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Islet cell transplant
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7 months post kidney transplant. I’m up to 40 minutes of walking 3-4 times a week. Day after exercise tired , useless. Any others?
Tired day after exercise
Tired day after exercise
3KMa
in
Kidney Transplant
3 years ago
Educating the public about the need for living kidney donors
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Transplant
3 years ago
Educating the public about the need for living kidney donors
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Transplant Patient Support
3 years ago
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Educating the public about the need for living kidney donors.
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
Our 2nd Kidney Transplant Thursday is on November 11th. What is Kidney Transplant Thursdays? On the 2nd Thursday of every month those in the community post information about the need for living kidney donors and you include information about you. To learn more about Kidney Transplant Thursdays and
hmysel
in
Kidney Disease
3 years ago
Where are all the husbands talking about their wives and partners alcohol-related liver disease?
I had a most enjoyable coffee with a fellow liver transplantee this afternoon. I’ve not seen this lady (due to Covid) for almost two years, so it was nice to catch up. Her liver transplant was due to PBC (Primary biliary cholangitis). This poor lady does understandably get frustrated as she is often
I had a most enjoyable coffee with a fellow liver transplantee this afternoon. I’ve not seen this lady (due to Covid) for almost two years, so it was nice to catch up. Her liver transplant was due to PBC (Primary biliary cholangitis). This poor lady does understandably get frustrated as she is often
Richard-Allen
in
British Liver Trust
3 years ago
AM I ELIGIBLE FOR KIDNEY TRANSPLANT?
I’M A MALE 76 YEARS OLD. I’M A CANCER SURVIVER ( RENAL CELL CARCINOMA STAGE 4|) AUGUST 2013. MY LATTEST GFR WAS 32. AM I ELIGIBLE FOR A TRANSPLANT LIST? OR I WILL I HAVE TO GET A DIRECT KIDNEY OR NOTHING. REGARDS DANNY JOE HUMPHREY . REGARDS DANNY JOE HUMPHREY
I’M A MALE 76 YEARS OLD. I’M A CANCER SURVIVER ( RENAL CELL CARCINOMA STAGE 4|) AUGUST 2013. MY LATTEST GFR WAS 32. AM I ELIGIBLE FOR A TRANSPLANT LIST? OR I WILL I HAVE TO GET A DIRECT KIDNEY OR NOTHING. REGARDS DANNY JOE HUMPHREY . REGARDS DANNY JOE HUMPHREY
pigeonman
in
Early CKD Support
3 years ago
A decade on from heart failure diagnosis
Today marks ten years since I was unexpectedly diagnosed with heart failure at the tender age of 31. I remember back then being told by Dr "Death Knell" Google that I'd be dead within five years. [Nowadays I know Dr Google is an unqualified quack who knows nothing and likes to present worst case scenarios
Today marks ten years since I was unexpectedly diagnosed with heart failure at the tender age of 31. I remember back then being told by Dr "Death Knell" Google that I'd be dead within five years. [Nowadays I know Dr Google is an unqualified quack who knows nothing and likes to present worst case scenarios
laura_dropstitch
Heart Star
in
British Heart Foundation
3 years ago
How do you get ESRD Medicare if you get a preemptive kidney transplant (before dialysis has begun).
Does anyone know the particulars of getting ESRD Medicare prior to the start of dialysis? Medicare’s guidelines say that you qualify in the month that you receive a kidney transplant, but they don’t say what day of the month or if you start your application after you have already received the transplant
Does anyone know the particulars of getting ESRD Medicare prior to the start of dialysis? Medicare’s guidelines say that you qualify in the month that you receive a kidney transplant, but they don’t say what day of the month or if you start your application after you have already received the transplant
Hidden
in
Kidney Transplant
3 years ago
Post Liver transplant
Post liver transplant my son gets red patches over his body suddenly .. has it happened with anyone else ? Is it due to immuno suppresent ? Please help
Post liver transplant my son gets red patches over his body suddenly .. has it happened with anyone else ? Is it due to immuno suppresent ? Please help
Brahmatv
in
Children's Liver Disease Foundation
3 years ago
INF+ ATO Study, "A knockout combination for MPN stem cells"
Some have likely seen this study. I looked into it some more today and realize it's a neat pre-clinical result. This is just FYI right now but it's an example of potential good things to come. (I just noticed Manouche posted on this last year, anyway maybe some new details here) "JAK2V617F myeloproliferative
Some have likely seen this study. I looked into it some more today and realize it's a neat pre-clinical result. This is just FYI right now but it's an example of potential good things to come. (I just noticed Manouche posted on this last year, anyway maybe some new details here) "JAK2V617F myeloproliferative
EPguy
in
MPN Voice
3 years ago
Liver transplantation for alcohol-related liver disease in the UK: revised UK Liver Advisory Group recommendations for referral
There was a time when a person who required a liver transplant through alcohol abuse would have to show a commitment to a life of sobriety, and prove that they had not consumed any alcohol, or alcohol-free substitute drinks for at least 6-months. If a person was unable to meet these criteria, their
There was a time when a person who required a liver transplant through alcohol abuse would have to show a commitment to a life of sobriety, and prove that they had not consumed any alcohol, or alcohol-free substitute drinks for at least 6-months. If a person was unable to meet these criteria, their
Richard-Allen
in
British Liver Trust
3 years ago
Alex TLC Digital Community Weekend
The agenda for our weekend is available to view: https://www.alextlc.org/digital-community-weekend-2021/ On Saturday, the Science Day, we have presentations about the new NHS Inherited White Matter Disorders Patient Registry and research updates on the following Leukodystrophies: - AMN & ALD - Alexander's
The agenda for our weekend is available to view: https://www.alextlc.org/digital-community-weekend-2021/ On Saturday, the Science Day, we have presentations about the new NHS Inherited White Matter Disorders Patient Registry and research updates on the following Leukodystrophies: - AMN & ALD - Alexander's
Hidden
Partner
in
Leukodystrophy Support
3 years ago
Re: Vaccine efficacy
Hello, I have no intention of this post becoming a debate. Yesterday I saw a post regarding vaccine hesitancy and I had some information I wanted to share however the comments had been turned off. There is someone at my work who received an organ transplant and was advised not to get the vaccine as it
Hello, I have no intention of this post becoming a debate. Yesterday I saw a post regarding vaccine hesitancy and I had some information I wanted to share however the comments had been turned off. There is someone at my work who received an organ transplant and was advised not to get the vaccine as it
Jay986
in
British Liver Trust
3 years ago
Kid ni Not
My book relating experiences, dialysis, and food choices. Available at Amazon and Barnes and Noble. Kid ni Not Paperback by Dorothy Chang-Van Horn (Author) See all formats and editions Kid ni Not is intended for readers with kidney failure and their relatives. It describes the kidneys' functions
My book relating experiences, dialysis, and food choices. Available at Amazon and Barnes and Noble. Kid ni Not Paperback by Dorothy Chang-Van Horn (Author) See all formats and editions Kid ni Not is intended for readers with kidney failure and their relatives. It describes the kidneys' functions
TuLiChang
in
Kidney Dialysis
3 years ago
Kidney Transplant
Does anyone have experience with NKR National Kidney Register (voucher) program? My husband gave a kidney for me 6 months ago and I still have no kidney from them. Anyone have history of how this works?
Does anyone have experience with NKR National Kidney Register (voucher) program? My husband gave a kidney for me 6 months ago and I still have no kidney from them. Anyone have history of how this works?
Porter20
in
Kidney Transplant
3 years ago
Help for those who need a kidney transplant
From a nonprofit organization: www.LKDN.org a Free online program that shows you how others have achieved a successful living kidney transplant experience. Having Your Kidney Donor Find YOU! www.havingyourkidneydonorfindyou.org Information developed by a 2-time kidney transplant recipient.
From a nonprofit organization: www.LKDN.org a Free online program that shows you how others have achieved a successful living kidney transplant experience. Having Your Kidney Donor Find YOU! www.havingyourkidneydonorfindyou.org Information developed by a 2-time kidney transplant recipient.
hmysel
in
Kidney Transplant Patient Support
3 years ago
Vaccine hesitation
As some who has had a liver transplant and on immunosuppressants obviously and also having had a portal vein thrombosis I’m reluctant to have the covid19 vaccine As reported early on in this “pandemic” certain vaccines were and still are responsible for clotting, besides the clotting issue the fact
As some who has had a liver transplant and on immunosuppressants obviously and also having had a portal vein thrombosis I’m reluctant to have the covid19 vaccine As reported early on in this “pandemic” certain vaccines were and still are responsible for clotting, besides the clotting issue the fact
Rockefeller20
in
British Liver Trust
3 years ago
Starting tocilizumab
I had my first shot of TCZ this morning (10 hours ago). 45 minutes later I started to feel lousy, dizzy etc. I'm slowly getting better now. Is this anyone else's experience?Is it likely to pass, and it is something I have to look forward to every week, or does your body adjust to it? Am also on 14mg
I had my first shot of TCZ this morning (10 hours ago). 45 minutes later I started to feel lousy, dizzy etc. I'm slowly getting better now. Is this anyone else's experience?Is it likely to pass, and it is something I have to look forward to every week, or does your body adjust to it? Am also on 14mg
Sharitone
in
PMRGCAuk
3 years ago
Feeling a bit Hopeless
I have been on the lung transplant list for 18 months. I had one dry run 4 months ago, but I am wondering if I will ever get the call. Transplants are low, party because of Covid and only 30% of people on the list received a transplant in the year up to March, according to latest statistics. This has
I have been on the lung transplant list for 18 months. I had one dry run 4 months ago, but I am wondering if I will ever get the call. Transplants are low, party because of Covid and only 30% of people on the list received a transplant in the year up to March, according to latest statistics. This has
mary1956
in
Lung Conditions Community Forum
3 years ago
Join the Virus Watch project ( in the UK)
Anyone in the UK can join the “Virus Watch” research project (coordinated by University College London). Here is the link/ web address http://ucl-virus-watch.net/ My husband and I signed up a month ago - they send weekly emails asking you to fill in details of any possible Covid19 symptoms ( it
Anyone in the UK can join the “Virus Watch” research project (coordinated by University College London). Here is the link/ web address http://ucl-virus-watch.net/ My husband and I signed up a month ago - they send weekly emails asking you to fill in details of any possible Covid19 symptoms ( it
Suzita76
in
PMRGCAuk
3 years ago
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