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Zometa Tips???
After 12 years of surgery, EBRT, ADT1 and ADT2, chemo, SBRT, and completing 6 doses of Pluvicto my PSA is down to 0.10. Other than dealing with persistent anemia, I'm feeling pretty good!I just learned, however, that my MO wants to start me on Zometa. I won't know the dosage, timing, etc., until the
After 12 years of surgery, EBRT, ADT1 and ADT2, chemo, SBRT, and completing 6 doses of Pluvicto my PSA is down to 0.10. Other than dealing with persistent anemia, I'm feeling pretty good!I just learned, however, that my MO wants to start me on Zometa. I won't know the dosage, timing, etc., until the
Pwjpp55
in
Advanced Prostate Cancer
1 year ago
Bill Bixby's Battle with Prostate Cancer
Bill Bixby, an actor known for his "Incredible Hulk" films and many other achievements, died of prostate cancer November 21,1993, having learned that he had the disease in April of 1991. He died at age 59. Here's his biography: https://www.closerweekly.com/posts/bill-bixby-hulk-star-remembered-by-his-official-biographer
Bill Bixby, an actor known for his "Incredible Hulk" films and many other achievements, died of prostate cancer November 21,1993, having learned that he had the disease in April of 1991. He died at age 59. Here's his biography: https://www.closerweekly.com/posts/bill-bixby-hulk-star-remembered-by-his-official-biographer
NecessarilySo
in
Advanced Prostate Cancer
1 year ago
Chemo update
First chemo today , not as bad as I thought but just waiting to see how I feel in the next two days , I have my tablets so fingers crossed and one day at a time !!!! Still worried and too many thoughts going through my mind just trying to stay positive x
First chemo today , not as bad as I thought but just waiting to see how I feel in the next two days , I have my tablets so fingers crossed and one day at a time !!!! Still worried and too many thoughts going through my mind just trying to stay positive x
Cazy1010
in
My Ovacome
1 year ago
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I have a concern with my ca -125, post op
My ca-125 started out 536, then thru chemo dropped to 219, then 56. Had surgery only dropped to 50. Back on chemo dropped to 19, 3 weeks later and finishing up chemo, only dropped to 15? Has anyone else had a slow decline? I'm done with chemo and having a scan done Monday. I'm a little concerned
My ca-125 started out 536, then thru chemo dropped to 219, then 56. Had surgery only dropped to 50. Back on chemo dropped to 19, 3 weeks later and finishing up chemo, only dropped to 15? Has anyone else had a slow decline? I'm done with chemo and having a scan done Monday. I'm a little concerned
Jacquiemoo
in
My Ovacome
1 year ago
A New Direction
After seven years of fighting this disease with chemo, radiation, ADT, and abiraterone, I suffer from fatigue, nerve damage and paralysis and nerve pain in my left foot from radiation treatment, as well as depression, and a constant feeling of uncertainty. However, I am now free to let go of the life
After seven years of fighting this disease with chemo, radiation, ADT, and abiraterone, I suffer from fatigue, nerve damage and paralysis and nerve pain in my left foot from radiation treatment, as well as depression, and a constant feeling of uncertainty. However, I am now free to let go of the life
dmt1121
in
Advanced Prostate Cancer
1 year ago
Final STAMPEDE results for Abi with/out Enza when starting ADT.
New paper below [1]. "Between Nov 15, 2011, and Jan 17, 2014, 1003 patients were randomly assigned to standard of care (n=502) or standard of care plus abiraterone (n=501) in the abiraterone trial. "Between July 29, 2014, and March 31, 2016, 916 patients were randomly assigned to standard of care
New paper below [1]. "Between Nov 15, 2011, and Jan 17, 2014, 1003 patients were randomly assigned to standard of care (n=502) or standard of care plus abiraterone (n=501) in the abiraterone trial. "Between July 29, 2014, and March 31, 2016, 916 patients were randomly assigned to standard of care
pca2004
in
Fight Prostate Cancer
1 year ago
brain spread
hi ladies, I haven’t posted for ages but check in on you all regularly. My story, urg!! Diagnosed stage 4 in June 2017, removed left ovary and Fallopian tube along with omentum and part of bowel then had six sessions of carbo and taxol then on avastin infusions.. Recovered well but reoccurred 12 months
hi ladies, I haven’t posted for ages but check in on you all regularly. My story, urg!! Diagnosed stage 4 in June 2017, removed left ovary and Fallopian tube along with omentum and part of bowel then had six sessions of carbo and taxol then on avastin infusions.. Recovered well but reoccurred 12 months
Joanie12
in
My Ovacome
1 year ago
UK and abiraterone availability
This may be old news but I just heard that Abi is finally off patent in the UK. This should mean that the NHS will now prescribe for HSPCa. (Currently restricted for this group unless you started it in Covid as alternative when chemo not possible). If it still can't be prescribed via NHS , it will now
This may be old news but I just heard that Abi is finally off patent in the UK. This should mean that the NHS will now prescribe for HSPCa. (Currently restricted for this group unless you started it in Covid as alternative when chemo not possible). If it still can't be prescribed via NHS , it will now
Proflac
in
Advanced Prostate Cancer
1 year ago
lung cancer , dysplasia, and PNI
I had surgery to remove right upper lobe for greater than 3 cm squamous cell lung cancer. Margins were free of invasive cancer but I have high grade dysplasia areas in bronchial margins and also have PNI which is peri neural invasion. They discussed you chemo for this. Anyone else’s have these things
I had surgery to remove right upper lobe for greater than 3 cm squamous cell lung cancer. Margins were free of invasive cancer but I have high grade dysplasia areas in bronchial margins and also have PNI which is peri neural invasion. They discussed you chemo for this. Anyone else’s have these things
Susie215
in
Lung Cancer Support
1 year ago
Breast tenderness and pain
I have swollen breasts (gynecomastia) and now I am having pains at my left breast. In December 2016, I was diagnosed of prostate Cancer. From the onset, I did chemo by Taxo drug for 6 cycles. At the same time I was still taking Xtandi 120 mg every day. My PSA dropped from 117 to 5. The side effects
I have swollen breasts (gynecomastia) and now I am having pains at my left breast. In December 2016, I was diagnosed of prostate Cancer. From the onset, I did chemo by Taxo drug for 6 cycles. At the same time I was still taking Xtandi 120 mg every day. My PSA dropped from 117 to 5. The side effects
kcareer
in
Advanced Prostate Cancer
1 year ago
Confused clear cell concerns
So went for chemo no.4 today, as no. 3 had made me ill with terrible side effects they decided to stop the paclitaxel and just do the carboplatin. White blood cells were low but still ok to go for the carboplatin.My CA125 is now down to 10. Just very scared and confused as clear cell is rare and known
So went for chemo no.4 today, as no. 3 had made me ill with terrible side effects they decided to stop the paclitaxel and just do the carboplatin. White blood cells were low but still ok to go for the carboplatin.My CA125 is now down to 10. Just very scared and confused as clear cell is rare and known
Hidden
in
My Ovacome
1 year ago
Scan results
Long story short, CA125 numbers went up to 446 then came down to 361, had scan last week. Got results today, everything good, doc Happy, Tamoxifen doing it's job keeping it in check. I'm a happy relieved bunny 👯 who's going to plan a holiday to 🎉 celebrate. To everyone out there who is going through
Long story short, CA125 numbers went up to 446 then came down to 361, had scan last week. Got results today, everything good, doc Happy, Tamoxifen doing it's job keeping it in check. I'm a happy relieved bunny 👯 who's going to plan a holiday to 🎉 celebrate. To everyone out there who is going through
A1r1t
in
My Ovacome
1 year ago
lung cancer & phelgm
I was diagnosed with stage 3 in feb. 2021 and proceeded with both chemo and radiation. Wound up with 3 bouts of pneumonitis that was pretty bad. Come late 2022 a scan revealed the cancer was back and growing. I started a tougher chemo regiment with immunotherapy and completed 8 of the 12 treatments
I was diagnosed with stage 3 in feb. 2021 and proceeded with both chemo and radiation. Wound up with 3 bouts of pneumonitis that was pretty bad. Come late 2022 a scan revealed the cancer was back and growing. I started a tougher chemo regiment with immunotherapy and completed 8 of the 12 treatments
Barbara36
in
Lung Cancer Support
1 year ago
New RNA drug may be key to curing ovarian cancer
[i]TAU research team lead Prof. Dan Peer. Photo courtesy of Tel Aviv University[/i] Scientists achieve 80% survival rate in animals using a protein as an alternative to traditional treatments. In what could be a scientific breakthrough, Tel Aviv University researchers recently utilized cytoskeleton-associated
[i]TAU research team lead Prof. Dan Peer. Photo courtesy of Tel Aviv University[/i] Scientists achieve 80% survival rate in animals using a protein as an alternative to traditional treatments. In what could be a scientific breakthrough, Tel Aviv University researchers recently utilized cytoskeleton-associated
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Suggestions Please
Hi,I have clear cell OC can anyone advice best consultant in the UK who specialises in this field. My chemo not responding. TIA X
Hi,I have clear cell OC can anyone advice best consultant in the UK who specialises in this field. My chemo not responding. TIA X
Beoony
in
My Ovacome
1 year ago
PSA stabilizing to 99.30 (from 3103), should we seek additional treatment or wait?
Hello everyone and thank you for this wonderful community for giving me so many resources. My dad was initially diagnosed at a very high PSA of 3103 and he is doing triplet therapy, he is about to take his fifth docetaxel chemo dose and it seems to have stabilized to 99.30. He has bone metastases since
Hello everyone and thank you for this wonderful community for giving me so many resources. My dad was initially diagnosed at a very high PSA of 3103 and he is doing triplet therapy, he is about to take his fifth docetaxel chemo dose and it seems to have stabilized to 99.30. He has bone metastases since
Sissel25
in
Advanced Prostate Cancer
1 year ago
Had my 2nd appt with my Haematologist today
As an update from my earlier post, we are now back in Australia after 3 months in South Africa. This whole platelets thing raised its head about a month before we left. I saw the haematologist 2 days before we left in late Jan. She put me on Aspirin 100mg daily and phoned me 3 weeks later in SA with
As an update from my earlier post, we are now back in Australia after 3 months in South Africa. This whole platelets thing raised its head about a month before we left. I saw the haematologist 2 days before we left in late Jan. She put me on Aspirin 100mg daily and phoned me 3 weeks later in SA with
Pachena
in
MPN Voice
1 year ago
Chemo mucositis?
After chemo session #5 I thought I had bronchitis; coughing up very thick mucus from down deep in the chest, but it cleared up in about 10 days, and is back again after chemo #6, so I'm guessing it's chemo induced mucositis. Anyone have tips for dealing with this beyond salt/baking-soda mouth washes
After chemo session #5 I thought I had bronchitis; coughing up very thick mucus from down deep in the chest, but it cleared up in about 10 days, and is back again after chemo #6, so I'm guessing it's chemo induced mucositis. Anyone have tips for dealing with this beyond salt/baking-soda mouth washes
Gl448
in
Advanced Prostate Cancer
1 year ago
Enzalutamide plus leuprolide reduces risk of metastasis in nonmetastatic HSPC men-from Urology Times, 29 Apr 2023
Findings from the phase 3 EMBARK trial showed that enzalutamide (Xtandi) plus leuprolide reduced the risk of metastasis or death by nearly 60% vs placebo plus leuprolide in patients with nonmetastatic hormone-sensitive prostate cancer (nmHSPC) with high-risk biochemical recurrence (BCR).1,2 "The
Findings from the phase 3 EMBARK trial showed that enzalutamide (Xtandi) plus leuprolide reduced the risk of metastasis or death by nearly 60% vs placebo plus leuprolide in patients with nonmetastatic hormone-sensitive prostate cancer (nmHSPC) with high-risk biochemical recurrence (BCR).1,2 "The
Balsam01
in
Advanced Prostate Cancer
1 year ago
Hydroxy & blurry vision
PV Jak2 positive d/x in 2004. Regular venous sections for approx 7 yrs then veins did a Houdini act so was put on Hydroxy and we’ve been daily companions ever since. I experience extreme fatigue….asleep by 9pm and awake at 7am so 10hrs is my norm….I’m really not good fun at parties. Latest stuff going
PV Jak2 positive d/x in 2004. Regular venous sections for approx 7 yrs then veins did a Houdini act so was put on Hydroxy and we’ve been daily companions ever since. I experience extreme fatigue….asleep by 9pm and awake at 7am so 10hrs is my norm….I’m really not good fun at parties. Latest stuff going
Polly-PV
in
MPN Voice
1 year ago
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