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MGUS and PE in January
Hi Hope your all well 😊. I needed some advice as I've entered this world of illnesses lol.. I have PE in my lungs in January 23. Im in the process of recovery and my dr did some blood test just randomly..the results came back and he noticed one blood test did come out right. He said I had too much
Hi Hope your all well 😊. I needed some advice as I've entered this world of illnesses lol.. I have PE in my lungs in January 23. Im in the process of recovery and my dr did some blood test just randomly..the results came back and he noticed one blood test did come out right. He said I had too much
Summer133
in
Anticoagulation Support
9 months ago
Plant Paradox Impact
Hi Guys As you know I am a newbie and have been actively pursuing ways to restore my health. There have been successes and failures but more successes so defo going in the right direction. I thought I would summarise where I am as I feel I have had a break through in the last month. I have had low
Hi Guys As you know I am a newbie and have been actively pursuing ways to restore my health. There have been successes and failures but more successes so defo going in the right direction. I thought I would summarise where I am as I feel I have had a break through in the last month. I have had low
Wwwdot
in
Pernicious Anaemia Society
9 months ago
Cause of RLS - another step
Brain Iron Dysregulation in Iron Deficiency Anemia-Related Restless Leg Syndrome Revealed by Neuron-Derived Extracellular Vesicles: A Case–Control Study Apostolos Manolopoulos, MD ,1 William York, BS,1 Krishna Ananthu Pucha, BS,1 Christopher J. Earley, MBBCh, PhD,2 and Dimitrios Kapogiannis, MD1
Brain Iron Dysregulation in Iron Deficiency Anemia-Related Restless Leg Syndrome Revealed by Neuron-Derived Extracellular Vesicles: A Case–Control Study Apostolos Manolopoulos, MD ,1 William York, BS,1 Krishna Ananthu Pucha, BS,1 Christopher J. Earley, MBBCh, PhD,2 and Dimitrios Kapogiannis, MD1
RLSLearner
in
Restless Legs Syndrome
2 months ago
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Autoimmune issues -- should I try Pegasys?
I read some of the posts here on a daily basis, but don't post very often -- mainly due to lack of time since I'm working full-time and trying to manage my various conditions. My bio provides the details. One day I hope to be able to participate more fully! I currently manage my PV with an anti-coagulant
I read some of the posts here on a daily basis, but don't post very often -- mainly due to lack of time since I'm working full-time and trying to manage my various conditions. My bio provides the details. One day I hope to be able to participate more fully! I currently manage my PV with an anti-coagulant
blue_reader
in
MPN Voice
9 months ago
Does donating 1 liter of blood increase chance of going back into Afib?
I had surgical ablation on 9/8. Stayed in sinus rhythm for 2 weeks then back to Afib. I had a cardioversion 2 weeks ago and have stayed in sinus. I need to have 1 liter of blood drawn because my iron levels are too high. Does anyone know if taking out that much blood will increase my chances of going
I had surgical ablation on 9/8. Stayed in sinus rhythm for 2 weeks then back to Afib. I had a cardioversion 2 weeks ago and have stayed in sinus. I need to have 1 liter of blood drawn because my iron levels are too high. Does anyone know if taking out that much blood will increase my chances of going
Swimmer74
in
AF Association
9 months ago
Thyroid Results
Could I please get some advice on these results. I did not know that the Dr would want to do a blood draw so had taken my Teva Levothyroxine that morning before my appt. However, I was fasting. B12 - 506 pg/ml (197-771) Folate 9.3 ng/ml (3.9-26.8) Ferritin 41.7 ug/L (13.0-150.0) Iron 21.8 umol/L
Could I please get some advice on these results. I did not know that the Dr would want to do a blood draw so had taken my Teva Levothyroxine that morning before my appt. However, I was fasting. B12 - 506 pg/ml (197-771) Folate 9.3 ng/ml (3.9-26.8) Ferritin 41.7 ug/L (13.0-150.0) Iron 21.8 umol/L
revitalise
in
Thyroid UK
9 months ago
Iron infusions
Hello, I am writing on behalf of my 87 year old mother, who suffers greatly from RLS. These are her blood test results, showing low saturation and high total iron binding capacity. She is on gabapentin and Ropinirole and Tylenol 3, with no relief. She has CHF with water retention. Ehat are your thoughts
Hello, I am writing on behalf of my 87 year old mother, who suffers greatly from RLS. These are her blood test results, showing low saturation and high total iron binding capacity. She is on gabapentin and Ropinirole and Tylenol 3, with no relief. She has CHF with water retention. Ehat are your thoughts
floydpink
in
Restless Legs Syndrome
9 months ago
Could my iron supplement be causing weight gain?
I have been gaining weight despite being very careful in what I eat since starting my gentle iron supplement. A google search has come up with very mixed results re this. Not sure what to believe. Any advice?
I have been gaining weight despite being very careful in what I eat since starting my gentle iron supplement. A google search has come up with very mixed results re this. Not sure what to believe. Any advice?
Hectorsmum2
in
Restless Legs Syndrome
9 months ago
Pregabalin side effect – mental health
Hello everyone, To start with some positives: a big thank you for your advice and support a few months ago. It gave me the confidence to ask the GP to re-look at my ferritin blood test results and the latest RLS treatment guidelines. My iron levels are now up and the RLS considerably eased, although
Hello everyone, To start with some positives: a big thank you for your advice and support a few months ago. It gave me the confidence to ask the GP to re-look at my ferritin blood test results and the latest RLS treatment guidelines. My iron levels are now up and the RLS considerably eased, although
RiversofLondon
in
Restless Legs Syndrome
9 months ago
Advice needed on iron/ferritin levels please
I'd be really grateful if anyone could advise on whether I need to be concerned about my iron/ferritin levels. I'm seeing a neurologist tomorrow and want to be well informed. I have results from my last three blood tests so hopefully that might help. Serum iron level: October 2023 - 7.7 umol/L; January
I'd be really grateful if anyone could advise on whether I need to be concerned about my iron/ferritin levels. I'm seeing a neurologist tomorrow and want to be well informed. I have results from my last three blood tests so hopefully that might help. Serum iron level: October 2023 - 7.7 umol/L; January
Claire_lc
in
Restless Legs Syndrome
2 months ago
Missing video
Previously earlier this year I seen a video from a neurologist or it was on the restless leg syndrome foundation website, it was a video explaining to get this RLS disease under control before worry about other symptoms, it was kinda address to psychiatrist, to ignore the psychotic symptoms, and treat
Previously earlier this year I seen a video from a neurologist or it was on the restless leg syndrome foundation website, it was a video explaining to get this RLS disease under control before worry about other symptoms, it was kinda address to psychiatrist, to ignore the psychotic symptoms, and treat
RLSSCARER
in
Restless Legs Syndrome
9 months ago
Antipsychotics causing restless brain, Antidepressant causing restless sleep
If you can't love someone at their worst, you don't deserve to love them at their best. I meet a woman suffering catatonia and RLS in a psychiatric hospital, woman had serious injures, from jumping out of a car, her doctor said to me she was quiet psychotic when she first arrived to the ward. While
If you can't love someone at their worst, you don't deserve to love them at their best. I meet a woman suffering catatonia and RLS in a psychiatric hospital, woman had serious injures, from jumping out of a car, her doctor said to me she was quiet psychotic when she first arrived to the ward. While
RLSSCARER
in
Restless Legs Syndrome
9 months ago
Blood test results abnormal. But doctor says normal! How?
Last week I had some blood tests, however, once again, not all blood tests that were requested, were taken!!!I have results of some which are abnormal as follows.... Heaematocrit 0.483 0.37 - 9.47 abnormal Red Blood cell distribution width 16.3%
Last week I had some blood tests, however, once again, not all blood tests that were requested, were taken!!!I have results of some which are abnormal as follows.... Heaematocrit 0.483 0.37 - 9.47 abnormal Red Blood cell distribution width 16.3%
DandyButch
in
Thyroid UK
2 months ago
How to taper ropinirole when taking 4x/day
My 87 year old mother (who also has Parkinson's) currently takes ropinirole 4 times a day. I have started tapering the ropinirole (with her neurologist's approval) due to augmentation and frequent, intermittent visual/auditory hallucinations and delusions. She had been on a grand total of 9 mg earlier
My 87 year old mother (who also has Parkinson's) currently takes ropinirole 4 times a day. I have started tapering the ropinirole (with her neurologist's approval) due to augmentation and frequent, intermittent visual/auditory hallucinations and delusions. She had been on a grand total of 9 mg earlier
Quiddle
in
Restless Legs Syndrome
9 months ago
starting on ndt Thyroid-S
I’ve been struggling with Thyroid -S for the last one year. Had signs of over medication even thought TSH was 1.5. However other symptoms improved, like my digestion was amazing , no stomach issues etc. I’m now on a t4/t3 combo and my stomach issues are back, my back is hurting etc and would love to
I’ve been struggling with Thyroid -S for the last one year. Had signs of over medication even thought TSH was 1.5. However other symptoms improved, like my digestion was amazing , no stomach issues etc. I’m now on a t4/t3 combo and my stomach issues are back, my back is hurting etc and would love to
MiaMam
in
Thyroid UK
9 months ago
update -reducing ropinerole
Update on my husband, he is down from 8 mg to 4 mg ropinerole daily and about to transition to a lower amount again. Has been lowering it down .25 mg every 2-3 weeks depending upon rls flare ups which have been minimal. He is taking iron supplements with c daily and has been doing well. He has adjusted
Update on my husband, he is down from 8 mg to 4 mg ropinerole daily and about to transition to a lower amount again. Has been lowering it down .25 mg every 2-3 weeks depending upon rls flare ups which have been minimal. He is taking iron supplements with c daily and has been doing well. He has adjusted
Sandalsforever
in
Restless Legs Syndrome
9 months ago
Recent blood test results advice please
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
I have just received some blood test results, having had an iron infusion in October 2023, I would love advice please, bearing in mind my serum ferritin is still over reference range. I have not taken iron tablets since the iron infusion. Serum folate 5.5 ug/L (ref. range 3.0-20.5) Serum ferritin
yorkshiregirl4
in
Thyroid UK
3 days ago
Please advise on iron panel blood test results
Please can anyone advise if I need to take iron tablets with these results. I feel so tired. Due to see the endo on Monday but I know he might say it is in range.The blood tests are as follows: I sent the TSH, T3and t4 in a previous email. Folic acid 9.6 range e >2.7 B12 695 ng/L range 160-800ng/L MCV
Please can anyone advise if I need to take iron tablets with these results. I feel so tired. Due to see the endo on Monday but I know he might say it is in range.The blood tests are as follows: I sent the TSH, T3and t4 in a previous email. Folic acid 9.6 range e >2.7 B12 695 ng/L range 160-800ng/L MCV
cbraffe
in
Thyroid UK
7 days ago
Blood test results
I have recently had a full panel fasting blood test done, and these are the results. I would appreciate your thoughts before I make an appointment with my GP. Serum ferritin level 144 Serum iron 17.8 Serum transferrin 2.44 Iron saturation 32.3% Thank you
I have recently had a full panel fasting blood test done, and these are the results. I would appreciate your thoughts before I make an appointment with my GP. Serum ferritin level 144 Serum iron 17.8 Serum transferrin 2.44 Iron saturation 32.3% Thank you
Flora-Rose
in
Restless Legs Syndrome
12 days ago
Second opinion for my daughter (ruling out thyroid, opinion on vitamins)
17 year old daughter has complained of headaches and fatigue for years. Chalked it up to teenager, pandemic, and irregular sleeping patterns. As all those things resolved, and the headaches and fatigue didn't, I ordered bloodwork to rule out Hashis and Hypo; and hopefully pinpoint a treatment to get
17 year old daughter has complained of headaches and fatigue for years. Chalked it up to teenager, pandemic, and irregular sleeping patterns. As all those things resolved, and the headaches and fatigue didn't, I ordered bloodwork to rule out Hashis and Hypo; and hopefully pinpoint a treatment to get
FallingInReverse
in
Thyroid UK
9 months ago
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