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New meds.
Thanks for all the comments in my previous post. I'm speaking to the doctor in the UK on Friday. Gabapentin or Pregablin is suggested by many of you which I now know are pain killers. I wouldn't say I'm in pain just discomfort that stops me sleeping. Is it still right to ask for these. In the UK dopamine
Thanks for all the comments in my previous post. I'm speaking to the doctor in the UK on Friday. Gabapentin or Pregablin is suggested by many of you which I now know are pain killers. I wouldn't say I'm in pain just discomfort that stops me sleeping. Is it still right to ask for these. In the UK dopamine
SimonMorriss
in
Restless Legs Syndrome
2 years ago
Maybe now the cruelty can stop
The U.S. CDC, doctors and organizations who, directly or indirectly, inhumanely reduced and/or cut people off from opioids for pain or RLS now have a chance to redeem their cruel decisions based on new CDC guidelines (link below) released 11/03/22. It can be shown that the medical community’s response
The U.S. CDC, doctors and organizations who, directly or indirectly, inhumanely reduced and/or cut people off from opioids for pain or RLS now have a chance to redeem their cruel decisions based on new CDC guidelines (link below) released 11/03/22. It can be shown that the medical community’s response
ircam2112
in
Restless Legs Syndrome
2 years ago
Silly Mistake
Hi, I’ve been gradually reducing my preds, was down to 6mg, decided to try 5.5, after being on 6 for about a month. All was going well, I tend to take my dose along with a nerve painkiller around 5/6am. I had mistakenly put a one in my box, instead of a five, which I only noticed after two nights.
Hi, I’ve been gradually reducing my preds, was down to 6mg, decided to try 5.5, after being on 6 for about a month. All was going well, I tend to take my dose along with a nerve painkiller around 5/6am. I had mistakenly put a one in my box, instead of a five, which I only noticed after two nights.
Carathedog
in
PMRGCAuk
2 years ago
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Fed up with not sleeping
I feel like my brain is foggy at work and I haven't had a proper nights sleep for five months, on top of the endo I have an inflamed jaw and pain in my ear I am concerned about my hearing, I just feel broken. I know if I was getting proper sleep my brain is much faster. I can't go on like this took maximum
I feel like my brain is foggy at work and I haven't had a proper nights sleep for five months, on top of the endo I have an inflamed jaw and pain in my ear I am concerned about my hearing, I just feel broken. I know if I was getting proper sleep my brain is much faster. I can't go on like this took maximum
Hidden
in
Endometriosis UK
2 years ago
What to do!
Undiagnosed but all symtoms of end saw endo speacalist private and on his nhs list for lap, told likely Jan 2023.I had implant for 12 years and barely had periods or symtoms during this time. Had it out 6 months thats when everything came to light. Had the implant put back in hoping it wpuld ease symptoms
Undiagnosed but all symtoms of end saw endo speacalist private and on his nhs list for lap, told likely Jan 2023.I had implant for 12 years and barely had periods or symtoms during this time. Had it out 6 months thats when everything came to light. Had the implant put back in hoping it wpuld ease symptoms
Crazycatladyjones
in
Endometriosis UK
2 years ago
sleep problems and pain
hi has anyone got tips on dealing with sleep i feel like my fibro pain flares up at night time i take strong pain killers but dont allways work now been given melatonin to try just wonderd if anyone else had some yips its hard work be in up half night then cant do much in the day also feels like
hi has anyone got tips on dealing with sleep i feel like my fibro pain flares up at night time i take strong pain killers but dont allways work now been given melatonin to try just wonderd if anyone else had some yips its hard work be in up half night then cant do much in the day also feels like
JDiva93
in
Fibromyalgia Action UK
2 years ago
Very bad back pain at 25. help?
i began getting bad upper back neck and shoulder pain on 18th september 2022 suddenly, which gradually became worse and worse so i went to see a chiropractor. after my first session i feel it really helped but then after my second it all went down hill again. i have stopped going now after 5 sessions
i began getting bad upper back neck and shoulder pain on 18th september 2022 suddenly, which gradually became worse and worse so i went to see a chiropractor. after my first session i feel it really helped but then after my second it all went down hill again. i have stopped going now after 5 sessions
Amywoodx
in
Fibromyalgia Action UK
2 years ago
Recovery from laparoscopic removal of Stage 4 Endo - bowel surgery - removal of ovarian cyst.
Hi guys, Please sorry to pop up again . I’ve just had my stage 4 endo surgery which affected my bowel which was worked on and I had ovarian cysts taken out as well. today makes it one week. Recovery seems like hell for me especially the past few days. peeing is my worst nightmare, extremely painful
Hi guys, Please sorry to pop up again . I’ve just had my stage 4 endo surgery which affected my bowel which was worked on and I had ovarian cysts taken out as well. today makes it one week. Recovery seems like hell for me especially the past few days. peeing is my worst nightmare, extremely painful
Micasmum
in
Endometriosis UK
2 years ago
New here - Advice for talking to GP - could it be endometriosis? Painful periods, irregular bleeding, bowel & fertility issues
Hi everyone, I've never spoken with a GP specifically about endometriosis, but after speaking with a few people I have been wondering if it could be. I have been multiple times to GP about issues relating to menstruation (pain, irregular bleeding/spotting), bowel issues, and fertility as have been
Hi everyone, I've never spoken with a GP specifically about endometriosis, but after speaking with a few people I have been wondering if it could be. I have been multiple times to GP about issues relating to menstruation (pain, irregular bleeding/spotting), bowel issues, and fertility as have been
birdnerd
in
Endometriosis UK
2 years ago
flare up big style ,
i came off tachrolimus months back as migraine and headaches and tinnitus was bad. I was put on iberofen tabs and stayed on prednisolone. The ibuprofen didnt work so went back on tachrolimus and went on co codamol. Had phone call at my 70th party!! My liver results high so stop all meds. Apart frm
i came off tachrolimus months back as migraine and headaches and tinnitus was bad. I was put on iberofen tabs and stayed on prednisolone. The ibuprofen didnt work so went back on tachrolimus and went on co codamol. Had phone call at my 70th party!! My liver results high so stop all meds. Apart frm
Seashoreshanty
in
NRAS
2 years ago
Celecoxib / Celebrex
Does anyone have experience with taking Celebrex longer term? I've found it seems to do a great job of controlling inflammation for me. I'm wondering how long I might be allowed to take it. A question for my doc of course, but my next appt is a month away so I thought I would turn to the seasoned
Does anyone have experience with taking Celebrex longer term? I've found it seems to do a great job of controlling inflammation for me. I'm wondering how long I might be allowed to take it. A question for my doc of course, but my next appt is a month away so I thought I would turn to the seasoned
CeeY
in
NRAS
2 years ago
constant pain lower abdomen lower back and now mid thigh
hello ladies I have been diagnosed with endometriosis since 2013. I have been given danazol for six months and then after my daughter two years of yaz(combined oral contraceptive pill). Then I had to stop yaz as I was having some adverse effects. Now it’s been a year I’m off yaz but the pain is terrible
hello ladies I have been diagnosed with endometriosis since 2013. I have been given danazol for six months and then after my daughter two years of yaz(combined oral contraceptive pill). Then I had to stop yaz as I was having some adverse effects. Now it’s been a year I’m off yaz but the pain is terrible
Lovedsibling
in
Endometriosis UK
2 years ago
Cyst and possible rupture
Sorry a bit of a rant but i need to release it. I was diagnosed with endo 7 years ago following a cyst removal (although looking back, I had been suffering a lot longer). I have not been seen by gynea since. Around may this year I was sent for an ultrasound after repeatedly reporting an increase in
Sorry a bit of a rant but i need to release it. I was diagnosed with endo 7 years ago following a cyst removal (although looking back, I had been suffering a lot longer). I have not been seen by gynea since. Around may this year I was sent for an ultrasound after repeatedly reporting an increase in
Emilily
in
Endometriosis UK
2 years ago
unblocking the unlockable a bit crude but needs saying
i should imagine there's a lot in my position with going to loo with all the painkillers we take well i have come with design of the year for this if you have shower i used longer hose and old type shower head so i only have to change that and then use to UNBLOCK well i am lucky as toilet next to
i should imagine there's a lot in my position with going to loo with all the painkillers we take well i have come with design of the year for this if you have shower i used longer hose and old type shower head so i only have to change that and then use to UNBLOCK well i am lucky as toilet next to
pauluk60
in
NRAS
2 years ago
diagnosis help!!!
hi! I had my first specialist appointment recently and had another set of ultrasounds, and visual checks. They can not see anything visually wrong but mentioned the possibility of it being endometriosis due to symptoms but will not confirm this. Apparently the op (lap…) could make things worse? Due
hi! I had my first specialist appointment recently and had another set of ultrasounds, and visual checks. They can not see anything visually wrong but mentioned the possibility of it being endometriosis due to symptoms but will not confirm this. Apparently the op (lap…) could make things worse? Due
Frankie212
in
Endometriosis UK
2 years ago
Chemo side effects and opioid intolerance
Hi all. This is my first post. I was diagnosed with Stage 4 ovarian cancer in September and have just had my first chemo. I have had chronic pains in my legs that normal painkillers haven't touched. I'm opioid intolerant but took codeine an hour after metoclopramide hoping this would work but sadly
Hi all. This is my first post. I was diagnosed with Stage 4 ovarian cancer in September and have just had my first chemo. I have had chronic pains in my legs that normal painkillers haven't touched. I'm opioid intolerant but took codeine an hour after metoclopramide hoping this would work but sadly
Demelzatheseagull
in
My Ovacome
2 years ago
Can we use paracetamol for menstrual cramps???
Hi All , last year I had laproscopy surgery for my endometriosis and removal of cyst . Before surgery whenever I'm in pain I used to manage without painkiller but after surgery now I'm getting lower back pain and I'm taking paracetamol for pain relief.Is it safe to use paracetamol for period pain and
Hi All , last year I had laproscopy surgery for my endometriosis and removal of cyst . Before surgery whenever I'm in pain I used to manage without painkiller but after surgery now I'm getting lower back pain and I'm taking paracetamol for pain relief.Is it safe to use paracetamol for period pain and
Chotu5
in
Endometriosis UK
2 years ago
been to see the gp
saw the gp who said it’s vulvodinia. I’ve never heard of that problem before. But reading up on it sounds like just the kind of pain I have. Nothing can be done. Just painkillers. Todays been awful 😢
saw the gp who said it’s vulvodinia. I’ve never heard of that problem before. But reading up on it sounds like just the kind of pain I have. Nothing can be done. Just painkillers. Todays been awful 😢
Junny123
in
Pain Concern
2 years ago
so much pain.
I am in so much pain that I just don’t know what to do with myself. The pain is across the bottom of my back and stretching down into my hip has to be the worst I have ever had. I have just come home from hospital after 2weeks & the doctors said there is nothing more they can do for me except for painkillers
I am in so much pain that I just don’t know what to do with myself. The pain is across the bottom of my back and stretching down into my hip has to be the worst I have ever had. I have just come home from hospital after 2weeks & the doctors said there is nothing more they can do for me except for painkillers
Hidden
in
NRAS
2 years ago
tight muscles
anyone suffer from tight abdominal, rectum, buttock and inner thigh / hamstring muscles? I have previously managed these on the assumption that it is pelvic floor dysfunction. Whilst the relevant exercises seemed to hold the pain and discomfort at bay for a while and enable bowel movements to relieve
anyone suffer from tight abdominal, rectum, buttock and inner thigh / hamstring muscles? I have previously managed these on the assumption that it is pelvic floor dysfunction. Whilst the relevant exercises seemed to hold the pain and discomfort at bay for a while and enable bowel movements to relieve
Plumt
in
IBS Network
2 years ago
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