What to do!

[Crazycatladyjones]

Undiagnosed but all symtoms of end saw endo speacalist private and on his nhs list for lap, told likely Jan 2023.I had implant for 12 years and barely had periods or symtoms during this time. Had it out 6 months thats when everything came to light. Had the implant put back in hoping it wpuld ease symptoms has a bit but not like at all how it was before. And im bleeding irregular this time and when it happens its badddddddddddd. Even light bleeding is causing the most hurredous pains. I dont know what to do as painkillers arnt helping much and I cant tske anything too strong because of work am desprate to carry on

What could be an option? Im reasing about injections to stop everything but then is that then like going to menopause? Its horrifying to think off but then so is this pain.

I really dont like idea of coil and I thoight yhught that and implant worked same way?

I just dnt know what to do to help while Im waiting for lap

Advice please thanks all xxxxxx

[Lindle]

Have you had an expert scan as a lap is no longer the first step in diagnosis?

[Crazycatladyjones in reply to Lindle]

NoI asked about an MRI but he said that they can be a waste of time as he said getting inside and doing lap is the best way. I know Ive read some people have had them but i also feel like some do them to just bring down the waiting lists of laps.

[Lindle in reply to Crazycatladyjones]

It isn't the case that a scan is a waste of time and it is now a requirement that one is done before a lap. We are moving away from invasive diagnostic methods as imaging has come a long way and continues to advance.

A lap can only see within the peritoneal space whereas an expert scan can see beneath and identify deep endo. It is well recognised that being on the pill for years can mask symptoms and lead to deep endo down the line. If he goes in and finds deep endo he wouldn't be able to do anything and would have to come out and refer you to a specialist endo centre so you would have had an unnecessary invasive procedure.

It is important that a scan is done by an appropriate expert in imaging, so correct endo specific MRI protocol or a transvaginal ultrasound by someone trained in looking for deep endo. Ultrasound is best for rectovaginal endo.

You might want to check out the new ESHRE guideline that confirms that a lap is no longer the gold standard for diagnosis. I do wonder if private surgeons ignoring this (especially if there are symptoms of deep endo which I don't know if you have) might be financially motivated.