After 3 o/clock

[mag123ben]

Such hassle , chemist can't get prescription, even though I was told on Monday to get them from chemist. Rang surgery,Secretary had me in tears, said I never gave them hospital letter given them in December . No wonder it wasn't on my notes. My daughter rang hospital, spoke chemo department and they are giving me a prescription for the hospital chemist. We're thinking of reporting this latest catastrophe as if I had taken new iron tablets the whole thing would have sent my blood through the roof. I'm not happy at all.

[Cat1001954]

so sorry I get my drugs from hospital as gp does not provide only hospital

[Rem31]

It sounds like you are having a horrible time.

I don’t know if this will help but it’s my understanding that unless a GP accepts responsibility for the safe prescribing of Hydroxy for a haematology patient then it’s not possible for a GP to prescribe it.

If the GP is willing to accept that responsibility then a formal Shared Care agreement between haematology and the GP needs to be put in place.

My repeat Hydroxy prescriptions are issued by my GP but only because I asked for a Shared Care agreement and my GP was happy to prescribe it. My haematology team say many GPs are reluctant and will not take on the responsibility for Hydroxy prescriptions.

[ChillyAsh34 in reply to Rem31]

My repeat comes from hospital my GP was willing but I said I would leave it with haemtology they put prescription in post local chemist actions it

[gilded]

Yes, report all those incompetents and also complain to Senior Partner of GP surgery. 6 GP partners at my GP surgery none of whom work more than 2 days a week and only 1 who is worth seeing.

[drakelet]

I've asked about getting my hydroxycarbamide from a local pharmacy, as it'd be a lot more convenient for me, but I was told it can't be dispensed by a high street pharmacist, I have to go to a hospital pharmacy for it.

[lizzziep]

There’s a note on my prescription list that the Rux is provided by hospital only. Half the time they haven’t got it and I have to go back another day. I’ve learned to check the bag they give me when I collect it as three times it’s been wrong. My doctor prescribes a few too many so if they haven’t got it I don’t run out. The hospital pharmacy hasn’t grown with the hospital and has difficulty coping with the amount of prescriptions, plus they’re always short staffed.

[ciye]

My heamo sent initial prescription through to gp and it's through them I get my tablets. I would complain about both hospital.

[Gaithersburg]

I would report this to the PALS Department of the hospital to stop this happening again. Really feel for you as it's horrible when no-one understands the importance of our medication and how stressful it is when you can't get it. I had a bad time collecting my Anagrelide from the hospital pharmacy and dreaded going there as the pharmacist kept asking if I needed 3 months worth and did I know how expensive it was - really upsetting and in front of the other patients. Eventually my haematologist has arranged for this to be sent to a large Boots which receives other hospital prescribed medications and I can collect it there - phew! Hope things get better for you.

[Little-friend-Susan]

My hydroxy is dispensed by my local pharmacy on a prescription from the hospital after my appointment. It’s changes according to the haem. results.

[clematis26]

So sorry to read this - had a similar situation today - dismissed by cold and clinical receptionist...thought they were here to help....

[Devilgirl]

My hydroxy is dispensed by the hospital pharmacy after each haematology appointment so I get 3 months at a time as it can't be done at local pharmacy. The hospital is quite a distance away so they transfer the meds to the local community hospital for me to pick up.

[Exeter21]

yes I always have to get from hospital as my surgery not allowed to prescribe mine either. Ordered always by Haemotology . Julia . UK 👌