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Irlen syndrome
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Positive rheumatoid factor
After being back on forth to doctors for test and rheumatology for over 2 years and getting nowhere. I rang up the doctors today to ask if they'd do blood tests as my knees have flared up. She checked my records and told me I had a positive rheumatoid factor tests in 2019, what could this mean? She told
After being back on forth to doctors for test and rheumatology for over 2 years and getting nowhere. I rang up the doctors today to ask if they'd do blood tests as my knees have flared up. She checked my records and told me I had a positive rheumatoid factor tests in 2019, what could this mean? She told
Kels1974
in
NRAS
3 years ago
FET with a hemorrhagic cyst - any similar stories?
Hello. I had my baseline scan for my upcoming FET the other day. This will be my 3rd FET this year, the first two failed. This time they found a large looking blood filled cyst on one of my ovaries. Apparently it can happen after ovulation, it just fills with blood and can go away over time. The doc
Hello. I had my baseline scan for my upcoming FET the other day. This will be my 3rd FET this year, the first two failed. This time they found a large looking blood filled cyst on one of my ovaries. Apparently it can happen after ovulation, it just fills with blood and can go away over time. The doc
IVFmumma
in
Fertility Network UK
3 years ago
Upcoming Appointment
Hello, fellow RLS'ers, This is actually my first post; I've been a member of our community for 3 1/2, and years have learned a lot in that time. I'm a 60yo male who lives in the US; I've had RLS for 20+ years but really didn't get to the point of needing medication until about 15 years ago, although
Hello, fellow RLS'ers, This is actually my first post; I've been a member of our community for 3 1/2, and years have learned a lot in that time. I'm a 60yo male who lives in the US; I've had RLS for 20+ years but really didn't get to the point of needing medication until about 15 years ago, although
Wys801
in
Restless Legs Syndrome
3 years ago
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Would be interested in others experience with tolerance to gabapentin
I was on 1400 mg gabapentin for 58 days which completely eliminated my restless legs, but then had to increase it to 1500 mg because of restless legs. I have now been on this for 45 days and last night had restless legs. I take it 300 mg at 5:15, 600 mg at 7:15 and 600 mg at 9:15. If I continue to have
I was on 1400 mg gabapentin for 58 days which completely eliminated my restless legs, but then had to increase it to 1500 mg because of restless legs. I have now been on this for 45 days and last night had restless legs. I take it 300 mg at 5:15, 600 mg at 7:15 and 600 mg at 9:15. If I continue to have
SueJohnson
in
Restless Legs Syndrome
3 years ago
Short FET IVF cycle, no down-regulation only progynova
Hi everyone, advice needed please… I’ve had a failed fresh transfer and a failed frozen transfer ending in chemical pregnancy. My next option is to go into another frozen transfer on a short protocol with no down regulation. Has anyone had any experience of a shorter frozen protocol? It’s great to have
Hi everyone, advice needed please… I’ve had a failed fresh transfer and a failed frozen transfer ending in chemical pregnancy. My next option is to go into another frozen transfer on a short protocol with no down regulation. Has anyone had any experience of a shorter frozen protocol? It’s great to have
Char2383
in
Fertility Network UK
3 years ago
RLS relief
I was participating in a site like this years ago and did find it beneficial. I am new to this one and looking forward to hearing your thoughts, remedies, advice and any other info you have on RLS. I was diagnosed with RLS 20 years ago. I, as well as, my wife, have had many sleepless nights. I used
I was participating in a site like this years ago and did find it beneficial. I am new to this one and looking forward to hearing your thoughts, remedies, advice and any other info you have on RLS. I was diagnosed with RLS 20 years ago. I, as well as, my wife, have had many sleepless nights. I used
skore50
in
Restless Legs Syndrome
3 years ago
RLS temporary relief suggestion
Hi all, I suffer with RLS for years but my GP has avoided prescribing medication. However, I have tried few different things to get a relief from legs kicking off, but nothing worked good enough to get a decent sleep. I want to share with you a heat rub lotion that I’ve been using it for few months
Hi all, I suffer with RLS for years but my GP has avoided prescribing medication. However, I have tried few different things to get a relief from legs kicking off, but nothing worked good enough to get a decent sleep. I want to share with you a heat rub lotion that I’ve been using it for few months
laviniaLavi
in
Restless Legs Syndrome
3 years ago
PA survey
Just completed the latest survey. Top 10 important things gor future research. The only thing i couldn't answer properly ad there wasn't an option. That is untested for IFA so assumed Ifa neg but needing very frequent b12 Injections . Then at the end how long since your diagnosis of PA or other
Just completed the latest survey. Top 10 important things gor future research. The only thing i couldn't answer properly ad there wasn't an option. That is untested for IFA so assumed Ifa neg but needing very frequent b12 Injections . Then at the end how long since your diagnosis of PA or other
Nackapan
in
Pernicious Anaemia Society
3 years ago
Magnesium and heat and Pregabalin
From my research it seems that Magnesium Oxybate is the interaction problem, and I am supposing not other forms of magnesium? Second query: I have stored some Pregabalin in my car glove compartment for emergencies and now have to take them waiting for a renewal and I am wondering if heat can affect
From my research it seems that Magnesium Oxybate is the interaction problem, and I am supposing not other forms of magnesium? Second query: I have stored some Pregabalin in my car glove compartment for emergencies and now have to take them waiting for a renewal and I am wondering if heat can affect
wantokporo
in
Restless Legs Syndrome
3 years ago
Silicone bracelet
I bought a red silicone steroid dependent bracelet which arrived yesterday. And then I learned that I'm allergic to silicone! Anyone who wants it, pleas PM me.
I bought a red silicone steroid dependent bracelet which arrived yesterday. And then I learned that I'm allergic to silicone! Anyone who wants it, pleas PM me.
ChrisinNam
in
PMRGCAuk
3 years ago
Albuterol
Hi, Does albuterol sulfate impact RLS? I was prescribed it for COVID but I am always nervous.
Hi, Does albuterol sulfate impact RLS? I was prescribed it for COVID but I am always nervous.
Megamania
in
Restless Legs Syndrome
3 years ago
Update on cataract op and Flecainide
I posted recently about a comment my surgeon made after my first cataract op when he said that Flecainide had made the first op slightly more awkward than normal. Today I had my second review and asked him for more detail. He said that Flecainide makes the central black part of the eye 'floppy' and
I posted recently about a comment my surgeon made after my first cataract op when he said that Flecainide had made the first op slightly more awkward than normal. Today I had my second review and asked him for more detail. He said that Flecainide makes the central black part of the eye 'floppy' and
Finvola
in
AF Association
3 years ago
New here—coming off ropinirole
Found this forum at 4am…you all know the drill! Diagnosed with RLS through a sleep study (performed because of insomnia and shallow sleep/frequent wakes) Jan 2020. Doc (who I am no longer seeing) prescribed 4mg of ropinirole daily, which I now know is a bonkers dose to start with. Once I figured out
Found this forum at 4am…you all know the drill! Diagnosed with RLS through a sleep study (performed because of insomnia and shallow sleep/frequent wakes) Jan 2020. Doc (who I am no longer seeing) prescribed 4mg of ropinirole daily, which I now know is a bonkers dose to start with. Once I figured out
Frustrated-RLS
in
Restless Legs Syndrome
3 years ago
Pramipexole & RLS
Hi, I have had RLS for a very long time, over 25 years I am 72 now, I worked as a printer on night shift for40 years, I am retired now I do not sleep much at night with my legs and arms on the move, I have found over the years when my RLS gets really bad, to get up and do something physical, no way can
Hi, I have had RLS for a very long time, over 25 years I am 72 now, I worked as a printer on night shift for40 years, I am retired now I do not sleep much at night with my legs and arms on the move, I have found over the years when my RLS gets really bad, to get up and do something physical, no way can
Barrylegs
in
Restless Legs Syndrome
3 years ago
Medication review
I have decided to ask my GP for a medication review after having too many nights with horrendous rls and concerns about the amount of medication I take and the suspicious that my surgery practice hands out tablets like smarties. I would appreciate any advice I could say to my GP over a telephone consultation
I have decided to ask my GP for a medication review after having too many nights with horrendous rls and concerns about the amount of medication I take and the suspicious that my surgery practice hands out tablets like smarties. I would appreciate any advice I could say to my GP over a telephone consultation
Hoochybaby
in
Restless Legs Syndrome
3 years ago
Eustachian tube disfunction and Sjogren's? Anyone have this and any useful tips on dealing with it?
Hello All, wondering if you can help me? I have SLE & Sjogren's. Have had the dry eyes for several years and now in the past few months developed a dry mouth and blocked left ear & nostril. Also have tingling & numbness on the left side of the face which is being investigated - maybe trigreminal neuralgia
Hello All, wondering if you can help me? I have SLE & Sjogren's. Have had the dry eyes for several years and now in the past few months developed a dry mouth and blocked left ear & nostril. Also have tingling & numbness on the left side of the face which is being investigated - maybe trigreminal neuralgia
gemim
in
LUPUS UK
3 years ago
Tramadol
Would like to hear about anyone’s experience with Tramadol. I have had Zero luck with all the regular meds for rls. I just have so many side effects. I was having some luck with Tramadol and would only take if rls got real bad, but the last time it GAVE me restless legs! Not only that but it made
Would like to hear about anyone’s experience with Tramadol. I have had Zero luck with all the regular meds for rls. I just have so many side effects. I was having some luck with Tramadol and would only take if rls got real bad, but the last time it GAVE me restless legs! Not only that but it made
Nosleepatall
in
Restless Legs Syndrome
3 years ago
Anyone have face vibrations on lyrica
I was on 1500 mg gabapentin and just switched to 250 mg of lyrica which is 1/6 the gabapentin which worked. But now I have face vibrations and then restless legs. It don't understand why that amount of lyrica doesn't work when it is the equivalent of the 1500 mg of gabapentin that does.
I was on 1500 mg gabapentin and just switched to 250 mg of lyrica which is 1/6 the gabapentin which worked. But now I have face vibrations and then restless legs. It don't understand why that amount of lyrica doesn't work when it is the equivalent of the 1500 mg of gabapentin that does.
SueJohnson
in
Restless Legs Syndrome
3 years ago
Why Am I Taking Butyrate?
A lot of us take a number of supplements. This thread is to make the case for Butyric Acid - Butyrate. I started taking it because some guy on another forum said Niacin and Butyrate "cured" his Parkinson's, and then later I noticed he was self diagnosed. This does not mean he was wrong. So please, anybody
A lot of us take a number of supplements. This thread is to make the case for Butyric Acid - Butyrate. I started taking it because some guy on another forum said Niacin and Butyrate "cured" his Parkinson's, and then later I noticed he was self diagnosed. This does not mean he was wrong. So please, anybody
Bolt_Upright
in
Cure Parkinson's
3 years ago
SIBO and Elevated Liver Enzymes
I have had gastro issues the last two months after using a proton pump inhibitor in May and was finally diagnosed with SIBO on Monday. My GI started me on Rifaximin and Neomycin last night. She did a liver function panel test before I started on the antibiotics and the AST was 52 and the ALT was 73.
I have had gastro issues the last two months after using a proton pump inhibitor in May and was finally diagnosed with SIBO on Monday. My GI started me on Rifaximin and Neomycin last night. She did a liver function panel test before I started on the antibiotics and the AST was 52 and the ALT was 73.
Pain12345
in
Pernicious Anaemia Society
3 years ago
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