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tocilizumab after relapse
Hi having felt unwell again and 8 weeks of steroids, reducing to zero I have had a positive ct pet scan again. Now back on steroids and a plan to commence lufludomine while consultant tries to get tocilizumab again. Has anyone had any luck with getting further scripts after relapse. Grateful for any
Hi having felt unwell again and 8 weeks of steroids, reducing to zero I have had a positive ct pet scan again. Now back on steroids and a plan to commence lufludomine while consultant tries to get tocilizumab again. Has anyone had any luck with getting further scripts after relapse. Grateful for any
Devoid
in
PMRGCAuk
2 years ago
UNOS Regions
I'm considering being referred to another hospital for a preemptive transplant but both are in the same USOS Region. They are different states, one in KS and the other in MO. The one in KS is closest but the one in MO says they have a shorter wait time AND the website has all sorts of information on
I'm considering being referred to another hospital for a preemptive transplant but both are in the same USOS Region. They are different states, one in KS and the other in MO. The one in KS is closest but the one in MO says they have a shorter wait time AND the website has all sorts of information on
horsie63
in
Kidney Transplant
2 years ago
The Constitution of Medical Knowledge (Part 2 of 3)
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
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The Constitution of Medical Knowledge (Part 2 of 3)
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
Tall_Allen
in
Prostate Cancer Network
2 years ago
The Constitution of Medical Knowledge (Part 2 of 3)
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
[u]
Loss of Respect for Expertise
[/u] How do we know what is true? None of us has the time or the inclination to test everything for ourselves. We rely on trusted experts to tell us. Few doubt that the heart pumps blood to our lungs and other tissues, although few have seen our hearts do that
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
Anyone else have double nephrectomy w Kidney transplant?
I am right at 3 months and still not completely recovered. I had double nephrectomy one day and transplant the next. anyone else have this? It has been a very hard recovery. Every week seems to bring a new problem. I began feeling emotionally drained last week. Struggles there now. My dr. rapidly decreased
I am right at 3 months and still not completely recovered. I had double nephrectomy one day and transplant the next. anyone else have this? It has been a very hard recovery. Every week seems to bring a new problem. I began feeling emotionally drained last week. Struggles there now. My dr. rapidly decreased
Rocknlily
in
Kidney Transplant
2 years ago
My father has Peripheral t cell lymphoma
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
My father has Peripheral t cell lymphoma of stage 4 Doctor started 6 cycles of CHOEP . Does Stem cell transplant is the permanent cure ?
NikhilSantosh
in
CLL Support
2 years ago
Request - Real time experience Reco for the best haematologists in Portugal please
Hello all, Will move to Portugal in the near future. Looking for excellent haematologist recommendations in Portugal. I am hoping to get reco from people who have personally had positive experience with the said haematologists. Also the names of hospitals or institutes focusing on Hematology
Hello all, Will move to Portugal in the near future. Looking for excellent haematologist recommendations in Portugal. I am hoping to get reco from people who have personally had positive experience with the said haematologists. Also the names of hospitals or institutes focusing on Hematology
Iwillwin123
in
PMRGCAuk
2 years ago
Low Sperm Counts
Hi there. I received a kidney transplant 6 months ago. We want to have one more baby (we had three pre transplant and conceived them very easily) but a recent test showed I pretty much have zero sperm. Has anyone encountered this, and if so, did you find any causes related to kidney transplant...medications
Hi there. I received a kidney transplant 6 months ago. We want to have one more baby (we had three pre transplant and conceived them very easily) but a recent test showed I pretty much have zero sperm. Has anyone encountered this, and if so, did you find any causes related to kidney transplant...medications
crusher2021
in
Kidney Transplant
2 years ago
Kidney Transplant Aug 25
What should I bring to the hospital for my 2-night stay? I live in a second-floor apartment. Will I be able to do the stairs? How many immunosuppressants are you on post-transplant, and for how long? I know the Mayo transplant team (Phoenix) will tell me some of this ... I'm just curious about
What should I bring to the hospital for my 2-night stay? I live in a second-floor apartment. Will I be able to do the stairs? How many immunosuppressants are you on post-transplant, and for how long? I know the Mayo transplant team (Phoenix) will tell me some of this ... I'm just curious about
frebusmaxwell
in
Kidney Transplant
2 years ago
First time Kidney Transplant
Hello,This journey of mine is new to me however the disease itself is not. I was diagnosed with CKD at 12 years old. Now that I am in my 30’s, it has declined to the point of kidney transplant. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney. It has been a very
Hello,This journey of mine is new to me however the disease itself is not. I was diagnosed with CKD at 12 years old. Now that I am in my 30’s, it has declined to the point of kidney transplant. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney. It has been a very
LillyBear09
in
National Foundation for Transplants
2 years ago
First Time Kindey Transplant
Hello, This journey of mine is new to me however the disease itself is not. I was diagnosed with CKD at 12 years old. Now that I am in my 30’s, it has declined to the point of kidney transplant. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney. It has been
Hello, This journey of mine is new to me however the disease itself is not. I was diagnosed with CKD at 12 years old. Now that I am in my 30’s, it has declined to the point of kidney transplant. I have not been on dialysis and the goal is to get prevent dialysis and get a new kidney. It has been
LillyBear09
in
Kidney Transplant
2 years ago
Lemon water
Can you drink hot lemon water after having a kidney transplant
Can you drink hot lemon water after having a kidney transplant
Sally03
in
Kidney Transplant
2 years ago
Emphysema and liver transplant
Is it possible to have a liver transplant if you have mild emphysema?
Is it possible to have a liver transplant if you have mild emphysema?
Davideo
in
British Liver Trust
2 years ago
anyone living in Singapore/india post kidney transplant ?
hi, I currently live in the US and had a kidney transplant in Dec 2020. I’m on belatacept and Myfortic currently. Bela because I developed a reaction to tacrolimus. I’m likely to move to Singapore next year this time and am told Bela is not available there. if any of you or anyone you know is in
hi, I currently live in the US and had a kidney transplant in Dec 2020. I’m on belatacept and Myfortic currently. Bela because I developed a reaction to tacrolimus. I’m likely to move to Singapore next year this time and am told Bela is not available there. if any of you or anyone you know is in
Hidden
in
Kidney Transplant
2 years ago
best Cereal options / veg breakfast options in US for a kidney transplant patient?
hey im 24 years old. I had undergone transplantation on feb'21. I'll be moving to Florida next month. Can you suggest me good breakfast options/cereal options
hey im 24 years old. I had undergone transplantation on feb'21. I'll be moving to Florida next month. Can you suggest me good breakfast options/cereal options
PatientWhizbang
in
Kidney Transplant
2 years ago
can I go abroad for studies after a kidney transplant
can I go abroad(Canada) for studies after a kidney tranplant. It has been 4 years since my kidney got transplanted and Iam 21 years old. do the extreme cold weather cause any problems? will there be any difficulties to get Permanent residence?
can I go abroad(Canada) for studies after a kidney tranplant. It has been 4 years since my kidney got transplanted and Iam 21 years old. do the extreme cold weather cause any problems? will there be any difficulties to get Permanent residence?
sanath
in
Kidney Transplant
2 years ago
Coping with Pediatric Kidney Disease
This episode features a conversation about pediatric kidney disease from “The Journey Continues”, a podcast by the National Kidney Foundation of Illinois hosted by kidney transplant recipient Monica Fox. Listen today: https://bit.ly/3gznxpZ
This episode features a conversation about pediatric kidney disease from “The Journey Continues”, a podcast by the National Kidney Foundation of Illinois hosted by kidney transplant recipient Monica Fox. Listen today: https://bit.ly/3gznxpZ
JackieJ_NKF
Partner
in
Parents of Children with Kidney Disease
2 years ago
will these hot flashes ever end ?
Hi all I am grateful that after 19 months since i developed pmr symptoms I am feeling a lot better and have gradually reduced over the months from 30 mg (think gp went a bit over the top with that dose because i was on 25 and when i reported some blurred vision and headache she upped it . I saw optician
Hi all I am grateful that after 19 months since i developed pmr symptoms I am feeling a lot better and have gradually reduced over the months from 30 mg (think gp went a bit over the top with that dose because i was on 25 and when i reported some blurred vision and headache she upped it . I saw optician
Mofred
in
PMRGCAuk
2 years ago
The Constitution of Medical Knowledge (Part 1 of 3)
Patients are often confused by seemingly conflicting findings of studies, or equally good doctors recommending different treatment plans. How are we to decide? Medical science is a process created by a “reality-based community” to help decide such questions. Science isn’t just hypothesis-testing with
Patients are often confused by seemingly conflicting findings of studies, or equally good doctors recommending different treatment plans. How are we to decide? Medical science is a process created by a “reality-based community” to help decide such questions. Science isn’t just hypothesis-testing with
Tall_Allen
in
Advanced Prostate Cancer
2 years ago
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