polyomavirus infection treatments - Kidney Transplant

Kidney Transplant

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polyomavirus infection treatments

Pjennifer profile image
5 Replies

Hi everyone,

My father received kidney transplant last year and 5 months ago he was diagnosed with polyomavirus and his doctor didn't manage to help it so far.

if you have experience with this virus andnyou received treatment for it can you please share its name and your experiences? Would be very helpful hebis very desperate.

thank you!

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Pjennifer profile image
Pjennifer
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DexterLab profile image
DexterLab

I had BK virus about 10 months after my transplant. The doctors stopped my cellcept and added Prednisone, so my immune system could rev up some. I did testing every week, and the virus level dropped some every week. Took about 2 months for it to be gone. Went back to the usual meds, and BK has not come back. I don't know what 'next step' they would use if that did not work. Good luck.

bisley profile image
bisley

I also got the polyoma BK virus about 1.5 years after my kidney transplant. My nephrologist changed my meds by switching the mycophenalate to 60mg of leuflunamide. I've been going for blood work every two to four weeks to check my leuflunamide levels and the polyoma virus. The virus has dropped significantly. There is no magic pill to cure the polyoma virus but I have been told that leuflunamide is the preferred treatment.

You didn't mention the level of the virus. Perhaps it is so low and your doc is taking a wait and see attitude before switching meds.

I hope this was helpful and good luck. Joe

Pjennifer profile image
Pjennifer in reply to bisley

Thank you so much for the answer and help. Do you recall how long it took for the levels to drop?

bisley profile image
bisley in reply to Pjennifer

I seem to recall my levels started out at about 300,000.tgey continued to drop at every blood test. My last reading was 19,000.

They started dropping right away. All of this happened over the course of 3months.

bisley profile image
bisley

Also, go to the top search icon an enter polyoma BK virus.

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