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Explore NKF’s Kidney Learning Center!
Are you interested on getting on the kidney transplant waitlist? View our free, self-paced beginner’s guide to kidney transplant through our new online resource. Take the first step on your transplant journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org
Are you interested on getting on the kidney transplant waitlist? View our free, self-paced beginner’s guide to kidney transplant through our new online resource. Take the first step on your transplant journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org
KateyC_NKF
Partner
in
Kidney Dialysis
2 years ago
Explore NKF’s Kidney Learning Center!
Are you interested in learning more about kidney transplant? Check out our free, self-paced beginner’s guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses
Are you interested in learning more about kidney transplant? Check out our free, self-paced beginner’s guide to kidney transplant through this new online resource. Take the next step on your journey today! Kidney Learning Center: First Steps to Transplant https://learningcenter.kidney.org/spa/courses
KateyC_NKF
Partner
in
Kidney Disease
2 years ago
Kidney transplant at 60 plus stories please
My kidneys are 33% now. IgA patient. I want to know how long a kidney lasts if received at age of 55 or 60. What is chance of body accepting new kidney at that age? In uk does every recepient of kidney also need to donate a relatives kidney?? I want to hear real stories please. Consultant has no interest
My kidneys are 33% now. IgA patient. I want to know how long a kidney lasts if received at age of 55 or 60. What is chance of body accepting new kidney at that age? In uk does every recepient of kidney also need to donate a relatives kidney?? I want to hear real stories please. Consultant has no interest
Chawal2
in
Kidney Transplant
2 years ago
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Hypoxia, transplant dry runs and raising awareness of IPF
To say a lot's happened since my last update is a bit of an understatement! I've been called up twice for a possible lung transplant, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for
To say a lot's happened since my last update is a bit of an understatement! I've been called up twice for a possible lung transplant, suffered a hypoxic episode and shared my experiences of living with lung disease with Asthma and Lung UK to help them raise a bit of awareness of pulmonary fibrosis for
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
2 years ago
Fibroscan
I got told in May that I would need a Liver Transplant in y2rs time after being hospitalised and nearly dying from a Gastrointestinal bleed. I am not a drinker and have had an unexplained liver condition for 35yrs. However I had a Fibroscan and it came back normal. Also my blood results are on
I got told in May that I would need a Liver Transplant in y2rs time after being hospitalised and nearly dying from a Gastrointestinal bleed. I am not a drinker and have had an unexplained liver condition for 35yrs. However I had a Fibroscan and it came back normal. Also my blood results are on
Chrisjohnsy
in
British Liver Trust
2 years ago
Just been approved for Vitamin B12 injection treatment.
hello everyone this is my first post. I have been experiencing many of the symptoms of functional b12 deficiency/pernicious anemia for close to 7 years. My doctor was reluctant for whatever reason to authorize the injections, even though I had a positive parietal cell antibody test. I guess my question
hello everyone this is my first post. I have been experiencing many of the symptoms of functional b12 deficiency/pernicious anemia for close to 7 years. My doctor was reluctant for whatever reason to authorize the injections, even though I had a positive parietal cell antibody test. I guess my question
MikeyO
in
Pernicious Anaemia Society
2 years ago
help with drinking 2 to 3 litres of water a day.
post allogeneic stem cell transplant I have been told I need to drink at least 2litres of water a day. With the medication I'm on I cannot drink plain water and have to flavour it and have with plenty of ice. Butstill find it difficult. Any advice on managing to get my full amount of water would be
post allogeneic stem cell transplant I have been told I need to drink at least 2litres of water a day. With the medication I'm on I cannot drink plain water and have to flavour it and have with plenty of ice. Butstill find it difficult. Any advice on managing to get my full amount of water would be
Kraskie1915
in
CLL Support
2 years ago
Pred affects glucose...what about thyroid?
i have been struggling to reduce my pred dose. Since I went from 22.5 to 20 every day has been different. The first day was ok. No real change. Then my pain was high....I was shakey, very tired/exhausted,efeated for the rest. Today my pain is a smidge better..but I am so tired. I have that out
i have been struggling to reduce my pred dose. Since I went from 22.5 to 20 every day has been different. The first day was ok. No real change. Then my pain was high....I was shakey, very tired/exhausted,efeated for the rest. Today my pain is a smidge better..but I am so tired. I have that out
Wallysma
in
PMRGCAuk
2 years ago
jan16
anyone been diagnosed with lung cancer following liver transplant for pbc
anyone been diagnosed with lung cancer following liver transplant for pbc
jackk9
in
PBC Foundation
2 years ago
I am 1/ 2yrs out from liver transplant with recurrent PBC.
Has anyone had problems with taking course of anti biotics?
Has anyone had problems with taking course of anti biotics?
Denvercarol1
in
PBC Foundation
2 years ago
Kidney Donor who now had CKD stage 3a
Hi, i donated my kidney 2 years ago to my father, who is doing excellent. I was being checked every 6 months for 2 years through the Organ Transplant Institute in Miami. Upon graduating from the donor program, I am now being told that I have Chronic Kidney Disease Stage 3A. I am shock, because i am 48
Hi, i donated my kidney 2 years ago to my father, who is doing excellent. I was being checked every 6 months for 2 years through the Organ Transplant Institute in Miami. Upon graduating from the donor program, I am now being told that I have Chronic Kidney Disease Stage 3A. I am shock, because i am 48
nichama74
in
Kidney Disease
2 years ago
British Transplant Games - King's families (UK)
Hi all, I hope everyone is doing ok ❤️ My son has had 2 liver transplants at King's College Hospital London, (at 22 months old and 19 years old). We have attended the British Transplant Games 10 times now and find them to be an amazing event for post transplant families to meet up, have fun, and
Hi all, I hope everyone is doing ok ❤️ My son has had 2 liver transplants at King's College Hospital London, (at 22 months old and 19 years old). We have attended the British Transplant Games 10 times now and find them to be an amazing event for post transplant families to meet up, have fun, and
ConsMum
in
Children's Liver Disease Foundation
2 years ago
Queen’s second try
I went to the second kidney transplant center. They were nice I learned a lot. The rooms were so tiny not made for a wheelchair for sure. I still made it. I have one worry. I only have one caregiver. I’m going to have to ask some friends to help me. The second center was nice, professional, and caring
I went to the second kidney transplant center. They were nice I learned a lot. The rooms were so tiny not made for a wheelchair for sure. I still made it. I have one worry. I only have one caregiver. I’m going to have to ask some friends to help me. The second center was nice, professional, and caring
HipHopQueen
in
Kidney Dialysis
2 years ago
Study Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy
Stud y Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy Rapamycin is a cell growth inhibitor and immunosuppressant that people normally take while undergoing cancer treatment or after receiving an organ transplant. A team from the Max Planck Institute for
Stud y Finds: Drug typically used in cancer therapy emerges as powerful anti-aging remedy Rapamycin is a cell growth inhibitor and immunosuppressant that people normally take while undergoing cancer treatment or after receiving an organ transplant. A team from the Max Planck Institute for
cesces
in
Advanced Prostate Cancer
2 years ago
polyomavirus infection treatments
Hi everyone, My father received kidney transplant last year and 5 months ago he was diagnosed with polyomavirus and his doctor didn't manage to help it so far. if you have experience with this virus andnyou received treatment for it can you please share its name and your experiences? Would be very
Hi everyone, My father received kidney transplant last year and 5 months ago he was diagnosed with polyomavirus and his doctor didn't manage to help it so far. if you have experience with this virus andnyou received treatment for it can you please share its name and your experiences? Would be very
Pjennifer
in
Kidney Transplant
2 years ago
ET progression to MF - anxiety issues
My ET is now progressing to Post ET Myelofibrisis. My hemo has recommended I start on Ruxolitinib & also to be considered for a stem cell transplant. I know some of you have been in the same situation. Am I correct in thinking MF is life limiting? Also how have any of you coped on Rux? I feel very
My ET is now progressing to Post ET Myelofibrisis. My hemo has recommended I start on Ruxolitinib & also to be considered for a stem cell transplant. I know some of you have been in the same situation. Am I correct in thinking MF is life limiting? Also how have any of you coped on Rux? I feel very
SRH55
in
MPN Voice
2 years ago
Here we go again!
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
GCA/PMR for over 5 years. Pred down to 6mg . Been taken off Tocilizumab but can’t tolerate other steroid sparers. Had appointment with Rheumie and blood test. CRP high so PET scan arranged. She has put me back up to 40mg as inflammation showing in all usual places. It feels like back to square 1. Has
broomfield28
in
PMRGCAuk
2 years ago
liver transplant
Good day has anyone's child undergone an operation of a liver transplant and how was the child now doing and its been how long
Good day has anyone's child undergone an operation of a liver transplant and how was the child now doing and its been how long
Ririza-31
in
Children's Liver Disease Foundation
2 years ago
Hi, this is a post for all.
My son had a sucessfull heart transplant in March 2022, he's 48 and doing very well. Do you know anyone who has had a heart transplant and how they're getting on? 💖
My son had a sucessfull heart transplant in March 2022, he's 48 and doing very well. Do you know anyone who has had a heart transplant and how they're getting on? 💖
icd22
in
Women's Health
2 years ago
occluded portal vein
Hello I would be interested to know whether any one has had a Liver Transplant with an occluded portal vein. if so what procedure was followed to by-pass the occlusion and what (if any) were the complications and side effects post Tranplant? I realises this question may not be allowed under current
Hello I would be interested to know whether any one has had a Liver Transplant with an occluded portal vein. if so what procedure was followed to by-pass the occlusion and what (if any) were the complications and side effects post Tranplant? I realises this question may not be allowed under current
Porcupine_Tree
in
British Liver Trust
2 years ago
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