I apologise in advance for this doom and gloom story but I am sat here now feeling like everything is crumbling in on me and I need to get it out.
My husband and I finally got pregnant on our second round of IVF after 3 years. IVF being our only option to get pregnant due to me having both my tubes removed 5 years ago. From the minute I found out I was pregnant I have been a paranoid wreck. Get to the 12 week scan and our screening came back with a high chance of baby having Down syndrome so had to endure an amniocentesis to confirm which came back negative. After that result I finally started to relax into the pregnancy naively thinking we were safe. Along comes the 20 week scan and they tell me our little boy has a cleft lip and a diaphragmatic hernia. Multiple appointments later and so far the findings are that he have a cleft lip and possible palate, left sided diaphragmatic hernia with his liver and bowel in his chest, a hole in his heart and on reading the hospital paperwork abnormalities with his brain!
We are back tomorrow to scan his lungs but prognosis isn’t looking great for him. I just don’t understand why we are being put through this hell when all we want is to become a family. I am starting to feel like it’s never going to happen for us. My whole world is crumbling apart and I just don’t know what to do 😔
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Dotty224
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Yes family and friends are great but almost feel like they are treading on egg shells around me. My boss has been extremely supportive which has made things easier with not having to worry about work. I feel like I’m going to have to ask for counselling tomorrow because it’s beginning to get too much xx
Oh gosh what a terribly difficult time especially after such a fight to get pregnant in the first place.
As everyone else says - do you have any support? Can you get counselling style support from the hospital? This is a LOT to take in, process and deal with and I really hope you and OH haven't just been left on your own to deal with it.
Hiya, I believe we can they haven’t mentioned it to us yet but will ask tomorrow. I was trying to go as long as I could without having to ask but everything really is starting to get too much. To closer I get to my due date the more it’s breaking me xx
Oh Dotty I’m so sorry. This must be such a difficult time, I can’t even imagine what you are going through. I really hope you’ve got a good support system around you, and we are always here when you need to get everything out. Sending you lots of love x
I’m so sorry that you are going through this. I can’t even begin to imagine how hard all this must be for you to deal with. Life can feel so utterly cruel sometimes. Counselling sounds like a really good idea. Sending you love and hugs xxx
I hope you have family and friends support around you in this difficult time. Also I hope that you can get some sensible answers from the clinicians to understand each piece of information and what this means and that they are taking time to explain everything to you. Ask them as many questions as you possibly can.
Friends and family are great however feel like they are tip toeing around me. My best friend is due 10 days before me also so think she’s finding it a bit difficult. I have a list as long as my arm for them today xx
I’m so sorry you’re going through such a difficult time 😔 be kind to yourself and I would definitely look in to counselling if you can. You have all of our support here 💕
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Low AMH Hope... Our Miracle is here! **Sensitive**
Wish me luck!
Think we made a decision ☹
When does the worry end?!
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