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Irlen syndrome
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Neurology update
Good morning all. Yesterday I saw a very nice neurologist who gave me a full neurological exam (including sticking pins into me) . His conclusion was that a) I'm not a witch, and, b) I have no discernable neurological problems. He was somewhat surprised to hear that the rheum had diagnosed fibromyalgia
Good morning all. Yesterday I saw a very nice neurologist who gave me a full neurological exam (including sticking pins into me) . His conclusion was that a) I'm not a witch, and, b) I have no discernable neurological problems. He was somewhat surprised to hear that the rheum had diagnosed fibromyalgia
Linda3009
in
PMRGCAuk
5 years ago
Opiod withdrawal advice please
I'm currently rotating codeine and tramadol approximately every 4 or 5 months without any withdrawal symptoms. However I only ever use them for 5 days a week. I am considering using them every night but I'm concerned about possible withdrawal symptoms when I need to change drug.Has anyone experienced
I'm currently rotating codeine and tramadol approximately every 4 or 5 months without any withdrawal symptoms. However I only ever use them for 5 days a week. I am considering using them every night but I'm concerned about possible withdrawal symptoms when I need to change drug.Has anyone experienced
Jumpey
in
Restless Legs Syndrome
5 years ago
Advice needed please ... IVF drug protocol with low AMH
After six failed cycles of donor IUI my wife and I are moving on to IVF next month. We’ve had our drugs delivered to day and wow what a package ! My clinic have suggested 300IU fostimon then after so many days to start 150IU Meriofert with 150IU fostimon and use Testogel. My AMH is 2.1 age 35 and I’
After six failed cycles of donor IUI my wife and I are moving on to IVF next month. We’ve had our drugs delivered to day and wow what a package ! My clinic have suggested 300IU fostimon then after so many days to start 150IU Meriofert with 150IU fostimon and use Testogel. My AMH is 2.1 age 35 and I’
Amelia1984
in
Fertility Network UK
5 years ago
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BETA HCG
Hi! I had a HCG blood test done and the reading came up as 0.4.... if I was pregnant I would have been very very early. What is considered a positive 5cg? Can you start of as negative HCG and raise to Positive
Hi! I had a HCG blood test done and the reading came up as 0.4.... if I was pregnant I would have been very very early. What is considered a positive 5cg? Can you start of as negative HCG and raise to Positive
Blublu99
in
Pregnancy and Parenting Support
5 years ago
Flare
PMR, FIBRO, GCA I went down from 2mg Rayos (Prednisone) to 1mg Rayos. Wow...burning pain in buttocks, painful stiff hips, mood swings, extreme fatigue. I went back up to 2mg Rayos. Everything has gotten better except for extreme fatigue. So frustrating...now I am back to chair yoga trying to improve
PMR, FIBRO, GCA I went down from 2mg Rayos (Prednisone) to 1mg Rayos. Wow...burning pain in buttocks, painful stiff hips, mood swings, extreme fatigue. I went back up to 2mg Rayos. Everything has gotten better except for extreme fatigue. So frustrating...now I am back to chair yoga trying to improve
Dream21
in
PMRGCAuk
5 years ago
Garlic and whole wheat bread are helpful
I noticed that my wife's spaghetti sauce seemed to help my RLS. After a few weeks I realized that it was the garlic in the sauce that seems to make a difference. Garlic alone will not get me safely through the night, but when combined with 24mg of codeine, 1.5mg of ropinirole, and 200mg of gapapentin
I noticed that my wife's spaghetti sauce seemed to help my RLS. After a few weeks I realized that it was the garlic in the sauce that seems to make a difference. Garlic alone will not get me safely through the night, but when combined with 24mg of codeine, 1.5mg of ropinirole, and 200mg of gapapentin
davidadill
in
Restless Legs Syndrome
5 years ago
Magnesium supplement for RLS
I have a couple of questions regarding the above: My functional doctor recommended Magnesium Malate at bedtime for RLS, however, I have seen a few comments on here saying that it shouldn't be taken within 2 hours of medications for RLS (I currently take ropinirole and gabapentin) and I take these between
I have a couple of questions regarding the above: My functional doctor recommended Magnesium Malate at bedtime for RLS, however, I have seen a few comments on here saying that it shouldn't be taken within 2 hours of medications for RLS (I currently take ropinirole and gabapentin) and I take these between
YodaDog
in
Restless Legs Syndrome
5 years ago
So many factors no answers
I started with symptoms of RLS when I was pregnant with my daughter, but thought it was due to being off work where I was on my feet 50-60 hours a week. It went away for years and slowly came back over the next few years. I was finally diagnosed in 2004 and put on ropinirole. Boy did that help. but then
I started with symptoms of RLS when I was pregnant with my daughter, but thought it was due to being off work where I was on my feet 50-60 hours a week. It went away for years and slowly came back over the next few years. I was finally diagnosed in 2004 and put on ropinirole. Boy did that help. but then
crazylegs1963
in
Restless Legs Syndrome
5 years ago
Mary from the UK describes her combination of problems including Sjögren’s Syndrome, Non-Hodgkins Lymphoma, Lupus, and Mixed Connective Tiss
Mary from the UK describes her combination of problems including Sjögren’s Syndrome, Non-Hodgkins Lymphoma, Lupus, and Mixed Connective Tissue Disease. She suffered over two years before being prescribed LDN (Low Dose Naltrexone). Her quality of life went from a 2 to 9.5 out of 10. Her latest scans
Mary from the UK describes her combination of problems including Sjögren’s Syndrome, Non-Hodgkins Lymphoma, Lupus, and Mixed Connective Tissue Disease. She suffered over two years before being prescribed LDN (Low Dose Naltrexone). Her quality of life went from a 2 to 9.5 out of 10. Her latest scans
liveurlife
Volunteer
in
LDN Research Trust
5 years ago
Prolia medication or Similar and dental treatment
Prolia: I broke a tooth last week and my Dentist said the tooth needs to come out but he didn't want the responsability if the gum didn't heal due to me having prolia injections. I checked with my GP yesterday and she confirmed that they advise not to have any dental work. I have a referral to see an
Prolia: I broke a tooth last week and my Dentist said the tooth needs to come out but he didn't want the responsability if the gum didn't heal due to me having prolia injections. I checked with my GP yesterday and she confirmed that they advise not to have any dental work. I have a referral to see an
Angels-delight
in
NRAS
5 years ago
Homeopathic Treatment
Progress Report on my Homeopathic Treatment. I would like to tell you how I am doing now, even though on my first report two month ago I was 'booed' out of the arena by many. I have been on 20 mg Prednison since March of this year and had extreme difficulties reducing. I received lots of advise from
Progress Report on my Homeopathic Treatment. I would like to tell you how I am doing now, even though on my first report two month ago I was 'booed' out of the arena by many. I have been on 20 mg Prednison since March of this year and had extreme difficulties reducing. I received lots of advise from
km5yx7
in
PMRGCAuk
5 years ago
Getting off of Pramipexole
I was on .5 1-2x a day. Augmenting night and day, like being stung by a hundred bees. Got off of Pramipexole by getting 1st off of Tylenol, Ibuprofen, Zantac, Melatonin, all otc sleeping pills, all cold & allergy pills. Also I do take magnesium at night. 1ce a week Eszopiclone for sleep without problem
I was on .5 1-2x a day. Augmenting night and day, like being stung by a hundred bees. Got off of Pramipexole by getting 1st off of Tylenol, Ibuprofen, Zantac, Melatonin, all otc sleeping pills, all cold & allergy pills. Also I do take magnesium at night. 1ce a week Eszopiclone for sleep without problem
Arnida
in
Restless Legs Syndrome
5 years ago
Just checking in my fellow IVF peeps
I am currently on day 4 of 50units of Buserelin at the start of the 1st FET cycle. Have to go in for a baseline scan on day 2 of cycle and then probably down to 20 units of Buserelin and patches and GOD knows what else...I haven't got that far....add into the mix, I have been to see a functional medicine
I am currently on day 4 of 50units of Buserelin at the start of the 1st FET cycle. Have to go in for a baseline scan on day 2 of cycle and then probably down to 20 units of Buserelin and patches and GOD knows what else...I haven't got that far....add into the mix, I have been to see a functional medicine
Yammie1973
in
Fertility Network UK
5 years ago
Raising UK EDS-awareness: cause quite a of us 🦓s count a form of hypermobility among our comorbidities
Inquiry into treatment of Ehlers Danlos patients and its comorbidities
Ehlers-Danlos Syndromes (EDS) are part of a group of connective tissue disorders, of which there are 13 types. The most common type is hEDS, otherwise known as hypermobile Ehlers-Danlos Syndrome. This syndrome is at the top
Inquiry into treatment of Ehlers Danlos patients and its comorbidities
Ehlers-Danlos Syndromes (EDS) are part of a group of connective tissue disorders, of which there are 13 types. The most common type is hEDS, otherwise known as hypermobile Ehlers-Danlos Syndrome. This syndrome is at the top
Barnclown
in
LUPUS UK
5 years ago
Raising EDS awareness in the UK
Inquiry into treatment of Ehlers Danlos patients and its comorbidities
Ehlers-Danlos Syndromes (EDS) are part of a group of connective tissue disorders, of which there are 13 types. The most common type is hEDS, otherwise known as hypermobile Ehlers-Danlos Syndrome. This syndrome is at the top
Inquiry into treatment of Ehlers Danlos patients and its comorbidities
Ehlers-Danlos Syndromes (EDS) are part of a group of connective tissue disorders, of which there are 13 types. The most common type is hEDS, otherwise known as hypermobile Ehlers-Danlos Syndrome. This syndrome is at the top
Barnclown
in
Ehlers-Danlos Support UK
5 years ago
Alendronate Shows Promise as Maintenance Therapy for Osteoporosis
Rheumatology Network Editorial Staff September 24, 2019 The bisphosphonate alendronate (Binosto and Fosamax) can effectively maintain the gains in bone mineral density achieved with a year-long course of denosumab treatment in 91 percent of 126 patients who participated in a randomized clinical trial
Rheumatology Network Editorial Staff September 24, 2019 The bisphosphonate alendronate (Binosto and Fosamax) can effectively maintain the gains in bone mineral density achieved with a year-long course of denosumab treatment in 91 percent of 126 patients who participated in a randomized clinical trial
lupus-support1
Administrator
in
Hughes Syndrome APS Forum
5 years ago
When will our luck ever change 😔
I apologise in advance for this doom and gloom story but I am sat here now feeling like everything is crumbling in on me and I need to get it out. My husband and I finally got pregnant on our second round of IVF after 3 years. IVF being our only option to get pregnant due to me having both my tubes
I apologise in advance for this doom and gloom story but I am sat here now feeling like everything is crumbling in on me and I need to get it out. My husband and I finally got pregnant on our second round of IVF after 3 years. IVF being our only option to get pregnant due to me having both my tubes
Dotty224
in
Fertility Network UK
5 years ago
Merster here finally with some clarity
I have been fighting rls for 3 yrs now. Sometimes contemplating what kind of soution suicide might be as nothing else was relieving the horrible insomnia and daily pain and nerve sensations it was producing. I was on a low dose pain management drug ms contin until heart surgery in 2015 and thought
I have been fighting rls for 3 yrs now. Sometimes contemplating what kind of soution suicide might be as nothing else was relieving the horrible insomnia and daily pain and nerve sensations it was producing. I was on a low dose pain management drug ms contin until heart surgery in 2015 and thought
Merster
in
Restless Legs Syndrome
5 years ago
Oesophageal Dilatation Questions
Hi all I have Limited cutaneous Systemic Sclerosis and have been experiencing swallowing difficulties, certain foods get stuck in my chest and will only go down with fluids. I am seeing a gastroenterologist on Tuesday about my problems (several at the moment). I’ve read a lot about Oesophageal Dilatation
Hi all I have Limited cutaneous Systemic Sclerosis and have been experiencing swallowing difficulties, certain foods get stuck in my chest and will only go down with fluids. I am seeing a gastroenterologist on Tuesday about my problems (several at the moment). I’ve read a lot about Oesophageal Dilatation
-missymoo
in
Scleroderma & Raynaud's UK (SRUK)
5 years ago
Wanted Doctor or Endo - North East England Thyroiditis
Does anyone have any good experiences with a doctor that can look at the "whole picture" . I have issues with Thyroiditis and Extreme Fatigue .with accompanying memory difficulties and general weakness. . It has got to the stage where I am unable to work. I live in the North East of England but am willing
Does anyone have any good experiences with a doctor that can look at the "whole picture" . I have issues with Thyroiditis and Extreme Fatigue .with accompanying memory difficulties and general weakness. . It has got to the stage where I am unable to work. I live in the North East of England but am willing
smilingjane
in
Thyroid UK
5 years ago
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