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Richter’s Transformation - Update 27-01-2021
I share the case of a boy who is in our Ricther Transformation group. He went from entering Palliative to complete remission without transplantation. I wanted to share an update as I reached remission in a very unexpectedly and to me almost miraculous way. I have in a way been conducting a “N of 1 trial
I share the case of a boy who is in our Ricther Transformation group. He went from entering Palliative to complete remission without transplantation. I wanted to share an update as I reached remission in a very unexpectedly and to me almost miraculous way. I have in a way been conducting a “N of 1 trial
Priss69
in
CLL Support
3 years ago
New negative pressure ventilator requiring fewer staffing resources developed in fight against COVID-19.
Staffing requirements for the new system would be typically much lower than for today's typical
intensive
care
unit ventilators, and lower than other non-
intensive
positive pressure systems for the equivalent severity of illness. https://www.sciencecodex.com/new-negative-pressure-ventilator-requiring-fewer-staffing-resources-developed-fight-against-covid
Staffing requirements for the new system would be typically much lower than for today's typical
intensive
care
unit ventilators, and lower than other non-
intensive
positive pressure systems for the equivalent severity of illness. https://www.sciencecodex.com/new-negative-pressure-ventilator-requiring-fewer-staffing-resources-developed-fight-against-covid
2greys
in
Lung Conditions Community Forum
4 years ago
Trying to decide if I will continue ADT after 9 months.
Haven’t posted for some time so I’ll start from the beginning. Had PSA of 6.09 May of 2018. Rose to 8.93 May of 2019. Had biopsy which showed 3+3 Gleason grade group 1 in 8 of 12 cores, no evidence of lymph or seminal invasion. Perineural invasion noted. Did active surveillance until May 2020. PSA at
Haven’t posted for some time so I’ll start from the beginning. Had PSA of 6.09 May of 2018. Rose to 8.93 May of 2019. Had biopsy which showed 3+3 Gleason grade group 1 in 8 of 12 cores, no evidence of lymph or seminal invasion. Perineural invasion noted. Did active surveillance until May 2020. PSA at
Ernbud
in
Prostate Cancer Network
3 years ago
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My "N of 1" trial with Ibrutinib + Idelalisib + Venetoclax that lead to remission of Richter's in three weeks.
I wanted to share an update as my “[i]N of 1 trial[/i]” have so far been a success for me. I reached remission in a very unexpectedly and to me almost miraculous way when
combining Ibrutinib + Idelalisib + Venetoclax
. My disease have proven resistant to all these when they where used separately
I wanted to share an update as my “[i]N of 1 trial[/i]” have so far been a success for me. I reached remission in a very unexpectedly and to me almost miraculous way when
combining Ibrutinib + Idelalisib + Venetoclax
. My disease have proven resistant to all these when they where used separately
UniversallyPersonal
in
CLL Support
3 years ago
Covid: Genes hold clues to why some people get severely ill.
"Vaccines should drastically decrease the numbers of covid cases, but it's likely doctors will still be treating the disease in
intensive
care
for a number of years around the world, so there is an urgent need to find new treatments." https://www.bbc.co.uk/news/health-54832563
"Vaccines should drastically decrease the numbers of covid cases, but it's likely doctors will still be treating the disease in
intensive
care
for a number of years around the world, so there is an urgent need to find new treatments." https://www.bbc.co.uk/news/health-54832563
2greys
in
Lung Conditions Community Forum
4 years ago
It’s been a week post Lu 177 #1
I received several private messages to see how I am faring after my first Lu 177 infusion so I thought I would update. It has been 8 days and to be honest I continue to decline. My mobility has been reduced to being able to limp between the bathroom and bed. My pain in still out of control but the
I received several private messages to see how I am faring after my first Lu 177 infusion so I thought I would update. It has been 8 days and to be honest I continue to decline. My mobility has been reduced to being able to limp between the bathroom and bed. My pain in still out of control but the
Cleodman
in
Advanced Prostate Cancer
3 years ago
Once Upon A Time Pt. Five
The
intensive
care
unit. There I had the clothes ripped from my body by staff. Punched. Kicked in the face with cleats for not making good grades, choked and beaten in a labor camp-military fashion for all social infractions. For spitting ont eh concrete ad not the grass.
The
intensive
care
unit. There I had the clothes ripped from my body by staff. Punched. Kicked in the face with cleats for not making good grades, choked and beaten in a labor camp-military fashion for all social infractions. For spitting ont eh concrete ad not the grass.
Yaakov2000BC
in
CHADD's Adult ADHD Support
3 years ago
I'm new here, High Decipher Score still good for SBRT
Hi, appreciate all the info here. This is my initial post, I'm 64, biopsy in Feb. 2021 shows 5 of 12 cores with PC, 3 with Gleason 6 and 2 with Gleason 7 (3+4). PSA is 5.7, up from 4.6 last year. My Urologist said it looks confined in prostate based on MRI and he considers it intermediate risk.
Hi, appreciate all the info here. This is my initial post, I'm 64, biopsy in Feb. 2021 shows 5 of 12 cores with PC, 3 with Gleason 6 and 2 with Gleason 7 (3+4). PSA is 5.7, up from 4.6 last year. My Urologist said it looks confined in prostate based on MRI and he considers it intermediate risk.
JDL_Coffee
in
Prostate Cancer Network
3 years ago
Stopping Xtandi due to Neuropathy
My profile shows my detailed history. Diagnosed 2/2020 aPCA, mets on pelvis bone and one lymph node, I’ve been on Eligard and Xtandi since then. I developed numbness in toes a month or so after starting my treatment. I had read Xtandi can cause the numbness so wasn’t concerned since it was mild. In the
My profile shows my detailed history. Diagnosed 2/2020 aPCA, mets on pelvis bone and one lymph node, I’ve been on Eligard and Xtandi since then. I developed numbness in toes a month or so after starting my treatment. I had read Xtandi can cause the numbness so wasn’t concerned since it was mild. In the
Atlpapa
in
Advanced Prostate Cancer
3 years ago
Working with Decompensated Cirrohsis
My mum was diagnosed in May last year, after a 7 week stay in hospital (ascites, heart attack, brief stay in
Intensive
Care
) she was discharged. She has had a further 3 hospitalizations since then, one of which was life threatening (burst varicies).
My mum was diagnosed in May last year, after a 7 week stay in hospital (ascites, heart attack, brief stay in
Intensive
Care
) she was discharged. She has had a further 3 hospitalizations since then, one of which was life threatening (burst varicies).
AlexJ91
in
British Liver Trust
4 years ago
Experiences of psychiatric intensive care units
That led to me being admitted to a psychiatric
intensive
care
unit in London, Beckton. So I have some vague memories of that time... Last night while all this played on my mind I looked into Beckton and looked at pictures of it. I'm not sure why now?
That led to me being admitted to a psychiatric
intensive
care
unit in London, Beckton. So I have some vague memories of that time... Last night while all this played on my mind I looked into Beckton and looked at pictures of it. I'm not sure why now?
Marshman
in
Action on Postpartum Psychosis
4 years ago
Thank you to ICU staff
Can you help ICUsteps give
intensive
care
staff a message to boost morale? Follow this link to add a message of thanks:- bit.ly/thank-you-ICU
Can you help ICUsteps give
intensive
care
staff a message to boost morale? Follow this link to add a message of thanks:- bit.ly/thank-you-ICU
Rhyl1
Administrator
in
ICUsteps
4 years ago
Quest for Lu 177 therapy 3.0
Hello everyone. My wife and I made it to Windsor, England this morning. Tomorrow we head to Oxford for my first PSMA PET CT. I hope that thing lights up fiercely or this will be a very sad and disappointing trip indeed. The trip was rough but we are glad we paid those insane fees for first class.
Hello everyone. My wife and I made it to Windsor, England this morning. Tomorrow we head to Oxford for my first PSMA PET CT. I hope that thing lights up fiercely or this will be a very sad and disappointing trip indeed. The trip was rough but we are glad we paid those insane fees for first class.
Cleodman
in
Advanced Prostate Cancer
4 years ago
Palliative care
I have stage 4 nsclc diagnosed in March 2020. Over last 6 weeks have been in hospital 3 times and am in at the moment. Been told no further treatment and palliative care team have been to see me. Devastated that I have not even had a year, now have to prepare for the end
I have stage 4 nsclc diagnosed in March 2020. Over last 6 weeks have been in hospital 3 times and am in at the moment. Been told no further treatment and palliative care team have been to see me. Devastated that I have not even had a year, now have to prepare for the end
Debs0768
in
The Roy Castle Lung Cancer Foundation
4 years ago
Friend dies in COVID-19
Trouble is this last year because I have been very poorly we have been guilty of ignoring her phone calls with me in
intensive
care
three times this year she has had enough on her plate, but we both feel for Annie because she couldn’t get the help she needed.
Trouble is this last year because I have been very poorly we have been guilty of ignoring her phone calls with me in
intensive
care
three times this year she has had enough on her plate, but we both feel for Annie because she couldn’t get the help she needed.
Dogbot
in
British Liver Trust
4 years ago
Finished radiation
45 treatments. IMRT. Not much in the way of side effects. Bit of an occasional mild burning sensation during urination. The hardest part was hitting the facility with a full bladder and an empty rectum at 11:00 am every day. I'll get PSA and testosterone test in a couple of weeks.
45 treatments. IMRT. Not much in the way of side effects. Bit of an occasional mild burning sensation during urination. The hardest part was hitting the facility with a full bladder and an empty rectum at 11:00 am every day. I'll get PSA and testosterone test in a couple of weeks.
dixiedad
in
Prostate Cancer Network
3 years ago
Fiducial markers or not withSpaceOar undergoing moderately hypofractionated IMRT image guided using surface ultrasound fused with a ct scan?
Fiducial markers
Fiducial markers
RP__
in
Advanced Prostate Cancer
3 years ago
14 of 16 severe COVID patients in trial recover with experimental Israeli drug2 cases remain in critical condition 28 days after receiving
Two of the patients, who were critical cases at the start of the trial when they received the company’s Allocetra treatment, were still in
intensive
care
and on ventilators at the end of the trial.
Two of the patients, who were critical cases at the start of the trial when they received the company’s Allocetra treatment, were still in
intensive
care
and on ventilators at the end of the trial.
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
3 years ago
“Effect of calcifediol treatment and best available therapy versus best available therapy on intensive care unit admission and mortality...
•Early calcifediol (25-hydroxyvitamin D) treatment to hospitalized COVID-19 patients significantly reduced
intensive
care
unit admissions-Calcifediol seems to be able to reduce severity of the COVID-19.
•Early calcifediol (25-hydroxyvitamin D) treatment to hospitalized COVID-19 patients significantly reduced
intensive
care
unit admissions-Calcifediol seems to be able to reduce severity of the COVID-19.
LAJ12345
in
Cure Parkinson's
4 years ago
Stage 4 initial recommendation Docetaxel and ADT
MD Anderson recommends docetaxel and ADT with primary site radiation after. I see there's some data of maintaining better control with early chemo, but wanted to know if anyone else has experienced it. My urologist recommended ADT and IMRT to all sites. I'm inclined to have more faith in MD Anderson
MD Anderson recommends docetaxel and ADT with primary site radiation after. I see there's some data of maintaining better control with early chemo, but wanted to know if anyone else has experienced it. My urologist recommended ADT and IMRT to all sites. I'm inclined to have more faith in MD Anderson
Vangogh1961
in
Advanced Prostate Cancer
3 years ago
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