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Candy girl
liver transplant the effects on family
liver transplant the effects on family
Nevisrangesnow
in
National Foundation for Transplants
2 years ago
Please have blood tests if taking medication - Pentasa.
My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved
My GP prescribed me Pentasa for my Ulcerative Colitis. I took this for approx 10 years. My GP never requested any blood tests in this time. This medication was slowly killing off my kidney function. In 2017 I was admitted to hospital with a 9% kidney function. I stopped Pentasa and my kidneys improved
TomYorke
in
Crohn's and Colitis Support
2 years ago
Candy girl 👧
my husband is waiting on a liver transplant for 9 months he’s NAFLD he’s is driving me crazy his mood and attitude sounds crazy it’s really hard to watch
my husband is waiting on a liver transplant for 9 months he’s NAFLD he’s is driving me crazy his mood and attitude sounds crazy it’s really hard to watch
Nevisrangesnow
in
National Foundation for Transplants
2 years ago
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MIN-102 update: summer 2022
Hi everyone, I am persisting with the min-102 trial and yesterday had my 10th visit. Nothing particularly different about the visit: the usual 6 minute walking and balance trials, the annual MRI scan and echocardiogram and the questionnaires and meeting with a specialist. What I did learn is that Minoryx
Hi everyone, I am persisting with the min-102 trial and yesterday had my 10th visit. Nothing particularly different about the visit: the usual 6 minute walking and balance trials, the annual MRI scan and echocardiogram and the questionnaires and meeting with a specialist. What I did learn is that Minoryx
wilburlois15
in
AMN EASIER
2 years ago
Gallbladder issues
I was just curious to see how many members had issues with their gallbladder? I know of two friends who have had kidney transplants and they both had their gallbladder removed previously. I myself had my gallbladder removed the same year I was diagnosed with kidney disease. I suffered with gallbladder
I was just curious to see how many members had issues with their gallbladder? I know of two friends who have had kidney transplants and they both had their gallbladder removed previously. I myself had my gallbladder removed the same year I was diagnosed with kidney disease. I suffered with gallbladder
Ziggydoodah
in
Kidney Disease
2 years ago
Follow up on my liver cancer HCC
Hi all, I have been on the craziest rollercoaster ride since January 2022. Had resection May 28, 2021. My cancer came back 8 months after surgery. Was referred to have a liver transplant evaluation. My case looked very promising to get a liver. Had to do a lot of prep including testing and interviews
Hi all, I have been on the craziest rollercoaster ride since January 2022. Had resection May 28, 2021. My cancer came back 8 months after surgery. Was referred to have a liver transplant evaluation. My case looked very promising to get a liver. Had to do a lot of prep including testing and interviews
Iggy08713287
Patient
in
Blue Faery Liver Cancer
2 years ago
Lung transplant clinic appointment
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Thankyou for all your good wishes. Well my first visit to Harefield was quite overwhelming. I only learnt as we were traveling down on Tuesday that I wld be having 'some' tests. Some! A lung function test, ecg, chest xray, blood pressure and sats, urine test and I couldn't count the number of vials
Karenanne61
in
Lung Conditions Community Forum
2 years ago
Officially on the lung transplant waiting list
Last Friday I made the decision to join the lung transplant waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching. Lung transplant was an option that I have thought about from a very early stage after my diagnosis and when the time came I think
Last Friday I made the decision to join the lung transplant waiting list after months of tests, conversations with the various medical teams and a whole lot of soul searching. Lung transplant was an option that I have thought about from a very early stage after my diagnosis and when the time came I think
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Life insurance
Hi, has anyone been successful in securing or purchasing life insurance in the United States after being diagnosed with CKD and/or kidney transplant? I want to be able leave something behind for my family. I was denied by State Farm. I’m assuming the major insurance companies will exclude pre-existing
Hi, has anyone been successful in securing or purchasing life insurance in the United States after being diagnosed with CKD and/or kidney transplant? I want to be able leave something behind for my family. I was denied by State Farm. I’m assuming the major insurance companies will exclude pre-existing
Kidney2014
in
Kidney Transplant
2 years ago
Fluid around liver post transplant
Hi, I'm 2 years post liver transplant, and I'm currently in hospital for a kidney infection. Thankfully they seem to have got this under control, even though my kidneys are only working around 43%. The worry is that a CT scan has shown up some fluid around my liver. Pre transplant I never suffered with
Hi, I'm 2 years post liver transplant, and I'm currently in hospital for a kidney infection. Thankfully they seem to have got this under control, even though my kidneys are only working around 43%. The worry is that a CT scan has shown up some fluid around my liver. Pre transplant I never suffered with
Craftynan
in
British Liver Trust
2 years ago
First appointment at lung transplant centre.
I have my first appointment on Wednesday at the Harefield. Can any of you wise people give me any idea what to expect? I have written down a few questions. We are going Tuesday and stopping in a b and b as the area is completely new to us. ( We live in Oxfordshire) Thank you.
I have my first appointment on Wednesday at the Harefield. Can any of you wise people give me any idea what to expect? I have written down a few questions. We are going Tuesday and stopping in a b and b as the area is completely new to us. ( We live in Oxfordshire) Thank you.
Karenanne61
in
Lung Conditions Community Forum
2 years ago
No to transplant
As anyone ever said ‘no’ turned down a kidney transplant? Why?
As anyone ever said ‘no’ turned down a kidney transplant? Why?
Jfkh30
in
Kidney Disease
2 years ago
I cannot stop gaining weight! Help
I am 2 1/2 years post kidney transplant. Before the transplant, I was extremely healthy and fit, ate all the right foods, (nothing processed), worked out daily, was a regular bike rider and hiker, etc. After my transplant, I went through 2 grueling years of rejection treatments which included lots
I am 2 1/2 years post kidney transplant. Before the transplant, I was extremely healthy and fit, ate all the right foods, (nothing processed), worked out daily, was a regular bike rider and hiker, etc. After my transplant, I went through 2 grueling years of rejection treatments which included lots
Norken
in
Kidney Transplant
2 years ago
Vaccinations for covid19 done after Transplant: if you got covid19, what were symptoms and outcome
My spouse had his transplant 3.5 yrs ago and we both received our covid19 vaccination/booster shots afterwards. If you got covid19, what were your symptoms and outcome. If you know how you got it, please share. We have been living very isolated for 3.5 yrs. We do not go into anyone's house or allow them
My spouse had his transplant 3.5 yrs ago and we both received our covid19 vaccination/booster shots afterwards. If you got covid19, what were your symptoms and outcome. If you know how you got it, please share. We have been living very isolated for 3.5 yrs. We do not go into anyone's house or allow them
Gardner-NY
in
Kidney Transplant
2 years ago
Things to keep in mind while taking Insurance for Post transplant patients in US?
Hello, what must be the things we need to consider to take insurance in US for post transplantation patients. ? I had my kidney transplantation successfully 16 months ago and I'm trying to move to US. So pls help me here.
Hello, what must be the things we need to consider to take insurance in US for post transplantation patients. ? I had my kidney transplantation successfully 16 months ago and I'm trying to move to US. So pls help me here.
PatientWhizbang
in
Kidney Transplant
2 years ago
Driving After Transplant
How long after a kidney transplant before you can drive?
How long after a kidney transplant before you can drive?
frebusmaxwell
in
Kidney Disease
2 years ago
Food Choices After Transplant
I am scheduled for a kidney transplant from my sister on July 6, 2022. I've been eating plant-based foods for a few months (suggestion from my nephrologist). I plan to continue the same, only adding some fish and maybe chicken. My question: Are there any diet restrictions during the period of recovery
I am scheduled for a kidney transplant from my sister on July 6, 2022. I've been eating plant-based foods for a few months (suggestion from my nephrologist). I plan to continue the same, only adding some fish and maybe chicken. My question: Are there any diet restrictions during the period of recovery
frebusmaxwell
in
Kidney Disease
2 years ago
Surgery
Hello,I’m New here! I’m about to have a Kidney transplant on. June 27th, My sister is my donor. My Coordinator is not easy to get a hold of. What should I expect after surgery?
Hello,I’m New here! I’m about to have a Kidney transplant on. June 27th, My sister is my donor. My Coordinator is not easy to get a hold of. What should I expect after surgery?
LongIslandGirl114
in
Kidney Transplant
2 years ago
Fibroscan today
Hi My husband had a liver transplant in 2019 and has started to feel unwell again. He had a fibroscan today and his results were 4.4 but am unsure what that means. He is having major breathing problems due to COPD, emphysema and suspected asbestosis so had to take steroids for a while which has caused
Hi My husband had a liver transplant in 2019 and has started to feel unwell again. He had a fibroscan today and his results were 4.4 but am unsure what that means. He is having major breathing problems due to COPD, emphysema and suspected asbestosis so had to take steroids for a while which has caused
Kimlescam
in
British Liver Trust
2 years ago
The Polymyalgia Rheumatica Diet: The Ultimate Nutritional Guide To Reversing And Managing Polymyalgia Rheumatica And Giant Cell Arteritis
Has anyone read this book by Hunwick Debby? Did they find it useful? Generally does your diet help improve your condition?
Has anyone read this book by Hunwick Debby? Did they find it useful? Generally does your diet help improve your condition?
Yorksman
in
PMRGCAuk
2 years ago
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