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How do I know if I have PA?
My issues with B12 only came to light after booking an iron infusion with Dr. Klein earlier this year. He asked me to stop taking any b vits for a month prior to my blood test. After 3 weeks of not taking B12 and other b complex supplements my health rapidly deteriorated. I became weaker by the day
My issues with B12 only came to light after booking an iron infusion with Dr. Klein earlier this year. He asked me to stop taking any b vits for a month prior to my blood test. After 3 weeks of not taking B12 and other b complex supplements my health rapidly deteriorated. I became weaker by the day
Krysagnes
in
Pernicious Anaemia Society
8 days ago
Iron infusions
Has anyone got information on how much iron infusions cost in other (cheap to fly to!) countries? Thanks
Has anyone got information on how much iron infusions cost in other (cheap to fly to!) countries? Thanks
Kitty7979
in
Thyroid UK
8 days ago
Weight Loss Advice
I know this is a topic that drives us all mad lol but any advice is welcome.I was a long distance runner before I had my 5th child and then 11 months later diagnosed with Hasimotos. I gained 3 stone after the pregnancy before diagnosis. I have lost 2 stone but this last stone does not shift no matter
I know this is a topic that drives us all mad lol but any advice is welcome.I was a long distance runner before I had my 5th child and then 11 months later diagnosed with Hasimotos. I gained 3 stone after the pregnancy before diagnosis. I have lost 2 stone but this last stone does not shift no matter
Jutokids
in
Thyroid UK
8 days ago
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Post Covid B12 and Vitamin D crash
Hi,I have had multiple health problems since my first bout of Covid in 2022, and blood panels revealed low B12, D and very low ferritin (11). I started having B12 injections and got my ferritin to 159 and my folate up to 45 from 5. I was feeling healthy and many of my symptoms had stopped. I had been
Hi,I have had multiple health problems since my first bout of Covid in 2022, and blood panels revealed low B12, D and very low ferritin (11). I started having B12 injections and got my ferritin to 159 and my folate up to 45 from 5. I was feeling healthy and many of my symptoms had stopped. I had been
Skater21
in
Pernicious Anaemia Society
8 days ago
A night in the life of RLS
Hi All Just wanted to post an update following all of the helpful comments: Contacted pain clinic about referral to neurology- that has been actioned but will take time. GP has issued blood tests to check ferritin - last reading was 117 in March. I have increased Pregabalin to 100mg with iron supplement
Hi All Just wanted to post an update following all of the helpful comments: Contacted pain clinic about referral to neurology- that has been actioned but will take time. GP has issued blood tests to check ferritin - last reading was 117 in March. I have increased Pregabalin to 100mg with iron supplement
careerSquirrel
in
Restless Legs Syndrome
8 days ago
Creating a Framework for Treating Autoimmune Gastritis—The Case for Replacing Lost Acid
A paper from Bruce Wolffenbuttel and colleagues, released last February https://www.mdpi.com/2072-6643/16/5/662 Conclusion: [i]"Autoimmune gastritis is not a gastritis that needs acid suppression; rather, it may benefit from acid supplementation. The loss of stomach acid in AIG precedes nutrient deficiencies
A paper from Bruce Wolffenbuttel and colleagues, released last February https://www.mdpi.com/2072-6643/16/5/662 Conclusion: [i]"Autoimmune gastritis is not a gastritis that needs acid suppression; rather, it may benefit from acid supplementation. The loss of stomach acid in AIG precedes nutrient deficiencies
Technoid
in
Pernicious Anaemia Society
8 days ago
Iron infusion
I've been si eod for 18mnths now, I have had blood tests to keep an eye on ferritin, iron and folate every 4/5 months in that time,the results are checked by a private Dr who diagnosed me with PA after months of back and forth to gp feeling awful ( PA runs in the family)My iron has depleted now so I
I've been si eod for 18mnths now, I have had blood tests to keep an eye on ferritin, iron and folate every 4/5 months in that time,the results are checked by a private Dr who diagnosed me with PA after months of back and forth to gp feeling awful ( PA runs in the family)My iron has depleted now so I
Charlie27612
in
Pernicious Anaemia Society
9 days ago
Iron supplements
Does anyone take iron supplements to help with energy levels? Don't know what the right thing to do is as some endo websites say don't take iron and some say do take iron
Does anyone take iron supplements to help with energy levels? Don't know what the right thing to do is as some endo websites say don't take iron and some say do take iron
Bash86
in
Endometriosis UK
9 days ago
So, reversing out. Why?
I have read all about reversing out symptoms after having iron infusion and starting B12 injections. But can anyone tell me why we get these symptoms. What is the science behind it? Surely healing should get easier, not worse. Just interested to know why we go backwards before recovery.
I have read all about reversing out symptoms after having iron infusion and starting B12 injections. But can anyone tell me why we get these symptoms. What is the science behind it? Surely healing should get easier, not worse. Just interested to know why we go backwards before recovery.
Chickens44
in
Pernicious Anaemia Society
10 days ago
T3 toxicity
Hi, I wonder if anyone could tell me whether it’s possible for T3 to simply ‘not agree’ with me? I’ve posted here before and got lots of great advice. My numbers previously showed me mid range through all the thyroid numbers but not converting well to T3. I was advised to take selenium and zinc
Hi, I wonder if anyone could tell me whether it’s possible for T3 to simply ‘not agree’ with me? I’ve posted here before and got lots of great advice. My numbers previously showed me mid range through all the thyroid numbers but not converting well to T3. I was advised to take selenium and zinc
Peril1504
in
Thyroid UK
10 days ago
RLS pain
Pain reported in association with RLS is the red headed step child of symptoms. I believe it is under reported, often misdiagnosed and not taken seriously by doctors and even by fellow RLS sufferers who experience no pain. We have enough evidence to know that RLS pain symptoms (like restlessness) occur
Pain reported in association with RLS is the red headed step child of symptoms. I believe it is under reported, often misdiagnosed and not taken seriously by doctors and even by fellow RLS sufferers who experience no pain. We have enough evidence to know that RLS pain symptoms (like restlessness) occur
ziggypiggy
in
Restless Legs Syndrome
10 days ago
iron tests
my iron blood tests results are as follows : Ferritin =73. ng/ml Folic acid =11.3 ng/ml Iron =113. ug/dl Do I need to take iron supplement. ? For aching/ restless legs at night. I will be grateful for recommendations
my iron blood tests results are as follows : Ferritin =73. ng/ml Folic acid =11.3 ng/ml Iron =113. ug/dl Do I need to take iron supplement. ? For aching/ restless legs at night. I will be grateful for recommendations
Tennis52
in
Restless Legs Syndrome
11 days ago
Low ferritin
I was diagnosed with PV in November 2020. Initially, I had a few phlebotomies to reduce my hematocrit but thankfully I've passed my last three blood tests and haven't had one since January 2023. I take aspirin, a spoonful of cod liver oil and half a tin of grapefruit every day to keep my haematocrit
I was diagnosed with PV in November 2020. Initially, I had a few phlebotomies to reduce my hematocrit but thankfully I've passed my last three blood tests and haven't had one since January 2023. I take aspirin, a spoonful of cod liver oil and half a tin of grapefruit every day to keep my haematocrit
M1ndMyB100d
in
MPN Voice
11 days ago
advice about intravenous iron
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
Divii
in
Cure Parkinson's
12 days ago
advice about iron infusion
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels has fallen quite a lot from 11.1 gm% in Jan 2024. Restless legs increasing too. have terrible constipation; my gut muscles slower than an Aged tortoise
Divii
in
Pernicious Anaemia Society
12 days ago
RLS in legs and arms
RLS in legs and arms for 3 years. Tried Mirapex, Gabapentin, Pregabalin which all made me feel horrible so discontinued. Tried Acupuncture, Homeopathic, Naturopathid remedies. All seemed to work for awhile then not. Yoga helps as does walking at night when I cannot sleep because of the RLS. Only get
RLS in legs and arms for 3 years. Tried Mirapex, Gabapentin, Pregabalin which all made me feel horrible so discontinued. Tried Acupuncture, Homeopathic, Naturopathid remedies. All seemed to work for awhile then not. Yoga helps as does walking at night when I cannot sleep because of the RLS. Only get
Hidden
in
Restless Legs Syndrome
13 days ago
iv Iron
hey everyone. I’m in Thailand and I agave access to a hospital that can do the IV iron treatment. I’m excited to try. But can someone walk me through the inns and outs of this? I’m not sure how high to set my bar of expectations and I’m also unclear about the guidelines. What levels should I have and
hey everyone. I’m in Thailand and I agave access to a hospital that can do the IV iron treatment. I’m excited to try. But can someone walk me through the inns and outs of this? I’m not sure how high to set my bar of expectations and I’m also unclear about the guidelines. What levels should I have and
Jrskyhook32
in
Restless Legs Syndrome
13 days ago
Horizant and Gabapentin
My doctor just switched me to Horizant after I have been on Gabapentin 1800 mg for over 20 years. I just recently weaned off Requip. My doctor did not give me any instructions on weaning off Gabapentin,, and I cannot find any information regarding
if, or how
I should do this. I feel like I am
My doctor just switched me to Horizant after I have been on Gabapentin 1800 mg for over 20 years. I just recently weaned off Requip. My doctor did not give me any instructions on weaning off Gabapentin,, and I cannot find any information regarding
if, or how
I should do this. I feel like I am
Littlegran
in
Restless Legs Syndrome
13 days ago
hypothyroidism - problems with GP
Hi all - I’m new to this group and looking for some advice. Sorry in advance for the long post! I was diagnosed with hypothyroidism and diabetes (2) in 2014. I was put on meds for both conditions without any proper guidance or support from my GP practice. I did a lot of research myself and both
Hi all - I’m new to this group and looking for some advice. Sorry in advance for the long post! I was diagnosed with hypothyroidism and diabetes (2) in 2014. I was put on meds for both conditions without any proper guidance or support from my GP practice. I did a lot of research myself and both
Oatlove
in
Thyroid UK
13 days ago
Fatigue has reached a whole other level, after 10.5 years. Scared it’s narcolepsy….
Hello everyone I hope this finds you all as well as you can be. I’m 10.5 years post diagnosis now. Thought I largely had this disease under control. With meds and pacing and life style etc. But my fatigue has been extremely difficult for the last 2 years and recently I’m worried it’s getting more
Hello everyone I hope this finds you all as well as you can be. I’m 10.5 years post diagnosis now. Thought I largely had this disease under control. With meds and pacing and life style etc. But my fatigue has been extremely difficult for the last 2 years and recently I’m worried it’s getting more
Wendy39
in
LUPUS UK
14 days ago
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