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Welcome to the Down's Syndrome Support Community for support of Down's syndrome! We’re very glad you have chosen to be a part of our community. The Down's Syndrome Support community - offered by HealthUnlocked (HU) - supports individuals affected by Down's syndrome. Whether you are an individual who
Welcome to the Down's Syndrome Support Community for support of Down's syndrome! We’re very glad you have chosen to be a part of our community. The Down's Syndrome Support community - offered by HealthUnlocked (HU) - supports individuals affected by Down's syndrome. Whether you are an individual who
MaddieHU
HealthUnlocked
in
Down's Syndrome Support
5 years ago
Even more advise please!
Hi everyone, I’m trying to get off Ropinirole, I have lowered the dose over the last few days which means I am now on 0.25mg. I also started on 25mg of Pregabalin at the same time I reduced the Ropinirole. My doctor has told me to increase the Pregabalin by 25mg every week till I reach 100mg. I would
Hi everyone, I’m trying to get off Ropinirole, I have lowered the dose over the last few days which means I am now on 0.25mg. I also started on 25mg of Pregabalin at the same time I reduced the Ropinirole. My doctor has told me to increase the Pregabalin by 25mg every week till I reach 100mg. I would
Scattypatty
in
Restless Legs Syndrome
5 years ago
T3 and severe dry eye relief?
Has anyone experienced extremely severe dry eye and have you noticed that it’s linked to thyroid? Specifically, if I increase t3, will dry eye get better??
Has anyone experienced extremely severe dry eye and have you noticed that it’s linked to thyroid? Specifically, if I increase t3, will dry eye get better??
Fmljkl
in
Thyroid UK
5 years ago
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First timer - how does a short protocol work?
Hello ladies I'm brand new to this forum. After 10 unsuccessful rounds of clomid and letrozole, we have now been referred to start ivf. My nhs consultant said it would likely be a 'short protocol' due to my pcos. My question is about how the process starts if I don't have any normal cycles. From what
Hello ladies I'm brand new to this forum. After 10 unsuccessful rounds of clomid and letrozole, we have now been referred to start ivf. My nhs consultant said it would likely be a 'short protocol' due to my pcos. My question is about how the process starts if I don't have any normal cycles. From what
Mystic9
in
Fertility Network UK
5 years ago
Beds and mattresses
I’m having a terrible time sleeping. I wake up every couple of hours - sometimes even less and I know I’m tired. I’ve got the room totally darkened out and quiet. The temperature is fine too yet every night I waken over and over again. Usually I waken up really hot. I blame my mattress. At the moment
I’m having a terrible time sleeping. I wake up every couple of hours - sometimes even less and I know I’m tired. I’ve got the room totally darkened out and quiet. The temperature is fine too yet every night I waken over and over again. Usually I waken up really hot. I blame my mattress. At the moment
Fruitandnutcase
in
NRAS
5 years ago
Neupro helps a little
My sleep study doctor said my main issue affecting my sleep is restless leg. He gave me a sample of Neupro which is a patch. It helped a little bit. Last night I tried grape seed extract right at bedtime and I didn't notice my RLS as much. Hope that helped.
My sleep study doctor said my main issue affecting my sleep is restless leg. He gave me a sample of Neupro which is a patch. It helped a little bit. Last night I tried grape seed extract right at bedtime and I didn't notice my RLS as much. Hope that helped.
gage816
in
Restless Legs Syndrome
5 years ago
Withdrawal from ropinarole
I have been on ropinarole for 10 years starting at 1mg then moving on to 3mg daily. I think I started argumenting because I couldn't sleep any more. I started to wean myself of the ropinarole and got down to 1mg but couldn't go any less because the restless leg was driving me crazy. My doctor put me
I have been on ropinarole for 10 years starting at 1mg then moving on to 3mg daily. I think I started argumenting because I couldn't sleep any more. I started to wean myself of the ropinarole and got down to 1mg but couldn't go any less because the restless leg was driving me crazy. My doctor put me
Blavit
in
Restless Legs Syndrome
5 years ago
Downs screening
A friend has received her bloods back as a 1 in 170 chance. I know the freshold is 150. She missed her 14 week NT as the midwife made a mistakein her booking/dates. As she is not within the 150 she has been told that she can not have the 2nd more accurate blood test. Has anyone else had a result close
A friend has received her bloods back as a 1 in 170 chance. I know the freshold is 150. She missed her 14 week NT as the midwife made a mistakein her booking/dates. As she is not within the 150 she has been told that she can not have the 2nd more accurate blood test. Has anyone else had a result close
TT112
in
Fertility Network UK
5 years ago
My RLS has become worse!!
From all I've read here, people's RLS gets better with passing weeks of the withdrawals. For me, it has been a reverse case. While the initial weeks weren't so bad, the last week or so has been horrible. I remember even during the withdrawal period that I slept for 4hours straight or on some good days
From all I've read here, people's RLS gets better with passing weeks of the withdrawals. For me, it has been a reverse case. While the initial weeks weren't so bad, the last week or so has been horrible. I remember even during the withdrawal period that I slept for 4hours straight or on some good days
Heatherlss
in
Restless Legs Syndrome
5 years ago
Sadly we’re out at 8 weeks
Firstly congratulations to those that have made it through their early pregnancy viability scans in the past week. I have my fingers crossed things continue to go well. Sadly for us, our scan yesterday showed another MMC of twins - they measured just over 6 weeks. I have to wait until Tuesday for a
Firstly congratulations to those that have made it through their early pregnancy viability scans in the past week. I have my fingers crossed things continue to go well. Sadly for us, our scan yesterday showed another MMC of twins - they measured just over 6 weeks. I have to wait until Tuesday for a
Hidden
in
Fertility Network UK
5 years ago
Polyhydramnios at 29 weeks pregnant
Hi, Newbie here. Just looking for any real experiences of polyhydramnios pregnancy and their outcomes. I was diagnosed at 26 weeks with amniotic fluid at 97 percentile which has worried the hell out of me, especially after googling. Im terrified. Does anyone have any experience or can offer some hope
Hi, Newbie here. Just looking for any real experiences of polyhydramnios pregnancy and their outcomes. I was diagnosed at 26 weeks with amniotic fluid at 97 percentile which has worried the hell out of me, especially after googling. Im terrified. Does anyone have any experience or can offer some hope
BabyBear31
in
Pregnancy and Parenting Support
5 years ago
Livial versus generic Tibolone
Having been on Livial for many years with great results I was given generic tibolone some months back and wonder if this could be the reason for return of some symptoms particularly lack of energy and depression types symptoms?
Having been on Livial for many years with great results I was given generic tibolone some months back and wonder if this could be the reason for return of some symptoms particularly lack of energy and depression types symptoms?
Jackobee
in
Thyroid UK
5 years ago
Taken off baricitinib to try tofacitinib
Hi everyone been to the rheumatoid clinic today and the nurse has taken me off baricitinib to try these tablets instead tofacitinib has anyone been on these and had good results because iv tried nearly every tablet going and injections and nothing seems to be working 😞
Hi everyone been to the rheumatoid clinic today and the nurse has taken me off baricitinib to try these tablets instead tofacitinib has anyone been on these and had good results because iv tried nearly every tablet going and injections and nothing seems to be working 😞
Beth72
in
NRAS
5 years ago
Burning Mouth syndrome.
Can anyone help with Burning mouth syndrome? My sister has developed this problem. She has had secondary S.S for many years along with thyroid and pancreas problems and has now developed a burning mouth. Would appreciate any information on some sort of relief from this. Traveller.
Can anyone help with Burning mouth syndrome? My sister has developed this problem. She has had secondary S.S for many years along with thyroid and pancreas problems and has now developed a burning mouth. Would appreciate any information on some sort of relief from this. Traveller.
Tassa
in
The Australian Sjögren's Syndrome Association
5 years ago
More advice please!
I’m hoping that after the excellent advice I’ve already received from this Forum you will be able to help again. I previously asked for advice on coming off Ropinirole as I suffered a gambling addiction through it plus I was augmenting. Obviously all the advice was to get off Ropinirole as soon as possible
I’m hoping that after the excellent advice I’ve already received from this Forum you will be able to help again. I previously asked for advice on coming off Ropinirole as I suffered a gambling addiction through it plus I was augmenting. Obviously all the advice was to get off Ropinirole as soon as possible
Scattypatty
in
Restless Legs Syndrome
5 years ago
Seeking to talk to others with IBS FLARE UPS.
Started again with IBS pain. I have suffered from IBS FOR THE PAST 20 YEARS on and off and it is always triggered by stress. I had a severe episode in February and after a week it calmed down. Now as I am fifty years old, the stress of finding work experience in order to qualify as a Wills and Probate
Started again with IBS pain. I have suffered from IBS FOR THE PAST 20 YEARS on and off and it is always triggered by stress. I had a severe episode in February and after a week it calmed down. Now as I am fifty years old, the stress of finding work experience in order to qualify as a Wills and Probate
Roukaya
in
IBS Network
5 years ago
Do you want expert information & face-face support? Live in the SE Wales area?
Do you want expert information & face-face support? Join the S.E Wales Fertility meeting TOMORROW…on Thursday 22nd August. You will be joined by Mrs Uma Gordon which offers a fantastic opportunity to speak to an expert in the field, develop your knowledge and get some of your questions answered. Mrs
Do you want expert information & face-face support? Join the S.E Wales Fertility meeting TOMORROW…on Thursday 22nd August. You will be joined by Mrs Uma Gordon which offers a fantastic opportunity to speak to an expert in the field, develop your knowledge and get some of your questions answered. Mrs
AliceMatthews
Fertility Network UK
in
Fertility Network UK
5 years ago
Sertraline and RLS is there a connection?
I have had RLS on and off for years and taking Citalopram for depression and anxiety. I started taking an iron supplement which did eradicate the RLS at one point. I have been moved over to Sertraline from Citalopram and since then my RLS has been horrendous, like many of the posters on here I've been
I have had RLS on and off for years and taking Citalopram for depression and anxiety. I started taking an iron supplement which did eradicate the RLS at one point. I have been moved over to Sertraline from Citalopram and since then my RLS has been horrendous, like many of the posters on here I've been
K8Whit
in
Restless Legs Syndrome
5 years ago
Folic acid?
Hey ladies I’m currently having FET I have my transfer on Thursday I have a scan tomorrow as they have found a cyst in my uterus and im currently on progynova and the pessaries im just wondering if it’s okay to take folic acid while on these?? Did anyone else?
Hey ladies I’m currently having FET I have my transfer on Thursday I have a scan tomorrow as they have found a cyst in my uterus and im currently on progynova and the pessaries im just wondering if it’s okay to take folic acid while on these?? Did anyone else?
Jess1404
in
Fertility Network UK
5 years ago
Baclofen
In addition to RLS I have a very painful (nerve) condition which I be also been taking Gabapentin for. My nerve pain has gotten seriously out of control even with the Gabapentin so I want to see if Baclofen will work better. In order to start the Baclofen I have to first wean down the Gabapentin. Does
In addition to RLS I have a very painful (nerve) condition which I be also been taking Gabapentin for. My nerve pain has gotten seriously out of control even with the Gabapentin so I want to see if Baclofen will work better. In order to start the Baclofen I have to first wean down the Gabapentin. Does
marsha2306
in
Restless Legs Syndrome
5 years ago
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