet really
It has been found that if patients substitute soya or some vegetable source for the animal proteins they normally eat and severely restrict the amount of salt they normally consume they can significantly slow the decline of renal transplants. From personal experience I can say that such a diet really
Falkenhayn
in
Kidney Transplant Patient Support
5 years ago
Post Transplant Tips
Hello! I am excited to be here and learn from everyone. I just received a kidney transplant two weeks ago (Can't believe its already been two weeks!) and was wondering if anyone had any post transplant tips. Best, Ani
Hello! I am excited to be here and learn from everyone. I just received a kidney transplant two weeks ago (Can't believe its already been two weeks!) and was wondering if anyone had any post transplant tips. Best, Ani
anster147
in
Kidney Transplant
5 years ago
Plasmapheresis not helping
Hello all just following up on here as I'm in tears not only due this being the day my sister transitioned in 2104 just 3 months after my mommy but I'm miserable from this itching and I mean terrible itching especially at night my feet, legs, hands, eyes and even head! I can't believe that none if the
Hello all just following up on here as I'm in tears not only due this being the day my sister transitioned in 2104 just 3 months after my mommy but I'm miserable from this itching and I mean terrible itching especially at night my feet, legs, hands, eyes and even head! I can't believe that none if the
genj65
in
PBC Foundation
5 years ago
Blood cancers: New generation stem cell transplant significantly reduces complications for patients
Post by MPN-MATE Admin » Wed Nov 06, 2019 9:21 am Hey everyone... :-) More great good news is coming our way... This article has already successfully run 'Human Trials', and in the USA, it's about to be accepted by the FDA for a Phase III Clinical Trial... Impressive results as you will see from reading
Post by MPN-MATE Admin » Wed Nov 06, 2019 9:21 am Hey everyone... :-) More great good news is coming our way... This article has already successfully run 'Human Trials', and in the USA, it's about to be accepted by the FDA for a Phase III Clinical Trial... Impressive results as you will see from reading
socrates_8
in
MPN Voice
5 years ago
2 non-living long term kidney transplants
My first kidney tx was in 1978-2000 then 2nd kidney tx 2001 to present!
My first kidney tx was in 1978-2000 then 2nd kidney tx 2001 to present!
Kidneytx2
in
Kidney Transplant
5 years ago
Papworth Duck Pond
The old Papworth hospital was famous for its duck pond. It is rumoured that heart transplant patients were ready to go home when they could do a lap of the pond I have not seen the new Papworth and was wondering if the landscaping included a duck pond? 🦆
The old Papworth hospital was famous for its duck pond. It is rumoured that heart transplant patients were ready to go home when they could do a lap of the pond I have not seen the new Papworth and was wondering if the landscaping included a duck pond? 🦆
MichaelJH
Heart Star
in
British Heart Foundation
5 years ago
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