New meds.

[SimonMorriss]

Thanks for all the comments in my previous post. I'm speaking to the doctor in the UK on Friday.

Gabapentin or Pregablin is suggested by many of you which I now know are pain killers.

I wouldn't say I'm in pain just discomfort that stops me sleeping. Is it still right to ask for these. In the UK dopamine antagonists are still a primary treatment.

Thanks in advance.

[SueJohnson]

Yes - they are more than pain killers. They are used to control RLS. Have you read the Mayo Clinic Updated Algorithm on RLS?

[Johan10]

Personally I'd ask to try Gabapentin. My brief experience on Ropinirole wasn't good and as you've picked up, some negatively about the use of DAs The minimum dose seems to be helping me.

I don't know why they prescribe 300 mg at 100mg 3 times during the day. You need it all in the evening?

[SiannaRae]

I take Gabapentin 300 mg but I’m older so small doses are best. I take a pill mid day and two at bedtime. I also take .25 ropinirole at bedtime, which is so small it is unlikely to cause augmentation. This combination of Gabapentin and small ropinirole let’s me sleep for 8 hours. I have discomfort during the day which I manage with exercise and activities that help distract me.

[SueJohnson in reply to SiannaRae]

Why not increase your gabapentin during the day to 600 mg?

[SiannaRae in reply to SueJohnson]

I may need to do that but more Gabapentin makes me a bit unsteady and I’m afraid it will cause me to fall. I’m 83 and still very active with golf and pickle ball so I’m trying to get by without taking meds

[SueJohnson in reply to SiannaRae]

Understood.

[caracalla]

I have taken gabapentin for many years as suggested by a neurologist in UK.

I also take ropinirole and the two combined keep this difficult condition under control - most of the time.