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recommendations for nhs endo please?
Hi forum friends I went to my gp Friday to see what help I might get re my thyroid now and also if I might see a haematologist re high serum iron but low ferritin (28 …5-204) I didnt get many answers as he concentrated on a current kidney issue I have so he’s booked me another face to face 30/1 to
Hi forum friends I went to my gp Friday to see what help I might get re my thyroid now and also if I might see a haematologist re high serum iron but low ferritin (28 …5-204) I didnt get many answers as he concentrated on a current kidney issue I have so he’s booked me another face to face 30/1 to
Starseed56
in
Thyroid UK
7 months ago
DO YOUR RESEARCH. Cure yourself.
PXN21 has worked wonders for all my symptoms. I have been having symptoms of Parkinson’s/IBS for several years now which have progressively gotten worse. Now mind you I’ve never been diagnosed with anything, the key thing is catching all these things early and treating them, not just treating the symptoms
PXN21 has worked wonders for all my symptoms. I have been having symptoms of Parkinson’s/IBS for several years now which have progressively gotten worse. Now mind you I’ve never been diagnosed with anything, the key thing is catching all these things early and treating them, not just treating the symptoms
pdefa
in
Cure Parkinson's
7 months ago
Does anyone have any direct experience of Targinact?
Hi Everyone, this is my first post but I've been reading everything on this forum for a while now. I'm in real trouble with augmentation after taking ropinirole for 11 years. I successfully tapered off and was completely free of it by April 2023, however the RLS remained severe, and in October I decided
Hi Everyone, this is my first post but I've been reading everything on this forum for a while now. I'm in real trouble with augmentation after taking ropinirole for 11 years. I successfully tapered off and was completely free of it by April 2023, however the RLS remained severe, and in October I decided
Claire_lc
in
Restless Legs Syndrome
7 months ago
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Update: x-ray shock 😲
Just an update after my bood test shower hf.I am still waiting on the echo. I was to have a chest x-ray. I mentioned back pain so I got both done. Chest x-ray was fine. The back x-ray was late!! Mmm Turns out I have a blocked artery in my left hip. Along with the heart meds, I also now am given aspirin
Just an update after my bood test shower hf.I am still waiting on the echo. I was to have a chest x-ray. I mentioned back pain so I got both done. Chest x-ray was fine. The back x-ray was late!! Mmm Turns out I have a blocked artery in my left hip. Along with the heart meds, I also now am given aspirin
Kristi74
in
British Heart Foundation
7 months ago
Aspirin-induced gastritis and gastrointestinal bleeding
I haven’t taken an 81 mg coated aspirin every day for 18 years. Last month my doctor noticed that my iron level had dipped down to 16 from 64 in previous years. She suggested that I was having internal bleeding. Over the last couple years I’ve lived with stomach pain. Often just a two out of 10
I haven’t taken an 81 mg coated aspirin every day for 18 years. Last month my doctor noticed that my iron level had dipped down to 16 from 64 in previous years. She suggested that I was having internal bleeding. Over the last couple years I’ve lived with stomach pain. Often just a two out of 10
Thick_Blood
in
Hughes Syndrome APS Forum
7 months ago
Iron infusion flopped
Iron infusion flopped After my second iron infusion my serum ferritin catapulted from 55 to 588! Unfortunately, it did not stop the “bleed through”. Horizant, which is supposed to last 24 hours only controls my RLS for about 16 to 18 hours and then I get symptom bleed through. I was hoping that at
Iron infusion flopped After my second iron infusion my serum ferritin catapulted from 55 to 588! Unfortunately, it did not stop the “bleed through”. Horizant, which is supposed to last 24 hours only controls my RLS for about 16 to 18 hours and then I get symptom bleed through. I was hoping that at
tagaxel
in
Restless Legs Syndrome
4 months ago
additional test results
Hi, After my initial blood tests (listed in my previous post) 2 weeks ago showed hypothyroidism and iron deficient anemia my gp ordered some additional tests to establish the cause. These were taken at 8:45am in the morning fasted. Please could you help me interpret what they mean? If they are ‘normal
Hi, After my initial blood tests (listed in my previous post) 2 weeks ago showed hypothyroidism and iron deficient anemia my gp ordered some additional tests to establish the cause. These were taken at 8:45am in the morning fasted. Please could you help me interpret what they mean? If they are ‘normal
Phoenix_24
in
Thyroid UK
7 months ago
Ropinerol withdrawal.... what now?
So after 15 years I'm off Requip. I'm now 4 days in with zero meds for RLS. A few contradictions of how long it takes to fully leave your system, however, I was hoping that my RLS would magically disappear along with my meds. Unfortunately, thats not been the case. Cannabis didn't help, it just left
So after 15 years I'm off Requip. I'm now 4 days in with zero meds for RLS. A few contradictions of how long it takes to fully leave your system, however, I was hoping that my RLS would magically disappear along with my meds. Unfortunately, thats not been the case. Cannabis didn't help, it just left
Boofoo71
in
Restless Legs Syndrome
7 months ago
Heme vs Non-Heme Iron Supplements
Since being diagnosed with low ferritin three months ago, I've been on ferrous sulfate tablets (1 - 65mg along with 500 mg vitamin C twice a day with meals). It's been working fine (went from 11 to 45 in a month) without any side effects. However, early on, I purchased a bottle of Three Arrows Heme after
Since being diagnosed with low ferritin three months ago, I've been on ferrous sulfate tablets (1 - 65mg along with 500 mg vitamin C twice a day with meals). It's been working fine (went from 11 to 45 in a month) without any side effects. However, early on, I purchased a bottle of Three Arrows Heme after
ReallyWondering
in
Thyroid UK
4 months ago
My journey to date
I want to thank everyone who has taken the time and interest to advise me on dealing with my RLS. To update, I am fortunate to live near a clinic that deals with movement disorders and have begun seeing a specialist who treats RLS. She has prescribed gabapentin- didn’t work- and now has me on pregabalin
I want to thank everyone who has taken the time and interest to advise me on dealing with my RLS. To update, I am fortunate to live near a clinic that deals with movement disorders and have begun seeing a specialist who treats RLS. She has prescribed gabapentin- didn’t work- and now has me on pregabalin
MountainWanderer
in
Restless Legs Syndrome
7 months ago
Latest results and problems raising dose
TL;DR - should I continue to try increasing my NDT dose slightly (from 1.75 to 2 grains per day, split dosing) based on the test results below, though I am getting some symptoms after increase (mild anxiety, hot flushes and sweats, and palpitations)? Further info/details below the results Inflammation
TL;DR - should I continue to try increasing my NDT dose slightly (from 1.75 to 2 grains per day, split dosing) based on the test results below, though I am getting some symptoms after increase (mild anxiety, hot flushes and sweats, and palpitations)? Further info/details below the results Inflammation
FoggyThinker
in
Thyroid UK
7 months ago
Test results - please advise
Hi everyone, Can I please ask your thoughts on my last test results? TSH: 2.77 mU/l (Range 0.35 - 5.5) 46.99% FT4: 9 pmol/l (Range 9 - 23) 0.00% FT3: 4.7 pmol/l (Range 3.5 - 6.5) 40.00% Vitamin D is still at 87 nmol/L (50nmol/L - sufficiency) , while on
Hi everyone, Can I please ask your thoughts on my last test results? TSH: 2.77 mU/l (Range 0.35 - 5.5) 46.99% FT4: 9 pmol/l (Range 9 - 23) 0.00% FT3: 4.7 pmol/l (Range 3.5 - 6.5) 40.00% Vitamin D is still at 87 nmol/L (50nmol/L - sufficiency) , while on
Dandelions
in
Thyroid UK
7 months ago
b12 keeps dropping ferritin
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
Hi Friends, Has anyone had success raising and maintaining ferritin after it dropped from b12 injections? I first caught the iron issue in October, after shots all last summer. I tried many supplements until landing on the least bad offender to my stomach. I got my ferritin to 33, but it dropped
MuppDog
in
Pernicious Anaemia Society
4 months ago
Stopping iron supplement
Hi all hope everyone is well. I am going to have a iron blood test. How many days before the test do i stop my iron supplement?
Hi all hope everyone is well. I am going to have a iron blood test. How many days before the test do i stop my iron supplement?
giggy63
in
Thyroid UK
4 months ago
changing from Armour to levo
Hi all I take armour thyroid and have done for over 10 yrs now. I was originally prescribed this by a private doctor but further down the rd I found a way to buy Armour myself so I self medicate. I test my levels regularly (probably every 4-6 months) and I’ve felt in a good place for years. That’s
Hi all I take armour thyroid and have done for over 10 yrs now. I was originally prescribed this by a private doctor but further down the rd I found a way to buy Armour myself so I self medicate. I test my levels regularly (probably every 4-6 months) and I’ve felt in a good place for years. That’s
Tweetypie28
in
Thyroid UK
7 months ago
Transitioning from NDT to T3 (slowly) - anyone done this? Or combines NDT with t3?
Hello there, After many years unsuccessfully on Levo, then NDT, NDT+T4, I'm trying NDT and T3...and it's tricky. My timing might be incorrect, I take now 3 daily doses and I'm feeling overmedicated in the afternoon (tight chest, dizzy, weird energy, hunger, sweaty feet, blurry vision etc.). I take
Hello there, After many years unsuccessfully on Levo, then NDT, NDT+T4, I'm trying NDT and T3...and it's tricky. My timing might be incorrect, I take now 3 daily doses and I'm feeling overmedicated in the afternoon (tight chest, dizzy, weird energy, hunger, sweaty feet, blurry vision etc.). I take
Incoguto
in
Thyroid UK
7 months ago
iron panel test
Would it be best to do iron panel test as I am now free of B12 and b complex or start taking them and then do?
Would it be best to do iron panel test as I am now free of B12 and b complex or start taking them and then do?
Fluffyone
in
Pernicious Anaemia Society
7 months ago
How reliably does NHS retest Blood iron levels after IV Iron?
my new NHS gastroenterologist ordered my iron infusion when my GP alerted her to what they are calling complex iron deficiency blood test results, some longstanding. I was given Ferinject on April 11th. The infusion appointment letter says: the physician who is looking after you may follow up with
my new NHS gastroenterologist ordered my iron infusion when my GP alerted her to what they are calling complex iron deficiency blood test results, some longstanding. I was given Ferinject on April 11th. The infusion appointment letter says: the physician who is looking after you may follow up with
Barnclown
in
Restless Legs Syndrome
4 months ago
So many supplements!
I take so many supplements now that sometimes i feel like i'm going to rattle! 😂 I keep adding more and more so i wanted to check that i'm not messing up with timings and supplements taken together. The timings of the ones i take during the day are because of my breaks at work, so i tend to try and
I take so many supplements now that sometimes i feel like i'm going to rattle! 😂 I keep adding more and more so i wanted to check that i'm not messing up with timings and supplements taken together. The timings of the ones i take during the day are because of my breaks at work, so i tend to try and
catpurple7
in
Thyroid UK
4 months ago
Second blood test - subclinical? Please help!
Hello, I posted here a while ago with results from a Monitor My Health blood test and got some really helpful replies. It was also suggested that I do a full test to get a better picture so I did the Medichecks Advanced Thyroid Function Blood Test and have just got the results - they are saying I may
Hello, I posted here a while ago with results from a Monitor My Health blood test and got some really helpful replies. It was also suggested that I do a full test to get a better picture so I did the Medichecks Advanced Thyroid Function Blood Test and have just got the results - they are saying I may
littlebluegnome
in
Thyroid UK
7 months ago
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