recommendations for nhs endo please?: Hi forum... - Thyroid UK

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recommendations for nhs endo please?

Starseed56 profile image
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Hi forum friends

I went to my gp Friday to see what help I might get re my thyroid now and also if I might see a haematologist re high serum iron but low ferritin (28 …5-204)

I didnt get many answers as he concentrated on a current kidney issue I have so he’s booked me another face to face 30/1 to focus on thyroid. He asked why I’d seen an alternative doctor and not an endo and I agreed was probably a mistake but she’d been recommended, and at least she was the Erfa pathway. He’s happy to refer me to a private or nhs endo and I thought I’d give it a try preferably nhs first see how I get on. I explained I’m having palpitations and lots of breathlessness which had worsened over the years. He’s sending me for ECG Monday . I do also have a family history of heart issues on both sides so probably good to get it checked as am 67.

So question 1. Please can forum members message me privately with good nhs endos in the SE Kent area so I can hopefully get a good referral. Would/could I benefit from seeing an endo? 🤔

Question 2 is re my bloods. My ferritin was 27 in 2022 and 28 in 2023. After I’d been eating beef for a whole year. GP was dismissive of blood tests for ferritin says it can go up or down for many reasons. 🤷‍♀️. Didn’t think it important in my profile tho I said it’s one of the four important factors for good thyroid function as I’ve learned here! Led me to wonder why test it if that’s the case?! I was veggie for nearly 40 years, can’t stand thought of chicken liver I’m afraid. What do you make of his comment and what else could I eat that may raise ferritin?

I’ve gone back to juicing daily to try and get goodness right into my cells which may help my very low energy.

I am now taking 120mg of Erfa a day split in two doses one usually in night and one at some point away from meals in the day. I seem to be assimilating this rise ok, tho for reasons I won’t go into I’m doing very little in the day at the moment, soon as I do a bit more I get knocked back with tiredness.

I guess if I got to see a good endo I won’t be lucky enough to get Erfa prescribed so may have to revert to Levo and some T3 not sure how that change might affect me as switching over to Erfa was tortuous in the beginning til I got to a reasonable dose level.

the Erfa costs me about £70 a month not easy on a pension but I’ll keep going if no alternatives. At least I can get direct from Roseway without the private doctor again learned here, thanks!

Thanks for reading this sorry it’s a bit long! 💜

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SlowDragon profile image
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Any recommendations by private messages only please

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Please write new post with results when you get them 6-8 weeks after latest dose increase

Kidney issue?

Poor kidney function directly linked to being hypo

As is low ferritin

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists who will prescribe T3 or a few that consider NDT

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

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